Category Archives: Paris

Friday 12th January 2024 – IT WON’T BE …

… doing my head in tonight anyway, this bluetooth tethering. Believe it or not, I’m back home at last.

Carefully avoiding a Golden Earring cliché,
"Home on a kite we fly,
Home on a breeze we blow
Eyeing the folks below and
Watching everybody run,
Each one heading for a different place
Watching everybody hide,
Each behind a different face

Forever forever your lamp will burn
Forever home forever would that you’d learn
That you came with nothing
So with nothing you’ll return"

And that’s truer than you might think too – except that I came home in a taxi, flying along with the speed limiter set at 133 kph, stopping just for a coffee at the half-way point and slowing down just for the heavy traffic on the prif at Caen.

We weren’t even held up, not even for a minute, in Paris. It was straight through the traffic and onto the prif there too. First time that I’ve ever had a journey like that.

And in case you are wondering, I wasn’t discharged from the hospital, I was expelled. And I heard at least one nurse say "if he comes back, I’m leaving".

But to be serious … "for once" – ed … I’m glad that I left today because we had a change of crew this morning and those miserable bar stewards who seem to hate me so much were back on duty.

There had been a few rumours flying around starting yesterday evening that I’d be leaving today and this morning, almost everyone for sure, even the cleaning supervisor who came to check the room over, seemed absolutely convinced, except for one person who hadn’t been told. Of course.

Soon enough I found out when the doctor came to hand me my leaving papers.

"Someone had better ‘phone my taxi" I said. "It’s 4.5 hours to come here"
"Don’t worry about your taxi" she said. "He’s already been called. He’ll be here at 13:30."

Definitely expelled.

Just enough time for me to have a shower, transcribe the dictaphone notes and pack my things.

The shower was nice and lovely, but I didn’t wash my clothes. Then I had a listen to the dictaphone to find out where I’d been during the night.

I was at a schoolkids’ end-of-year concert last night. It was a concert with a difference because they had one of these horse-racing games and they were all gambling on the horses. Then there was a kind-of gold-mining competition with kids having to report on what they mined, and a whole variety of other things including my middle sister parading up and down dressed as someone so much older. As the event drew to a close I walked up the hill from where this event was taking place. It was in a kind-of mountainous forest that you’d find in the Alps, with loads of fir trees all around. Several clumps of fir trees that I’d recognised from previous years had been cut down. While I was waiting for my sister I noticed a couple of lorries on the road going past.

A little later I was attending a few classes at night school. I had to go to these classes but the subjects were extremely complicated and way over my head. In the end I ended up abandoning them. It was so real going to these night school classes that I really thought that at one stage in my life I’d actually done this and gone to these classes for a short while before abandoning the subjects.

And then I was at a party last night being given by a woman whom I knew from the Auvergne whose boyfriend had very recently left her. We were all having a really good time which surprised me because I didn’t usually socialise very much. Then it came to quite late. She began to talk about the sleeping arrangements – “so-and-so and someone else would sleep here”. There was a variety of single people so she asked “who wants to sleep with me?”. There was a long pause for several seconds that seemed like a lifetime so I said “yes, I will”. She replied “right, that’s settled. So-and-so and someone else would sleep in the other bedroom and the rest of you can sort yourselves out”. Someone asked for a receipt to show that they had slept separately. I couldn’t believe my luck that no-one else had actually said anything and we’d waited for a good couple of seconds. I thought “this isn’t like me, is it?”.

So what’s this all about? Me getting the girl! Imagine that!

After that I was in a really interesting dream about trying to take an oil filter off a car. There were 2 of us doing it and we were there for hours. The reason why we couldn’t take it off was that I was undoing the wrong bolt. But as this dream went on and on the flaming alarm on this blasted machine by the bedside began to go off and awoke everyone in the hospital

And that’s typical, isn’t it? There I was having a good night’s sleep and not even coupled up to the perfusion machine and its alarm goes off. The only surprise is that it didn’t go off just as I was about to get the girl. That’s what usually happens.

But not to worry. There’s usually half an hour between saying “yes” and going to bed. Still plenty of time there for me to pull defeat from the jaws of victory as usual.

Later on the whole family was having a competition to see how many interesting things one could find abandoned in the street and bring home. I was doing something near a school and someone mentioned a computer so I went to have a look. It was the old-type computer with keyboards for opening up this and opening up that etc. But it was 16GB and I couldn’t believe it. Someone said that there was something jammed inside so it had been thrown into a corner. A couple of people had taken bits off it so it had been abandoned. I went to have a look and sure enough I couldn’t work the keys to operate this particular drawer thing. But all the memory was complete on it and the processor was a powerful one so I thought “I’ll take this home”.

In the meantime there were some signings going on at the local football club. It signed two full-backs who turned out actually to play centre-half. The original two centre-halves a couple of days later left. The story was that they were both keen on some other player’s wife and he’d had words about it and they’d had to depart as the club signed two centre halves

Finally, the issue came about this gold Ford Granada MkI covered in dust that no-one could start. I was sure that I could so I went to have a look at it. It was on sale at £370 which I thought was a bargain for this vehicle. It was covered in dust as if it had been in a barn for a while. The story was that they couldn’t lift up the bonnet. That wasn’t anything that was going to defeat me. I went to have a good look at it with the correct kind of tools to lift up the bonnet when someone with an amazing booming voice shouted out something in the hospital right outside my door and I awoke

And when I awoke, it was 07:47 and I must have had the deepest sleep that I’d ever had. And the hospital was like the Mary Celeste – there wasn’t a soul about. No-one rushing about pushing trolleys and the like. That was what made me realise that it was the miserable team of je m’en foutistes.

Je m’en fous is a very impolite way of saying “I don’t care” and if a kid were to say that to its parents or teacher it would expect a clip around the ear. A je m’en foutiste is someone who couldn’t care less about his job and does the barest minimum to avoid being sacked. And there are lots of those about.

They grudgingly brought me two bread rolls for breakfast, the smallest that they could find, with just one portion of jam. And a box of apple juice with no straw.

As I have said before … "and on many occasions too" – ed … It’s the little things that make a great difference.

The taxi turned up at 13:15, just after I’d had my lunch, such as it was, and once we’d organised the paperwork we hit the road for the easiest journey that I’ve ever had.

My cleaner was waiting for me at the door and she helped me upstairs where I crashed out into a chair. I couldn’t do very much except chat to a neighbour and to Liz on line.

Grahame has sent me another nice mail about Hawkwind and Help Yourself so I sent him a little present, including two of the best improvised live tracks ever.

There are several groups that make it up as they go along during live concerts, but that night at the Patti Pavilion Help Yourself, aided by Deke Leonard and Cochise’s BJ Cole who played pedal steel guitar, they churned out two of the finest ever improvised tracks EDDIE WARING and the old Elias “Bo Diddley” McDaniel standard MONA

Tea tonight was chips, ordinary and sweet potato, with a salad (thanks to my cleaner who bought me a lettuce and some mushrooms) and a veggie burger. And after the deprivations of last week it was absolutely delicious.

And tomorrow it’s soup. There are a couple of leeks that are looking rather sad so leek and potato soup looks as if it might be on the lunchtime menu. I’ll have to bake some bread for that and it’ll be delicious.

But I’m not sure when, because there’s no alarm tonight. I’m sure that it’s more tiring being a passenger than a driver on a long-distance car journey. Even a double espresso didn’t do anything about keeping me awake.

So an early night between my own sheets under my own quilt cover? How nice is that? And no alarm too

It sounds too good to be true, and it probably is. Watch someone ‘phone me up at 08:00 tomorrow morning.

0

Thursday 11th January 2024 – THERE SEEMS TO BE …

… some confusion about when I might be going home.

The doctor who came to see me this morning told me that if all goes well and my improvement continues, I might go home at the end of the weekend or on Monday.

The orderly who has just brought me my evening meal tells me that I might be going home as soon as tomorrow.

And if the evening meal that he brought me is anything to go by, tomorrow isn’t soon enough. On the other hand, if my medical condition isn’t up to it, then the longer that I stay here, the better, even if it means drinking more of the dreaded sodium sulphide.

They gave me another dose of it at midday, and I was out like a light again for several hours. I think in all honesty that they do that simply to sneak in here and turn down the heating while I’m away with the fairies. I wondered why it was going cold here.

So apart from being cold and being away with the fairies, I’ve been a busy bee today. Rhys and Helena have been sending me messages to which I’ve been replying.

Helena is one of my oldest friends and we go back well over 50 years to our school days in Nantwich. She, along with Robert, is part of my personal on-line medical staff, having been a nurse in Yorkshire for quite a while.

A couple of neighbours from Granville have spoken to me on the internet too and my neighbour who is currently in Paris spoke to me on the phone.

There have been the dictaphone notes to transcribe as well. With our amazingly busy schedule Nerina and I had hired help to do some of the more mundane tasks around the house. One of them was cutting all the lawns and there were specific days to do it. We were walking through Willaston one afternoon when it was a lawn-cutting day. Th guy who was cutting our lawn was there with our lawn mower and had just gone into a shop to buy a cup of coffee. So evidently I walked nonchalantly into the shop and said “hello” to him. His jaw dropped completely to the bottom. He’s obviously been doing someone else’s lawn and claiming payment for it as well as claiming payment for ours that he never did. He simply left, and left me with the lawnmower equipment which I had to pick up and bring back to the house

Later on, I was asleep in my hospital room when a machine started up, started to make its alarm noise. I waited a minute to see if it was the case then I rang the bell for the night porter like you do. It was actually for real. It really was bleeping and I really did ring the bell. The night nurse appeared. Of course my dream disappeared completely because what I was dreaming was actually the thruth about what was going on yet I’d done it all in my sleep.

I had a kind of field somewhere that needed cutting. I’d talked to a young Filipino boy whom I knew who worked as a coach driver for a local company taking schoolkids around. His boss had one, a tractor with a grasscutter so we agreed that he’d borrow his boss’s tractor and go to cut our grass one morning. I don’t know whether he’d discussed it with his boss or not but that wasn’t my particular concern. We drove him up there that morning but he was in quite an emotional state, going on about how he hated the job, how he hated the coaches, how he hated the boss, how he hated everything, how the boss had paid him £70:00 short on his wages once. It was a real emotional tirade from this young boy. I was sitting listening because if he really was going to throw in his job, that might make a vacancy for me. Talking about tatty coaches – I’ve driven tatty coaches in the past and it’s never bothered me. Tatty bosses, that’s never bothered me either too much so I was listening to all of this. We turned up at the buses place. The tractor with lawn mower attachments was still there. We all stepped out of the car and walked over to it

Having said that during the night, I was always very careful about whose coaches I drove. It was mainly for Shearings and its subsidiaries and one local coach company. And if I was operating “on my own account” the coaches only ever came from one company.

From several other companies I respectfully declined work, including the company who shared the yard from where our taxis operated.

Loads of medical staff have been by today. The doctor has stopped the perfusions because my legs are swelling and regrettably, after all my efforts, I’m gaining weight. So there will be probably something else that will keep me awake during the night now.

But it’s like I say – they give me some medication to cure something and it just creates a problem somewhere else in my body. I don’t think that I could have been assembled correctly in the factory.

The physiotherapist came round, took me for a walk, and then gave me plenty of exercises to do while I’m sitting down, many of which I was already doing.

So while I can certainly criticise the food, I can’t criticise the care that I’m receiving.

While all of this was going on, I’ve been listening to “Help Yourself”.

Effectively an artificial band created by Famepushers, the Entertainment Agency, as a support for singer-songwriter Malcolm Morley, they might be a London band but they have always been considered as honorary Welshmen following their participation in the “All Good Clean Fun” tour, their appearance at the Patti Pavilion with a whole host of Welsh bands at Christmas 1973 and the fact that on the drums was Dave Charles, who for many years was sound engineer at Rockfield Recording Studios in Monmouth.

Due to a failing memory I can’t remember where I met them but it was in the days when they had Ken Whaley and not Paul Burton on bass guitar, although it was Burton at the Patti Pavilion, I seem to remember.

Their claim to fame is the legendary track REAFFIRMATION on their album BEWARE THE SHADOW that just goes to prove that you don’t need to play a lead guitar solo of 10,000 notes in 10 seconds to produce something that is one of the best, if not the most bizarre, lead guitar solo in the history of rock music.

So right now that I’ve finished my notes I intend to go to bed, where I’m hoping to have the best, if not the most bizarre, dreams possible. Not that there’s too much chance of that with all of the noise that goes on around here, but we can always live in hope.

And tomorrow I’ll find out more about going home. But I can’t wait to be back there, if not for the food and decent internet.

Using a bluetooth tethering system is like going back 30 years to the days of dial-up and 14.4 kbs external modems. Click on a link and then go for a coffee and a walk around the village while it opens.

It really is doing my head in.

0

Wednesday 10th January 2024 – IT’S AMAZING …

… how much of a big difference a couple of little actions can make. And that’s something that I’m going to remember for the future, that’s for sure.

This morning, they brought me two bread rolls for breakfast. And a couple of hours later they brought me a mid-morning coffee. You really have no idea and can’t possibly imagine how much those little gestures have meant to me and how much they have improved my morale from yesterday’s miserable efforts.

Mind you, I did have a shower and clothes-washing session in between. Years of living on the road has taught me to take advantage of every shower that comes my way because sometimes they are hard to find. And when you do find a shower, take your clothes in with you and give them as good a wash as you possibly can.

That’s an old tip that I learnt from the Bible –
"while shepherds washed their socks one night
all seated round the tub
the Angel of the Lord came down
and gave them all a scrub."

Something else that cheered me up were the messages that I received yesterday

Sean wrote to me to say what a horrible night Monday must have been and to keep my chin up for things can only improve. And he was right this morning, as I have already said. That bread roll and coffee, and your message, cheered me up immeasurably.

Grahame’s message cheered me up too. In fact it made me laugh. I’d been talking about hallucinating and Hawkwind, and he wanted to tell me about the time that he did both together many years ago. I thought that that was an avenue down which it was unwise to go any further.

