Tag Archives: blood test

Thursday 6th March 2025 (cont) – NOW THAT THINGS … .

… are back to normal (well, as normal as things ever could be around here) I can carry on and do what I ought to have been doing, and update everything.

And had I known how things were going to have worked out, still being on my feet (well, OK, on my chair) at 02:00 I would have had an early night instead of being up to all hours watching Stranraer, after several weeks of impressive football, go back to their old, miserable ways and be easily beaten by the bottom club in the league who spent most of the night playing with just ten men.

That was as embarrassing as the defeat aginst Clyde a couple of weeks ago and was really depressing after the last three or four performances.

So anyway I went to bed eventually and had another perspiration-laden night where I was only really half-asleep for most of it.

When the alarm did go off I hauled myself to my feet and headed off to the bathroom for a scrub and even a shave. After all, you never know if Emilie the Cute Consultant is going to be there today.

No medication right now because you also never know if the nurse might actually want to come along and do this blood test this morning and it has to be done à jeun so I listened to the dictaphone instead to find out what had gone on during the night. There I was, lying here asleep and a girl was trying to load some ink or something into my mobile ‘phone so that it could print a document. I tried to pur some fat into it but the fat was in a chip basket thing. Of course, every time you tilted it to pour it the liquid would seep out through the holes so I wasn’t having any success with my cooking last night.

Can you imagine trying to lift molten fat out of a chip pan with the chip basket? I’ve no idea what goes on inside my head at night, but there again, I don’t have all that much more idea about what goes on inside my head when I’m awake.

Later on I was out in North Wales looking for an address. I ended up somewhere beyond Conwy in an area that I didn’t know very well but I couldn’t find it. I ended up on an extremely steep hairpin bend. Trying to walk or cycle up there was extremely complicated. When I reached the top there was a waterfall. The waterfall was where some kind of primitive dam had been that had been broken and the water was cascading over it down into the valley where it joined the main river. There was a main road off there to the right and there was a lot of traffic coming that way so it was complicated to cross the road. I did cross the road but still couldn’t find this address. In the end I saw a map with the shape of where it was and I identified that I should have been four miles beyond Abergele so I had to retrace my steps and try to return across the road on a pushbike was even more complicated with all of the traffic that was coming straight on down the main road. Once or twice someone paused and that was the signal for someone to nip over but I had to wait for a while and found myself in the end with about a dozen vehicles on the central reservation waiting for a gap in the downhill traffic again. Once we set off there were all these vehicles passing so closely and I was then freewheeling down the hill listening to the news about a bicycle race. There were two people in the middle of the road, a man and a woman with bikes and they didn’t seem to be paying any attention to me as I came hurtling down and I missed the woman by a matter of millimetres.

As it happens, I recognise this road too. It’s out of Llangollen heading down into mid-Wales and I was there 20-odd years ago with Nicole when we came to pick up the old LDV. The dam is very much how I would have imagined one of the “Dambusters” dams to have been after it had been blown up. Regular readers of this rubbish will recall that we WENT FOR A LOOK AROUND the dams few years ago on our way to Colditz and STRAWBERRY MOOSE‘s famous escape attempt.

Incidentally, four miles beyong Abergele up a steep mountainside is one of the Iron Age hillforts to which Arthur Allcroft took us a couple of weeks ago, but there was nothing about any hillforts anywhere last night.

When the nurse did finally turn up he did actually take the blood sample and I knew all about it because, as I have said before … "and on many occasions too" – ed … he just doesn’t have “the touch”.

After he left I made breakfast and carried on reading MY NEW BOOK. We’re discussing exciting subjects today, such as men marrying their daughters and the young killing off the old folks once they stop being productive and become useless mouths to feed.

He’s actually done some research into this and has found plenty of examples back in history and in more remote parts of the World where those customs were still current when he was researching his book. All I can say is that for someone whose day job was a clerk in London County Council, he had some strange pastimes and hobbies.

However, he has proved a point over which I have been puzzling. If people back in ancient history were so concerned about having useless mouths hanging around eating the produce, the produce must have been so scarce that not even family ties could hold the people together and stop them killing each other. So I remain totally unconvinced by the modern way of thinking that these hillforts were nothing but symbolic. The huge amount of effort that went into the construction of these immense defensive works and the amount of time they had to spend away from the fields or from the hunt, they really must have been scared almost to death by what might have happened had they not spent all that time and effort in their construction.

Back in here later I had a few things to organise and sort out but was interrupted by the telephone. "Is it OK if I come a little earlier, like 12:00?". It was my taxi driver.

What has happened was that last week these new Social Security regulations came into legally-binding force and so this is how it’s going to be from now on – taxis turning up at any time they like if they are obliged to combine trips. Not that I’m complaining because, as I have said before … "and on many occasions too" – ed …, it’s a free service and in any case the sooner we arrive, the sooner I can leave and so I sent a message to my cleaner to inform her.

Poor thing, she had to scramble here to fit my anaesthetic patches and was still here when the taxi arrived – at 11:47. The Sécu has instructed that a timespan of 45-minute either side of the booked time is acceptable under these new regulations and by my reckoning the car was actually 43 minutes early. That’s cutting it fine.

We had to pick up someone else on the way of course, someone who had a hospital appointment for an operation. "As we’re so early we may as well drop madame off at the hospital first."
"She’s going to hospital in Rennes"

When I arrived at the dialysis centre I was so early that they hadn’t even finished dealing with the morning’s patients but Julie the Cook saw me and she quickly finished off setting up my machine (patients have their own individual settings) and I was installed and up and running by 13:15.

She tried a new trick this afternoon. While she was setting up the machine she slapped an ice bag on my arm. And that actually might have helped a little – at least until the effect wore off.

Apart from the coffee, no-one bothered me at all until it was time to unplug me. Julie the Cook had gone home a long time before and one of the others came to sort me out. For some reason I was rather unsteady on my feet at first. It can’t have been low blood pressure because that was OK.

So it was 17:30 when I staggered out of the centre and the taxi was already waiting for me. We had someone else with us to drop off along the way but even so I was back at home by 18:15, much to the surprise of my cleaner

That was when I discovered the catastrophe in here, with the big desktop computer spinning around in BIOS mode complaining “I can’t find any disk with an operating system on it”.

Luckily I had a spare 1TB SSD that I’d dismantled from another machine so I formatted that in a disk caddy with the help of the travelling laptop and set about dismantling the big computer. It’s always good to perform a clean installation every couple of years because you’ll be surprised (or maybe you con’t) at the amount of rubbish that accumulates over the passage of time.

While I was doing that, I actually found what I suspect is the fault. There’s an internal power lead with three connectors for disk drives. The one that was connected to the SSD system drive has a crack in it and what seems to have happened is that the crack has allowed the internals to flex and they have shorted out.

No problem. I just disconnected the internal back-up drive and plugged the new SSD System drive into that connector. I’ll have to order a new power lead from somewhere in due course to connect everything back up on a more permanent basis.

While it was sorting itself out I made a quick tea – just like THE CARMICHAELS and "supper waits on the table inside a tin".

Back in here afterwards, I settled down and steeled myself ready for what is going to be a very long night

But while we’re on the subject of Colditz Castle … "well, one of us is" – ed … I’m reminded of that legendary “Two Ronnies” sketch from years ago.
"We’re making a film about prisoners escaping from a camp in Germany"
"What’s it called?"
"The Colditz Story"
"What are you making next?"
"A film about life in a South Wales mining village"
"What’s it called?"
"The Coal Tips Story"
"And after that?"
"We’re doing a film starring Raquel Welch who will be playing the role of an Inuit"
"What’s that called?"
"We haven’t decided yet"

Wednesday 9th October 2024 – I DON’T KNOW …

… where all this energy is coming from, but I know where it’s going. I’m about three quarters of the way through tomorrow’s work already.

The way things are going, I’m beginning to wish that I’d had this dialysis a long time ago. It’s quite constraining of course but if I can keep on going like this, even in the short term, it might even be worth the disruption. I only wish that it wasn’t so painful.

But there’s one thing that can be said for it, and that was that with having finished everything at a reasonable hour last night I was in bed before 23:00. And that doesn’t happen very often.

It wasn’t long before I was away with the fairies either, although I did refrain from engaging in anything on which the editor of Aunt Judy’s Magazine might comment.

Asleep I stayed too for quite some considerable time, which was just as well given the events of the previous night. I’ve no idea what time it was that I awoke briefly, but I was soon back to sleep again.

It was a struggle to raise myself from the bed this morning when the alarm went off and I almost missed the second alarm. That would have been a cardinal sin, right enough.

In the bathroom I had a good scrub up and then came back in here to listen to the dictaphone to find out where I’d been during the night. I was working on a car last night, a Ford Cortina MkI, changing the front wheel bearings. It was interesting to say the least watching me try to stand up after lying on the floor. I spent hours but I couldn’t set the adjustment of the wheel bearings correctly. In the end I set them to “something like” and gave up. While I was repairing it I was thinking “who’s going to fix Nerina’s car after I’ve died?” and “if the head gasket blows on this I’d have to go round to see my father but he’s really not likely to be interested – maybe after supper I think but I’m on the way of dying and I have to think about things like this”. While I was working there there was this young Chinese girl looking at me from out of a window. I thought to myself that sometimes it’s very nice to have an audience and maybe she does this kind of thing, watching people all the time – she might know (…fell asleep here …)

Back in the past I had a couple of Cortina Mk Is. The first one was great. Back in 1973 I was working for an insurance company and this car was a write-off. It had been hit in the front offside and was judged to be beyond economical repair. It was in our car park on its way to the scrapyard and owed the company £12:50. Nevertheless it was taxed and MoT’d for seven months so I bought it, patched it up with body-filler, stuck a headlight in the mess and ran it. When the MoT ran out and it wouldn’t pass the next, I loaded a friend and her baby into the car and drove it to the scrapyard to weigh it in. The owner looked at me, looked at the girl, looked at the baby and said “I’m terribly sorry son. I can’t give you any more than £15:00 for this”.

As for having my father fix my car, the highlight of my life was my father once asking me if I’d fix his because he couldn’t manage to do it. I treasured that moment for years.

Later on I found a job working in an Old People’s Home thanks to an agency. I had to start at 08:00 so I set out at 07:40 and parked where I thought this Home was. It turned out to be a big, expensive hotel so I roamed around for a couple of minutes and couldn’t find anything. Somehow I ended up in the basement and asked one of the personnel there behind the desk. He took me to the fire door, opened it and pointed to a building and said “it’s that one” so I set out to walk. It was much further than I anticipated. When I reached the building I went in. The ground floor was like a storage area. There was a couple of people wandering around so I asked them. They said that the Old People’s Home is further up. I looked around but there was no lift so I thought “how do these old people leave if they want to go for a walk or go out in a wheelchair?”. I walked up two flights of stairs – I was walking quite easily. I finally found the Old Peoples Home and the reception desk where they were very pleased to see me, saying “oh good, you’re here at last”. I thought about whether I should recount my adventures to them but I decided against it.

As if I’m ever likely to be working in an Old Person’s Home. But strangely enough, even though I can’t remember anything about the dream itself, I can still see the buildings. The hotel was a huge chalet-roofed place on the type in which I’ve stayed at Lech in Austria. Lech of course was a small town in Austria through which we drove on our honeymoon on our way to see Nerina’s relatives in Milan. It was such a beautiful town that we vowed to go back there again. I don’t know if Nerina ever made it back but as regular readers of this rubbish will recall, I’ve been back there ON SEVERAL OCCASIONS and of course, it is the favourite town in Europe OF STRAWBERRY MOOSE where he runs A TAXI SERVICE advertising his favourite hobby.

