… have figured out how to tether my phone to my computer using “bluetooth”, I can access a phone hotspot with the computer and post the days’ entries directly.
In fact, you might have noticed that the completed entries for the last 3 days are now already on line.
Once again, I make no apology for anything that is contained therein that might distress or upset people.
Firstly, I have no control whatever over what goes on in my head during the night. And how I wish that I did! I’d have Zero, Castor and TOTGA in there all the time, with a succession of other people who have been so nice to me in the past. Even Nerina. After all, she had a lot to put up with in the old days.
Secondly, as I have said before … "and on many occasions too" – ed … as this illness unfolds and heads towards its inevitable climax, the state of my mental health is just as important as the state of my physical health and needs to be controlled in a similar manner. And so any intemperate or unpleasant outburst needs to be recorded in the same way that a blood pressure recording is.
Thirdly, these are stressful times and you have no idea. Having a blood test on Wednesday, a desperate ‘phone call on Thursday and a 350-km dash in a taxi early on Friday morning is enough to tell you that something has gone horribly wrong.
And so here I am. Like the famous Maréchal MacMahon, "j’y suis, j’y reste" – “here I am and here I stay”.
So here I stayed, all through yet another miserable night of doors banging, people talking, trolleys rattling and the like. And by 06:00 I’d given up all thoughts of sleep.
Mind you, with the amount of stuff on the dictaphone, and no hallucinations either, I must have done a lot of sleeping at some point somewhere.
First port of call is the bathroom for a wash and brush up and to put on my day clothes. Then an endless stream of visitors to see me – nurses, nursing orderlies and the like, taking my temperature, taking my blood pressure, giving me my medication etc. You can imagine.
There’s been a change of crew too and it took “some negotiation” to have a second roll of bread when breakfast eventually came.
They aren’t very willing to hand out the coffee either and as regular readers of this rubbish will recall, that is a catastrophe of tsunami-like proportions.
Once the breakfast was out of the way I sat down to try to decipher the huge mass of notes from the night. The girl who was here a couple of nights ago was there again last night, at school. We were all at school and it was the fancy dress ball so everyone was dressed in fancy dress. I had on a pair of tights and a girl’s skirt which actually belonged to a girl with whom she was friends but I’d carefully concealed it about me somehow even though I was wearing it. She was wearing white tights and a pink top. I didn’t really notice if she was wearing anything else. We both came out of the school door together, she on one side and me on the other and headed for the lift. There was a German World War II jeep heavily camouflaged with bales of hay etc. I always had a great deal of affection for this vehicle and the people who drove it and I even happened to like one of the girls on it, whom I was hoping to bump into at some point. We were all waiting there for the lift. The lift came and the jeep drove on, then it looked as if the lift was about to leave. I said “oh no, it’s not going to leave, is it?” but it stayed so the girl and I boarded. At that point, all through this dream Alquin had been playing YOU CAN ALWAYS CHANGE. that was one of the tracks that we were going to play on stage during the concert. I had a feeling that the girl was going to talk about the track, or someone was, and I wanted to keep our selection secret but it was going on and on and on as this dream continued. When I awoke it was actually playing on the computer.
Then we were making arrangements about times to go to do the family banking for the family business that we had. I noticed that I was down to go between 14:30 and 14:45 which was going to be rather difficult because I started work after lunch at 14:00. Trying to evade myself out of the office every day for any length of time without anyone noticing is going to be extremely difficult as I’d already been back that late on a couple of occasions. In the meantime there was something going on in Brighton where there was a killer on the loose. His modus operandi was exactly the same as a series of murders several years ago so naturally the police were following up the trail of the murders committed then. One of them was by a bookcase in a side street so they arranged to set up some kind of dummy person there that this guy could shoot. But a journalist went along with the police and he decided that he’d arrive first and case the area which of course was a really bad thing to do because the guy would notice him but he turned up on his train but there were problems with his train. This meant that the journalist couldn’t get out there at the time that he had planned to be there, maybe 10 minutes before. It was cutting it extremely fine with the journalist doing his dummy run there and the correct kind of time that the murderer committed the crime on the previous occasion at the spot. There were all stories about how the journalist was going to totally wreck the police trap and spoil the show.
When the alarm went off I was in the middle of a dream musing on the state of the world and thinking of a particular woman who had left the oven on too low and too long and had dried out the food that she was trying to cook. There were 11 articles in there altogether to replace articles that had been cooked in the microwave and the previous table-top oven. I had a quick look and the time was only 04:00 so i was obviously a false alarm for some reason – maybe I dreamt it I dunno. Anyway I checked that I wasn’t supposed to be leaving the bed at this time and went back to sleep.