But it did remind me of the time that Nerina took me to see Hawkwind at Keele University one night. Nerina is quite a bit younger than me so when the band came onstage she rushed to the front like all the young’uns do.

After a while she came to look for me and found me standing at the back
"Why don’t you come to the front?" she asked. "The view is so much better there"
"That’s as may be" I replied " but hey! The smell is so much better at the back, man."

Rhys wrote to me a short while ago but his message is buried under … gulp … 450-odd others that have come in while I’ve been busy sorting out transport and all that kind of thing.

He thinks that I’ll outlive everyone else who has had this illness and set new records. Well, I didn’t feel like that yesterday but a good night’s sleep and my bread roll and coffee fired me with a new enthusiasm, and who knows? It won’t be for the want of trying, and it won’t be for the lack of support either, medical or moral. Not that “moral” is a word that is usually used when I’m about.

But to be serious … "for once" – ed … Rhys was one of my close friends from University and I was lucky enough to be honoured to be best man at his wedding in South Carolina in 2005

The marriage didn’t last as long as it ought and poor Gretchen is no longer with us which is a shame for Rhys and her family.

But I remember the wedding – and more importantly, the weekend afterwards while they were away – vividly. I met a young Mexican girl at the wedding and we spent a lovely weekend together down at Charleston and then back at Columbia for a Widespread Panic concert on the Sunday night.

Regular readers of this rubbish will recall that I have a certain weakness for Southern Rock – groups where the lead guitar solos can sometimes go on for several weeks, groups like the Marshall Tucker Band, The Outlaws, Doc Holliday and Blackberry Smoke (who I photographed when I was official photographer for the Fredericton Jazz and Blues Festival in Canada).

But the leading group of all, surprisingly unknown in Europe, is Widespread Panic. I’d first encountered them when I was with Onion River Radio in Montpelier in Vermont years ago and I’d always wanted to catch them at a concert because like most Southern Rock groups, it’s simply not possible to reproduce on an album what they actually do onstage.

Anyway, there they were, topping the bill at the Three Rivers Festival that Sunday night in Columbia so Itzé and I blagged a couple of tickets (Press Passes always come in useful at times like this) and that was that.

Even now I still keep in touch with them and they’ve been kind enough to send me a few concerts to broadcast on my radio programmes

When I was on my marathon trek in 2017 saying goodbye to everyone whom I knew in North America, I managed to meet up with Rhys again and we had a weekend together. But the journey took so much out of me that afterwards I ended up at Myrtle Beach in South Carolina where I holed up for several days to recover my strength ready to go back to base.

Not the first time that I’d been to Myrtle Beach either. I’d been there in 2005 for a weekend too.

And that was strange. I thought (and still do) that Myrtle Beach is a bit of a dump – Rhyl with the sun, in fact.

But when I worked at that strange American company in Brussels where I met Alison, there was this woman going on about this brilliant place my the seaside where her husband had taken her for her honeymoon a couple of years back.

She espoused at great length about it and finally mentioned its name. Myrtle Beach. "Ohhh, Myrtle Beach" I said. "I was there last year. I thought that it was a bit of a dump. I’ll bring my photos in and show you"

Funnily enough, we never heard another word about Myrtle Beach. But the people there were strange. It was like being on another planet.

Meanwhile, back at the ran … errr … hospital, I mentioned a “good night” a little earlier.

That was obtained by the simple expedient of putting the perfusion pump in the bathroom and closing the door. And for once, I had enough silence that I could have a good night’s sleep.

Well, not quite. There I was, asleep, listening to Hawkwind’s MOTORWAY CITY in my dreams when one of my sisters brought me a really strange kind of bun like a cupcake with chocolate over the top and one or two other decorations but it smelt of onions. I wondered what it was going to be. Just then I actually awoke because of something on the music to which I was listening. I awoke, to find that it was “Motorway City” actually playing so in the end I switched off everything and went back to sleep. But it was quite strange having this onion-flavoured bun given to me by one of my sisters.

By about 06:00 my reverie came to an end as someone came by to take a blood sample, and that was that.

It was an endless stream of medical staff doing all kinds of things in here today, but an ominous sign is the doctor saying that she’ll send a physiotherapist to see me. If I’m going home soon that would be totally unnecessary so it looks as if I’m in here for longue durée as they say around here.

Some of the morning’s activities have already been mentioned, particularly the messages that I’ve received. It’s nice to hear from my audience so if you’re a new subscriber, of which there are more than a few just recently, or a long-time lurker, send me a message to say “hello”. There’s a link to a form at the bottom right corner.

Just be mindful that if you have a gmail address, I can’t reply to you. I’ll either say something on here, or if it’s private, you’ll receive a reply from STRAWBERRY MOOSE.

The rest of the morning was spent trying to decipher where I’d been during the night. And I’d put some miles in too. A friend of mine lives in Canada just inside the border. Right by where she lives was a railway bridge, called “Cedar Bridge”. It was a prominent feature of the landscape so all the slaves and everyone escaping the USA would flood across the border and head for Cedar Bridge. That would be the symbol that they’d reached safety. It was an iron bridge over the railway built for pedestrians only. One night at some point but I can’t remember the date it was just swept away. Cedar Bridge was destroyed. It was a terrible loss as a symbol of freedom from persecution for a great many people.

And then I’d received an absolute mountain of paperwork from a hospital in Canada about my illness, a mountain of it. I had to go through it and scan it all which took for ever. Then I had to post some of it to somewhere and some of it to somewhere else so it became incredibly complicated. I was halfway through doing it when I received another e-mail with some more stuff and some stuff that cancelled some of the first stuff. I had to restart what I was doing but I’d forgotten where I was. I’d lost my place. Then I had to send some information to my brother. The only way that I could do that was to send it to my niece and ask her to contact him. That started to become even more complicated still. I was there with all these papers and all these e-mails with all of these forwarding and “copy to you” kind of stuff. It was incredible. I was just so confused with it all and I wouldn’t be at all surprised if anyone else was too. When it came to writing up my notes at night it just turned into a load of gibberish. I just couldn’t seem to make it make sense

That sounds about right. I’m submerged in paperwork from my hospital visits and can’t sort them out properly before I’m overwhelmed with yet more from another hospital stay which contradicts everything that I previously received.

Later on, I won a prize in a competition. It was a baby pig. How on earth was I going to cope with a baby pig? A group of us who had had to go our separate ways arranged to meet at the Cheshire Cat in Nantwich. I eventually found my way there with this pig screaming and squealing and wriggling in my hands so in the end I just let it go. I didn’t know what else to do. Then I saw a bus go past, a bus from my school. It had “Competitors” written on it. There were loads of schoolkids on it, many of the ones whom I was hoping to see in the Cheshire Cat. I thought “this is going to be a wash-out, isn’t it?”. I reached the door of the Cheshire Cat. There was a Bouncer o duty. I asked him how many people were in. He replied “about 2”. I said “I’d better go to buy a 3rd drink, hadn’t I?”. When I walked in I found one of my friends sitting at a table with 2 other guys. I asked my friend what he wanted to drink. He wanted a beer but these other 2 guys wanted rum and coke. I thought “2 beers and 2 rum and cokes is going to cost me a fortune too”. Instead of going to the bar the main way I decided that I’d take a short cut through the crack in the wall which I did and ended up in the middle of 2 girls having a dancing class. They were girls whom I knew so I thought “at least I’m going to have some pleasant company” because I’m going to end up chatting to these 2 girls, I hoped. But this was all turning into a complete, confused mess too. I thought to myself that with all this going on today and I’m not having any luck whatsoever. I was having all this work to do and I just don’t understand any of it.

“… turning into a complete, confused mess”. And that’s something with which I can relate at the present moment, right enough.

Back in that dream again later, I had to leave so off I went. It was a Friday and I couldn’t go back on the Saturday so I was back Sunday lunchtime thinking that I still had 2 drinks left in the tap that I’d bought on Friday. There were just 2 people in there so I left myself in the glorious arms of the folk singer Miss Colwill who has figured in these dreams in the past but I don’t know where she fitted into this dream tonight.

And who is Miss Colwill? The names “Ruth Colwill” and “Rebecca Colwill” came immediately to my mind but there’s no trace of either

But stepping back into a dream again. Why can’t I do that whenever I’m about to lay my grubby paws on Castor, TOTGA or Zero?

Everything came to a dead stop round about lunchtime when they brought me a glass of sodium sulphide. And for several hours afterwards I was away with the fairies.

In mid-afternoon a discreet mug of coffee smuggled into my room revived me somewhat And I carried on with my studies of Victorian methods of tree pruning. I’m not sure why because I won’t be pruning any trees ever again. But in these ancient, 150 year-old books that you can download for free fromARCHIVE;ORG there are tons of useful, long-forgotten facts.

Tea was rubbish as usual but somewhere along the line the needle in my hand had been dislodged so all the perfusion was running up my arm. In the end the nurse had to take it out and stick it in somewhere else.

In fact he asked me to tell him where I would like him to stick it and, do you know, I was sorely tempted …

More sodium sulphide has found its way into here so in a minute I’ll stick the perfusion machine in the bathroom, switch off the Hawkwind playlist that’s been playing for the last couple of days, and hope for another pleasant 5 or 6 hours of uninterrupted sleep like last night.

But whether or not I’ll get it is another thing. There’s too much going on here for that. So I’ll just hope for pleasant dreams

Look out Castor, TOTGA and Zero! Hee I come!

0

Tuesday 9th January 2024 – I’VE HAD AN …

… absolutely horrible day today. Almost every minute of it has been as rotten as it can be.

So where do we start? I suppose we ought to start with the cup of sodium sulphide. Even drinking it is enough to dampen anyone’s enthusiasm, and it certainly dampened mine.

But despite crashing out three or four times while trying to write up my notes, I ended up in bed next to a pumping machine pumping this hydrating fluid into me.

All night it was going, like drops of water onto a plastic container. And all night I was lying there wishing that the blasted thing would shut up.

Round about 05:00 I gave up and decided that if I had to listen to a noise, I’d listen to one that I like so I put on the headphones and a Hawkwind playlist. That was about the only time that I had any real sleep.

But it wasn’t all that long. The hospital routine soon started up again and that was that.

For breakfast there was only one bread roll and I had to plead with a nurse to bring me a second

Then we had the endless stream of visitors – doctors, nurses, all of that. And ominous signs from the doctor “if you’re still here on the 24th we can see to that”. That’s like 2 weeks away and they aren’t batting an eyelid about the possibility of me still being here.

There were the telephone calls that I had to make too about cancelling my taxis and my visits to the Centre de Re-education.

My Welsh lesson began at 11:00 so at 10:50 they brought me another cup of this sodium sulphide. What a time to have one of those!

To the orderly who brought it to me I asked for a coffee and despite asking several other people several times I finally received one at 15:15. I don’t know what I’ve done to upset these orderlies on this shift but they’ve really go it in for me.

It’s like the sailor who went away to sea for 18 months and came back to find his wife with a three-month old baby.

He asked his doctor about it and his doctor told him "we have a special name for that in the medical fraternity. It’s called a ‘grudge baby’"
"A grudge baby?"
"Yes. Someone had it in for you."

And in between asking for and receiving my coffee, I’d attended my Welsh lesson (which was a disaster), fallen asleep 4 times (twice in the lesson), had several visits, had my midday meal (which was the most rotten yet) and had several other interruptions.

Some of those interruptions were welcome though. My cleaner sent me the photos of Granville covered in 2cms of snow, my friend in South Germany whose son was sound engineer for the Pink Fairies contacted me because she hadn’t seen me on line for ages and wondered how I was.

Rosemary and Liz had chats on line with me too and my neighbour, the President of the Residents Committee of our building, was in Paris so came here for a chat. She brought bananas and clementines too

And the night shift is much more friendly. They’ve given me another sodium sulphide drink but to date I’ve had two coffees to go with it.

All in all, I don’t suppose that it’s been as rotten as I said at the beginning, but you’ll have to excuse these incandescent outbursts.

“What about the dictaphone notes?” I hear you ask. Well, you don’t want to know about all of them, especially if you are having your tea right now.

But what I can repeat is that A girl of 12 with longish bobbed hair, very thinnish with all brown clothes had won some kind of competition. It meant that she, some guy and me were all living together a this particular house for a weekend. It was some kind of music competition, something like that she’d won but I don’t know why the other guy and I were there at the same time We were all expected to be crushed into the same car etc while we were there so we were going to be thrown together.

There was a couple more dreams that were disturbing to. One was a dream about Hitler’s sister who also had a half-brother from the time when his father was away on a mission at another border post between Germany and Austria. As it happens, the half-brother met the sister during the days of their adolescence and you don’t need me to explain what happened. It resulted in the suicide of Hitler’s sister

The other dream was pretty much of a similar situation but it involved someone else. When I awoke, the name of whoever it was evaporated completely out of my brain unfortunately. Shades of Eric Gill I reckon, rather unfortunately.

And finally, I was with a girl last night. I could feel that our relationship was cooling off. Later on we were invited to go to a restaurant . We had a look at the menu. We were 5 couples, 10 of us and there were 10 different things on the menu. We actually ordered one each so that everything was ordered from the restaurant, the whole menu. For some reason I couldn’t hear what she ordered. She was ordering something off the menu but she wanted something else. She had this long discussion with the waiter but I couldn’t hear a thing of it. Later she came down. Her dress wasn’t fastened so one of the other guys went over to fasten it for her. I thought “hang on, that’s my job”. But the other guy began to fasten her dress up. I thought “hang on – this should be my job. I should be doing that” so I went over and he moved away and I began to fasten it.

“Slipping through my fingers”. “Snatching defeat from the jaws of victory”. That seems to be the story of my nocturnal rambles. Seeing things like this slipping through my fingers. Regular readers of this rubbish will also recall the series of dreams that we had a couple of years ago of members of my family coming along to spike my guns just at a crucial moment in a dream.