Isabelle the nurse came along and took a blood sample from me. Hit the vein straight away, totally painless and no drama either. She has “the touch”, quite unlike her colleague, so it’s no surprise that she gets to take all of the samples. Everyone waits until its her turn on the rota before they ask for their blood samples to be taken.

After she left I made breakfast and then read MY BOOK. Today we’re wandering around Aldborough in North Yorkshire and looking at the remains of the Roman town of Isurium. What’s interesting is that back in the 1850s there wasn’t a railway station anywhere near the town so he and his friends thought absolutely nothing of alighting from the train at the nearest railway station and walking several miles to the town and then back again later. These people were obviously made of sterner stuff than people today.

It’s also interesting that, in the days before preservation and museums, many of the householders who had uncovered mosaic floors in their gardens were quite happily exhibiting them, “price sixpence” but, as he says, "as all these inscriptions have followed each other within a few paces , we shall become alarmed at the expensive character which a visit to it is likely soon to assume , if an additional sixpence is to be levied on every fragment of building that turns up . The remains indicated by these inscriptions are so far , however, of sufficient interest to repay the visitor for the small sum demanded for showing them ."

Back in here I attacked the outstanding notes for the radio programme that I was preparing yesterday and now these are completed and ready for dictation on Saturday night.

That meant a stop for lunch – a slice of flapjack and some fruit. The supplies of fruit are running low so tomorrow I’ll have to think about preparing a supermarket order for Friday afternoon

This afternoon, having completed the day’s work already, I was planning on relaxing but instead I had a fit of enthusiasm again and carried on working.

Sometime next year, the International Day of Refugees falls on a day that my programme will be broadcast, and you’d be surprised just how many refugees there are in rock music

Edgar Froese and Johannes Krauledat fled from the Russians in Tilsit in the same column of refugees as my friend Lorna’s mother. Holger Czukay was expelled from Danzig, the parents of Gary Weinrib and Chaim Witz were survivors of Auschwitz and Belsen, Cait O’Riordan fled from Nigeria, and that’s just a handful of names.

It seems to me that a programme of music recorded by refugees would be a good idea for a programme. So accordingly I’ve been tracking down music recorded by refugees or their offspring and I’m now at the stage where I’m pairing it off and segueing it

That was tomorrow’s task but I’ll finish it off and start to write the notes. If I can finish early on Friday I’ll have a couple of hours off which will be nice.

During the proceedings my cleaner arrived and she helped me have a shower. I had a good idea too – if one wooden box on the chair made things easier, two boxes would make it easier still. And so it was too. I could swing into the bath with a lot fewer problems.

You have no idea just how wonderful it is to be under a shower after all this time. I really do feel so much better and so much happier with having had a good soak. Just wait until I’m downstairs and I have my walk-in shower

There was an interruption for the hot chocolate and coconut cake of course, after which I made a batch of dough for the garlic naan.

Tea tonight was a leftover curry of course, with rice, veg and a naan bread, delicious as usual. In fact it was one of the best that I’ve mad. The naan was cooked to perfection, for once in my life. The rest of the dough is rolled up into individual balls and stuck in the freezer for the future.

So now I’m off to bed for some beauty sleep before my trip to the Dialysis Centre tomorrow

But the story of the admission fees reminds me of the time that the public conveniences on Crewe Bus Station were built. There was an official inspection followed by a guided tour for the public.
The leaflet that was prepared to announce the showing proudly advertise the price "two shillings and sixpence – or two shillings and sevenpence if you want to see all of it"

Wednesday 11th September 2024 – I HAD ANOTHER …

… late night last night

One of my groundhoppers was out and about at Linlithgow watching Linlithgow Rose take on East Stirlingshire in the Scottish Lowland (Tier 5) League so I stayed up to watch the action.

Nicely poised after an hour at 1-1, East Stirlingshire threw everything, including the kitchen sink, at Linlithgow in the final 30 minutes in an attempt to snatch the victory.

And so you might expect, in probably their only attack in that period, Linlithgow roared off down the other end of the field and scored an unlikely goal to win the game.

Why this game is important will be revealed in due course

Anyway once it finished I did what I needed to do and crawled off, later than intended, much later in fact, to bed.

At some point during the night I awoke but I can’t remember all that much about it. I must have gone back to sleep quite quickly.

When the alarm went off at 07:00 I was at another football match in Central Scotland. It was just getting under way and I don’t think that the teams had been presented yet to the public. I was there ready to watch it and that’s all that I remember. I was interrupted when the alarm went off

And you’ll find out why I said “another” in due course.

But anyway I headed off to the bathroom to sort myself out for the day, not forgetting to make use of one of the little pots that the nurse had left me

Back in here afterwards I had a listen to the dictaphone to find out where I’d been during the night. And here we go. We had another one … "another one?" – ed … of these corners that was taken. It was at a football ground in Stirlingshire, the home of an amateur league side, quite well-appointed for what it did. They were apparently – Arbroath were visiting. They tried their luck against Arbroath but the ball went into the cucumber display and stuck here so they went back from Inverness, they’d bought one of the worst flights that they’d had and the one to Malta wasn’t any better. They were all ready for a brand-new challenge after this and see where this would take them.

It seems that I can talk nonsense without really trying, but regular readers of this rubbish will recall that already. Although the ball going into the cucumber display reminds me of a match at St Gervais a good few years ago when a sliced clearance out of defence went straight through the open hatch of the pie hut scattering just about everyone and everything in the immediate vicinity.

I dreamed that I already had the report of a dream laid out i front of me. It went something like “it was a game of pêl-droed yn erbyn …” and I listed two clubs with their names in Welsh and carried on talking about the game. Here I am, doing it in Welsh again. I wish that I could remember what it was all about then.

Yes 05:30 and we’ve had another phantom alarm. I was in the Scottish Highlands watching two games of football. One of them was a female match. There was a goalkeeper whom I know really well but I can’t think of her name. There was a centre-half playing. The two of them had recently formed some kind of couple which had raised a few eyebrows in professional sport but that’s how things have involved in the game of pêl-droed. I can’t remember any more of the stuff like this except that a lot of this dream was actually in Welsh yet again

So there you go – games of football in Central Scotland, dreaming in Welsh – you can tell what’s on my mind these days. But why doesn’t it work when I have Zero, Castor and TOTGA on my mind for as long as this?

The nurse came around to take my blood sample, the other sample and to deal with my puttees. She is getting to be very good at blood samples, doing it these days without a hitch.

But the list of instructions that she gave me to carry out tomorrow, and the list of things that I have to tell my cleaner, it’s unbelievable.

And after making all the necessary arrangements so that I might try my best to remember it, I needn’t have bothered because the two met each other in town and the nurse told the cleaner directly.

But the upshot of this is that it’s “all systems go” for the dialysis tomorrow.

After the nurse left I made breakfast and while I was eating I carried on reading my ROMANS IN BRITAIN book.

Today we were discussing the Roman fort that guarded the crossing of the Conwy River at Caerhun. I did some reading of my own and found the map reference – 53°12’58″N 3°50’02″W

And if I were to tell you that a typical Roman fort of this type would be either square or rectangular with rounded corners, then copy the map reference into “Google Maps”, click on the aerial photography view rather than the map view, and if you’ve zoomed in enough, what do you see?

If you look slightly above and to the right, you’ll see a strip of a different vegetation type going down into the river with some corresponding traces in the water near the opposite bank. What’s the betting that that’s what’s left of the Roman cobbles that made the ford?

Back in here I had a pleasant couple of hours finishing off the paperwork and when the cleaner came I was in the process of emptying the waste paper into the bin. You’d be amazed at how much I’d collected

But once that was gone, I made a start on the next radio programme and in an uncharacteristic burst of speed, finished everything except the dictation and the final piece of music.

At some point too I rather regrettably passed off into the wilderness. While I was asleep I dreamed that my brother was accompanying me as I reflected on a dream that I’d had, and I was waiting there for him to began talking again so that he’d awaken me.

Just recently I seem to have been doing that a lot, dreaming about the dreams that I’ve had.

Tea tonight was one of the best vegan curries and naan breads that I have ever had. And it’s just as well because my appointment with destiny is tomorrow.

As I said to my faithful cleaner, I’m not going to worry about anything. I’m just going to be swept along with the flow and go wherever the currents take me.

So where will it all end? My hero the Irish politician Boyle Roche summed it up when he said "I concluded from the beginning that this would be the end; and I am right, for it is not half over yet"

But the subject of “ends” reminds me of the two guys arguing in the pub.
"Are you the front end of an ass?"
"No I am not"
"So are you the rear end of an ass?"
"No I am not"
"So then you must be no end of an ass"

Saturday 13th July 2024 – IT LOOKS AS …

…. if we’re back on these rally long, difficult afternoons when I’m fast asleep for several hours, totally unaware of what’s going on around me.

And not just for an hour or two but I DO mean several hours. I remember it being 14:30 at one point but the next thing that I knew, it was almost 18:00 and I seem to have wasted almost an entire afternoon.

And that’s a shame because I can waste enough time with all my own efforts without actually needing any help.

Last night I fell asleep quite quickly too once I made it into bed and I can’t remember very much about the night.

Mind you, there wasn’t all that much to remember because once more, it was quite late by the time that I hit the sack. It didn’t take long for STRAWBERRY MOOSE to have me tucked up and comfortable.

When the alarm went off I fell out of bed and went off to the bathroom, grabbing a set of clean clothes on the way and rounding up all the dirty clothes and so on in the apartment

After I was washed and cleaned, it was the turn of the clothes. They all went into the washing machine and I set that off on a cycle. A very clever washing machine, mine.

Back in here I had a listen to find out where I’d been during the night. And, more importantly, if any of my favourite young ladies had come with me. But n such luck. It seems that TOTGA, Castor and Zero have deserted me.

Instead, we started off last night giving someone some driving lessons. We were driving around end ended up with me being admitted to the hospital, not because of an accident but that was probably where the car was on its way to take me. I was admitted to hospital and put into a ward. This was when there was a native uprising. Out outpost was attacked about three or four different times and it degenerated into a conflict like the conflict in ZULU at Isandlwhana … "Rourke’s Drift actually, but never mind" – ed …, half a dozen gallant defenders defending the compound of about 30 people against a horde of marauding savages. What happened in my version was that we had half a dozen or so military people and probably twenty civilians. The civilians weren’t all that keen on defending themselves and thought that we ought to negotiate, which, seeing as the tribes had negotiated with no-one else was a strange decision. They were very reluctant to take any precautions whatsoever and we had to force through. In the end we had the buildings fortified but they were so scattered that they were not much use to anyone really

Yes, I can’t imagine dividing your scanty defences and forces to try to defend every building. It was a maxim of Frederick the Great that "If you try to hold everything, you hold nothing" and we would have been much better off to burn all of the buildings except one and fortify that. And trying to persuade civilians to fight is sometimes extremely difficult, as long as there are other people there to do the fighting for them. Could you imagine how these politicians would fare if they had to pick up a gun and go to the Front.

