Thursday 21st December 2023 – HERE I ALL AM …

… not sitting in a rainbow, but sitting on my comfy chair in my office/recording studio/bedroom (it’s not just STRAWBERRY MOOSE and me who do multi-tasking around here.

And I’ll refrain from quoting Golden Earring, Sean, just for you. I’ll just let everyone imagine it.

First of all, let me announce that the completed entries for the last three days are now on line so you can go back to Monday and read forward at your leisure.

But let me give you a little warning – if you are offended or upset by anything that I’ve written over those three days, I’m really sorry, but that’s how it is, I’m afraid.

For the whole of my life (yes, the whole of my life) I’ve been falling into the deep dark pit where the black dog lives and then climbing out again later on. And sometimes I fall into it deeper than other times and it takes me much longer than other times to climb out.

For the last couple of weeks I’ve been in the pit but the other day I slid down probably deeper than I’ve been for 30 years and couldn’t climb out again.

At times like that I have a tendency to give vent to my feelings maybe more than I otherwise would, something like a safety valve blowing off excess steam.

People have asked me before why I don’t go back later and edit what I write. But the answer to that is for someone who is suffering from a long-term terminal illness, a control of the mental health is as important as a control of the physical health and I need to see how my mental health is evolving as the illness progresses through my body.

As regular readers of this rubbish will recall, I’ve been advised by many people … "and on many occasions too" – ed … to seek counselling as my health deteriorates more and more, to prepare me for “the end”, but counselling won’t solve my problems, and it won’t help anyone else who follows my trail.

And so you are stuck with these notes, for better or for worse. And if you read something that makes you raise your eyebrows, don’t worry about it.

As for my dreams, I have no control over them at all. And how I wish that I did.

A few people are actually quite adept at reading the signs in my postings. Almost immediately after I posted last night’s entry, Alison came on line and spoke to me for quite a while, for which I was extremely grateful.

So for the last few nights, I’ve had Alison, Rosemary and Jackie helping me along as I deal with all of these issues, and I’m very grateful.

So grateful was I after my chat with Alison that I awoke this morning feeling much better than I did when I went to bed last night. Mind you, it was 07:20 so I suppose that was partly the reason.

The nurses came and did their usual nursey things and told me that I’d be leaving today, critical blood count or not. But last night before going to bed, I had an injection of a product similar to Aranesp, the “last resort” for stimulating the red blood cells to fight against the carcinogenic protein.

They took the card that I gave them so that someone could ring up the taxi company to tell them to fetch me. I told them not to hang about because he has a 4-hour drive to come here for me.

And after breakfast I finally, at long last, had a good shower. And how much better I felt for it too.

The doctor waited until about midday to come to see me with an enormous sheaf of papers, including my permission to leave.

She also brought me the very bad news. If you want to see what the lumbar puncture and the thoracic puncture disclosed, you need to READ THIS

Of course, I’m not going to have any old common or garden complication to my illness, am I? It has to be something that is “an extremely rare neurologic complication”.

And as if I don’t have enough issues already with which to deal, without having all of this dropping on me over the last few days.

But no-one can say that they weren’t thorough.

While I was waiting for the doctor to come I transcribed the dictaphone notes. We were on board ship, a whole pile of us, kids from school. We’d gradually settled down into groups of friends. I was with a couple of people, other boys from other places. Someone suggested a game of cards. We found a pack of cards and went to the deck above to the games room where all of the card tables and all the other tables were. But there wasn’t a card table free. There was one table where there were some boys from the year above us, They were playing and said “we’re playing here”. I replied “I can see that you’re in the middle of a game. In the end they invited 2 of our party to join in with them to make up the numbers. That left a couple of us. We were trying to work out what we were going to do. As far as I was concerned I’d be quite happy to sit on the floor and play. The 2 other boys seemed to be much more interested in finding a table or something like that. I thought that that was rather unnecessary given the circumstances.