Life is so much harder when, as well as your enemies, you are also having to fight those who are supposed to be your friends. People who want to suck you down into the maelstrom with them instead of wanting to rise up. Aren’t I glad that I left Crewe?

Mind you, I’ve encountered a couple of people elsewhere who were like that too. I seem to have a knack of attracting them.

But while I’ve been typing this, Kate has been on line sending me love and asking me questions. I mustn’t be too depressed because there really are some nice people in this world and I seem to attract them too.

As I have said before … "and on many occasions too" – ed … that I don’t have many friends, but those I do have are the best friends that anyone could have in the world.

It’s with your help and strength that I keep on going, and I love you all.

And just as I type this, onto my playlist comes "Moonglum, friend without a reason
Moonglum, friend without a cause
Embarrassed by a show of love
But would stand by the man of the feeble blood
This bond meant much more to him
Than a kingdom offered by a queen
No words for this silent trust
As the Sword goes on to sate its lust"

And how apposite is that?

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Monday 8th January 2024 – NOW THAT I …

… have figured out how to tether my phone to my computer using “bluetooth”, I can access a phone hotspot with the computer and post the days’ entries directly.

In fact, you might have noticed that the completed entries for the last 3 days are now already on line.

Once again, I make no apology for anything that is contained therein that might distress or upset people.

Firstly, I have no control whatever over what goes on in my head during the night. And how I wish that I did! I’d have Zero, Castor and TOTGA in there all the time, with a succession of other people who have been so nice to me in the past. Even Nerina. After all, she had a lot to put up with in the old days.

Secondly, as I have said before … "and on many occasions too" – ed … as this illness unfolds and heads towards its inevitable climax, the state of my mental health is just as important as the state of my physical health and needs to be controlled in a similar manner. And so any intemperate or unpleasant outburst needs to be recorded in the same way that a blood pressure recording is.

Thirdly, these are stressful times and you have no idea. Having a blood test on Wednesday, a desperate ‘phone call on Thursday and a 350-km dash in a taxi early on Friday morning is enough to tell you that something has gone horribly wrong.

And so here I am. Like the famous Maréchal MacMahon, "j’y suis, j’y reste" – “here I am and here I stay”.

So here I stayed, all through yet another miserable night of doors banging, people talking, trolleys rattling and the like. And by 06:00 I’d given up all thoughts of sleep.

Mind you, with the amount of stuff on the dictaphone, and no hallucinations either, I must have done a lot of sleeping at some point somewhere.

First port of call is the bathroom for a wash and brush up and to put on my day clothes. Then an endless stream of visitors to see me – nurses, nursing orderlies and the like, taking my temperature, taking my blood pressure, giving me my medication etc. You can imagine.

There’s been a change of crew too and it took “some negotiation” to have a second roll of bread when breakfast eventually came.

They aren’t very willing to hand out the coffee either and as regular readers of this rubbish will recall, that is a catastrophe of tsunami-like proportions.

Once the breakfast was out of the way I sat down to try to decipher the huge mass of notes from the night. The girl who was here a couple of nights ago was there again last night, at school. We were all at school and it was the fancy dress ball so everyone was dressed in fancy dress. I had on a pair of tights and a girl’s skirt which actually belonged to a girl with whom she was friends but I’d carefully concealed it about me somehow even though I was wearing it. She was wearing white tights and a pink top. I didn’t really notice if she was wearing anything else. We both came out of the school door together, she on one side and me on the other and headed for the lift. There was a German World War II jeep heavily camouflaged with bales of hay etc. I always had a great deal of affection for this vehicle and the people who drove it and I even happened to like one of the girls on it, whom I was hoping to bump into at some point. We were all waiting there for the lift. The lift came and the jeep drove on, then it looked as if the lift was about to leave. I said “oh no, it’s not going to leave, is it?” but it stayed so the girl and I boarded. At that point, all through this dream Alquin had been playing YOU CAN ALWAYS CHANGE. that was one of the tracks that we were going to play on stage during the concert. I had a feeling that the girl was going to talk about the track, or someone was, and I wanted to keep our selection secret but it was going on and on and on as this dream continued. When I awoke it was actually playing on the computer.

Then we were making arrangements about times to go to do the family banking for the family business that we had. I noticed that I was down to go between 14:30 and 14:45 which was going to be rather difficult because I started work after lunch at 14:00. Trying to evade myself out of the office every day for any length of time without anyone noticing is going to be extremely difficult as I’d already been back that late on a couple of occasions. In the meantime there was something going on in Brighton where there was a killer on the loose. His modus operandi was exactly the same as a series of murders several years ago so naturally the police were following up the trail of the murders committed then. One of them was by a bookcase in a side street so they arranged to set up some kind of dummy person there that this guy could shoot. But a journalist went along with the police and he decided that he’d arrive first and case the area which of course was a really bad thing to do because the guy would notice him but he turned up on his train but there were problems with his train. This meant that the journalist couldn’t get out there at the time that he had planned to be there, maybe 10 minutes before. It was cutting it extremely fine with the journalist doing his dummy run there and the correct kind of time that the murderer committed the crime on the previous occasion at the spot. There were all stories about how the journalist was going to totally wreck the police trap and spoil the show.

When the alarm went off I was in the middle of a dream musing on the state of the world and thinking of a particular woman who had left the oven on too low and too long and had dried out the food that she was trying to cook. There were 11 articles in there altogether to replace articles that had been cooked in the microwave and the previous table-top oven. I had a quick look and the time was only 04:00 so i was obviously a false alarm for some reason – maybe I dreamt it I dunno. Anyway I checked that I wasn’t supposed to be leaving the bed at this time and went back to sleep.

I was home from work and was with Laurence. A woman from work came round. The living room was in a really appalling state with stuff everywhere. I was quite embarrassed and apologised to the woman. I began to pick up clothes but most of them were Roxanne’s. I explained “it’s really difficult trying to live with a preteen daughter. Roxanne is 11 and is at .that age”. I walked out into the hall and threw these clothes upstairs but they missed, fell down and draped all over the stairs again. The woman said that she had a daughter who was 10 but was extremely well-behaved in that matter. I said that Roxanne was very well behaved and was a lovely girl but was in the “attitude” kind of stage. It was very difficult to try to make her see things from maybe our point of view. But it wasn’t just Roxanne’s stuff that was everywhere. It was ours as well. But as I said, it was all extremely embarrassing having people round from work with our place as untidy as it was.

Roxanne was in fact 9 years old when her mother and I separated so I’ve no idea what she was like as a preteen. But she was a normal, happy, healthy, well-adjusted kid when I knew her and there’s no reason to suppose that she was any different than any other kid of that age.

Did I tell you that she was an actress?

It all started one Sunday morning. Where we lived was right on the border between Jette and Laeken (I liked Jette very much) to the north of Brussels and on the house next door to our apartment building was a big sign dating from the 19th Century with the name of the town on it.

One Sunday morning up rolled a TV crew. They set up a sofa in the street underneath the sign and had actors and actresses sit on the sofa and shout “TV Brussel” – the name of the Flemish television company.

Of course, quite a crowd gathered and we looked down from our balcony.

One of the actors was a little girl, black as the ace of spades, and when they looked up they saw Roxanne, blonde as blonde could be with her long hair down past her waist, they called her down and they had the two kids sitting on the sofa, one in contrast to the other, shouting “TV Brussel” together, and she was shown on the cinema and television for months.

They obviously liked what they saw because they took our name and address and a short while afterwards she was asked to appear in a TV film as a schoolkid playing in a school playground. She passed the audition and the screen test and off she went.

Sometimes I wonder if she continued afterwards.

There had then been some sort of firework display in the vicinity. A friend of mine had been to see it and had come back horrified with stories of what had been going on. A little later on we’d been somewhere and come out, and bumped into a woman. She was talking about her 2 daughters who had been to the firework display. One of the daughters had come out with ” mummy why didn’t you disappear as quickly as (her sister)?”. The woman with me again told her story about what she’d seen. As we all turned to go afterwards there was a big sign pinned to the wall over an advertising hoarding “hey Eric, your websites in April had more visits than this discussion” which I thought was quite funny. A little further on we came across an internet box, one of the street internet boxes where all of the connections to the individual homes were wired. This one had been smashed open. All of the glass was smashed and it was difficult to see whether the cables were still intact. There was a policeman there examining it so we had a chat about that, the internet and things in general

Finally there was a dream where the Welsh rugby team were playing the New Zealand All-Blacks rugby team. I was explaining the rules and regulations to someone but I was actually dreaming and speaking in Welsh at the time during the dream. We were interrupted by breakfast coming early but I noticed that on the tray there was no coffee. I asked the boy who was delivering them if he could go along and fetch me a very large coffee from somewhere. Of course, that part about the coffee and the breakfast coming early was certainly a dream. It never ever happened.

Last it may well be, but not “finally”. There was more stuff than this but you really don’t want to know about it, especially if you are eating your tea right now.

It took an age to transcribe these notes as the doctor, the one who had given me the lumbar and thoracic punctures, came to see me.

Apparently the creatine and potassium in my kidneys are preventing them from functioning correctly and what could happen risks being fatal. So they intend to give me all kinds of teratments to try to reduce the levels.

They also have to stop giving me certain medication too, and for that I have to be under constant medical supervision as most of the suppressed medication is my cardiac medication.

All of this is much more serious than it sounds, apparently. They think that I might be at Death’s Door but I mustn’t worry. They’ll do their best to pull me through.

There was the continual procession of nurses and orderlies, and I managed to blag a coffee here and there, but after they coupled me up to a perfusion – apparently I need rehydrating – I didn’t see anyone for hours and it wasn’t until 18:30 that I had a cup this afternoon, much to my dismay.

Ingrid rang me for a chat this afternoon, one of our usual multilingual chats, and I’ve also chatted to Liz, a couple of neighbours and Isabelle the infimière ambulante

Tomorrow I need to chat to the Centre de Re-education and the taxi company to cancel everything that they have arranged for this week as I won’t be here.

Rosemary sent me a brief message to say “it’s snowing here”. I replied “so what? It’s snowing here too”. And it is. Quite heavily too but it’s not sticking – yet. Not that I care because here in The Land Of Yellow And Orange I have the heater going full-tilt and for once in my life I’m warm.

But that’s not all that counts. The food here is pretty dreadful, I’ve had to have another needle in my right hand now for a perfusion as the one in the left arm had to be changed.

This perfusion will last for 24 hours, so I’m told. It’s already had me flat out on my back for several hours. But just now I’ve had to have one of these sodium sulphide drinks so I’ll be out of my head for the next few hours.

Either I’ll be dead to the world in a few minutes and we’ll have a blank page, or else you’ll be in for the most exciting dreams of your life.

Watch this space.

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Sunday 7th January 2024 – WHAT A WAY …

… to spend a Sunday – all doped up and nowhere to go.

Yes this morning they gave me some more sodium – sodium sulphide this time – but in liquid form. “Here – drink this!” and so I did, and it’s disgusting.

No hallucinations, so no Zero, Castor or TOTGA to keep me company, but it didn’t ‘arf knock me for six and I was flat out for a good part of the day.

It was rather unfair, because I was awake quite early – ridiculously early for a Sunday in fact. And there’s tons of stuff on the dictaphone too as you’ll find out in a minute.

One of the nurses came by. "If you need any help in the shower, don’t hesitate to ask". To which I took no notice.

But when the second nurse came past and repeated the same phrase, it was "Okay, okay, I get the message. I need a shower."

Mind you, it was nice under the shower. I really did enjoy it.

After breakfast I transcribed the dictaphone notes. I’d been living a kind of extremely nomadic life … "no surprise there" – ed …. It wasn’t that I was broke either. I had plenty of money. I was living in the attic of a folk club where I had to climb up a whole series of strange steps to haul myself up through into the top so all my post was being directed to my eldest sister. She forgot to deal with some of it for a while. It turned out that I’d had the option on a house for which I’d signed and for which the bank was arranging a mortgage but she didn’t give me some of the letters which meant that the option had expired so I wasn’t going to have that house after all. That was extremely distressing to me. At the same time I was driving around in BILL BADGER my old A60 van. It had no tax on it and I’d already been stopped twice by the police. It had no insurance on it either and they had noted that. I’d also driven through a speed camera at one time faster than I ought. I was living a temporary, nomadic life and none of this had been taken into account anywhere so one day I would be called to account, I’d have all these things on my driving licence. I’d have 9 points and with another 3 points I’d lose my licence. I could see that it wouldn’t be long before that happened, having these 9 points all together and then having to go carefully for all this time and in the meantime having the van MoT’d. I could see that all of my life at the moment was falling to bits. Nothing was going right and I had all kinds of problems. I was just extremely distressed by all of it.

And that’s not an unusual state of affairs in my dreams – and in real life too, is it? Nothing going right and the wheels dropping off everything all the time

I forgot to mention that at one point I had to climb into my attic at this folk club. There were plenty of people there. Sitting at the foot of the stairs was an old guy with 2 children. I thought that one of them was a girl so I said “excuse me, miss” but it turned out to be a young boy. That was extremely embarrassing too.

There was a young boy rather similar to Jimmy Clitheroe, very tight with his money and always trying to find some more. There was some kind of party that he had to attend, which involved spending £5:00 to go. He was keen to go but there was an argument downstairs at the door when someone who appeared to be drunk said that he was a representative of the Co-op or something. Jimmy Clitheroe pushed him out and closed the door, but the pane of glass broke. Everyone else was broke too. One old man who was there was complaining about how hard up he was. He’d gone through his accounts to show that he was broke, rang up the glazing company and gave them the measurements for the window. When asked about the payment foolishly gave his own bank card number. This boy Jimmy Clitheroe was quite pleased about this because he’s got away without paying anything but his mother had learnt what was going on. When it came to giving him his pocket money for the next week she handed it out and said “here’s you pocket money minus £1:00 for the old guy who had to ring up etc an here’s another £1:00 for the house for the inconvenience”. That meant all his pocket money and he didn’t have any money to go to visit his friends at this dance so he couldn’t go … fell asleep here … what I meant to say that everyone thought that he would be unhappy about it but instead he remembered the song about “one wheel on my wagon”. He went off singing that. That seemed to make him a lot happier about the situation.