The team from Llansawel figured again later on. They had started to make one or two signings but there was no signing that really impressed me any, just general run-of-the-mill mainstream Premier players. There was nothing there that they signed that indicated to me that they were hoping for a long and successful life in the JD Cymru League that at the end of their first season would see them relegated back to the regional leagues and someone else would come and take their place which of course would be with the gulf between Tier 2 and Tier 1 it’s only unfortunately to be expected.

And that’s a story that we’ve seen time and time again, of teams being promoted to the Premier Division and relegated straight away. It’s not that they are particularly weak, but that other teams are strengthening. This can be measured by comparing the results of Welsh teams in European competition. When they began to compete in Europe 30 years ago the best Welsh teams were often on the wrong end of some embarrassing scorelines but we saw only this week that even Caernarfon, who finished fifth in the table, can give an experienced European team like Crusaders a little lesson in football.

Liz was on line this morning so we had a long chat that went on for an hour or so while the nurse was taking my blood sample. And for a change, the sample was easy to extract and I don’t know why other people have so many issues about it. It was done in two minutes.

Isabelle sorted out my legs and then left taking away the blood and the “other” sample, and I carried on chatting to Liz over breakfast until she had to go off and do other things.

There were other things that I needed to do to but at 11:00 I had a phone call from my friend Robert who lives in the Orkneys (or Shetlands, I can’t remember now). We have a little project on the go and we shall be working on this for a while, maybe with the help of one or two other people.

But more of this anon

After the ‘phone call I hung up my washing and that should be drying nicely now. For a change, everything is up-to-date in that respect, and that’s not something that happens every day

Lunch was a salad sandwich with the last of the home-made bread so I made a mental note to make another loaf. I’ll need bread for the next few days, but I’ll also be taking some sarnies with me to the hospital. I know that their idea of food and my idea of food are likely to be different and I don’t intend to starve.

It was while I was sitting down refreshing myself ready to make the bread that things all went pear-shaped. And it wasn’t until about 18:00 that I began to make the bread.

While I had the oven on for the baking I baked some potatoes and one of those breaded quorn fillets that I like so much. No point in only having half an oven filled with stuff. I may as well fill as much as I can.

To pass the time while I was waiting for things to happen I wrote out some notes for one of the radio programmes that’s on the go at the moment. Every little time spent on it helps in the long run.

Tea tonight was a salad with my things out of the oven and it was quite a success, although I must admit to looking forward to the day that I will be in the apartment downstairs with a proper oven and not a little table-top one like I have.

So now I have some dictating to do, and then I’m off to bed ready to fight the good fight tomorrow.

But thinking about my dream reminds me of a conversation that I overheard at a football match a while back.
One guy was telling his friend "I was playing cards with some Africans last night"
"Zulus?" asked his friend
"No, I won fifty quid"

Monday 24th June 2024 – IT’S BEEN ANOTHER …

…long, hard, miserable, depressing afternoon when I’ve been more asleep than awake, more dead than alive

And that’s exactly how I’m feeling too – more dead than alive. This afternoon has been horrible and I can safely say that there was a certain moment when I felt worse than I’ve ever felt with this illness.

What’s depressing me about it is that it’s not actually anything physical. Having bitten off my tongue and having it sewn back after a car accident in 1987 I know what pain is, believe me, and while the physical feeling is nothing like the same of course, it’s something about when I awaken from one of these coma-type things

It’s as if there’s some kind of chemical being released into my body which immediately makes me think of one of these pills, powders and potions.

When we we were at school and the teacher left the Chemistry class for a few minutes, we’d experiment by dropping different chemicals into a test-tube in order to see what happened.

Sometimes something would go “boom” so we’d make a note of what it was that we’d mixed together so that it would come in useful in our adult life and boy, did we sometimes have some impressive “booms”. I wonder if somehow somewhere a couple of these chemicals are having the same effect inside me once their protective coating wears off in my stomach.

The medical professionals have assured me that that’s not the case and, after all, they ought to know, so I could go to bed without having to worry about anything.

Except going to bed of course. It was another really late night again last night by the time that I finished everything and I wished that I’d finished everything an hour or two earlier.

But exhausted as I was after my efforts I crawled into bed, I didn’t need much rocking. I was asleep quite quickly and didn’t feel a thing until the alarm went off. IN fact, judging by the position in which I was lying, I don’t think that I’d moved at all during the night – not one inch.

It was a very groggy me that lifted a shoulder from the bed when BILLY COTTON finally called and you’ve no idea the struggle that I had to leave the bed before the second alarm five minutes later.

In the bathroom I had a really good wash and brush up, and then went for breakfast. Grape juice and strong coffee with porridge and a couple of slices of my lovely, perfect fresh loaf toasted and smothered in vegan butter. Totally forgetting that I was supposed to have nothing whatever this morning as there was a blood test.

Ahh well. They’ll just have some very peculiar results but so what? Many of my results are already quite peculiar and so a few more won’t make any difference. It’ll give them something to think about at the hospital and stop them being bored.

The nurse did in fact ask me "you haven’t eaten, have you?"
"Who? Me?" I asked innocently, brushing the toast crumbs under the table quickly.

One thing I forget though is how many times he told me to write my name and date of birth on … errr … another little sample pot. But let’s be honest – no-one could ever mix up anyone else’s … errr … “sample” with mine.

He spent quite a lot of time today worrying about nothing at all but also gave me a shopping list of the supplies that he uses that are running low. So after he left I sent a mail to my loyal cleaner in order to set her a task while she was in town.

Next thing was to put away everything that I’d used yesterday and washed up. It had been draining overnight and needed tidying up. And there was a lot of it too. I didn’t realise that I had so much stuff. No wonder that I was struggling for room on the worktop.

But it’s a shame about the oven too. When I was on my final fling around Europe two years ago I picked up a fully-fitted full-size oven from Jean-Marc, the guy with whose family in Macon I stayed on a school exchange in 1970. He was modernising his kitchen and the oven that he’d just taken out found its way into Caliburn.

Hans lives in Munich about half a mile from one of the biggest IKEAs in Europe and so about a week later when I was there, I bought a kitchen unit in which to fit the oven.

That’s in the back of Caliburn downstairs too, but I don’t have the physical ability to bring it all up here. So all of that stuff will have to stay there and I’ll soldier on with my little desktop oven.

In here I didn’t do much at first. It takes me a while to warm up, as regular readers of this rubbish will recall.

There was some stuff on the dictaphone from last night, which was a surprise. Mind you, I’ve no idea what to make of it. “There was the boys stuff and then more stuff about bombers … indistinct … and I can’t remember any of it which is a shame” and that was all that it said.

Whatever it’s supposed to mean, I haven’t a clue. When I say that I was “away with the fairies” I think that I was over the hills and far away when I dictated that.

There was a ‘phone call too – could I go earlier to see the surgeon tomorrow? I declined the invitation because quite simply firstly I mess the taxi company around often enough with some of my trips. I don’t want to exhaust their goodwill by unnecessary changes.

Secondly, I have my Welsh lesson tomorrow and I’ve already missed far too many sessions what with hospital and all of that. I can’t really afford to miss any more.

The cleaner came round a couple of times to drop off different things. Apparently the nurse’s prescription has run out but the chemist obliged. The nurse must write out a prescription tomorrow for today’s supplies and I mustn’t forget to tell him.

While she was here I gave her a list of supplies to be bought from LeClerc when she goes to do her shopping. Things like my sunflower seeds and vegan cheese aren’t available on home delivery

After lunch, back in here I began to carry on with the editing of the notes that I’d recorded on Saturday night (thanks, Grahame) but this was where my troubles began.

No matter how I tried, I just couldn’t keep going. At one point I thought that if I just let myself go, have a good sleep and awaken, I’ll feel fresh enough to accomplish more than I would be fighting it off all afternoon.

Some hopes. It made me feel worse.

Finally at about 19:15 I began to pull myself together and by 19:30 I could go to make tea. A plie of stuffing, some of which went into a stuffed pepper and the rest into a container in the fridge for the next few days.

But with pasta and veg cooked in a tomato sauce, my stuffed pepper cooked in the air fryer was delicious, as it usually is. As I have said before … "and on many occasions too" – ed … I eat quite simply here but I don’t ‘arf eat well.

But right now I’m off to bed. I need to be at my best tomorrow as I have my Welsh lesson, this appointment with the surgeon and who knows what?

However I am going to make a rule, and that is “no breakfast until after the nurse has been and gone”. That way we can avoid any more unfortunate lapses of memory.

After all, we don’t want him in such a bad mood that he makes a mess of my blood test. It’s painful enough as it is without asking to be hurt.

But the way that he snatched up my other … errr … little sample pot before leaving. I thought to myself "now that is REALLY taking the p*ss"

Monday 17th June 2024 – I’M BACK …

… from Paris, and in one piece too which makes a major change.

And I’ve learned a lot too, which also makes a change, but very little of it about what is going on, for the simple reason that I’m not convinced that the hospital knows all that much about things.

Not that that’s any surprise. It’s pretty difficult when you are dealing with a rare illness for which there is no known cure and everything has to be done by trial and error, crossing of fingers, and hoping that something somewhere will work a miracle.

Instead though, I’ve been shown a whole new way through Paris – a way that’s almost totally devoid of traffic – and Ill remember this for if, by any luck, a miracle happens and I can come here again under my own steam. However, I am not optimistic.

Just as last night I wasn’t optimistic about having a good night’s sleep. I never seem to manage one in normal circumstances and there’s even less chance when I have a journey the next day. It’s always the case and I’ve never worked out why.

Going to bed long after midnight doesn’t help matters much, but I’m at the stage where I’m past caring. As I said yesterday, whenever that was, I’ve long-since lost all track of time here.

Whatever the contretemps was last night when I was thinking of going to bed, it was still continuing so I thought that it was probably a better idea to keep well clear rather than sticking my oar into a controversial situation … "perish the thought" – ed … and I left them to it.

For a change I was asleep quite quickly but as usual kept on awakening which put me off my stroke.

There was the 06:15 blitz through the ward and even though I had my alarm set for 07:00 I was awakened unceremoniously at 06:25. Diabetes check below the limit but I was refused my supplementary orange juice. "Your breakfast will be here in a moment".

When I protested I was told to sod off. What a way to start the day!

However, she was right. Breakfast WAS served soon. Too soon in fact because the bread hadn’t arrived and I had to have biscottes.

The taxi driver came early and I wasn’t finished in the bathroom so he had to wait. But when I emerged I was shoved into a wheelchair and pushed off, clutching my crutches and the packed lunch that the nurse handed me.

There was “some issue” about my packed lunch. When it turned up it was ham and cheese sandwiches, absolutely ideal for a vegan I don’t think. And so for the first time ever in my life I have had bread sandwiches – two slices of bread with … a slice of bread in between.

The driver has run me around before. He’s a nice enough guy and a good driver but doesn’t have much to say for himself. Nether did I today so it was a fairly quiet drive and I slept for some of the way.

Astonishingly, we weren’t held up at all anywhere and sailed all the way through. A four-hour trip took just over three hours today.

Even more surprisingly, I was seen straight away by the specialist.

The lumbar puncture and the electric shock examinations from the other week when I was here as an in-patient don’t show any significant deterioration. But they don’t show any significant improvement either, which he found disappointing.

Consequently he’s going to change my chemotherapy tablet, the one that costs a King’s ransom for some other tablet.

