… from Paris, and in one piece too which makes a major change.
And I’ve learned a lot too, which also makes a change, but very little of it about what is going on, for the simple reason that I’m not convinced that the hospital knows all that much about things.
Not that that’s any surprise. It’s pretty difficult when you are dealing with a rare illness for which there is no known cure and everything has to be done by trial and error, crossing of fingers, and hoping that something somewhere will work a miracle.
Instead though, I’ve been shown a whole new way through Paris – a way that’s almost totally devoid of traffic – and Ill remember this for if, by any luck, a miracle happens and I can come here again under my own steam. However, I am not optimistic.
Just as last night I wasn’t optimistic about having a good night’s sleep. I never seem to manage one in normal circumstances and there’s even less chance when I have a journey the next day. It’s always the case and I’ve never worked out why.
Going to bed long after midnight doesn’t help matters much, but I’m at the stage where I’m past caring. As I said yesterday, whenever that was, I’ve long-since lost all track of time here.
Whatever the contretemps was last night when I was thinking of going to bed, it was still continuing so I thought that it was probably a better idea to keep well clear rather than sticking my oar into a controversial situation … "perish the thought" – ed … and I left them to it.
For a change I was asleep quite quickly but as usual kept on awakening which put me off my stroke.
There was the 06:15 blitz through the ward and even though I had my alarm set for 07:00 I was awakened unceremoniously at 06:25. Diabetes check below the limit but I was refused my supplementary orange juice. "Your breakfast will be here in a moment".
When I protested I was told to sod off. What a way to start the day!
However, she was right. Breakfast WAS served soon. Too soon in fact because the bread hadn’t arrived and I had to have biscottes.
The taxi driver came early and I wasn’t finished in the bathroom so he had to wait. But when I emerged I was shoved into a wheelchair and pushed off, clutching my crutches and the packed lunch that the nurse handed me.
There was “some issue” about my packed lunch. When it turned up it was ham and cheese sandwiches, absolutely ideal for a vegan I don’t think. And so for the first time ever in my life I have had bread sandwiches – two slices of bread with … a slice of bread in between.
The driver has run me around before. He’s a nice enough guy and a good driver but doesn’t have much to say for himself. Nether did I today so it was a fairly quiet drive and I slept for some of the way.
Astonishingly, we weren’t held up at all anywhere and sailed all the way through. A four-hour trip took just over three hours today.
Even more surprisingly, I was seen straight away by the specialist.
The lumbar puncture and the electric shock examinations from the other week when I was here as an in-patient don’t show any significant deterioration. But they don’t show any significant improvement either, which he found disappointing.
Consequently he’s going to change my chemotherapy tablet, the one that costs a King’s ransom for some other tablet.
There’s also the suspicion – only a suspicion, mind you – that there’s something else causing this creeping paralysis. He reckons that the amount of drugs pumped into me ought to have had a reaction. Consequently he wants to carry out a Biopsy of my nervous system. This will involve the stay of a few days in September.
Well, why not? What do I have to lose? Only my appetite with the food that’s on offer there.
But seriously, if I’m going to be poked and prodded around and used as a guinea-pig, I may as well make it worth my while and go the whole hog.
There was a blood sample that needed to be taken so I staggered off there where they had several goes at finding a vein and, on staggering out, staggered right into my driver who was passing down the corridor.
"Do you want time to eat your lunch?" he asked.
"No thanks" I replied, having seen what was in my food parcel "Let’s go straight back"
So having taken a different way home, at least as far as the suburbs of Paris, we were back here at 16:15 where the nursing staff, sincerely and unprompted, expressed their dismay at my lunch. "The hospital needs to make more of an effort". Someone fetched me an apple, for which I was grateful.
It’s been confirmed that I am going home tomorrow. "You could have gone home tonight but we didn’t want you to go home to a cold apartment and have the effort of cooking for yourself after the exertion of your trip to Paris" said Emilie the cute consultant who came to see me.
And you ought to be proud of me. I actually did refrain from offering her my front-door key and telling her warm up the place and put the supper on the stove.
But she did come to see me to find out how things went and she photographed the relevant info from Paris. She wished me luck on the next stage of my adventure with my health issues and by the time our conversation finished, I wasn’t really sure who was chatting up whom.
Yes, I’d quite happily massage her clavicles any time of the day or night, whether she asks or not.
There was some stuff on the dictaphone from last night. I’d been out entertaining our parents in the RAF station.. When they came back there were three bats entangled in the barbed wire. We tried to laugh it off but in reality what had happened was that a couple of Lancaster trainers had one into the barbed wire too. Two of our students were killed. We tried to laugh it off as some kind of nothing much or not very important but from where we were we gradually prepared ourselves for flying operations and gradually tried to keep in shape etc ready to leave and set off. But we had the funeral and then we had to check the barbed wire in the camp and the guards. The guard was shaken up but I dunno I suppose that was what happened.
That’s rather a garbled account of something that I can’t really understand. The barbed wire from last night seems to be there but I’ve no idea about the rest of it Funerals on Air Force bases were commonplace following crashes and the like when trainees were overwhelmed by the equipment and machines that they ere operating and people who witnesses these accidents went to extraordinary lengths and took extraordinary measures to put the images of what they had seen behind them..
While I was on a field exercise I came across a guy living in a hut in the mountains. He was living in deplorable circumstances but I’ve no idea why. I had him arrested and taken back to base. It turned out that he was in fact someone who had been conscripted years ago but had fled. His whole life had been living in this cabin and he had learned so much in his two years of isolation. He taught it all to us, even down to eating possum Without him, our Air Force careers would have been so much tougher because he taught us to survive, and to survive on next-to-nothing. When we were prisoners that was just how it was – survive on what you had and don’t think about anything else
That reminds me of when I lived down on the farm and at a meeting once I was chatting to two British guys who were discussing “this strange British guy who lives like a hermit up in the mountains and no-one ever sees” and it took me a full fifteen minutes to work out that they were talking about me. I’d fit the description in this dream quite happily except that I’d draw the line at eating possum of course. The “deplorable conditions” would fit nicely though.
So anyway, home tomorrow it is. At least, if I can climb the steps up to my apartment. I’m not optimistic because I’ve been practising and it doesn’t seem to have made any difference.
And that bit about “dealing with a rare illness for which there is no known cure” brought a wry smile to my face. It reminded me of the Summer School for one of my University modules back 20-odd years ago where a group of us on a Science awareness course managed to club our heads together in the laboratory and discovered a cure for which there was no known disease.