For the benefit of new readers, of which there are more than just a few right now, I don’t actually fall asleep. I am asleep when I dictate these notes – something that years of practice has enabled me to do. What happens is that slowly I drift off into total silence while I’m dictating and after a few seconds you’ll hear a slow, deep rhythmic breathing,

There was also a dream involving a herd of polar bears being given sledges on a kind of miniature railway to go downhill to the sea. Instead, on their way down they encountered a herd of wildebeest and the wildebeest encountered a couple of humans and you don’t really want to know what happened especially if you are eating your tea right now.

I was round at an estate agents later on trying to find a house. There was one described as “2 bedrooms with study” so I wanted to find out more about it. I noticed that it had a large garden, part of which was lawn etc and the other part was gravelled over as if someone had been parking several cars there. That immediately piqued my interest. There was also a discussion about commercial properties. There was a shopping mall that had been built a long time ago but no-one was quite sure when. Several of the units were empty so people were looking at them with a view to trying to find some kind of clue as to their origin. They seemed to think that it might go back as far as 1890 but that was doubtful. There was one big unit that was empty. It seemed to be the kind of unit that a certain ladies’ clothes shop was seeking so they contacted the shop. They came to see it but it wasn’t really suitable for them. In any case the description of “large sales floor with plenty of storage” didn’t seem to fit. I couldn’t find the storage anywhere. It certainly wasn’t in the basement underneath so I was wondering where it was and how it was controlled or made.

And then I was being interviewed by the police about something or other. They asked about my movements over the last few days. I explained that they were extremely difficult but nevertheless I pointed out two calls to the hospital between the first and the third of the month to which I’d been invited. That was what I’d been doing for a couple of days just recently. It was the First of March until the Third of March and this was about the Fifth of March. He saw that there were several difficulties recording them and asked me if I could transfer them over to my big computer. I told him that it would be put on the big computer in due course which seemed to satisfy him for the moment but to me he was more interested in my notes and records on the computer than he was on this murder in my opinion. He didn’t seem to ask me many questions about the murder at all.

Of course, in real life I was a great deal of use to the Cheshire Constabulary. Almost every day I was being asked to help them with their enquiries.

As I said just now, I’m asleep when I dictate these dreams. But usually when I’m typing them out later I have some kind of vague recollection of them in the back of my mind. Rarely though, I have no recollection whatever, and that one was one of those.

We then had an issue of dark olive green cabs for lorries that had been discovered somewhere in Greenland. These cabs were new and had never been fitted. I was trying to identify them. They looked very much like ERF cabs to me, or maybe Foden cabs but someone seemed to think that they were MAN cabs, and if I posted them as MAN cabs someone would immediately recognise them and claim them as theirs as not having been delivered. I was looking through the internet trying to find identical cabs that had been labelled but I wasn’t having much luck because for some reason the computer kept throwing me out of the page that I was trying to search so I couldn’t actually see properly what the results were of my search on line.

Finally there was an advert in one of these magazines about a girl looking for a companion. Out of boredom I replied. Much to my surprise I found that, mush as she was a bit of a flighty piece, she seemed to be quite nice and what’s more, she seemed to like me very much. We developed quite a good rapport quite quickly. It was while I was running the taxis so I could only see her on Saturday nights but somehow that seemed to fit in with her timetable too so she was there making plans etc on what we’d do on different Saturday nights. She planned a night where we’d go to have a drink or something and end up sitting on top of a kind of cliff somewhere like at Frodsham and watch the stars, which sounded very nice to me as we’d just been for a drink but for some reason we’d had to come home early. Back at home early she was making a drink. There was still a group of taxi drivers there waiting for work to come in, and there was a pile of little children being dressed in winter coats ready to leave. But while this girl was making a cup of tea I was standing right behind her as cose as I could be, holding her by the waist. We were laughing and joking. My elder sister came in and made some remark about us being home early but last week we’d ended up in some farmyard or other for several hours completely up to no good. I didn’t realise that I was being spied upon so closely. That was what I said, but it was all extremely humorous. My elder sister began to chat to this girl as if she was already one of the family. It ended up being quite a warm ambience of the type that we have in dreams every now and again, something that was quite pleasant and I didn’t want it to stop.

Terry came on line for a chat later, to remind me that it’s the anniversary of our visit to the Stade Louis Dior where we stood on the terraces and watched US Granville, who play in the equivalent of the Conference North with a team of taxi drivers, school teachers and shop assistants stuff the Girondins of Bordeaux in the French Cup.

And how Bordeaux were unhappy and completely lost their cool as well. It was embarrassing to watch a Premier League club behave like that.

We travelled many a mile together, Terry and me, and we worked on many roofs.

tt would always be the same story. Terry would ring me up a about 08:00 "are you free today?"
"You have to say the magic words, Terry" I’d reply
"Liz is baking."

And for someone who said how much he hated cats, I’ll never forget how gentle he was with those two feral kittens he found asleep in a tyre in his barn at Le Fournial.

Liz came on line later too and we had a chat for a while which was nice. I also had a chat with someone who appears quite often in these pages, but usually during a nocturnal ramble. That was lovely too but I wish that she’d appear in real life too. As for who she was, I’m sure that regular readers of this rubbish will recall a few names and have a good guess.

The doctor came by but didn’t have much to say for himself. He asked about the perfusion so I told him about the hallucinations, so I suspect that that’s reason for these drinks today.

Apart from that, I’ve had some reading to do. And talking about global warming, I’ve found a paper presented to the Woolhope Naturalists’ Club of Hereford as early as 1867 by a certain T. Curley, CE FGS, discusses the subject and that really is the earliest that I’ve ever seen where systematic global warming has been the subject of discussion.

Not only does he discuss it, he presents some interesting calculations too, some of which I know to be confirmed by other scientists and geographers.

But I’ve also been asleep for much of the time thanks to this witches’ brew of sodium sulphide. During one of my (many) dozes during the day I went off into a dream with a group of young people but I awoke quite dramatically and the whole thing evaporated from out of my mind. Absolutely all of it.

And now that I’ve had my depressing evening meal (I’m glad that I brought these extra food supplies) I’m going to have yet another one of these sodium drinks. So I imagine that it won’t be long before I start to fall asleep and disappear into the Arms of Morpheus. I suppose that I’d better find the bed quickly before I crash out on the ………. zzzzzzzz.

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Saturday 6th January 2024 – I AM ABSOLUTELY…

… wasted. i4ve had a horrible day today, probably the worst that I have ever had.

You’ll remember the perfusions that I had and the hallucinations that went with it. Well, the story continues.

At 23:30 or thereabouts two guys brought a stretcher here and I clambered aboard, to be whisked off to another building here for an echograph on my lower stomach and kidneys.

When the echographist had finished, the ambulance brought me back here.

When I was tucked up in my nice little bed a nurse came round and coupled me up to another perfusion, and we started again with the hallucinations.

At first I tried to dictate them as they happened but I was totally overwhelmed. I managed so many and then that was that.

Unfortunately none of my favourite characters appeared to calm me down. Things were completely and utterly out of control. Every time I closed my eyes that was that – I was off again. It took hours for me to go to sleep.

It was quite early when I awoke too and I had to wait around ages for breakfast. I was starving.

But today, I’ve been totally out of it. This perfusion, which is a mixture of sodium chloride and calcium chloride, has finished me off.

The doctor came round to see me too. I have a critical level of creatine in the kidneys and a critical level of potassium in the bloodstream. The perfusion is intended to counteract the potassium.

When I told him about the side effects he didn’t really say very much, which surprised me.

And the side-effects are the hallucinations and the fact that I have been out of it all all day, as if someone has slipped me a Micky Finn. I’ve hardly been able to function at all and for much of the day I’ve been asleep. The rest of the day, I’ve not been able to concentrate at all on anything.

To transcribe the dictaphone notes it took ages – firstly because I was in no fit state to do it and secondly there were so many of them. And as usual, they are shown here exactly as I dictated them, with no apologies or explanations. There was a lot of noise during the night and a lot of dreams too. I dreamt once that they were making really loud noises removing some kind of perfusions out of the way of everyone whom I knew, including people like TOTGA, Castor etc but I couldn’t really see who they were. It turned out that they were nurses here tidying up. One of them awoke me to give me a perfusion in the arm.

Almost immediately going back to sleep I dreamt of being pushed around on a stretcher by a couple of young people, one of whom was playing the accordion with a lot of traditional folk melodies playing on it.

While I was awake having this perfusion I had a hallucination again. This time I was being pushed by someone in a wheelchair. They said that they were going to take me to somewhere where they would put me in a sitting position. Once they’d done that they’d take me to a place where I could sit which was much more exciting than where I was at the moment.

Also 2 women pushing me in a wheelchair to a Renault Espace but it looked nothing like a Renault Espace at all and was all glass so that everyone could see everything that was going on inside it. I was taken in this wheelchair by these 2 girls, put inside the Renault Espace which was driven to another part of the hospital where a couple of guys were waiting. Once our car arrived and unloaded me these 2 guys took over and began to push me. But I was actually awake and conscious and lying in my bed in the hospital when I was having this hallucination. It certainly wasn’t me being asleep and dreaming

Later on I was in an Indian Restaurant with a couple of people. We were chatting away. I went over to a drawer, pulled out a cheque book from there and wrote a cheque for £95:00 to the bank. One of the people watching asked me why. I said that I had debts to pay. He said something like “don’t we all”. He wondered how much it was o I showed him. It was £495:00. He said “you’ll pay that quickly paying it at that rate”. I said “it should only be £75:00 but I’m paying it in advance”. He actually shook my hand. Then a server came to see us but but was actually someone with the head of a cash machine so I fed the cheque into it. We began to talk about soup so me, the man and his young daughter sat down at a table where there were already several people sitting – it was a long bench-type table with benches either side. The guy said “you’d better go and ask the chef – he mentioned the chef by name but I’ve forgotten – because he’ll have soup that he’ll want to get rid of at the end of the night.

Then someone asked me to raise my pelvis so that they could close the ambulance doors – while I was still awake. These hallucinations are incredible.

I closed my eyes and I was immediately in a taxi queue, still in my wheelchair. There was all folk music going around. Even now as I’m dictating this I can hear folk music played on a violin. It really is strange because there’s nothing happening outside at all – it’s all in my head, whatever it is that’s going on. I’m wide awake and I’m just hallucinating like this every time I close my eyes.

They were waiting outside there questioning, joking, reduced to a question about pyjamas. I was ….. unintelligible … that was my job for the evening. Those projectiles on the bed ….. unintelligible … The room of mine was downgraded from mid-dangerous to less dangerous from a security point of view after a security patrol had been to inspect it. Someone could fire into the room but they wouldn’t be able to actually hit anyone so it was considered to be a very low risk at all.

There was a song rather similar to THE BARRICADES OF HEAVEN. I’d recorded it twice and wanted to dictate one. The thing was that one of them was in really perfect condition and sounded really well but there was only threequarters of it but the other one which was complete, the quality wasn’t as good so I was trying my hardest to figure out a way to make a complete one using the quality of the best one. But in the end I ended up deleting one of them, the one with the best quality because it was incomplete. Then I had second thoughts of re -recording it. I was sitting there scratching my head puzzling over what I was going to do

Despite being in the kind of condition in which I find myself, I’ve had some nice chats with my neighbour from Granville, with Liz and with Tina over the internet and that was really nice. The nursing staff here are nice to and bring me extra coffee, bread and fruit to make up for the food that I can’t eat.

They have bandaged up my leg where I have skin issues and done all they can to help me. One of them was very interested in my story about hallucinations too.

We have rock music fans amongst them too and I’ve had a couple of interesting chats. Apart from the perfusions I seem to have struck lucky with this hospital. Castle Anthrax was nice of course but things seem to be much more urgent here in The Land Of Yellow And Orange

Anyway, tonight there are no perfusions planned so I’m hoping to have a good, deep sleep and see what tomorrow might bring. And if it’s any more calcium chloride I’ll go spare.

But they are doing their best to treat me and if they think that something is necessary, who am I to complain? I’ll just have to take the side effects in my stride and suffer accordingly.

"SO PLACE YOUR TRUST IN SCIENCE
FOR IT HAS COME SO FAR
WHERE NECROMANCY LIVES FOR EVER
PRESERVED WITHIN A JAR"

0

Friday 5th January 2024 – HERE I ALL AM…

… not sitting in a rainbow but sitting in a room at the Hôpital Pitié-Salpetrière in Paris, where I’ve been summoned due to an emergency – they’ve found something in my blood sample from Wednesday that has them in a panic.

So there I was, at 06:00 when the alarm went off, struggling to my feet.

First thing was a good wash, scrub and change of clothes. I might as well look the part, I suppose.

Next thing was to check that I had everything packed. Those bread rolls that I made yesterday evening were good and made nice sandwiches – the food at the hospital is rubbish of course so I need some reserve supplies

Next thing was to unplug all of the appliances and it was in the middle of doing this that the driver arrived – an elderly guy who I’ve not seen before.

He helped me into the car and we set off for Paris. He didn’t go as fast as the younger drivers but we had good luck at Ceen with no hold-ups so we made very good time.

There was even time to make a pitstop halfway between Caen and Rouen, and a mug of coffee is always welcome. I treated the driver seeing as he’s doing al the work.

Our good luck ended at the Porte d’Italie exit of the Boulevard Péripherique where there was a gridlock the like of which I have never seen. IN the end we went back on the “prif” and took the next exit. But as a result we were late arriving and I had a very concerned phone call from the hospital wondering where we were.

Anyway, I’m now installed in my little room here on the second floor, still with no internet which is a shame, and the food is rubbish, as I expected so I’m grateful for my emergency supplies.

