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Wednesday 10th January 2024 – IT’S AMAZING …

… how much of a big difference a couple of little actions can make. And that’s something that I’m going to remember for the future, that’s for sure.

This morning, they brought me two bread rolls for breakfast. And a couple of hours later they brought me a mid-morning coffee. You really have no idea and can’t possibly imagine how much those little gestures have meant to me and how much they have improved my morale from yesterday’s miserable efforts.

Mind you, I did have a shower and clothes-washing session in between. Years of living on the road has taught me to take advantage of every shower that comes my way because sometimes they are hard to find. And when you do find a shower, take your clothes in with you and give them as good a wash as you possibly can.

That’s an old tip that I learnt from the Bible –
"while shepherds washed their socks one night
all seated round the tub
the Angel of the Lord came down
and gave them all a scrub."

Something else that cheered me up were the messages that I received yesterday

Sean wrote to me to say what a horrible night Monday must have been and to keep my chin up for things can only improve. And he was right this morning, as I have already said. That bread roll and coffee, and your message, cheered me up immeasurably.

Grahame’s message cheered me up too. In fact it made me laugh. I’d been talking about hallucinating and Hawkwind, and he wanted to tell me about the time that he did both together many years ago. I thought that that was an avenue down which it was unwise to go any further.

But it did remind me of the time that Nerina took me to see Hawkwind at Keele University one night. Nerina is quite a bit younger than me so when the band came onstage she rushed to the front like all the young’uns do.

After a while she came to look for me and found me standing at the back
"Why don’t you come to the front?" she asked. "The view is so much better there"
"That’s as may be" I replied " but hey! The smell is so much better at the back, man."

Rhys wrote to me a short while ago but his message is buried under … gulp … 450-odd others that have come in while I’ve been busy sorting out transport and all that kind of thing.

He thinks that I’ll outlive everyone else who has had this illness and set new records. Well, I didn’t feel like that yesterday but a good night’s sleep and my bread roll and coffee fired me with a new enthusiasm, and who knows? It won’t be for the want of trying, and it won’t be for the lack of support either, medical or moral. Not that “moral” is a word that is usually used when I’m about.

But to be serious … "for once" – ed … Rhys was one of my close friends from University and I was lucky enough to be honoured to be best man at his wedding in South Carolina in 2005

The marriage didn’t last as long as it ought and poor Gretchen is no longer with us which is a shame for Rhys and her family.

But I remember the wedding – and more importantly, the weekend afterwards while they were away – vividly. I met a young Mexican girl at the wedding and we spent a lovely weekend together down at Charleston and then back at Columbia for a Widespread Panic concert on the Sunday night.

Regular readers of this rubbish will recall that I have a certain weakness for Southern Rock – groups where the lead guitar solos can sometimes go on for several weeks, groups like the Marshall Tucker Band, The Outlaws, Doc Holliday and Blackberry Smoke (who I photographed when I was official photographer for the Fredericton Jazz and Blues Festival in Canada).

But the leading group of all, surprisingly unknown in Europe, is Widespread Panic. I’d first encountered them when I was with Onion River Radio in Montpelier in Vermont years ago and I’d always wanted to catch them at a concert because like most Southern Rock groups, it’s simply not possible to reproduce on an album what they actually do onstage.

Anyway, there they were, topping the bill at the Three Rivers Festival that Sunday night in Columbia so Itzé and I blagged a couple of tickets (Press Passes always come in useful at times like this) and that was that.

Even now I still keep in touch with them and they’ve been kind enough to send me a few concerts to broadcast on my radio programmes

When I was on my marathon trek in 2017 saying goodbye to everyone whom I knew in North America, I managed to meet up with Rhys again and we had a weekend together. But the journey took so much out of me that afterwards I ended up at Myrtle Beach in South Carolina where I holed up for several days to recover my strength ready to go back to base.

Not the first time that I’d been to Myrtle Beach either. I’d been there in 2005 for a weekend too.

And that was strange. I thought (and still do) that Myrtle Beach is a bit of a dump – Rhyl with the sun, in fact.

But when I worked at that strange American company in Brussels where I met Alison, there was this woman going on about this brilliant place my the seaside where her husband had taken her for her honeymoon a couple of years back.