There’s also the suspicion – only a suspicion, mind you – that there’s something else causing this creeping paralysis. He reckons that the amount of drugs pumped into me ought to have had a reaction. Consequently he wants to carry out a Biopsy of my nervous system. This will involve the stay of a few days in September.

Well, why not? What do I have to lose? Only my appetite with the food that’s on offer there.

But seriously, if I’m going to be poked and prodded around and used as a guinea-pig, I may as well make it worth my while and go the whole hog.

There was a blood sample that needed to be taken so I staggered off there where they had several goes at finding a vein and, on staggering out, staggered right into my driver who was passing down the corridor.

"Do you want time to eat your lunch?" he asked.
"No thanks" I replied, having seen what was in my food parcel "Let’s go straight back"

So having taken a different way home, at least as far as the suburbs of Paris, we were back here at 16:15 where the nursing staff, sincerely and unprompted, expressed their dismay at my lunch. "The hospital needs to make more of an effort". Someone fetched me an apple, for which I was grateful.

It’s been confirmed that I am going home tomorrow. "You could have gone home tonight but we didn’t want you to go home to a cold apartment and have the effort of cooking for yourself after the exertion of your trip to Paris" said Emilie the cute consultant who came to see me.

And you ought to be proud of me. I actually did refrain from offering her my front-door key and telling her warm up the place and put the supper on the stove.

But she did come to see me to find out how things went and she photographed the relevant info from Paris. She wished me luck on the next stage of my adventure with my health issues and by the time our conversation finished, I wasn’t really sure who was chatting up whom.

Yes, I’d quite happily massage her clavicles any time of the day or night, whether she asks or not.

There was some stuff on the dictaphone from last night. I’d been out entertaining our parents in the RAF station.. When they came back there were three bats entangled in the barbed wire. We tried to laugh it off but in reality what had happened was that a couple of Lancaster trainers had one into the barbed wire too. Two of our students were killed. We tried to laugh it off as some kind of nothing much or not very important but from where we were we gradually prepared ourselves for flying operations and gradually tried to keep in shape etc ready to leave and set off. But we had the funeral and then we had to check the barbed wire in the camp and the guards. The guard was shaken up but I dunno I suppose that was what happened.

That’s rather a garbled account of something that I can’t really understand. The barbed wire from last night seems to be there but I’ve no idea about the rest of it Funerals on Air Force bases were commonplace following crashes and the like when trainees were overwhelmed by the equipment and machines that they ere operating and people who witnesses these accidents went to extraordinary lengths and took extraordinary measures to put the images of what they had seen behind them..

While I was on a field exercise I came across a guy living in a hut in the mountains. He was living in deplorable circumstances but I’ve no idea why. I had him arrested and taken back to base. It turned out that he was in fact someone who had been conscripted years ago but had fled. His whole life had been living in this cabin and he had learned so much in his two years of isolation. He taught it all to us, even down to eating possum Without him, our Air Force careers would have been so much tougher because he taught us to survive, and to survive on next-to-nothing. When we were prisoners that was just how it was – survive on what you had and don’t think about anything else

That reminds me of when I lived down on the farm and at a meeting once I was chatting to two British guys who were discussing “this strange British guy who lives like a hermit up in the mountains and no-one ever sees” and it took me a full fifteen minutes to work out that they were talking about me. I’d fit the description in this dream quite happily except that I’d draw the line at eating possum of course. The “deplorable conditions” would fit nicely though.

So anyway, home tomorrow it is. At least, if I can climb the steps up to my apartment. I’m not optimistic because I’ve been practising and it doesn’t seem to have made any difference.

And that bit about “dealing with a rare illness for which there is no known cure” brought a wry smile to my face. It reminded me of the Summer School for one of my University modules back 20-odd years ago where a group of us on a Science awareness course managed to club our heads together in the laboratory and discovered a cure for which there was no known disease.

Monday 27th May 2024 – IT’S BEEN LIKE …

… Euston Station in here with all of the various comings and goings. And not just physically either. The telephone has been burning a hole in my hand too judging by the number of calls that it’s had to handle.

From dawn until dusk things have never been quiet, always with something happening and I really am at the stage of wondering “why?”

Last night though was rather quiet. After I’d finished my notes, late as it might have been, I didn’t hang around but fell onto the bed quite quickly. Actually making myself comfortable under the quilt was something else completely but never mind. “Agonising” or “painful” are quite appropriate words to use here.

And things went fairly well during the night until about 05:30 when my right leg fell out of bed.

“Why didn’t you put it back in bed?” I hear you say. But I did, even if it did take me half an hour to do it. And if you think that I am joking I promise you that I’m not. You’ve no idea what kind of state I’m in.

And once it was back in bed it didn’t last long and at 06:30 it fell out again. This time, no matter how I tried I couldn’t get it back into bed. At 06:50 I gave up the struggle and when the alarm went off at 07:00 I was … errr … riding the porcelain horse

The nurse came round later and took my blood sample. It was the most clean, painless blood sample that I have ever had taken too and it’s a shame that she’s now finished until next week.

After she left I came back in here and transcribed the dictaphone notes.. I was in Berlin last night. The old West German government was trying to persuade some woman, the wife of some West German minister to murder some political rival by poisoning him. They had some information on her and would use it if she failed to carry out their demand. Instead, she killed him in a different fashion which puzzled everyone. No-one could understand who had done it and why. There was a big investigation and she ended up in Court to answer questions. She told the Court everything about her involvement with the attempted poisoning but nothing whatever about the shooting to make it appear that she had a perfect alibi for whenever the killing had taken place with regard to this other person.

It’s years since I was in West Berlin. It was the case where this kind of thing happened only too frequently. The people, were living under the shadow of the East so time was short, and fun, deceit and intrigue was the name of the game. I encountered just as much “surveillance” there as I did in Minsk and Moscow in the days of the Iron Curtain There were all kinds of murky goings-on in West Berlin.

Having almost fell out of bed, I finally managed it at about 05:30 when my right leg hit the floor dramatically and awoke me. I was thinking at the time of a song, a new wave song that was going round in my head and which I’ve subsequently forgotten. A Jeep, like a Japanese four-wheel drive pickup thing in Canada being involved in a bit of road rage and doing a U-turn through a parking lot to go back onto the road and chase after the people who had upset him which was when I fell out of bed

And as if there’s ever any road rage in Canada. The only time I ever encountered people blowing their horns was near me when I was driving. Canada – even parts of rural Québec – is one of the most laid-back places on earth.

While I was sitting on the edge of the bed I fell asleep. Leicester City lost one of their young midfield players who went to play for Plymouth Argyle. The fee was £60,000 and Leicester were upset because they thought that it was more. The guy who replaced him in Leicester’s team had a really bad injury and was carried off the field. There wasn’t really anyone on their bench to replace him so they were even more incensed.

Having typed out my dictaphone notes I went for my morning coffee and new flapjack, which is quite delicious but a little dry. I shall have to increase the amount of honey that I use, I reckon. But I am very impressed with it – almost as much as I was with my stainless steel dustbin.

The phone rang immediately afterwards. It was the hospital wondering how I was.

When I’d finished telling them of my grief they told me to contact my GP and tell him everything, which I promised to do. However back in here I must have fallen asleep because the next thing that I knew, it was 14:06.

Once I’d come round into the Land of the Living I wrote out my letter as promised and sent a message to my faithful cleaner to see if she would deliver it.

Then I received an e-mail from the hospital – “here’s a new prescription changing a few things …” so I printed it out and send another note to my cleaner.

The doctor’s surgery was next to call. The hospital had contacted them. The blood test must be done again – I don’t think that they can believe some of the figures (and neither could I when I saw it) so she’ll see the nurse, but there’s a new medication that I have to take – she’ll send the prescription direct to the pharmacie

So I sent another message to my cleaner.

The blood test results turned up next.

The red blood cells have now dropped to 8.4 – just 0.4 above the critical limit. No wonder I’m feeling wretched right now. We’re back on the injections as of Wednesday then.

If that’s not enough, remember when the Creatinite had risen to 310 and caused them to summon me urgently to the hospital for emergency treatment? It’s now at 336, a figure which apparently won’t support life.

My cleaner turned up and I gave her everything. And bless her! She seemed to think that it was so important that she sailed off like a galleon down into town without even stopping for breath.

And guess what? Remember the anti-potassium stuff that was giving me all of these hallucinations? Here it is again

The cleaner and I spent a good while going through all of my medication. Even the nurse thinks that it’s too much and I can’t say that I disagree. But there’s piles of it – two new ones as of now and I wonder how many more after this next blood test tomorrow.

Finally, a cruise company rang me to see if I wanted to go on a little voyage around the World, one of my plans from a few years ago put on hold during the lockdown.

And I still managed to find time to finish off all of the radio notes too, would you believe?

Tea tonight was a stuffed pepper – the last one unless I can get in another stock before next Monday. Delicious as usual and plenty of stuffing remaining.

So now I’m off to bed if I can manage to make it into bed without falling out again.

What delights will tomorrow bring? I shudder to think. As if the news of today isn’t enough to be going on with.

But I can’t help thinking that has inspired this cruise company to contact me? I suppose it’s the local community all getting together to tell me to go away and clear off..

Friday 26th April 2024 – IT’S FLAMING DIFFICULT …

… trying to explain something to someone who doesn’t want to listen but only wants to speak.

The doctor’s surgery rang me up at the end of the afternoon to tell me that the blood test this morning had failed and needs to be done again, so he’s prepared a prescription and it’s stuck on his noticeboard to be picked up.

Ordinarily what would now happen is that I would ask my faithful cleaner to pick it up tomorrow. I’d then show it to the nurse on Sunday and she’d have to go away to fetch the equipment and come back on Monday to take it

However I had an idea.

The nurse’s office is in the same building so I rang her up to see if she was going into her office before coming here. If so she could pick up the prescription, fetch what she needed from her office and the blood test would be done on Saturday morning, two days earlier.

Simple enough?

You have absolutely no idea how complicated and involved the whole procedure came once the nurse answered the ‘phone. A simple “yes I am going into the office first” or “no, I’m not going into the office first” was all that was required.

Instead it turned out to be more like “War and Peace” and I’m still not convinced that my message was understood. We’ll find out in the morning, I suppose.

Last night I was in bed early for a change, which was very nice, but once more it took an age to go off to sleep which was a shame.

Once I was asleep though I didn’t move an inch. Not even to reach for the dictaphone because there’s nothing recorded on there from during the night. No-one came to join me on any nocturnal ramble, which is a pity.

When the alarm went off I fell out of bed, switched it off and then staggered off to perform the usual morning routine.

More medication than before, of course. I swear that you can hear me rattle as I walk with all of the pills that I’m taking.

Once I’d washed down everything I laid out the dining area as she likes it and then made the dough for the batch of bread for the weekend. Very important, that.

For once, the nurse missed her aim with the blood test and had to have a second go. She’s usually quite good at finding the vein compared to her colleague who struggles. She then dressed my wound and put on my puttees.

Next stop was to prepare a shopping list for my cleaner. Mushrooms, cucumber and one or two supplies from the chemist’s. The nurse told me that we were running low of certain things

When the bread was ready and baked I made myself some cheese on toast in the air fryer and had it for a late breakfast / early lunch along with a nice, hot, strong coffee. That ought to cheer me up.