But at lest I’ve managed to make the heating work, which is something, I suppose, and under supervision I managed to walk 6 steps without my crutches, which is something of which I can be proud.

But what a celebration hey? Me, who would think nothing of walking though the night from Chester to Hankelow, all almost 30 miles of it.

They had four tries before they could take a blood sample, and three to fit a catheter in my arm and once the catheter was in, they began the perfusion.

There was a combination of three perfusions which gave me the most extraordinary hallucinations, during which Zero, Percy Penguin and my old LDV van made their appearance.

The LDV van I remember well. After 2 Transits I had the LDV van for a couple of years and was the first of the vans that I had that would keep up with modern traffic with its 5-speed gearbox.

It blew up the engine not long after I had it so we bought a Maestro diesel for £50, swapped the engine out and received about £350 for the bits of Maestro when we sold them on the internet.

It then lost the clutch going round the Boulevard Péripherique one night and I had to drive it 300 miles with no clutch, even starting from a standstill on a couple of occasions.

What had happened was that, with it being a hydraulic clutch, the clutch slave cylinder had fallen off and was just hanging on by the hydraulic pipe. The bolts on the door hinges where the same size and same thread so I pinched a couple of those as a temporary but permanent repair.

Then a brake pad separated and we lost the asbestos pad part of it. I had to drive it home through the Brussels traffic with no brakes and in the days before internet marketing it took quite an effort to have a pair sent from the UK.

The handbrake cable then snapped on it, so we had no handbrake but what killed it off was the little trail of rust inside the back of the van.

There was this little streak of rusty water running down the inside wall of the van so I climbed inside to look.

At first I couldn’t see where it was coming from but when I twisted myself round, with my hand on the roof, the whole roof lifted off on one side. The joint between the roof and the side wall had rotted away and I had a big roof rack on the roof and I’d been carrying all kinds of heavy equipment on it.

So that was the end of the LDV. You couldn’t drive that on the road in that condition.

Next van was the ex-Telecom Ford Escort diesel. And how that brought back all kinds of memories of my travels with BILL BADGER. It was exactly the same kind of van and I found myself doing exactly the same things.

That was a vehicle that I’d bought because of the 1.8 litre diesel in it, which I wanted for one of the Cortinas. But it surprisingly passed an MoT even though there was a pile of things wrong with it.

But I had a year’s use out of it and it did a few miles too, and then along came Caliburn.

And there’s just time to transcribe the dreams from the night before I go to collapse in my nice comfortable bed. There was a load of folk music going on last night probably related to what I’ve been listening to just now. The music seemed to have affected everyone. At one particular moment I went into work and there was someone stuck in a folk music loop singing folk music songs. I happened to mention i( to his superior who became extremely upset and began some kind of enquiry. Many years later the same thing happened again. There was all this folk music. Some people were listening to it of course, concentrating and so on. I was enjoying it very much bu at work the big boss came and began to ask me all kinds of questions like “did I feel mentally unstable?”, “did I feel that I was being a difficult person?” etc. I couldn’t understand what was happening. He said something about starting work. I replied that as far as I was aware that has never happened at all. He asked “what about this incident?” and brought up the one about folk-dancing early in the morning. Of course I was totally bewildered because I didn’t remember things like this. I wanted to know why this folk-music thing had suddenly become so important to so many people for what seemed to be reasons that seem to be completely detached from what the music actually represented etc. I was just totally bewildered by it all.

Later on there were 4 of us who used to hang around together. One was a boy from school whom I came to know quite well. We’d agreed to meet in Sandbach for the fair at a certain time but it was a very informal, insincere kind of agreement. Anyway I went along and, sure enough, there were some people there so I walked back to Crewe, found some plants and walked back. And there I met my friend and some other guy of our group so we began to chat. They were surprised that I’d been here twice but I said that I wanted to make sure that the festival was going so I was here early. The place was crowded with people. I needed to go to the bathroom but they told me that the bathrooms were filthy here and I wouldn’t appreciate anything at all of those. Nevertheless I wandered over that way to go for a look but the alarm went off.

Meanwhile, back at the ran … errr … hospital I’m told that despite already having had a couple of examinations with one of these electrode machines, there’s another one planned for during the night in another building, one that goes into things and greater depths.

Once they’ve done that, they’ll have a better idea, but I suspect that they know already, and I have an idea too. In May 2021 they discovered the cancer in my kidneys and I underwent an operation to remove the tainted bits – and it also removed bits of another part of my body, to my eternal regret. My betting is that it’s come back to whatever kits of my kidneys are left.

What’s your bet?

What’s your bet?

0

Thursday 21st December 2023 – HERE I ALL AM …

… not sitting in a rainbow, but sitting on my comfy chair in my office/recording studio/bedroom (it’s not just STRAWBERRY MOOSE and me who do multi-tasking around here.

And I’ll refrain from quoting Golden Earring, Sean, just for you. I’ll just let everyone imagine it.

First of all, let me announce that the completed entries for the last three days are now on line so you can go back to Monday and read forward at your leisure.

But let me give you a little warning – if you are offended or upset by anything that I’ve written over those three days, I’m really sorry, but that’s how it is, I’m afraid.

For the whole of my life (yes, the whole of my life) I’ve been falling into the deep dark pit where the black dog lives and then climbing out again later on. And sometimes I fall into it deeper than other times and it takes me much longer than other times to climb out.

For the last couple of weeks I’ve been in the pit but the other day I slid down probably deeper than I’ve been for 30 years and couldn’t climb out again.

At times like that I have a tendency to give vent to my feelings maybe more than I otherwise would, something like a safety valve blowing off excess steam.

People have asked me before why I don’t go back later and edit what I write. But the answer to that is for someone who is suffering from a long-term terminal illness, a control of the mental health is as important as a control of the physical health and I need to see how my mental health is evolving as the illness progresses through my body.

As regular readers of this rubbish will recall, I’ve been advised by many people … "and on many occasions too" – ed … to seek counselling as my health deteriorates more and more, to prepare me for “the end”, but counselling won’t solve my problems, and it won’t help anyone else who follows my trail.

And so you are stuck with these notes, for better or for worse. And if you read something that makes you raise your eyebrows, don’t worry about it.

As for my dreams, I have no control over them at all. And how I wish that I did.

A few people are actually quite adept at reading the signs in my postings. Almost immediately after I posted last night’s entry, Alison came on line and spoke to me for quite a while, for which I was extremely grateful.

So for the last few nights, I’ve had Alison, Rosemary and Jackie helping me along as I deal with all of these issues, and I’m very grateful.

So grateful was I after my chat with Alison that I awoke this morning feeling much better than I did when I went to bed last night. Mind you, it was 07:20 so I suppose that was partly the reason.

The nurses came and did their usual nursey things and told me that I’d be leaving today, critical blood count or not. But last night before going to bed, I had an injection of a product similar to Aranesp, the “last resort” for stimulating the red blood cells to fight against the carcinogenic protein.

They took the card that I gave them so that someone could ring up the taxi company to tell them to fetch me. I told them not to hang about because he has a 4-hour drive to come here for me.

And after breakfast I finally, at long last, had a good shower. And how much better I felt for it too.

The doctor waited until about midday to come to see me with an enormous sheaf of papers, including my permission to leave.

She also brought me the very bad news. If you want to see what the lumbar puncture and the thoracic puncture disclosed, you need to READ THIS

Of course, I’m not going to have any old common or garden complication to my illness, am I? It has to be something that is “an extremely rare neurologic complication”.

And as if I don’t have enough issues already with which to deal, without having all of this dropping on me over the last few days.

But no-one can say that they weren’t thorough.

While I was waiting for the doctor to come I transcribed the dictaphone notes. We were on board ship, a whole pile of us, kids from school. We’d gradually settled down into groups of friends. I was with a couple of people, other boys from other places. Someone suggested a game of cards. We found a pack of cards and went to the deck above to the games room where all of the card tables and all the other tables were. But there wasn’t a card table free. There was one table where there were some boys from the year above us, They were playing and said “we’re playing here”. I replied “I can see that you’re in the middle of a game. In the end they invited 2 of our party to join in with them to make up the numbers. That left a couple of us. We were trying to work out what we were going to do. As far as I was concerned I’d be quite happy to sit on the floor and play. The 2 other boys seemed to be much more interested in finding a table or something like that. I thought that that was rather unnecessary given the circumstances.

Later on there was a big battle in the American Civil War between the North and the South. The Southern forces were completely overwhelmed and the North was victorious. What happened then was that the North suspected that several women had been extremely active in helping the Southern forces. They rounded up these women and arrested them. The women had to go to General Headquarters so they were put on some kind of primitive bike each. A group of them set off. They came to a steep hill so they had to dismount and walk up the hill. When they reached the top they could remount and ride back down again. At the top of the hill they leapt onto their bikes and pushed off to start pedalling. Just at that moment the wife of a Northern military dignitary decided to cross over the street. As a result she collided with one of these women and was killed. The woman was then rearrested on a charge of murder and was taken away. Many people had seen the incident and agreed that she couldn’t possibly be guilty of murder – it was quite simply nothing more than an accident. They somehow found their way into the tribunal. When a vote was passed for whether or not she should be prosecuted it ended up being 325 in favour and 325 against. It was necessary then for another committal hearing to be held. She was still nevertheless taken off to a ladies prison. While I was watching her in the hallway of this big building waiting for the carriage to come, I awoke.

Did I dictate the dream about everyone coming upstairs to visit an apartment next to mine? … "no you didn’t" – ed … The interior was black and white. As they came up they kept on commenting on some signs that were there, like “Mrs So-and-So – 1st prize for baking” etc. One of the people said to everyone else that whoever lives there says that we’ll have plenty of nice home food, implying that she’d baked it but in fact it’s obviously her mother who’ll have baked all the food for them. So there was some general rumbling. I stepped out onto the landing to see what was happening. There were all these people. They asked me if I was a member of a certain church too. I replied “no, this isn’t a church. It’s a block of flats”. They all looked at me quite strangely.

Somewhere along the line I was planning on doing something or other but I didn’t know what. I wanted to make changes so I’d gone out for a walk to think. I’d seen a Volvo B58 coach parked in the yard of a coach operator. It had been completely stripped out of seats etc and the back panel was missing. I thought to myself “I could make myself a nice little car transporter and caravanette-type of thing out of this, the way it is at the moment. It was an old 53-seater, probably N or P reg Duple body. I had a quick look around. It looked clean enough so i went to ask for the proprietor. While I was looking for him I found a Morris Traveller that was also for sale. I had a really good look around the Morris and found that they wanted £650 for it, which I thought was cheap. Meantime I found the proprietor and he pointed out a woman to whom I had to talk. It meant jumping across a kind-of ditch. Of course I landed in the ditch all the way up to my knees but eventually found the woman. I asked about the coach. She said that it had been one of their tour coaches that they’d had from new. It’s a really good vehicle. They’d advertised it for sale as a coach for £2,500 but there were no takers so they began to break it for spares. They found that it was too good to break for spares so the idea was that one of the car racer people might like it. I asked how much and she replied £650. It needs an MoT that they can arrange and a few other bits and pieces. I thought “£650 is nothing for a coach like that”. I se off back for home thinking to myself “how am I going to break the news to Nerina that I’ve just bought her a Morris Traveller and there’ll be a big Volvo coach turning up at the house in a week or so. She won’t be too pleased about this and it might cause a few problems at home”.

A short while ago someone offered me a reasonably modern 53-seater coach for £1500 and had I had my health I could have been sorely tempted. I even drew up some plans to make it a 12-seater coach with kitchen and 12 berths for sleeping, and use it on my trips around Europe with my friends but it wasn’t at all a realistic proposition the way that my health is going.

I was then back in that dream again … "which one?" – ed … and we were all in Virlet, although it wasn’t the Virlet that I know. We were tidying up around my house, finding all the loose rocks that were lying around and either putting them in a pile or putting them back where they belonged in the fabric of the house. This huge group of people had come together as a result of issues in the previous dream, all marked “present”. The situation was explained to them. We began to tidy it up and were doing really well. We’d done two sides of the house but the 3rd and 4th side of my house are on a different level. I thought that we’d have stayed on this particular level where the other two sides of my house are and tidy up all around there before going down into the marshy morass and dealing with that. For some reason one of the women who was co-ordinating the party went down below and began to move the stones around. We tried to call her back but she took absolutely no notice and carried on moving the stones around down below. Some of them were really heavy and required 2 people to lift them comfortably but she was lifting them on her own. I was convinced that she was being deliberately stubborn and she’ll end up with a bad back at the very least at the end of all of this if she doesn’t stop, come back to us and co-operate with the pattern that we are trying to do. There were some other people involved in this dream who lived in a nearby house that was actually a chateau but I can’t remember what their actual involvement was.

The secretary came to see me after the doctor had gone. “Your car will be here between 16:00 and 16:30” she said, meaning that she had only just phoned for it. So I settled down to do some work and … errr … a little relax.

By 17:00 they all wanted to go home so they began to harass me a little and eventually they moved me into a waiting room outside. And 20 minutes later the ‘phone rang
"Where are you?" asked a voice
"Batiment Heuyer" I replied.
"Ohh, not where you were last time?"

It seems that no-one had told him where I was, even though I’d given the taxi company a copy of my convocation and the secretary had said nothing when she rang, so he’d been trying all of the doors in the building where I was last time.

Eventually we set off for home, right through the Paris rush hour and hit the open road. It was a good drive – I’ve had this driver on a Paris trip before and I’ll travel with him again – and we even had a 10-minute break.

At one point on the journey I dozed off, and then had one of those really dramatic awakenings that I have sometimes when I suddenly sit bolt upright. It scared my driver to bits.

What made me laugh though was the taximeter. Somewhere on the autoroute between St-Lô and Villedieu les Poeles it rang up over the €1000 mark and by the time we pulled up at my door at 21:45 it was showing €1178. It’s a good job that the Social Security has prise en charge the journeys.

First thing that I did was to make myself a big bowl of porridge and then collapse in my comfortable chair.