She espoused at great length about it and finally mentioned its name. Myrtle Beach. "Ohhh, Myrtle Beach" I said. "I was there last year. I thought that it was a bit of a dump. I’ll bring my photos in and show you"

Funnily enough, we never heard another word about Myrtle Beach. But the people there were strange. It was like being on another planet.

Meanwhile, back at the ran … errr … hospital, I mentioned a “good night” a little earlier.

That was obtained by the simple expedient of putting the perfusion pump in the bathroom and closing the door. And for once, I had enough silence that I could have a good night’s sleep.

Well, not quite. There I was, asleep, listening to Hawkwind’s MOTORWAY CITY in my dreams when one of my sisters brought me a really strange kind of bun like a cupcake with chocolate over the top and one or two other decorations but it smelt of onions. I wondered what it was going to be. Just then I actually awoke because of something on the music to which I was listening. I awoke, to find that it was “Motorway City” actually playing so in the end I switched off everything and went back to sleep. But it was quite strange having this onion-flavoured bun given to me by one of my sisters.

By about 06:00 my reverie came to an end as someone came by to take a blood sample, and that was that.

It was an endless stream of medical staff doing all kinds of things in here today, but an ominous sign is the doctor saying that she’ll send a physiotherapist to see me. If I’m going home soon that would be totally unnecessary so it looks as if I’m in here for longue durée as they say around here.

Some of the morning’s activities have already been mentioned, particularly the messages that I’ve received. It’s nice to hear from my audience so if you’re a new subscriber, of which there are more than a few just recently, or a long-time lurker, send me a message to say “hello”. There’s a link to a form at the bottom right corner.

Just be mindful that if you have a gmail address, I can’t reply to you. I’ll either say something on here, or if it’s private, you’ll receive a reply from STRAWBERRY MOOSE.

The rest of the morning was spent trying to decipher where I’d been during the night. And I’d put some miles in too. A friend of mine lives in Canada just inside the border. Right by where she lives was a railway bridge, called “Cedar Bridge”. It was a prominent feature of the landscape so all the slaves and everyone escaping the USA would flood across the border and head for Cedar Bridge. That would be the symbol that they’d reached safety. It was an iron bridge over the railway built for pedestrians only. One night at some point but I can’t remember the date it was just swept away. Cedar Bridge was destroyed. It was a terrible loss as a symbol of freedom from persecution for a great many people.

And then I’d received an absolute mountain of paperwork from a hospital in Canada about my illness, a mountain of it. I had to go through it and scan it all which took for ever. Then I had to post some of it to somewhere and some of it to somewhere else so it became incredibly complicated. I was halfway through doing it when I received another e-mail with some more stuff and some stuff that cancelled some of the first stuff. I had to restart what I was doing but I’d forgotten where I was. I’d lost my place. Then I had to send some information to my brother. The only way that I could do that was to send it to my niece and ask her to contact him. That started to become even more complicated still. I was there with all these papers and all these e-mails with all of these forwarding and “copy to you” kind of stuff. It was incredible. I was just so confused with it all and I wouldn’t be at all surprised if anyone else was too. When it came to writing up my notes at night it just turned into a load of gibberish. I just couldn’t seem to make it make sense

That sounds about right. I’m submerged in paperwork from my hospital visits and can’t sort them out properly before I’m overwhelmed with yet more from another hospital stay which contradicts everything that I previously received.

Later on, I won a prize in a competition. It was a baby pig. How on earth was I going to cope with a baby pig? A group of us who had had to go our separate ways arranged to meet at the Cheshire Cat in Nantwich. I eventually found my way there with this pig screaming and squealing and wriggling in my hands so in the end I just let it go. I didn’t know what else to do. Then I saw a bus go past, a bus from my school. It had “Competitors” written on it. There were loads of schoolkids on it, many of the ones whom I was hoping to see in the Cheshire Cat. I thought “this is going to be a wash-out, isn’t it?”. I reached the door of the Cheshire Cat. There was a Bouncer o duty. I asked him how many people were in. He replied “about 2”. I said “I’d better go to buy a 3rd drink, hadn’t I?”. When I walked in I found one of my friends sitting at a table with 2 other guys. I asked my friend what he wanted to drink. He wanted a beer but these other 2 guys wanted rum and coke. I thought “2 beers and 2 rum and cokes is going to cost me a fortune too”. Instead of going to the bar the main way I decided that I’d take a short cut through the crack in the wall which I did and ended up in the middle of 2 girls having a dancing class. They were girls whom I knew so I thought “at least I’m going to have some pleasant company” because I’m going to end up chatting to these 2 girls, I hoped. But this was all turning into a complete, confused mess too. I thought to myself that with all this going on today and I’m not having any luck whatsoever. I was having all this work to do and I just don’t understand any of it.