This afternoon I’ve been going through my shopping list because at some point next week I need a delivery and I’ve forgotten half of the stuff that I need. I bet that there will be a few items missing too when I finally send off the order because I’m really confusing myself these days.

Fighting off (sometimes unsuccessfully) several waves of sleep, I finally wrote the blog entries for last week when I was in hospital and didn’t have the travelling laptop with me. Thanks to what’s available at ARCHIVE.ORG and various other similar sites. I have a huge library of films and books on the computer and what with all of the music, I’m never short of things to pass the time, apart from all of the work that I need to do.

While I was doing all of that, the cleaner came round and whizzed through the apartment. Now it looks as if someone respectable lives here, and we can’t go having that.

Tea was a vegan salad with chips and some of these vegan nugget things. Really nice it was too There’s nothing like a good salad

So if I’m lucky I might have an early night tonight ready for the battle with the nurse tomorrow. She’s not going to be too happy, but I can’t help that.

But nurses are never very happy anyway. I remember once seeing a nurse walking down the corridor of a hospital with … errr … part of her upper body uncovered
"What’s going on here?" I asked
"It’s the trouble with these Junior Doctors" she said. "They never put anything away when they’ve finished with it"

Wednesday 3rd April 2024 – I’VE HAD A …

… “correspondence” day today. Anyone who has been expecting a reply from me over the last couple of days should either have had one (electronic) or will have one within the next few days.

If you are expecting one and don’t receive it at some point, write and let me know because it will mean that I have overlooked it in the confusion.

And as my hero the Irish politician Boyle Roche once said at the bottom of all the correspondence that he initiated, "If you do not receive this, of course it must have been miscarried; therefore I beg you to write and let me know".

That’s how I felt last night actually – like a load of miscarried correspondence. I fell asleep twice (or was it three times?) typing out the notes from yesterday and the fact that I managed to complete them, that shows determination if nothing else.

Even though there was the usual stuff to do, I was actually in bed by 23:00 and that shows what I can do when I really try. And I wasn’t sorry to hit the sack, I can tell you.

It was a really peaceful night but I did have another one of those “false awakenings” that we talked about the other day, where I’m convinced that I’m awake but I’m actually not, and it’s a really strange feeling when the alarm goes off and I’m convinced that I’m already awake.

In the past I’ve been awake when the alarm goes off but that’s a completely different sensation of course.

First thing to do was to check the blood pressure this morning, and I don’t know why because they don’t seem all that interested at hospital. It’s 14.9/92, quite a drop on last night’s 17.7/10.2. Whatever must have been winding me up completely must have disappeared

There was the medication to deal with of course, and that takes a lot longer than it ought. And then I had to arrange the room ready for the nurse.

The blood sample thing was an absolute farce again, and there are now more holes in me than in a hedgehog’s trousers. I’d printed off the form and had it ready for him, and I’d called him last night to say that it was here so that he could bring his stuff, but that didn’t mean that he could find a vein.

It’s obviously because I’m all assembled wrongly. Anyway, according to him, it’s my fault that he can’t find a vein.

Once he’d gone (and left his blood testing kit behind) I could relax and have a listen to find out where I’d been during the night. Only one sound file on the dictaphone, one that I can’t remember at all. There was something going on with regard to stolen cars in Crewe. There was a big investigation. I was out with a girlfriend of mine and we went past one of the side streets on the industrial estate at the back of where we lived as kids. A police car was pulling up behind a tatty old blue Ford Capri so we stayed to watch. 2 policemen left the car followed by a civilian. The policemen began to interrogate this civilian about this Capri and then suddenly they began to push him around. I said in a loud voice “you can’t push him around” but my partner was quite agitated, wanting me to keep quiet. They knocked him onto the floor so I said something then but they still took no notice. My girlfriend was even more agitated. Then they had a second person there and they began to give that person a rough time. I ended up thinking to myself “I wish that I had a video camera. I’d have made a fortune taping this and selling it”.

There’s more than just an element of truth in this one too. My girlfriend from school (who appears on these pages every now and again – she’s the one who still looked exactly the same 40 years later) was rather a naïve girl and had little experience of life. I soon changed all that.

We were coming back from the pub towards her home one night when we encountered a police car and two constables parked on private property. They were watching the crowds but I was much more interested in where they were parked, so I made a caustic comment.

That led to an encounter that can only be described as “confrontational” and it certainly opened up her eyes to what happens in the real World. She was never quite the same again after that.

We once had a debate or discussion about people living on the streets, something that never existed in the early 1970s in South Cheshire when we had real Socialists, and she didn’t believe that they existed at all. So I piled her into my car and we drove to London – 180 miles in the days before motorways – through the night to find some homeless people to prove their existence – and then drove back again as dawn was breaking.

What her parents had to say about the matter of their daughter being out all night is unrecorded.

It’s like the time when I was angling for that job in New York but Laurence told me that a medium had told her once that she’d never leave Europe.

Never?

So a couple of days later, having dropped Roxanne off at a colonie de vacances where she could pet horses and goats for a week, Laurence and I were at Heathrow Airport and the rest is history.

When we came back, Laurence said to Roxanne "You’ll never guess where mummy has been"
"You’ve been to America" said Roxanne, because she was in on the joke. She was always good to take part in a joke was Roxanne, the bigger the better.

So, the correspondence.

Having already printed off the prescription for the nurse, I printed off the bon de transport and wrote out my application for authorisation for a journey to Paris

And while I was at it, I sent off a huge pile of other stuff including letters to the UK, letters to Canada and all that kind of thing in an attempt to bring everything up-to-date.

Some hopes though because there is bound to be stuff that I’ve forgotten to do, or stuff that’s going to overwhelm me in due course.

The cleaner came round today so I kept out of her way for a while but had to go in there to pay her for last month and then to talk about these injections.

They wouldn’t let me have them because of the lack of blood test reports but now that they have started up, we need to organise something so that I can have them.

The nurse said that he would become involved in this and telephone the chemists, so that’s going to be guaranteed chaos for the near future until someone sensible sorts them all out.

But it’s really sad that I’ve arrived in this state.

There was time left for another batch of Welsh homework from a previous unit, interrupted by making a batch of dough for naan breads. Most of that is now freezing, except for one ball that became my naan bread for this evening along with my delicious leftover curry

And that’s the end of the notes as well. Tomorrow there are no interruptions planned and nothing outstanding to do so I might write a batch of radio notes.

But no doubt, someone or something will come along to disrupt me. It’s like “Bomber” Harris who always said, to members of the Air Ministry whom he encountered on the streets "good morning. And what are you doing to disrupt the war effort today then?".

Now HE was someone who emphasised the definition of “unpopular”, just like me in my day. I was about as unpopular as a bank manager in the middle of a recession.

The other day I mentioned that we’d all play hide-and-seek as kids – I’d hide and the other kids wouldn’t come and look for me.

In school I was in fact known as “batteries
… "why was that?" – ed …
That was because I was never included in anything.

Wednesday 13th March 2024 – THE DEED IS …

… done and I’m now registered for an Easter Welsh course with … errr … Caefyrddyn

Enrolling on a Welsh course rather like Macbeth and the murder of Duncan actually and "If it were done when ’tis done, then ’twere well it were done quickly". Caerfyrddyn was the only centre that had any spaces left on its Easter revision course when I went to sign up.

It’s a symbol of how popular learning Welsh became at Covid. When the courses were face-to-face (or wyneb-wyneb for regular readers of this rubbish who recall a dream a week or so ago) they had about 100 applicants each year. When Covid hit and the courses went over to video-conferencing, they had 1031 applicants.

That’s not the kind of thing for which infrastructure exists and they had to be quite inventive to fit everyone in

With my class, I’m quite lucky because already being involved and registered, my place is assured. However, for this revision course, I’m dropping down two levels and so I have had to re-register

So with studying a course down in the south, I’ll be saying things like gyda-gylid instead of efo-gylid and caeth e instead of cafodd o. I mentioned a couple of weeks ago why it was that the Welsh language evolved differently in the south and in in the north.

If I had had any sense, not that that is likely of course, I should have enrolled last night while I was talking about it and maybe I would have found something more convenient. But instead I had a little relax to unwind before going to bed.

Once in bed though I felt nothing at all. Nothing whatever and it was as if I’d slept all the way through the night undisturbed.

When the alarm went off though I was already awake and it didn’t take much to have me out of bed.

First stop as usual was the blood pressure. 16.0/10.0 this morning, compared to 17.4/10.6 last night. It really MUST have been a calm, comfortable night.

Second stop was to go to take my medication for the moment, half a tonne of it as usual. And then some tidying up ready for the nurse to come round. I’d like her to think that people actually lived here.

We had a good chat about the things that the hospital wants the local nursing staff to do. Some of the things don’t come within their remit, so it’s tough luck on me but the rest is going to start tomorrow at 08:45 and how I’m not looking forward to that, especially on a Sunday

She took the blood sample and gave me my weekly injection of the Last Resort and then wandered off while I organised some breakfast.

The coffee is really nice around here, and my flapjack is definitely a success. I’ll make some more of that another time if I can remember the ingredients that I used. They biscuits that I made on Sunday are overcooked, but not so much as they are in-edible. I’ll make more of those too at some point.

Next step was to listen to the dictaphone notes to find out where I’d been during the night. And I must have been stark out last night as I remember nothing at all of these. Did I dictate the dream about the person that I’d killed in that motel room? … "no, you didn’t" – ed … He was beaten quite badly and I was about to finish him off when someone began to come into his room. I quickly had to clean him up, tidy him up and remove as many visible marks a possible to make it look as if he was treating himself for his wounds before they came in, which was difficult. Somehow I managed it and he passed by quite normally without having any suspicions. Then I had to restart these videos, all three of them, to find out exactly where the secret place was where you had to puncture the skin in order to kill someone – someone had worked out that you could leave very minimal marks by just putting something long and pointed in through these three places. He’d prepared a video of it, that I’d been watching but of course with this other guy coming into the motel room to see what was happening I actually lost the place in the video and couldn’t find it again on all three tapes for all three points on the body

That’s the stuff that dreams are made of, isn’t it? If videos like that really did exist and I really did have access to them, there would be far fewer people on this planet than there are today. I can think of quite a few who would shuffle off this mortal coil with my assistance, if I had any say in the matter.

But I di have some gruesome dreams; don’t I? And many have been far more gruesome than this. It reminds me of Dr Cameron in Tannochbrae in the good old days of Dr Finlay’s Casebook – or Dr Kenley’s Feesbook
"And what’s the matter, Janet?" asked Dr Cameron
"Och Dr Cameron, it’s gruesome" she replied
"Well, look again Janet" he said. "It’s gruesome more"

Meanwhile, back at the ran … errr … bed I was going on a flight somewhere so I had to walk through the airport and look for my train to London. I eventually arrived at the station part and the next train to London was 22:02. It was only 21:00 so I thought that it was going to be cutting it a little too fine. I’d better go to find something to eat. I found what looked like a bakery or hot food stand and asked if they had a pâté végétale. She replied “no, no” and pointed to half a dozen things that she had on the shelves, the usual mainstream type of normal kind of food. She did have some large fruit bread. I thought that I could buy one of those but that would be quite a waste because I wouldn’t be able to eat all of that.

Not that anything like that would normally bother me, especially if I’m going on a flight somewhere. Regular readers of this rubbish will recall that I always take food with me on a plane. I’ve learnt from bitter experience that you can’t rely on airlines to always respect special diets on their planes, and it’s a long way and a long time across the Atlantic with nothing to eat.