This weekend I’m not going on the bus to the shops. First task will be to go through all of the papers from the hospital and work out what to do. Then to check Liz’s vegan wellington, order the stuff (or ask my cleaner to buy it) and send off the next big order to LeClerc.

Right now I’m totally exhausted but as usual, after a journey, I can’t wind down enough to sleep. In the old days when I was chauffeuring, I’d go for a run and that would help me unwind but these days I can’t even go for a walk.

How the mighty have fallen, hey?

0

Wednesday 20th December 2023 – TODAY I HAVE HAD …

… a lumbar puncture (the fourth that I’ve had if my counting is correct) and a thoracic puncture – one after the other without a pause.

And if you think that a lumbar puncture is bad, you want to try a thoracic puncture. I promise you – a lumbar puncture is a walk in the park in comparison.

Furthermore, even as we speak, I’m having a blood transfusion. You might not believe this, although I’m sure that regular readers of this rubbish will recall this kind of thing happening on several occasions in the past, but despite having had two pochettes of blood during the other night, my blood count has GONE DOWN and I’m still below the critical level.

And so I’m having another one right now.

That’s not the best of it either. They’ve had my blood whizzing around in something that looks as if it’s come from CERN and they have discovered that I have a genetic disorder.

That might explain a lot about a lot of things, but it might also create even more problems because I’ve signed an agreement for them to take my DNA so that they can start work on trying to find the problem.

They’ve told me to contact my family in order that they might undergo a test to identify anything that might arise, but who the hell is my family?
"What about your parents?" asked the doctor.
"My mother’s been dead for years"
"WHat about your father?"
"I never knew who my father was"
"Didn’t your mother ever tell you?"
"To be honest, I don’t think that she ever knew who he was either"

Our family was screwed up right from the very beginning. We were never a family, just a group of people living under the same roof scrambling and fighting for position

And I’m wondering what happens to my DNA sample afterwards. I can see a few issues arising here and there and none of them medical either, at least, from my point of view. However, quite frankly I’m too old, too ill and too tired to care.

Tired is certainly the word because not only was it a really bad day, it was a really bad night too.

Not that there was much of a night to be bad about because I was wide awake at 03:10 and up working, transcribing the dictaphone note, such as they were, at 04:00. There was a battleship that was ostensibly American but was actually owned by a private person and leased to the US Navy. One day he announced that the ship had disappeared. No-one knew where it had gone. A couple of weeks later it turned up in an American port being painted white. When the authorities caught up with it he announced that all the crew had deserted and was having to recruit another crew. The matter then went to Court and it turned out that the crew on board the ship, mainly Japanese, had all been dismissed and the owner was trying to recruit cheaper personnel. The Courts however ruled that the ship’s crew had unalienable right to be on board the ship. If the owner didn’t want them on board the ship, which was quite clear, then the ownership of the ship would pass to the crew, which was exactly what happened. In order to fill in the gaps in their ranks they began to recruit in West Germany. Consequently the ship was to become part of the West German Navy. This was going to lead to all kinds of complications.

And then I was with a girl from school last night, someone who has previously featured at some point or other in my dreams in the past on one or maybe two occasions. Her older brother had a Velocette Venom that he traded in for a Honda K1 750. We (the girl, not the brother) were actually a couple. I was living at home and so was she. She was quite young, small for her age as I remembered her. We’d go on a Saturday night to a little pub that we knew where they weren’t all that particular about the ages of people who went in… "The Rifleman in Volunteer Fields in Nantwich" – ed …. We’d sit in a very quiet corner towards the end of the evening, our arms around each other, and we’d just sleep. We’d wake up and I’d take her home in time so that her parents didn’t suspect anything. After we’d been there for several weeks doing that – we’d go out and do things like go for a walk, go to the cinema or something and end up back at the pub where we’d sleep together for an hour on a bench with our arms around each other. But after we’d been there for several weeks I’d noticed that the pub was becoming more and more crowded. I was thinking that we can’t really go on like this. One night while we were there, she noticed too and made the comment that this place seems to be becoming more and more crowded. I said “well, we don’t really have very much alternative, do we? You still live at home and I still live at home. I might be able one day to have an apartment but at the moment it’s not possible. There isn’t really anywhere else where we can go”. We really ended up just like that again on that particular Saturday night, arms round each other, asleep on a bench, heads against the wall in this particular pub.

It was just like Mark Knopfler and DOWN TO THE WATERLINE – a song all about an adolescent romance with a girlfriend, a Saturday night and simply nowhere to go.

But it was this dream that awoke me. It was one of those that I have every so often, a nice, warm, comfortable dream of the type that I wish would go on for ever where I feel totally at ease and relaxed with a girl really comfortable in my arms.

Being at ease and relaxed are of course things that seems to be happening less and less often these days.

It’s the kind of thing that rarely happens in real life. In fact, it’s only ever happened with two girls.

At one point in my life I was just so stressed out that I could no longer function correctly and everything – absolutely everything – was falling apart. So I’d make a huge effort, go on a trip and p-p-pick up a Penguin – a Percy Penguin in fact.

We’d find a place with running water, because water is very important in my life and the sound of it is relaxing, and we’d just lie there. She had loads of issues (and so did I too, and still have) and she’d wrap herself around me really tightly so that I’d protect her from whatever demons were threatening her. Sometimes she’d even cry on my shoulder as she poured out her problems.

And I’d hold her tight to protect her, her long brown hair all over me, and I’d lie there listening to her breathing as she calmed down and began to sleep. She breathed like a cat, exactly the same frequency and that, and the running water, would calm me down as well. Then I’d be ready for the second round of whatever battle I was fighting at the time

Sometimes I wonder whatever became of her. She would (and did, sometimes) follow me into Hell itself without a pause, a question or a second thought. But she didn’t understand the dangers or the risks and it was really unfair of me to encourage her under those circumstances.

She was someone to whom life had dealt an absolutely wretched hand of cards but I admired her for the way that she fought on regardless.

As for the other girl who drifted into my life, calmed me down and gave me the same kind of comfortable feeling, I’ll let you guess who it was. If you like, you can tell me and I’ll tell you if you’re right or wrong.

Having had Alquin on the playlist just as I was going to bed last night, today I’ve had their three albums going round in a continuous loop all day and that, together with all of my medical issues, has depressed me to a point that I could do with p-p-picking up a Penguin right now.

In fact, I actually crashed out for 5 minutes and it was she who came to check on me. That was rather ironic.

But retournons à nos moutons as they say around here.

The first time that I encountered Alquin was, despite the fact that they are from the Netherlands, Delft in fact, in a dingy damp cellar under a decaying hotel in Crewe in the Spring of 1975 where there was a rock club frequented for a while by the misspent youth of the town.

They are (because they are still going) a bass-driven multi-instrumental band, although they have lost a lot of their power after bassist Hein Mars left them.

In fact I had a bit of a desultory correspondence with them at one time. The bass lines are some of the best that I’ve heard on a consistent basis and all of the songs are pitched in a key and a narrow vocal range that I can actually sing well enough.

After all, you never know. When a young boy called Alan Davey was learning to play bass he played along to Hawkwind records and one day sent off a tape of his efforts to Dave Brock. 10 years later, when Brock was looking for a new bassist after Harvey Bainbridge moved to keyboards, he remembered Davey, and Davey played bass with Hawkwind for 20-odd years in a couple of spells

But meanwhile, back at the ran … errr … cellar, any group that can produce a song LIKE THIS on THEIR DEBUT ALBUM, MARKS has to be worth checking out so I’d been keeping an eye on them.

Their second album, THE MOUNTAIN QUEEN is even better. If you haven’t heard the bass solo near the end of the TITLE TRACK Grahame, give it a listen.

What interests me most about that track, and the bass solo in particular, is the rapport between Hein Mars on bass and Paul Weststrate on drums.

As far as I’m aware, I’ve only ever heard an interaction like that between two musicians on one other occasion. Listen to Simon House on violin and Adrian Shaw on bass during the violin solo in the middle of DAMNATION ALLEY and you’ll see what I mean. Put your headphones on and turn the bass full up.

Now THERE was an underrated rock musician, Simon House and his violin. If I had engineered and produced ASTOUNDING SOUNDS, AMAZING MUSIC, while Robert Calvert reads his poem in the middle of STEPPENWOLF I’d have had long, long pauses after every line while Simon House winds up the magic and builds up the suspense and tension.

But anyway, more Alquin is going round. So, in the words of the Mountain Queen
"take your time and join me
I’ll tell you an endless story
Rest your head beside me
In that fading light."

And right now I’d settle for almost anyone’s head beside me, not just Percy Penguin’s or the other person whose name I didn’t mention. I don’t want to drag her into all of this rubbish any more than she’s been dragged into it already.

0

Tuesday 19th December 2023 – THE GOOD NEWS…

… is that if there is a change in condition of my heart, it’s an improvement. The cardiologist put me through my paces this morning and her opinion is that whilst the evacuation of the heart isn’t 60-65% as it’s supposed to be, it’s not the 48% that the previous cardiologist recorded.

For the benefit of new readers, of which there are more than just a few, let me explain.

A normal blood count should be between 13 and 15. My carcinogenic protein is attacking my red blood cells so my blood count is less than it ought to be.

If, for example, I have a blood count of, say, 9, it means that my heart has to beat 50% faster to move enough oxygen around my body.

If the evacuation is, say, 48% instead of 60%, it means that it has to beat 25% faster still to take the oxygen loss into account, and that means that it’s beating at 185%-190% – almost twice as fast.

The heart can do this for so long of course, but not for ever. And this is why they are keeping a close eye on mine.

But the bad news is that they gave me the tests where they pulse electricity through my nervous system to see how the nerves and muscles respond. It’s the fourth time that I’ve had this test and each time they have noted a deterioration.

And that’s how it was today. I’m losing more strength in my legs.

But returning to last night I mentioned yesterday that my blood level had dropped below the critical limit, which is 8. Then there’s not enough oxygen to make the body function. And, I suspect, that’s why I’ve been feeling so miserable these last few days and why my co-ordination is going.

And so at 23:44 they cam around with two pochettes of blood to give me a transfusion.

It took four hours for the transfusion to be completed, with someone coming around every half an hour to check my pulse and blood pressure. And being the light sleeper that I am, it awoke me every time.

And what was the worst about this was that at one point Zero came to check on me too but just as I started to talk to her one of the nurses awoke me to take my blood pressure, and I couldn’t go back into the dream afterwards to carry on our conversation.
"Candles burn
dull red lights
illuminate the breasts of four young girls
dancing, prancing, provoking …
Dreams are always ending far too soon
Life’s to short to be sad
wishing things you’ll never have
You’re better off
not dreaming of
the things to come
Dreams are always ending far too soon"
It seems that CARAVAN HAVE BEEN HERE BEFORE ME and know the feeling only too well.

But as I have said before … "and on many occasions too" – ed … that after having lived a life full of excitement, the only excitement that I seem to have these days is what goes on during the night.

I’ve been told on many occasions that I ought to take sleeping pills to have a good night’s sleep and I’d cope with things much better during the day

And miss out on what goes on during the night and the possibility of a visit from TOTGA, Zero and Castor, and anyone else who comes along to keep me company? You must be joking!

And strangely enough, the walls of my room are actually grey and pink.

By about 07:15 I’d given up the idea of a good sleep and once I’d gathered my wits, such as they are, I set out for the bathroom and a good wash.

However no sooner had I started than a nurse came round to take a blood sample. It was quite a while before I made it into the bathroom and the chance of a shower was gone.

Having said that, the van to pick me up to take me to Cardiology was rather late but the driver stuck me in a wheelchair and pushed me outside to his vehicle.

Once more, for the benefit of new readers, this hospital isn’t built “up” like most modern hospitals, it’s built “out” on 33 hectares with a whole series of buildings built since the earliest hospital building on the site, in 1648. Consequently there’s a fleet of electric vans with drop floors and ramps in the back for wheelchair-bound passengers and a bus service for those who can walk, to take people from one building to the next.

First stop was Cardiology, second was Neurology and finally, after much waiting about, I came back here in time for lunch.

For each of the trips I had the same driver and vehicle. He’s a rock music fan and one-time musician so we had a good chat. He imagines people like us in an Old People’s Home in out 70s and 80s still rocking the crowds of old women, and 70-year old groupies throwing their panties onto the stage.

Back in 1973 a group of us was hired as roadies for “The Sweet” when they played at the Liverpool Empire and the things that we saw, well, perhaps they are best left unrecorded.

This afternoon I had an endless stream of visits from different medical personnel doing all kinds of different things. But my neighbour, the President of the Residents’ Committee, is in Paris again and she came round for a chat which was very nice.

She stayed for about an hour and we chatted about nothing in particular and then she had to nip off.

However her visit coincided with afternoon coffee so they didn’t bring me a cup. But I managed to blag a cup of coffee later on from one of the nurses.

They don’t like my blood pressure. They think that it’s far too high and there’s no real reason for it as far as I can tell.

However it wasn’t as high as the time at Castle Anthrax when the young student nurse with the low-cut overall and no t-shirt underneath climbed all over me to couple me up to the machine.
"I don’t know why your blood pressure is so high this morning."
"I do" I thought to myself. "And if you climb over me like that again it’ll go even higher."

There was plenty of work that I have to do but I didn’t accomplish all that much. Last night’s lack of sleep took its toll on me and I was falling asleep for 10 minutes here and there all day.

However I did manage to transcribe the dreams from last night. I’d been to a Saturday lunchtime class for my University course. Coming out I went a couple of doors away to where Zero was living. The house was empty but I had a key so I went in. There was a book there. It was part II of “500 photos of the Bangor area of North Wales Published Consecutively” or something like that. I sat down and began to read it. After I’d been reading it for a couple of minutes the front door opened and I could hear Zero’s voice along with my elder sister and her husband. That was quite a surprise. It was Zero’s birthday today and there was a party later on to which I’d been invited. Zero opened the door into the room where I was sitting. I said “hello gorgeous” to her and at that moment I awoke.