“… turning into a complete, confused mess”. And that’s something with which I can relate at the present moment, right enough.

Back in that dream again later, I had to leave so off I went. It was a Friday and I couldn’t go back on the Saturday so I was back Sunday lunchtime thinking that I still had 2 drinks left in the tap that I’d bought on Friday. There were just 2 people in there so I left myself in the glorious arms of the folk singer Miss Colwill who has figured in these dreams in the past but I don’t know where she fitted into this dream tonight.

And who is Miss Colwill? The names “Ruth Colwill” and “Rebecca Colwill” came immediately to my mind but there’s no trace of either

But stepping back into a dream again. Why can’t I do that whenever I’m about to lay my grubby paws on Castor, TOTGA or Zero?

Everything came to a dead stop round about lunchtime when they brought me a glass of sodium sulphide. And for several hours afterwards I was away with the fairies.

In mid-afternoon a discreet mug of coffee smuggled into my room revived me somewhat And I carried on with my studies of Victorian methods of tree pruning. I’m not sure why because I won’t be pruning any trees ever again. But in these ancient, 150 year-old books that you can download for free fromARCHIVE;ORG there are tons of useful, long-forgotten facts.

Tea was rubbish as usual but somewhere along the line the needle in my hand had been dislodged so all the perfusion was running up my arm. In the end the nurse had to take it out and stick it in somewhere else.

In fact he asked me to tell him where I would like him to stick it and, do you know, I was sorely tempted …

More sodium sulphide has found its way into here so in a minute I’ll stick the perfusion machine in the bathroom, switch off the Hawkwind playlist that’s been playing for the last couple of days, and hope for another pleasant 5 or 6 hours of uninterrupted sleep like last night.

But whether or not I’ll get it is another thing. There’s too much going on here for that. So I’ll just hope for pleasant dreams

Look out Castor, TOTGA and Zero! Hee I come!

Monday 1st January 2024 – HAPPY NEW YEAR …

… to everyone who reads this blog entry, either today,, tomorrow or in the future.

May I take this opportunity of wishing you for 2024 everything that you wished for everyone else in 2023.

And I know that it will only be good wishes, because it’s only nice people who follow this blog.

These days I’m a lot nicer than I used to be. I’ve learnt a lot over the years and life has taught me a lot too, and I wish that 40 years ago I was the person who I am now.

But that can’t be helped, can it?

But seriously, I do wish you all a very happy New Year with lots of love.

It’s been one of the most difficult year of my life, I reckon, worse than 2015 when I was taken ill in the first place.

And I’m grateful for all the support that I received from my friends and from the people who follow this blog and send me little cheery notes every now and again to cheer me up when I’m feeling down.

Without the support of all of you things would be so much more difficult and I’m grateful for all of you.

For the benefit of new readers, of which there are more than a few just recently, I have a carcinogenic protein in my bloodstream.

Obviously, if you have more of one thing in a fixed volume, you have less of another, and the protein attacks my red blood cells to make room for its growth

The problem that that causes is that if you have fewer red blood cells, which carry the oxygen around the body, the heart must beat so much faster to supply enough oxygen to the body. And that’s something that can only keep going for so long

The blood count should be 15 units of red blood cells. If it drops below 8.0 the heart can’t deal with the problem because the pressure isn’t there in the system and I have to have a blood transfusion

By the way, when I was taken to hospital in November 2015 (thank you for ever, Rosemary) my blood count was 3.8 and by any kind of logic I should have been dead.

The protein moves around the body and so far I’ve had my spleen, part of my kidneys (and bits of something else, regrettably) and a couple of other things removed already.