Yes, my spicy or fruit bread has saved me from a fate worse than death on many occasions, as have my Subway sandwiches from the airport at Montreal. Consequently a large fruit bread would have been a gift from Heaven on a flight from an airport

Back in here and surfing around on the internet looking for something, I made a fantastic discovery. Carol Reed’s famous and spectacular film THE THIRD MAN starring Orson Cart and Joseph Cotton is now out of copyright and is available to download

What a film that is, too. It’s not so much the acting and the dialogue but the way that it’s directed that makes it a classic – with all these cuts of ordinary, old people filtered into the scenes that really give it the kind of panic-stricken atmosphere that must have existed in the immediate post-war Vienna.

My acquaintance with Vienna is somewhat more recent than that. And the last time I was there, actually in the city, was 1998 when I took a 15-tonne lorry there from Brussels.

It’s a film that in my opinion is on a par with THE MALTESE FALCON as one of the greatest films of all time.

The cleaner came round with my missing pieces today, and it’s a shame but she’ll have to be going back because the nurse needs some stuff to treat me, so she’ll write out a prescription tomorrow morning. We’ll go through the medication tomorrow too and see where I’m short, as one or two things are running out.

But poor cleaner. She’s not had much of a rest on her week off, has she?

The rest of the day has been spent finishing off the notes for the radio programme that I began the other day. They are done and ready for dictation sometime, but I’m not sure when. It won’t be at 01:00 on a Saturday night/Sunday morning, I’ll tell you that, not it I’m having to be up and about by 08:45.

After a session on the guitar I went for tea – another one of my delicious leftover curries with naan bread.

But while I was in the freezer I noticed that I seem to be running low on frozen vegetables again. It looks as if my last pre-Easter order from the supermarket will be going off on Monday.

That means that I’d better check my hot cross bun recipe and make sure that I have everything that I need. And then work out how to make the dough rise properly.

Hot cross buns are made with milk, not water, and that makes the issue far more complicated. I tell you – it’s not easy baking and being a master-chef when your oven only works when it wants to and you don’t have a clue what you’re doing anyway.

But you can’t have an Easter without hot-cross buns so I’d better learn quite quickly. It’ll give me something to eat while I’m taking part in my Welsh lesson, I suppose

At least I don’t have to worry about the Easter bunny coming to visit me. It’s not like the time years ago, when I had that part-time job just before Easter looking after these small bunny-like creatures just after they were born and making sure that they grew into responsible adults.

That was what I would call a hare-raising experience.

Wednesday 28th February 2024 – TWENTY YEARS AGO TODAY …

… Sergeant Pepper taught the band to play. But it was also when I retired from full-time employment.

For the first time, that is.

At 50 years of age we were pulled out of the front line at work. They considered that we no longer had the speed, the fitness and the reflexes to cope with the conditions.

That, of course, is nonsense. There’s nothing wrong with my reflexes even today and, as regular readers of this rubbish will recall, I was still running every night up until two years ago

But anyway, there we were.

For the following 15 years life would be driving around Brussels in one of the fleet of Berlingos delivering parcels between the various buildings or, in my case seeing as I had a PSV licence, driving the shuttle bus.

But badger that for a game of cowboys. If you ask me which is more stressful – driving 4.5 tonnes of armoured Open Omega down a German autobahn at 260 kph at 04:00 or driving a shuttle bus around Brussels during the rush hour – I know which one I’d say.

With redeployment looming, my boss having retired and with “early retirement” being bandied about with all these hordes of Bulgarians and Romanians queueing up to join at half the salary we were receiving, I made sure that my pancreas flared up again.

A spell of sick leave, and then that was that

What followed was a lovely year of rest and then, after going to South Carolina for Rhys’s wedding, I picked up the threads.

A spell on a CDI working for General Electric’s training school to cover for maternity leave followed by 11 months at that bizarre American company where I met Alison, and then I set out for the Auvergne to seek my fortune, and the rest is history.

It wasn’t an early retirement last night though. In fact, what with one thing and another – and once you make a start you’ll be surprised how many other things there are – it was later than usual, and that’s saying something considering how late things have been just recently.

And when the alarm went off, I was totally wasted. I never felt less like leaving the bed but I had to make an effort.

First thing was to check the blood pressure – 13.8/8.7. That’s low. Below the target figure in fact. And much better than last night’s 17.2/10.5. I wonder what happened during the night to bring down my blood pressure.

After the medication I came back in here to listen to the dictaphone to see what had gone on during the night. With the fall in blood pressure I didn’t expect that one of my favourite young ladies had been to visit me, but you never know. I was back in school at the start of last night with a group of people. We noticed that there was a girl standing not too far away from us looking at what was going on. I knew the girl – she lived in Shavington. I was just on the point of shouting to her to be friendly when I awoke.

Awoke – yet again, just as I’m about to speak to a girl. There’s something strange going on these days about this.

Then there was a football tournament taking place with all of the big clubs taking part. Almost everyone was having a go at refereeing matches. When it was my turn I drew Tottenham Hotspurs against someone else, I can’t remember. I took the ball and walked down to the pitch. On the touchline was an old friend of mine so I said “hello” to him and talked about another adventure. I tossed a coin and called to Spurs to ask what colour they wanted. They guessed correctly “yellow” so I set the board out because the pitch was something like a chessboard. They complained that the board had been set out incorrectly. It should have been set out the other way round. I didn’t think that it made very much difference so I told them to shut up and get on with it. In the end they went to complain to the FA. Someone from the FA came down. He agreed that the pitch had been incorrectly laid out and as kick-off hadn’t taken place we could reset the board the correct way round and start the match. This was a decision that completely disappointed me. I thought that the FA would have at least tried to uphold my authority as referee instead of behaving like this.

And did I dictate the story about the little girl who was born? … "no you didn’t" – ed … It was Alison Something. She had a very sad life and died as barely a teenager. The Doors wrote a song about her which became famous.

If they did, I can’t think of the song. Plenty of “Alison” songs, but none by the Doors as far as I can tell.

So anyway I stepped back into this football match. As I went in Tottenham Hotspurs were playing and they won the toss for kick-off so set the board out for them to start to play but they thought that I’d set it out incorrectly – that the point should be on the row that started on the second row. I measured it al and it would be the same distance so there’s no problem so … fell asleep here …

When the alarm went off, I wondered why the dictaphone wasn’t in its usual place on the corner of the chest of drawers. It was down the bed still ticking over showing 2 hours and 15 minutes. That’ll teach me to fall asleep again with it in my hand.

One thing that I can tell you is that it’s not very interesting listening to myself sleeping. And I remember a couple of times when Percy Penguin elbowed me in the ribs and said “stop snoring!”.

“I never snore” I would reply. “You must be dreaming it”. And now having heard myself sleeping, I’m sorry for doubting you.

The nurse came round, gave me my injection and took a blood sample.

The results are back now. My haemoglobin is slowly rising, which is good news, but so is my carcinogenic protein, which is bad news. It should be between 59 and 106 units, and it’s gone up from 270.3 to 276.4 in a week. The active enzymes, which should be between 6.7 and 11.8 are actually 31.2

In other words, things are slowly deteriorating, which is what I expect so there’s no big issue there. However, it is the first time that I’ve seen the word “terminal” written on the results of my blood test.

With the cleaner coming round I tidied up somewhat as best as I could in order to give her the impression that I cared, and then wrote out some cheques to pay a few bills here and there. She’ll post the letters for me while she’s on her travels

And then regrettably I crashed out for a while, which is no surprise after my late night.

But it wasn’t the usual kind of “crashed-out” – it was more like a cataleptic fit of some description where I’m perfectly aware of my surroundings, such as the radio playing on the computer, but I’m totally unable to move or to react to anything

It’s not the first time that I’ve had one of these either, as regular readers of this rubbish will recall.

This afternoon I finished my radio notes ready for dictation and then after the cleaner had left I made the dough for my next lot of naan bread and left it to fester.

Back in here I had more things to do but crashed out yet again, properly and really deeply too. I remember absolutely nothing at all of anything. I was so deeply in that I almost missed my tea.

But my leftover curry and fresh naan bread were delicious yet again, especially after I remembered to put the garlic in the naan dough. It was all cooked to absolute perfection too.

But now I think that I’ll go and have an early night. Right now, Tom Petty is telling me "I await the day
Good fortune comes our way
And we’ll ride down the King’s Highway"

But I’m going to have a pretty long wait. Having driven down the King’s Highway, along the Carolina coast, once or twice, I can’t see me ever having the possibility of doing it again.

He also says a little later " don’t want to end up
In a room all alone"

But it looks as if that’s exactly how I’m going to end up, the way these blood test results are going.

But never mind. He goes on to sing "Sometimes I get discouraged
Sometimes I feel so down
Sometimes I get so worried
And I don’t know what about
But it works out in the long run
It always goes away
I’ve come now to accept it
As a reoccurring phase"

That’s certainly true too. if something else crops up now, it’ll have to wait for a couple of weeks until I can find the time to worry about it.

Monday 7th February 2024 – THERE WAS NOTHING …

… at all on the dictaphone from last night. And it’s been a while since that happened.

And it wasn’t because I’d had a really good night’s sleep either. In fact quite the reverse. I don’t think that I slept for more than 5 minutes.

It wasn’t one of those nights where I lay tossing and turning for most of it but in fact there was all kinds of things going on in my brain – such as it is – and there were all kinds of images and things flashing up behind my closed eyelids.

It really was quite an extraordinary situation and I’ve never known anything like it. There was no point in grabbing the dictaphone to record anything because it was all happening so quickly.

But anyway, it was rather a waste of the nice clean bedding if I wasn’t going to enjoy and make the most of it.

So when the alarm went off I fell out of bed again, totally dead to the world, and went to take my blood pressure. 18.3/9.5, compared to 18.8/10.8 at bedtime last night.

Having done that I went off to take my medication, all of it, and then came back in here.

With no dictaphone notes to transcribe I tried my best to stay awake. It’s Yoan’s turn to come round to inject me with the Last Resort and to take my blood sample and last time that he came, he found me stark out.

He had the usual battle to find a vein and then wandered off, leaving me to it.

And so today I’ve been alternating between working and fighting off waves of sleep, probably more of the latter, but not too successfully either.

Anyway, I’ve finished off the notes for the radio programme that I started on Monday, and then I’ve been tracking down music for the next one.

That one is going to be much more complicated and I didn’t have half of the music that I needed. Knowing that I didn’t have it was one thing and tracking it all down was something else completely.

And when I’d done it I had to work out a way to download it and then to convert it all to the correct format. It took me an age, especially as I was half-asleep for much of the time.

Eventually though I had all of the music that I needed and it’s all paired off ready for me to write the notes for it over the next few days

The cleaner came round today and decided to clean one of the shelves in the kitchen because she found a few stains. It appears that a can of fruit has burst somehow and the syrup has been leaking out making a mess everywhere.

But cleaning the shelves is one thing, putting all the stuff back is another, and then me looking for stuff and trying to find it later is something completely different again.

One thing that I learnt at a very early age was never to put anything away in someone else’s garage or kitchen.

When I’m at my niece’s in Canada I’ll happily wash up and dry the dishes but I won’t put the stuff away. You do that and you put it in what you think is the correct place but it isn’t and they can never find it again.