It seems that the medical staff of the hospital has joined forces with my subconscious in preventing Zero from succumbing to a virtual fate worse than virtual death.

And of course, I couldn’t step back into that dream, could I?

There was also a golfing competition taking place. The club decided that it would have an annual tournament so many of its members took part. I went along a a sort-of adjudicator, not that I knew any rules about golf. There were all kinds of things happening. On one occasion one player lost a stroke, or, rather, he had a ball moved so he had to play an impossible shot and then play on because of some infringement. People wondered if that was legal. Then someone hit a ball which was then lost from view so he took a penalty and another shot, and he found that ball but it was right by the one that was lost so he wanted to play the first ball again and withdraw the penalty but I didn’t know what to do. It was another one of these long meaderings that seemed to go on for ever and ever. As I said, I know nothing about golf and I don’t know why I was there. I don’t know any of the rules and couldn’t give any decisions on anything.

We were next building an armoured lorry for a trip into the Middle East. We came down to the question of the doors. We found a door that would fit, an armoured door, but it had seized up. We tried to dismantle it but one of the things was that the cover on one of the inspection hatches where the lock was, a bolt had seized solid and there was nothing that we had that would free this bolt. The girl who was going to drive the lorry also pointed out that it didn’t seem safe because the window winder had broken . I took it apart and found that there was a bearing and retaining clip missing so while the window winder would go round, if it went over a bump or something it might drop off and the window would fall down again to the bottom. That wasn’t in accordance with the idea that we’d had about this armoured lorry. She was insisting that we found another door where the window worked. My father was more interested in trying to remove this inspection panel off so that he could check the lock. The girl and I were joking about 1 or 2 things, talking about unnecessary heat that would ignite any kind of conversation. One of the guys had some WD40, sprayed the bolt with it and fetched a cutting torch with the idea that he’d use the cutting torch to set the oil alight that would heat up the bolt to free it from the hosing where it was stuck so that he could unscrew it. It was funny him doing that just as the girl and I were talking about heat so of course we had to smile. All the time my father was trying to remove the lock. He had someone else there who was freeing off another inspection panel to show the girl how the lock worked, trying to convince her that this was the most secure door that could be found but the young girl was extremely frustrated because she was still insisting on doing something about the window. If that dropped down in the middle of the mountains or something people would be able to enter or fire a gun into the cab. She was much more concerned about that but no-one seemed to be taking any notice of that. They were all trying to prove to her that this door was secure when it was quite obvious to the girl and me that it wasn’t, because of the window.

Having told them this morning (again) that I’m vegan, tonight’s tea was veal and carrot soup followed by salmon lasagne with spinach in cream

Luckily the nurse who came later saw what was going on and made me a bowl of cheap vegetable soup with bread, and my neighbour had brought me some bananas and clementines.

But it’s not that I’m unprepared. Following what went on at Riom over the food when I was there for my “second opinion” in 2016, I have brought a few supplies with me “just in case”.

In a few minutes I’ll be off to bed, and hope that Zero comes back to check up on me, or maybe TOTGA or Castor might come along.

But Castor seems to have disappeared now. It’s been ages since she’s come to visit me. Our three nights on the upper deck of THE GOOD SHIP VE … errr … OCEAN ENDEAVOUR looking at the midnight sun and the northern lights and singing to each other are long gone now.

Life’s too short to be sad, wishing things you’ll never have, but when you are sad wishing for things that you actually might have had and which slipped through your fingers on a deserted, windswept airstrip in the High Arctic as a ‘plane prepared to take-off for Ottawa, life is never too short for that

Before I went to bed, a Dutch group called Alquin came round in the playlist and we had their song THE DANCE from their second album THE MOUNTAIN QUEEN.

As we were talking … "well, one of us was" – ed … about ships that pass in the night and that kind of thing, somehow some of the lyrics of “The Dance” seemed relevant to our parting.
"Where will you be tonight?
Where will you be tomorrow?
Fly in your silver kite
And leave me here in sorrow
Hey dude can you see what you’ve done to me
Oh I’m feeling so bad
Yes I’m feeling so blue"

0

Monday 18th December – HERE I ALL AM …

… not sitting in a rainbow, but sitting in a seat against a window in a room on the second floor of the Batiment Heuyer of the Hôpital Pitié-Salpetrière.

That’s the Haematology department, so you can imagine why I’m here.

And we’ve just had another delightful verbal exchange, of the kind that you can only have in a hospital.
Ward orderly (about to take Our Hero’s temperature) "are you wearing a hearing aid?"
Our Hero "Pardon?"

Last night I ended up going to bed rather later than I intended. Alison was on line, I noticed, and I wanted to have a chat so it was nearer midnight when I ended up in bed.

Once I was in bed, I found it difficult to go off to sleep, as seems to be the usual case when I’m having to leave my bed early for something special.

When the alarm went off at 05:55 I staggered to my feet and set the wheels in motion. I’d made some sandwiches and packed last night but I had to sort out my medication, have a good wash change my clothes and so on.

There I was, all nice and ready quite early, but the taxi was late. Apparently my co-voyager is an inmate at the Centre de Re-education and having planned to be awoken at, coincidentally, the time of the change of shift, everyone there thought that everyone else had done awoken her. In the end it was the taxi driver who had to shake her awake.

And hadn’t he hit the jackpot? Not only did he manage to cram two different trips into one car on the outward journey, there was also a passenger to bring back. That’s the kind of day of which every taxi driver dreams, and good luck to him.

The other passenger had had a brain tumour and was blind, but its true what they say about other senses making up for those that you’ve lost, because she spoke enough to make up for it.

The driver was quite garrulous too, an older guy for a change, and it turned out that all three of us were cat-lovers so we had a really good chat all the way to Paris.

But I had more in common with the driver than the obvious. He too had lived with a woman and her child for several years and when they separated, he missed the little girl far more than he missed her mother. It seems that I’m not the only one who ought to have been a father. He certainly laughed at the story of Roxanne going off down the street several times on my Honda moped at 8 and 9 years old.

Despite being late, we stopped off for a coffee at a service area too. I had plenty of time to kill and the other passenger didn’t seem to be too bothered.

At Paris we dropped off our passenger at a hospital in the west side of the city and then headed across to the Porte d’Italie and my hospital.

My check-in time was 13:15 but I was here at 12:30. Nevertheless, my room was ready so I was installed here quite quickly.

The room is nice and comfortable, but it’s cold, as I expected and there is no internet.

All kinds of people came to see me so I didn’t really have a chance to settle down for quite a while.

It only took two goes for the nurse to put a catheter in my arm, so well done her.

We’ve had all kinds of orderlies and the like too, including a couple of doctors.

So thanks to the doctors, I now know what is the plan, and it is as I expected.

Apart from the usual tests that have been programmed, they are going to make a start on giving me this medication about which they talked the last time that I was here.

It has some serious side-effects and is not really recommended for anyone who has cardiac issues (which is probably why they never prescribed it at Leuven) but they think that it’s worth a try.

It’s only natural that they want to administer it under medical supervision. And so if you hear nothing more from me, you’ll know that the side effects were as serious as predicted and the cardiac team wasn’t quick enough.

They tell me that I’ll be here until Thursday but I’ve heard promises like that before.

Eventually I managed to find a quiet moment to transcribe the dictaphone notes. During the night I reached out for a green box that was on the bed with all of my shoe care stuff in it. Of course the box wasn’t there but I ended up with an absolutely enormous attack of cramp, thinking “what a way to start this flaming thing about Paris”.

And then there was Aberystwyth Town v Drenewydd in the Welsh Premier League. The Aberystwyth keeper Dave Jones had the ball and was bringing it upfield ready to clear it forward when one of the Drenewydd players tackled him and kicked him on the ankle. You could hear him cry out from where I was and the noise actually awoke me.

Later on, I climbed over the wall of a palace into the courtyard where all of this re-education was taking place. I found my particular body that was in there so I quickly took from it the elastic that was around the ankles and began to rock that particular version of me backwards and forwards to try to free off the movement in the legs but just then I awoke again

The hospital food is pretty appalling, as you might expect, but that’s not my major worry right now.

Having been off the Aranesp for a couple of months, my blood count has crashed down to 7.8. That’s below the critical level and will probably explain why I’ve been feeling so miserable just recently.

And so they have sent off to the laboratory for some blood and it’s likely that I’ll be awoken at some silly hour of the night for a blood transfusion.

It looks as if I can’t have a decent night’s sleep even when I’m in somewhere like this. I’ve spent most of the afternoon listening to Hawkwind so I’ll probably just carry on until I fall asleep or the world falls in on my head.

I definitely TOOK THE WRONG STEP YEARS AGO

0

Friday 1st December 2023 – THE BAD NEWS …

… is that my carcinogenic protein has now been found in my nervous system

The good news is that the doctor whom I saw in Paris at lunchtime is keen to have a go at tackling it. And who am I to object to that? What do I have to lose? My marbles – I lost them a long time ago. In fact, I doubt if I ever found them.

But it’s nice to have some good news. It’s been a long time since I’ve had any, and that’s not a cue to talk about those three days that are missing from my blog at the end of August 2019 aboard THE GOOD SHIP VE … errr … OCEAN ENDEAVOUR either.

But while we’re on the subject of good news … "well, one of us is" – ed … I had a really good session on the acoustic guitar working my way through part of my playlist. I reckoned that if I was going to spend 4 hours sitting in a car going to Paris, that would be as good a time as any to catch up on my beauty sleep so I may as well make the most of my own personal time.

The trouble is that most of my playlist is nostalgia-based and I have a lot of stories to tell about the songs on it. For example, in REAL LIFE my heroine comes from the Outaouais with black curly hair and, quite probably, regular readers of this rubbish will recall the name by which she might be known.

Then there’s MARY JANE’S LAST DANCE. "I’m tired of screwing up, tired of going down, tired of myself, tired of this town". I remember singing this to myself driving down from Crewe to Dover Docks through the night with all of my life that remained packed into the back of an old Cortina Estate

And I could go on … "not with a pickaxe through your neck, you couldn’t" – ed …

So abandoning yet another good rant for a while, I hauled myself off to bed.

As usual, being a very light sleeper and having to make sure that I’m out of bed promptly, I had an enormous amount of trouble going to sleep.

But in between the spells of wakefulness I must have gone off to sleep because the alarm awoke me.

First things first – I had a good wash and put on some clean clothes. If I’m going to be poked and prodded about I might as well make an effort.

Second thing was to check the papers in my backpack to make sure that I had them all. My sandwiches were in there too – I’d made them up the night before. It’s always a good plan to have a few bits of bread in the freezer.

Finally, there were the dictaphone notes. Something had gone wrong and we’d had a calamity. As a result everyone in our house had to go out on some kind of visit to someone important at some ridiculous hour of night in the middle of winter. There was a big storm raging. This meeting went on apparently much longer that it was supposed to and it was gone midnight when we all finally struggled back. I was in front having to feel my way along the wall and along the clothes line etc in order to arrive at the building. I eventually ended up in the outhouse to the house. I eventually managed to put the key into the door and open it. I threw on the light switch but there was very little power in the batteries so there was barely a glimmer of light illuminating anything. I could see that this was just going from bad to worse to worse.

Later I was at the University of Duluth in Minnesota last night watching a strange kind of game, something of a cross between basketball and ice hockey. Each team consists of both males and females. The aim was as in basketball or ice hockey to work the ball down towards the goal area where you could lob the ball over the crossbar. If it hit the ground you’d have a free shot at scoring a point, similar to basketball. The net was a kind-of thick arrangement where it was quite easy for the ball to be lost inside. Then it would vibrate and shake around, then dart out in all kinds of strange directions and everyone would run after it. I was watching from behind one of the goals because I knew someone from Duluth who was taking part. Duluth was leading up until the final minute when the opposition managed to get the ball over the bar and bounce on the ground behind which meant that they could have a free shot. However their free shot was held up in the net and the whistle blew before it was ejected. I went to have a chat to my friend afterwards but he couldn’t stay around because he’d only turned up to play the game. He was busy with his harvest back on his own farm.

Strangely enough, I’ve never been to Duluth. I did actually have a passage booked on a freighter going from Ijmuijen to Chicago and Duluth once but at the outbreak of Covid all ad-hoc passengers were excluded from freight sailings and as far as I’m aware they haven’t restarted.

Finally I went into work on Monday but half the cars wouldn’t start and there was a big meeting taking place. The boss asked me to go to the Centre des Urgences to explain and arrange for some assistance. All of a sudden I had a mental blank and couldn’t remember where it was. For about 10 minutes I was wandering aimlessly about the building even ending up down in the basement again in the stores with Henri. Eventually someone explained to me where it was and I found it but it seemed to be for people who were having to travel at last-minute rather than anything else Nevertheless I went over and began to explain the problem but a girl sitting behind one of the desks shouted at me “can’t you see that I’m busy? Can’t you see that I have plenty of other things to do?”. I stormed right over to her and gave her a complete and utter mouthful of exactly what I thought of her interruption and then went over to find someone else with whom I could speak at another desk.

The car came for me bang on time and as I was struggling downstairs the visiting nurse was running up on his way to attend to my neighbour.
"Do you want a Covid injection?" he asked. "I have one left over"
Do bears have picnics in the woods?

So there I was, a taxi driver at the bottom of the stairs, the nurse and I halfway up, me with no clothes on my upper body receiving an injection. It must have made a wonderful sight, but I wasn’t going to turn down the opportunity.

The drive to Paris was uneventful apart from the traffic around the Péripherique of course. And finding the correct building in the hospital complex (because it really is a maze) was quite straightforward.

Finding the entrance however was another thing, and once we found it, finding the reception was even more complicated.

And then I had the doctor, and we had quite an interesting discussion.
"Do you know why the hospital at Montlucon took out your spleen?" he asked.
"To be honest" I replied "I don’t think that even they knew why they did it"

And then I recounted my tale of woe about the events that took place between November 2015 and March 2016 with which regular readers of this rubbish will recall being regaled at the time.