I was home from work and was with Laurence. A woman from work came round. The living room was in a really appalling state with stuff everywhere. I was quite embarrassed and apologised to the woman. I began to pick up clothes but most of them were Roxanne’s. I explained “it’s really difficult trying to live with a preteen daughter. Roxanne is 11 and is at .that age”. I walked out into the hall and threw these clothes upstairs but they missed, fell down and draped all over the stairs again. The woman said that she had a daughter who was 10 but was extremely well-behaved in that matter. I said that Roxanne was very well behaved and was a lovely girl but was in the “attitude” kind of stage. It was very difficult to try to make her see things from maybe our point of view. But it wasn’t just Roxanne’s stuff that was everywhere. It was ours as well. But as I said, it was all extremely embarrassing having people round from work with our place as untidy as it was.
Roxanne was in fact 9 years old when her mother and I separated so I’ve no idea what she was like as a preteen. But she was a normal, happy, healthy, well-adjusted kid when I knew her and there’s no reason to suppose that she was any different than any other kid of that age.
Did I tell you that she was an actress?
It all started one Sunday morning. Where we lived was right on the border between Jette and Laeken (I liked Jette very much) to the north of Brussels and on the house next door to our apartment building was a big sign dating from the 19th Century with the name of the town on it.
One Sunday morning up rolled a TV crew. They set up a sofa in the street underneath the sign and had actors and actresses sit on the sofa and shout “TV Brussel” – the name of the Flemish television company.
Of course, quite a crowd gathered and we looked down from our balcony.
One of the actors was a little girl, black as the ace of spades, and when they looked up they saw Roxanne, blonde as blonde could be with her long hair down past her waist, they called her down and they had the two kids sitting on the sofa, one in contrast to the other, shouting “TV Brussel” together, and she was shown on the cinema and television for months.
They obviously liked what they saw because they took our name and address and a short while afterwards she was asked to appear in a TV film as a schoolkid playing in a school playground. She passed the audition and the screen test and off she went.
Sometimes I wonder if she continued afterwards.
There had then been some sort of firework display in the vicinity. A friend of mine had been to see it and had come back horrified with stories of what had been going on. A little later on we’d been somewhere and come out, and bumped into a woman. She was talking about her 2 daughters who had been to the firework display. One of the daughters had come out with ” mummy why didn’t you disappear as quickly as (her sister)?”. The woman with me again told her story about what she’d seen. As we all turned to go afterwards there was a big sign pinned to the wall over an advertising hoarding “hey Eric, your websites in April had more visits than this discussion” which I thought was quite funny. A little further on we came across an internet box, one of the street internet boxes where all of the connections to the individual homes were wired. This one had been smashed open. All of the glass was smashed and it was difficult to see whether the cables were still intact. There was a policeman there examining it so we had a chat about that, the internet and things in general
Finally there was a dream where the Welsh rugby team were playing the New Zealand All-Blacks rugby team. I was explaining the rules and regulations to someone but I was actually dreaming and speaking in Welsh at the time during the dream. We were interrupted by breakfast coming early but I noticed that on the tray there was no coffee. I asked the boy who was delivering them if he could go along and fetch me a very large coffee from somewhere. Of course, that part about the coffee and the breakfast coming early was certainly a dream. It never ever happened.
Last it may well be, but not “finally”. There was more stuff than this but you really don’t want to know about it, especially if you are eating your tea right now.
It took an age to transcribe these notes as the doctor, the one who had given me the lumbar and thoracic punctures, came to see me.
Apparently the creatine and potassium in my kidneys are preventing them from functioning correctly and what could happen risks being fatal. So they intend to give me all kinds of teratments to try to reduce the levels.
They also have to stop giving me certain medication too, and for that I have to be under constant medical supervision as most of the suppressed medication is my cardiac medication.
All of this is much more serious than it sounds, apparently. They think that I might be at Death’s Door but I mustn’t worry. They’ll do their best to pull me through.
There was the continual procession of nurses and orderlies, and I managed to blag a coffee here and there, but after they coupled me up to a perfusion – apparently I need rehydrating – I didn’t see anyone for hours and it wasn’t until 18:30 that I had a cup this afternoon, much to my dismay.
Ingrid rang me for a chat this afternoon, one of our usual multilingual chats, and I’ve also chatted to Liz, a couple of neighbours and Isabelle the infimière ambulante
Tomorrow I need to chat to the Centre de Re-education and the taxi company to cancel everything that they have arranged for this week as I won’t be here.
Rosemary sent me a brief message to say “it’s snowing here”. I replied “so what? It’s snowing here too”. And it is. Quite heavily too but it’s not sticking – yet. Not that I care because here in The Land Of Yellow And Orange I have the heater going full-tilt and for once in my life I’m warm.
But that’s not all that counts. The food here is pretty dreadful, I’ve had to have another needle in my right hand now for a perfusion as the one in the left arm had to be changed.
This perfusion will last for 24 hours, so I’m told. It’s already had me flat out on my back for several hours. But just now I’ve had to have one of these sodium sulphide drinks so I’ll be out of my head for the next few hours.
Either I’ll be dead to the world in a few minutes and we’ll have a blank page, or else you’ll be in for the most exciting dreams of your life.
Watch this space.