Yes, in the past I’ve spent hours looking for stuff that people have helpfully put away for me. Mind you, I’ve spent hours looking for stuff that I’ve also put away, so there’s no real difference.

The blood test results are in. Having stopped the anti-potassium stuff the potassium is now back above the upper limit.

As far as the rest of the measurements go, while the blood count is holding up for now with this “last resort” injection, the platelets count is now falling well below the acceptable limit and my carcinogenic protein, which should be less than 104.0 is now at 240.5 . The “active” part, that should be less than 11.8 is now at 27.2.

So I told me cleaner to stand by tomorrow for a new prescription changing more things round, or even giving me yet more medicine.

Tea tonight was a delicious, really delicious left-over curry with soya yoghurt and a naan bread. It really doesn’t get much better than that, honestly

As well as that I’ve had the guitars out – the bass as well as the acoustic. I’ve been listening to Al Stewart again and having a play around with a couple of his numbers.

We all know about ZERO SHE FLIES, to whom it relates, this “girl, she’s almost a woman” and the man “from the mountains watching her, biding his time”.

That’s a lovely track to play on the acoustic guitar and the bass line is really good too, if only I could get it right. The lyrics are really nice to sing but I can’t sing them and play bass at the same time – as yet.

Another track that I’ve been playing is MODERN TIMES.

Many of Al Stewart’s songs talk about the pain of growing up, of your teenage years, and we can all relate to them to a certain degree. “Modern Times” is a fantastic song for people like me desperate to cling on to whatever bit of youth they have left, and how our teenage friends have grown up quite differently to how we would have liked them to be

It’s probably the greatest song of its type, not to mention the lead guitar solo at the end of it.

It’s a song that I could play, either on the acoustic or on the bass, all night.

But not tonight because I’ve already crashed out once this evening after tea while I’ve been typing these notes. I’m going to bed and hope for better luck tonight with my nocturnal voyages.

But I have to laugh at some of the lyrics in “Modern Times”, where
"the red light girls were coming after me
For a forty dollar show"

Not long after I moved to Brussels one of my friends with his coach contacted me. There was a problem with it and he needed help.

In the middle of winter so I was dressed in my overalls and all kinds of woolly clothes of all shapes and descriptions to keep warm while I went down to help him change his starter motor.

Being underneath a coach for half an hour I was covered in oil from head to foot as we did it, and was in a right state when I set out to walk home.

And as I went underneath the arches at the Gare du Nord, a “lady of the night” emerged from the shadows and said to me, plastered in old engine oil and in dirty, filthy old clothes, "hello, sexy lover boy"

Despite knowing Brussels like the back of my hand, I hadn’t realised until then that the “ladies of the night” of the city all suffered from a visual impairment.

Wednesday 31st January 2024 – AS I SAID …

… yesterday … "and on many other occasions too" – ed … it’s the yoghurt – especially the soya yoghurt – that makes all the difference between a good curry and a really good curry.

So thanks to my long-suffering cleaner who raided the shops yesterday I had an absolutely wonderful leftover curry for tea tonight

The naan bread was cooked to perfection too so I had a wonderful meal and I just wish that there had been more of it

But in case you are thinking of going to emulate it (you should have done that beforehand but not while the train is standing in the station) you don’t actually cook the yoghurt. Just add it in right near the end of the cooking and stir it well in.

And then with a bit of luck you’ll have a curry that’s as good as mine.

Wouldn’t it be nice though if I could have a sleep as good as that though?

What might help would be if I actually went to bed at the proper time instead of being waylaid and distracted by other events. Going to bed after midnight and letting it all hang out when I have to be up at 07:00 is not doing me much good at all.

Especially as I have my nocturnal rambles with which to deal.

It didn’t tale long to start a-rambling last night. A mere 20 minutes from going to bed in fact. I’d just come back after being away for ages so I was looking for a job. Someone said that there was a job going in their department, in the accounts department of a big company. They gave me the details of how to go. When I arrived I found that they were also recruiting for a musician or someone with musical abilities. I happened to notice the person for that so I spoke to him about it. Then I went and this person brought out the application forms for me but said that the woman who was interviewing was actually free at the moment and would I like to go in? I went in and went upstairs and there she was, busy showing a couple of people around, one girl whom I knew and a couple of youngish girls. They were apparently taking an exam and so was going to invigilate while she was working. She had to have these young girls settled. She mentioned something about there being an extra place so I mentioned my friend the musician. It was an interesting situation but somehow I didn’t manage to speak to her. She was far too busy doing this kind of thing.

Later on I found myself at the hospital being treated for one of my regular visits. I had to go to another hospital so they had to help me down all the stairs into the basement where the vehicles pulled up where I could climb into another vehicle that would take me off to the second hospital. I was struggling down the stairs. She was asking questions about my blood pressure, my medicaments etc, all this kind of thing. I answered honestly that occasionally I had a great deal of problems to go downstairs etc so she asked me would it not be better to go to either Caen or Rennes for my treatment instead of coming to Paris. I replied that certainly going to Caen or Rennes would be a lot less stressful for me. Looking at my blood pressure figures I could do with a lot less stress in my life.

And that’s certainly true too. The figures for last night and this morning were 18.1/10.7 and 17.7/10.7. It’s not me having a heart attack though, it’s the hospital

But seriously, when I go back for my report on 14th February I can see that being offered to me, a change of hospital. And I’ll probably accept it too. It must be costing the Social Security a fortune to send me to Paris and sooner or later they’ll become fed up of paying.

Later still, there I was in hospital going through my e-mails and I’d been swamped with stuff from the hospital. Apparently I wasn’t the only one because someone else in the ward was complaining about it too. In the end one of the people caring for the ward turned round to the person in charge and asked “is it OK if she who is responsible for deleting all these messages?”. “Yes,” he replied. “That’s OK” with the obvious inference that the Moderator of whatever group this messages came from at this moment was a woman. That was probably something extremely surprising given the nature of the forum. Anyway he announced that other people could delete these messages if they really liked so everyone else got on with the job

So no nice young ladies of any description last night to sooth my fevered brow. If that’s not a real disappointment I don’t know what is

So when the alarm went off this morning I fell out of bed and took my blood pressure, and then went off to the bathroom to wash my shorts.

Since I had to call my cleaner to my bedside the other night I’ve taken to wearing something in bed just in case it happens again. I don’t want to give her a heart attack now, do I?

Then it was off to the kitchen for my morning cocktail of medication and that ghastly anti-potassium stuff.

The nurse came round a little later. It was Isabelle today and at least I was awake when she called – not like last week with Yoan where I was dead to the World.

She was telling me that this year there are 42 official floats for Carnaval, and probably twice that number of unofficial ones.

Granville is, as regular readers of this rubbish will recall, home to one of Europe’s largest carnivals. It’s certainly the biggest in France and it’s taking place next weekend.

It’s all quite satirical and takes the mickey out of all kinds of officialdom. My nurse’s float is complaining about all of the concreting that’s taking place in the green spaces of the town and they’ll all be dressed as elves apparently.

So she took a blood sample – painlessly and with no effort – injected me with another Injection of Last Resort and then cleared off.

Once she’d gone I came in here and transcribed the dictaphone notes.

Having finished that I stopped for coffee and bread pudding, and then started work.

And by the time that I’d finished I’d chosen all of the music for my Hawkfest, paired it off and written the notes. I’ve also a good idea what the missing track will be and I’ve written well over half of the speech for that.

It’s quite handy knowing how long everything will be. I’ve worked out that the way that I dictate, 300 characters of text is equal to 17 seconds of speech so that gives me a rough idea of how things are going.

Mind you, as regular readers of this rubbish will recall, we have had some spectacular failures in the past, mainly because I’m rubbish at maths

Now that the Centre de Re-education is finished, my cleaner came round today and began to shovel out the … errr … rubbish. This place was in a real mess.

It’s not that I’ve deliberately let it end up like it was but I don’t have any option because I can’t physically do things myself. I really am a wreck these days, you wouldn’t believe. All the people who saw me over the summer and early autumn will be horrified to see me now.

Tea tonight was, as I said, a leftover curry and it really was one of these absolutely delicious ones. It needed to be lengthened because there wasn’t enough but a couple of tiny potatoes did the trick there

So having crashed out once tonight typing out my notes (yes, only once for all day too! I must be improving!) I’ll clear off to bed, I reckon.

Tomorrow I’ll start chasing up stuff for the first Isle of Wight festival. That took place in 1968 and was nothing at all as big as what happened in subsequent years.

There were plenty of obscure bands that played there and they have taken some tracking down. Tracking down their music will be harder still.

But I’m not going to do it now. I’m going to bed. And with my day planned for me with this Isle of Wight business, who will come along and interrupt me?

The hospital has already rung me twice. Could I change Medicament X for Medicament Y if we send you a prescription.

That was before they had the blood test results too, so once they see them and absorb the contents I can expect further phone calls and e-mails, and my long-suffering cleaner will be wearing a path on the pavement down to the Chemist’s.

How long is it going to last? That’s the question. The prescription says “6 months” but I bet that it’ll be renewed after that too.

But I don’t understand it. They rush me to hospital and give me a blood transfusion, and then spend the next 6 months taking it all back out again. It doesn’t seem logical to me.

But at least there’s a nurse who comes to the apartment to do it. When I lived in the UK there was no such thing as that and you had to stagger down to the local hospital yourself.

On one occasion I couldn’t make it there so they told me "don’t worry. If you can’t make it to the hospital today we’ll send our vampire round tonight and he’ll take a sample"

Wednesday 17th January 2024 – THEY HAVE RECEIVED …

… the results of this morning’s blood test. The nurse who came to inject me and take a blood sample thins morning sent the blood to the laboratory who then sent the results to me and the hospital

And the hospital sent me an e-mail. "Your potassium is still too high" they said. You know, as if they are telling me something that I didn’t know. "Here’s another prescription for some more medication"

So how many is that now? I lost count a long while ago. These days I just shovel down the stuff as if I couldn’t care less. And I don’t, anyway. So what’s one medication any more or any less to the quantity that I’m taking?

Sometimes I think that they have run out of ideas and are just prescribing any old medication in the hope that they find something that might work.

And before anyone says anything, that’s not meant as a criticism at all. Anyone who reads ABOUT THE LATEST STAGE of mutation of this illness will notice words like "extremely rare neurologic complication", "Given that BNS is so rare" and "There are a few options when it comes to treatment so the type one will choose is completely individualized".

So what the hell does the hospital do?

There’s certainly no complaint from me about the kind of care that I’m having. Everyone is going above and beyond what is reasonable to make sure that I’m being well-looked after. My poor cleaner is running her socks off with trips to the pharmacy.

And I do have to say that I was told almost 8 years ago when I first went to Leuven that the end wouldn’t be pleasant. And in fact one of the reasons for going to be treated in Belgium is that I could choose when the end would be and I wouldn’t have to put myself – or anyone else – through all of this nonsense.

But perhaps it’s as well that I’m living in a (nominally) Catholic non-laïc country because the end would have been a long while ago. I can’t keep going on like this.

In fact, the end would have certainly been this morning after the events of last night.

You won’t believe this – or, perhaps you would because some of you have been followers of these pages since they first saw the light (in one form or another) during the heady days of T102 in 1997 and are quite used to this kind of thing because it happens all the time, but one of last night’s visitors was none other than Castor – and I wasn’t there.