But retournons à nos moutons as they say around here, and he told me that the last lumbar puncture revealed traces of the carcinogenic protein in the liquid that flows around my nervous system

So that, dear reader, is that.

But I’ve had to fight all my life and even if I were ready to stop, I wouldn’t know how to.

Over 30 years ago I met the old blues singer TS McPhee in a snooker club in Crewe and we had a good chat. He wrote A SONG ABOUT DYING "I’m like a ship on the ocean that’s rolling from side to side".

He goes on to say "I’ve done everything that I ever set out to do". Well, he might, but I’m a long way short of that and so I’m going to keep on keeping on, as BOB DYLAN WOULD SAY

He’s keen to get in there and fight too, which is good news. It’s always nice to have allies and I don’t have many of them.

His plan is to call me in after the New Year and have me stay for a few days. He plans another one of these really agonising lumbar punctures to check the results, and then he’s going to spend some time examining my heart.

What he reckons is that following the disastrous sessions of chemotherapy that I had and which were rapidly abandoned, there might be some kind of tablet that might stimulate the nerve cells to fight back in the same way that Aranesp stimulates the red blood cells.

However it’s not for the faint-hearted – and he means that in the literal sense. He needs to know if my heart will withstand the strain. If not, he’ll have to think of a Plan B.

He told me about the side effect too, one of which is “bad attacks of cramp” however I don’t really know whether I have any vacant spaces in which to fit any more attacks of cramp.

At one time I started recording the attacks of cramp that I was having but for quite a while now, the only recording of attacks of cramp that takes place is when I go for a day without any, and I bet that you’ve not noticed too many instances of that.

After he threw me out I thought that I’d find a quiet place to eat my butties undisturbed and then phone the driver to say that I was ready but I’d hardly taken the first bite out of my bread before I was caught in flagrante delicto

Apart from the traffic leaving Paris and on the péripherique de Caen we had a straightforward drive home and I drifted away with the fairies now and again.

We were back here at 17:50 and the first thing that I did was to have an energy drink and then make a massive mug of hot chocolate. I’d had nothing whatever to drink all day.

After a rest I had another helping of sausage beans and chips. Something quick and easy.

But after my exertions today I’m off to bed. I’m not going shopping tomorrow. I really can’t haul myself off outside after today.

Instead I’ll send off my supermarket order and add onto it the things that I’d usually buy at the Carrefour.

Discretion is the better part of valour after the events of today.

0

Friday 27th October 2023 – THE PREVIOUS DAYS’ …

… completely entries are now all on line.

That’s because I have now found a decent internet connection – yes, I’m back home.

And getting back home was an adventure all of its own as you will find out as you read on.

Last night I’d gone to bed early ready for my early 05:30 start but as usual, I couldn’t sleep. I awoke at 12!50 with a start. I had the radio on and was still listening to it. Somehow the dictaphone that was by the side of the bed fell on the floor. I couldn’t find out where the noise that I was listening to was coming from. I searched round the bedroom for a minute or two until I suddenly regained my senses and found that it was my radio. I took off the headphones ready to go back into this dream and carry on.

And so I dictated into my little machine.

At some point I must have gone back to sleep but I awoke again at 03:00 and that was really that. By 04:30 I’d given up any attempt to sleep and ended up listening to the old-time radio programmes.

At 05:40 someone came round to take my blood pressure and then I had the breakfast that I was promised.

After everyone had gone I had a really good wash and then carried on with selecting the music for the next series of radio programmes. Nurses came and went of course but I battled on and I’m now up to 29th November 2024, with several holes in between such as my Isle of Wight Festival and my Hawkfest programmes for which I’ve yet to decide on the music.

The Hawkfest should be exciting though. There have been a whole variety of Spacerock groups from all over the world who have performed at the various Hawkfests and I managed to talk to a few of them at some point or another. I’ll probably end up with a couple of hours of music and there will still be a lot that I’d have to leave out.

At 11:50 I was whisked off to the IRM unit (in a wheelchair – how the mighty have fallen) where they injected me with a radioactive substance and left me to simmer for an hour, and then they stuck me in another Stargate where I went back and to for 20 minutes.

Back at my unit I was eventually allowed to eat my lunch – several hours later – and the doctor came to see me.

She told me much of what I already knew – about how the cancer is spreading through my kidneys, my heart and into my nervous system via a few other parts of my body.

She thinks, as I have been told elsewhere, that I wouldn’t be able to survive a heart transplant in my state of health so that’s out of the question. As a result she advised me not to buy any long-playing records.

However, she wants me to have an IRM done of my heart, and that can be done locally. It may be that some tweaking can be done to it to keep it going.

Regular readers of this rubbish will recall that right back at the beginning of all of this in 2015 I was told that I had a coeur de champion – the “heart of a champion” and that’s what will keep me going, but if ever my heart begins to give out, it’s the downhill slope.

And so her comments weren’t any surprise.

She did have some good news. She’s talked to the Haematology department and they may well be willing to take me on instead of my having to go all the way to Leuven. I’m entitled to transport to any hospital within 500kms of home. Paris is 334 kms and Leuven is 650 kms, so continue to go to Leuven means going by train and really, I just can’t do it any longer.

And that’s a disappointment. I had quite enjoyed my spell at Leuven because firstly it’s a beautiful city secondly, I get to see Alison, and thirdly it awoke all of the Flemish that I’d picked up when I lived in Brussels.

Regular readers of this rubbish will recall that I first met Alison at that weird American company where I worked for almost a year after I left General Electric.

The doctor took my telephone and spent the next hour or so reading all of my reports from Leuven and translating them from Flemish to French. She’ll take them to the Haematologist and have a chat.

Presumably they’ll look into the other things that are going wrong with me.

The car pulled up for me just over an hour late and then we set off into the traffic.

Paris and its outskirts were nose-to-tail all the way, and we crawled slowly out of the city. Once we hit the countryside we could put our foot down and began to make good time, only to be pulled over in a Gendarme control.

It’ s obviously near the end of the month and the Gendarmes don’t have enough victims so they went over the car with a toothcomb until they found something for which they could write out a ticket.

It was 21:00 when we finally arrived here and my cleaner was waiting for me. She and the taxi driver helped me up the stairs into my apartment for which I was grateful. It was an agonising climb.

Once I’d recovered I made myself baked potato, baked beans and vegan sausage and that was that.

Now I’ve written my notes I’m off to bed. There’s no alarm in the morning and I’m going to have a lie-in – if I can. There’s usually always someone who comes along to interrupt me.

0

Thursday 26th October 2023 – THE GOOD NEWS …

… is that I can go home tomorrow. The car to pick me up has been arranged for 14:30 but if the last time that I was here is anything to go by, it’ll be long after midnight before I arrive back home.

My cleaner contacted me too. As I won’t be back until late, would I like her to fetch my Friday shopping for me?

As I have said before, the solidarity amongst the residents of my building is something that I’ve never ever encountered before.

The bad news is that it has not been confirmed that it is indeed the carcinogenic protein that has entered my nervous system.

That means that unfortunately the end is nigh because it will slowly creep through my body, including what’s left of my brain. And they did warn me right at the beginning of all of this that the end will not be very pleasant.

To be on the safe side, I gave my doctor a bit of lip this afternoon. In fact, she cut out a sample of the nerves in my lip to examine it – to see how far the cancer is advancing. If it’s that far up my body it won’t be long.

And I have made an executive decision – and as regular readers of this rubbish will recall, an executive decision is a decision where if the person making the decision makes the wrong decision, he is executed.

And the decision is that seeing as I can now barely walk, and I’m entitled to transport to any hospital up to 500 kms from my home, I have decided regrettably to end my association with Leuven and transfer my papers here. I really can’t struggle around on the train any more these days

In all honesty I don’t think that I’m very far off having to have a carer. It’s a shame that Percy Penguin can’t drive. 30 years of working in an Old People’s Home will have prepared her for whatever she might encounter with me but it’s no good if she can’t take me to the shops.

Meanwhile back at the ran … errr … hospital I had a bad night last night. It took me an age to go off to sleep, for a reason that I really don’t know

At least there was no blood test at 05:20 this morning but they did awaken me at 07:10 for something and again at 08:50 when they brought breakfast. So once more I had breakfast in bed.

After having a really good wash I sat down and listened to the dictaphone to find out where I’d been during the night. There was something about changing one of my appointments around because of this therapy thing. I managed to do it absolutely fine. It wasn’t until the Tuesday when we were talking about my Welsh lesson that I realised that I’d promised to go on behalf of the class to some kind of meeting or conference on the Tuesday afternoon. Of course, that was now out of the question. I began to think about what I was going to do about it and how I was going to solve this problem.

There was something else too about being round at a girl’s bungalow. It was a girl whom I knew from school and a few of her friends. It involved going up a ladder onto the roof and doing certain things. I noticed while they were up there that part of the roof hadn’t been slated properly. There was someone else with me so I sent him up the ladder and gave him instructions as to how to do the roofing. In the end all the girls came down except the one whom I knew. She was still up there so I threw her a small pot of white paint and a brush and she painted some kind of slogan on the roof. She ended up with more paint on her than on the roof but never mind. When she came down, she reached as far as the edge of the roof and realised that her bra had come undone. She was having to fiddle around with it and fasten herself back in etc and hope that no-one else would notice before she came down the ladder. I noticed that her bra was a red tartan one. Eventually she managed to put it n beneath her clothes. As she came down she turned to me to ask if I’d sorted out the roof for her. I told her that someone had been up to realign the slates. She said that it didn’t look correct. I replied “no it doesn’t but that’s probably because you have the wrong slates. It’s certainly all properly realigned now”. She then began to talk about a few other jobs she needed doing like putting an electric junction box in the wall etc.

When we were living in Shavington there was a path that led to Willaston that went over the railway. The kids around there had all kinds of fun scrawling incorrect messages on the zebra so the controllers of the zebra decided that they would no longer stop there. It had already messed up all of my timetables before and it was going to do it again. One of the boys and I had this plan that we’d tackle this mess of graffiti by me climbing into the back of the truck and asking a pile of questions while this cat was crawling up my leg onto my lap. It took a long time to arrange this kind of meeting and it was as if she knew what most of it was about. She’d been talking for about 0.7 days even though I couldn’t walk and the cats were stuck in and the doctor had said so much about it and the kids couldn’t concentrate on doing their homework without thinking about the mill.

Usually, although I’m dictating while I’m asleep, when I come to transcribe the notes I can recall little bits of what’s been going on that ring a bell with me from the night. However for that one, I have absolutely no recollection whatsoever of that one and it makes absolutely no sense whatsoever – not that many of my nocturnal travels actually do.

So back into the night and we’d all gone round to someone’s house in our family to watch a football match, Arsenal against some European side. We were all there watching this game in the living room. Just then my father pulled up in a van. We heard that he might be coming but he hadn’t been there at the start. As we watched, he just parked up outside. I opened the door and asked him “why don’t you reverse the van up the drive?”. He made some remark about how he couldn’t reverse like many other people. Then he opened the door and my mother and 6 or 7 other people swarmed out. We all said that it was totally stupid bringing that many people in this little van. They all came into the house and we had to explain to them how the wiring system works because we had special plugs for the television. While we were looking at the TV plugs we noticed that the wallpaper on one of the walls was becoming really damp. We all settled down – or at least, they settled down taking everyone else’s chair. When we came back in there was nowhere really for us to sit. There was just one seat so I said to one of the girls “you’d better sit in that seat because you’ll be comfortable there” because her seat had been occupied by my father’s sister’s husband. He had a reputation for chasing after the girls. She felt extremely uncomfortable when she saw him sitting in her seat.

When the nurse awoke me I was talking about gardening. We had all kinds of fruit trees, plants and so on and we’d been transplanting them. The girl with me had taken a couple of apple trees and planted them outside. A few hours later she brought one of them in to plant inside the house again, saying that it wasn’t doing very well outside and had caught some kind of disease or something. I was looking at one of the flowering plants in a pot. It hadn’t done very much for a couple of years but I noticed that now it had about half a dozen flowers on it and a couple more were forming. I told her about them but she was too busy at that moment to come to have a look.

For much of the day I was left on my own and was able to pile on with selecting the music for future radio programmes. In fact I’m now at 25th October 2024 but there are several gaps in there. I have to think about what music I’m going to play for my Hawkfest and to commemorate the first Isle of Wight Festival.

There were the usual nurses coming to and from and I had the usual gaggle of doctors come to see me, and that was when they told me the bad news. But they tell me that there are all kinds of follow-up action to come, some to be undertaken here and some that can be undertaken closer to home.

And so I’m going to be very busy in the near future, and the local ambulance service is going to be making a lot of money out of my health insurance providers. In case you don’t know, here in France they have what they call VSLs – Voitures Sanitaires Légères – that are like taxis but equipped to take people who aren’t mobile to their hospital appointments etc.

This afternoon the doctor came back with a friend. They wanted to take a sample of my lip tissue with a piece of my nervous system. So they injected my lip with a local anaesthetic and then attacked it with a scalpel. It took three attempts before they actually ended up with a nerve.

They did tell me that if I didn’t want the lip thing they could take a sample of grease from somewhere else but that would involve a surgical intervention. But sod that for a game of soldiers.

Importantly, while they were doing that I missed my coffee so I had to go out and hunt it down. They didn’t want to give it to me because of what I’d just been through but I insisted.

After tea I began to write my notes but a nurse came to see me to tell me that I must be à jeun tomorrow morning as I’m having something done to me at 12:00 for which I have to have an empty stomach.

But that fasting starts at 06:00 so as she’s coming to put a needle in me at 05:30 I persuaded her to bring me some bread jam and coffee. I’m not going without a meal.

So right now I’d better go to bed and make myself ready for tomorrow morning. I’m not looking forward to the needle, I’m not looking forward to whatever it it that they are going to do to me, but it will be nice to be back home.

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