Now, they have detected signs of the cancer in my heart, which is bad news in anyone’s book seeing how hard it has to work, and it’s invaded my nervous system so I’ve lost the use of my right leg, my left leg is going and little by little it’ll spread through the body.

The spleen is the big issue though. That controls your immune system so with no spleen I have no immunity to anything. I have a series of injections every few years but it doesn’t cover everything and in Canada last year I picked up a type of viral pneumonia that is unknown in Europe and which nearly killed me, according to my doctor.

And they can’t use penicillin to treat anything because I’m allergic to it, having been hospitalised with bronchitis and pneumonia when I was an infant.

They can only give so much treatment. It’s like a car battery – you keep on charging it up and slowly but surely it takes longer to charge and holds its charge for a lesser and lesser time. That’s how my bloodstream is right now.

There’s a lifespan on this illness too. No-one with it has lived longer than 11 years and I was diagnosed in 2015, so I’m well into the critical period.

And the end isn’t very pleasant either, so they say, but we don’t need to worry about that. Anyone treating me medically knows what to do and when to do it.

Anyway, I digress.

The alarm went off at 10:00 and I fell out of bed at that moment. “Late” you might think, but I didn’t go to bed until 04:00 this morning sorting out some of the concerts that I’ve been sent (thanks again, Shrewsbury Folk Festival).

So here’s A Show Of Hands wishing you all A HAPPY NEW YEAR and I hope that you enjoy that track as much as I did. It really is that good, I promise you. One of the best things that I’ve heard recently.

And that’s what I’ve been doing – checking over the stuff that I’ve been sent, with grateful thanks.

But there was also the dictaphone. A short night but there was plenty of stuff thereupon. I was with a woman last night. We were in a lorry and she was driving. We had to go to pick up some of my siblings so we set off. At one stage we found ourselves driving through Flagstaff in Arizona and we were talking about the town and my visit there years ago. She was saying that you need to be very careful, stick to the speed limits and don’t have good tyres on your car or they’ll disappear during the night etc. I agreed completely. Anyway we passed through the town and turned left at the end. There were only three of my siblings. I asked “where’s the oldest fourth missing sibling?”. “Ohh, she hasn’t come yet and I don’t think that she wants to” said someone. I thought “here we go again! I have to sort out my family but they don’t want sorting out, they just want to argue. Here I am again stuck in the middle of all of this and it’s nothing at all to do with me”.

At some point during the night some woman put down a basket of tomatoes, cherry tomatoes, down right in front of me. Just when I went to pick two of them they moved the packet and left me groping uncomfortably in mid-air trying to find it again. I was very disappointed that it had gone because I’d enjoy eating the rest of the contents

I also dreamt that someone had a great big pile of washing and put it right by the side of my bed. When I went to bed I had to manoeuvre myself around the washing very carefully but then I awoke. Getting out of bed I kicked a sock off this pile of clothes that were still there so I actually apologised to someone when I awoke while I was awake. It took me a couple of minutes to realise that this was actually a dream and not something that had happened in real life

When the alarm went off at 10:00 I left the bed but I kicked this pile of washing again and apologised to whoever it was, before I realised that it was a dream.

Ingrid rang me for a little chat too. Our conversations are quite interesting. They start off in one language, usually French, and when we can’t think of a word and we’ll speak in either English or Dutch (Ingrid) and Flemish (me), sometimes someone speaking in one language and the other person replying in another.

By the way, Dutch and Flemish are very similar languages and if you know one you’ll understand the other. It’s a bit like the difference between Scots English and BBC English.

Interestingly I had the 5-string fretless bass out again today. I was listening to a Phil Beer concert and ended up joining in. It’s difficult playing it sitting down and I can’t stand up to play it, but I did my best.

Tea tonight was a Christmas dinner, complete with Christmas pudding.. But how do I store the rest of the puddling that’s left so that I can eat it next year? Does anyone have any ideas’

So having done everything, I reckon that I’ll go to bed. Alarm at 07:00 tomorrow and back into the routine, whatever it is. It’s “all go” around here isn’t it?

And thanks again for all of your support over the last few years. It really does make a difference. And here’s Semisonic, a band that I met when I was with Onion River Radio (the good old days of internet radio) in Montpelier, Vermont. 2024 will be YOUR YEAR