Well, maybe there in body but not in mind, and certainly not in Spirit. Castor and I were playing with Hawkwind last night and I died in the middle of one of the songs, DAMNATION ALLEY. Of course Castor was distraught. She was surprised that the band had played that song knowing how ill I was. She asked one of the roadies if there was anything that she could keep as a souvenir. They said that they might be able to let her have a tyre from the vehicle, presumably the “eight-wheeled anti-radiation tube” but they weren’t sure if that would be possible. Another song that they played as a kind of tribute for me afterwards but I can’t remember which one that was. They then began to play another song and again she was annoyed about this because it was very personal to me. After a while she began to realise that it was also upsetting someone else who everyone wanted to upset so they were playing it deliberately. That thought seemed to cheer her up a little.

But can you believe it?

Something else that has gone horribly wrong today is confirmation of what I’ve been saying for 18 months, in that every time I have a bad fall, it makes things worse elsewhere and coming back from Re-education today, I couldn’t get back up the stairs even with the taxi driver helping me.

The power in my left leg has now gone and that, dear reader, is that

My cleaner came round this afternoon with a lorry-load of medication today and I told her quite frankly that if someone were to give me the option of going for a really decent and complete 8-hour sleep and never waking up again, I’d take it without a second thought.

She was quite naturally horrified, but that’s where we are right now.

At least last night’s sleep wasn’t all that bad. But it was another desperate scramble to find the phone when the alarm went off. Since the tragic events of Saturday evening the phone charger by the bed has been lost in the chaos and I’m having to charge it elsewhere

After taking the blood pressure (high as usual and I’m expecting another medication for that at some point) I went for the pile of medication and then came back in here.

There was a radio programme to send off so I had a listen, and found a glaring error so I had to re-edit it.

Years of bitter experience have taught me never to over-write anything but to prepare a re-take so I have all of the speech files at various stages of re-editing saved as (the date that I recorded it)_R(evision)1, R2, R3 etc so it’s easy to go back to the earliest revision, find a bit that I’ve cut out in subsequent revisions and then add it back into the programme to make up for the error that I cut out and the programme for broadcasting on Friday then becomes “emission_240119_R1”

And then I had a listen to the dictaphone. Some of the stuff I’ve already mentioned but there was other stuff on there too. I was playing in a rock band in the back of a trailer being pulled by a car. Because it was so narrow and the field of view was so deep the sides of the trailer folded back and were pinned back so that the crowd could still see whoever was at the edges of what in fact was the stage. We played a couple of Hawkwind numbers, including SLEEP OF A THOUSAND TEARS, a song that Castor and I had messed about with on THE GOOD SHIP VE … errr … OCEAN ENDEAVOUR. The dream went on from there for quite a long time but I was of course more interested in the song and kept on going back to the song and being on stage again. But I was certainly back home with my family at one or two points during the dream

I went to see my aunt in London and I’d bought her a bed. There was another young guy there when I arrived. We erected this bed together. She tried it out and thought that it was wonderful. After we’d chatted for a while we both left and headed for the Underground. I asked him where he was going. He replied that he had to go right the way round the city on the Underground to see his aunt, which is why it cost him a fortune whereas my journey back to one of the mainline stations was a lot quicker and a lot cheaper.

And that was all the work that I have done today. For most of the rest of the time I’ve been asleep. I really have. It’s been one of those days when I’ve felt like doing nothing at all. Liz had a chat on the internet with me but regrettably I fell asleep not once but twice in the middle of it.

The taxi driver who came to fetch me didn’t feel like getting out of his car and I can’t blame him in this weather so I had to struggle downstairs on my own.

Once I arrived I had Ophélie the ergotherapist trying to teach me a good way to get in and out of bed.

"Come this way" she said, leading me to the bed in one of the ante-rooms
"Well I never!" I thought. "Well, not for a while anyway"

There was half an hour on the walking carpet and then Séverine trying to help me as much as she can, which wasn’t easy.

A little earlier I mentioned the struggle to return home, and then I had my hot chocolate and a chat with the cleaner, to which I referred just now.

Having crashed out yet again, I’ve been for tea, a left-over curry, my first food of the day, and then I’m off for a hot drink and bed.

But where do I go from here? I dunno, and quite frankly I’m past caring. There has to be an easier way than this to go about things

And believe it or not, onto the playlist as I typed out the line above came Hawkwind and MASTER OF THE UNIVERSE
"IF YOU CALL THIS LIVING I MUST BE BLIND."
I couldn’t have said it better myself

Friday 5th January 2024 – HERE I ALL AM…

… not sitting in a rainbow but sitting in a room at the Hôpital Pitié-Salpetrière in Paris, where I’ve been summoned due to an emergency – they’ve found something in my blood sample from Wednesday that has them in a panic.

So there I was, at 06:00 when the alarm went off, struggling to my feet.

First thing was a good wash, scrub and change of clothes. I might as well look the part, I suppose.

Next thing was to check that I had everything packed. Those bread rolls that I made yesterday evening were good and made nice sandwiches – the food at the hospital is rubbish of course so I need some reserve supplies

Next thing was to unplug all of the appliances and it was in the middle of doing this that the driver arrived – an elderly guy who I’ve not seen before.

He helped me into the car and we set off for Paris. He didn’t go as fast as the younger drivers but we had good luck at Ceen with no hold-ups so we made very good time.

There was even time to make a pitstop halfway between Caen and Rouen, and a mug of coffee is always welcome. I treated the driver seeing as he’s doing al the work.

Our good luck ended at the Porte d’Italie exit of the Boulevard Péripherique where there was a gridlock the like of which I have never seen. IN the end we went back on the “prif” and took the next exit. But as a result we were late arriving and I had a very concerned phone call from the hospital wondering where we were.

Anyway, I’m now installed in my little room here on the second floor, still with no internet which is a shame, and the food is rubbish, as I expected so I’m grateful for my emergency supplies.

But at lest I’ve managed to make the heating work, which is something, I suppose, and under supervision I managed to walk 6 steps without my crutches, which is something of which I can be proud.

But what a celebration hey? Me, who would think nothing of walking though the night from Chester to Hankelow, all almost 30 miles of it.

They had four tries before they could take a blood sample, and three to fit a catheter in my arm and once the catheter was in, they began the perfusion.

There was a combination of three perfusions which gave me the most extraordinary hallucinations, during which Zero, Percy Penguin and my old LDV van made their appearance.

The LDV van I remember well. After 2 Transits I had the LDV van for a couple of years and was the first of the vans that I had that would keep up with modern traffic with its 5-speed gearbox.

It blew up the engine not long after I had it so we bought a Maestro diesel for £50, swapped the engine out and received about £350 for the bits of Maestro when we sold them on the internet.

It then lost the clutch going round the Boulevard Péripherique one night and I had to drive it 300 miles with no clutch, even starting from a standstill on a couple of occasions.

What had happened was that, with it being a hydraulic clutch, the clutch slave cylinder had fallen off and was just hanging on by the hydraulic pipe. The bolts on the door hinges where the same size and same thread so I pinched a couple of those as a temporary but permanent repair.

Then a brake pad separated and we lost the asbestos pad part of it. I had to drive it home through the Brussels traffic with no brakes and in the days before internet marketing it took quite an effort to have a pair sent from the UK.

The handbrake cable then snapped on it, so we had no handbrake but what killed it off was the little trail of rust inside the back of the van.

There was this little streak of rusty water running down the inside wall of the van so I climbed inside to look.

At first I couldn’t see where it was coming from but when I twisted myself round, with my hand on the roof, the whole roof lifted off on one side. The joint between the roof and the side wall had rotted away and I had a big roof rack on the roof and I’d been carrying all kinds of heavy equipment on it.

So that was the end of the LDV. You couldn’t drive that on the road in that condition.

Next van was the ex-Telecom Ford Escort diesel. And how that brought back all kinds of memories of my travels with BILL BADGER. It was exactly the same kind of van and I found myself doing exactly the same things.

That was a vehicle that I’d bought because of the 1.8 litre diesel in it, which I wanted for one of the Cortinas. But it surprisingly passed an MoT even though there was a pile of things wrong with it.

But I had a year’s use out of it and it did a few miles too, and then along came Caliburn.

And there’s just time to transcribe the dreams from the night before I go to collapse in my nice comfortable bed. There was a load of folk music going on last night probably related to what I’ve been listening to just now. The music seemed to have affected everyone. At one particular moment I went into work and there was someone stuck in a folk music loop singing folk music songs. I happened to mention i( to his superior who became extremely upset and began some kind of enquiry. Many years later the same thing happened again. There was all this folk music. Some people were listening to it of course, concentrating and so on. I was enjoying it very much bu at work the big boss came and began to ask me all kinds of questions like “did I feel mentally unstable?”, “did I feel that I was being a difficult person?” etc. I couldn’t understand what was happening. He said something about starting work. I replied that as far as I was aware that has never happened at all. He asked “what about this incident?” and brought up the one about folk-dancing early in the morning. Of course I was totally bewildered because I didn’t remember things like this. I wanted to know why this folk-music thing had suddenly become so important to so many people for what seemed to be reasons that seem to be completely detached from what the music actually represented etc. I was just totally bewildered by it all.

Later on there were 4 of us who used to hang around together. One was a boy from school whom I came to know quite well. We’d agreed to meet in Sandbach for the fair at a certain time but it was a very informal, insincere kind of agreement. Anyway I went along and, sure enough, there were some people there so I walked back to Crewe, found some plants and walked back. And there I met my friend and some other guy of our group so we began to chat. They were surprised that I’d been here twice but I said that I wanted to make sure that the festival was going so I was here early. The place was crowded with people. I needed to go to the bathroom but they told me that the bathrooms were filthy here and I wouldn’t appreciate anything at all of those. Nevertheless I wandered over that way to go for a look but the alarm went off.

Meanwhile, back at the ran … errr … hospital I’m told that despite already having had a couple of examinations with one of these electrode machines, there’s another one planned for during the night in another building, one that goes into things and greater depths.

Once they’ve done that, they’ll have a better idea, but I suspect that they know already, and I have an idea too. In May 2021 they discovered the cancer in my kidneys and I underwent an operation to remove the tainted bits – and it also removed bits of another part of my body, to my eternal regret. My betting is that it’s come back to whatever kits of my kidneys are left.

What’s your bet?

EPIC HALL

The Poisoned Pen (or Poisoned Chalice, more like) – or my relentless struggle against reality

Tag Archives: blood test

Thursday 6th March 2025 (cont) – NOW THAT THINGS … .

Wednesday 9th October 2024 – I DON’T KNOW …

Wednesday 11th September 2024 – I HAD ANOTHER …

Saturday 13th July 2024 – IT LOOKS AS …

Monday 24th June 2024 – IT’S BEEN ANOTHER …

Monday 17th June 2024 – I’M BACK …

Monday 27th May 2024 – IT’S BEEN LIKE …

Friday 26th April 2024 – IT’S FLAMING DIFFICULT …

Wednesday 3rd April 2024 – I’VE HAD A …

Wednesday 13th March 2024 – THE DEED IS …

Wednesday 28th February 2024 – TWENTY YEARS AGO TODAY …

Monday 7th February 2024 – THERE WAS NOTHING …

Wednesday 31st January 2024 – AS I SAID …

Wednesday 17th January 2024 – THEY HAVE RECEIVED …

Friday 5th January 2024 – HERE I ALL AM…

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