Later on there was a big battle in the American Civil War between the North and the South. The Southern forces were completely overwhelmed and the North was victorious. What happened then was that the North suspected that several women had been extremely active in helping the Southern forces. They rounded up these women and arrested them. The women had to go to General Headquarters so they were put on some kind of primitive bike each. A group of them set off. They came to a steep hill so they had to dismount and walk up the hill. When they reached the top they could remount and ride back down again. At the top of the hill they leapt onto their bikes and pushed off to start pedalling. Just at that moment the wife of a Northern military dignitary decided to cross over the street. As a result she collided with one of these women and was killed. The woman was then rearrested on a charge of murder and was taken away. Many people had seen the incident and agreed that she couldn’t possibly be guilty of murder – it was quite simply nothing more than an accident. They somehow found their way into the tribunal. When a vote was passed for whether or not she should be prosecuted it ended up being 325 in favour and 325 against. It was necessary then for another committal hearing to be held. She was still nevertheless taken off to a ladies prison. While I was watching her in the hallway of this big building waiting for the carriage to come, I awoke.

Did I dictate the dream about everyone coming upstairs to visit an apartment next to mine? … "no you didn’t" – ed … The interior was black and white. As they came up they kept on commenting on some signs that were there, like “Mrs So-and-So – 1st prize for baking” etc. One of the people said to everyone else that whoever lives there says that we’ll have plenty of nice home food, implying that she’d baked it but in fact it’s obviously her mother who’ll have baked all the food for them. So there was some general rumbling. I stepped out onto the landing to see what was happening. There were all these people. They asked me if I was a member of a certain church too. I replied “no, this isn’t a church. It’s a block of flats”. They all looked at me quite strangely.

Somewhere along the line I was planning on doing something or other but I didn’t know what. I wanted to make changes so I’d gone out for a walk to think. I’d seen a Volvo B58 coach parked in the yard of a coach operator. It had been completely stripped out of seats etc and the back panel was missing. I thought to myself “I could make myself a nice little car transporter and caravanette-type of thing out of this, the way it is at the moment. It was an old 53-seater, probably N or P reg Duple body. I had a quick look around. It looked clean enough so i went to ask for the proprietor. While I was looking for him I found a Morris Traveller that was also for sale. I had a really good look around the Morris and found that they wanted £650 for it, which I thought was cheap. Meantime I found the proprietor and he pointed out a woman to whom I had to talk. It meant jumping across a kind-of ditch. Of course I landed in the ditch all the way up to my knees but eventually found the woman. I asked about the coach. She said that it had been one of their tour coaches that they’d had from new. It’s a really good vehicle. They’d advertised it for sale as a coach for £2,500 but there were no takers so they began to break it for spares. They found that it was too good to break for spares so the idea was that one of the car racer people might like it. I asked how much and she replied £650. It needs an MoT that they can arrange and a few other bits and pieces. I thought “£650 is nothing for a coach like that”. I se off back for home thinking to myself “how am I going to break the news to Nerina that I’ve just bought her a Morris Traveller and there’ll be a big Volvo coach turning up at the house in a week or so. She won’t be too pleased about this and it might cause a few problems at home”.

A short while ago someone offered me a reasonably modern 53-seater coach for £1500 and had I had my health I could have been sorely tempted. I even drew up some plans to make it a 12-seater coach with kitchen and 12 berths for sleeping, and use it on my trips around Europe with my friends but it wasn’t at all a realistic proposition the way that my health is going.

I was then back in that dream again … "which one?" – ed … and we were all in Virlet, although it wasn’t the Virlet that I know. We were tidying up around my house, finding all the loose rocks that were lying around and either putting them in a pile or putting them back where they belonged in the fabric of the house. This huge group of people had come together as a result of issues in the previous dream, all marked “present”. The situation was explained to them. We began to tidy it up and were doing really well. We’d done two sides of the house but the 3rd and 4th side of my house are on a different level. I thought that we’d have stayed on this particular level where the other two sides of my house are and tidy up all around there before going down into the marshy morass and dealing with that. For some reason one of the women who was co-ordinating the party went down below and began to move the stones around. We tried to call her back but she took absolutely no notice and carried on moving the stones around down below. Some of them were really heavy and required 2 people to lift them comfortably but she was lifting them on her own. I was convinced that she was being deliberately stubborn and she’ll end up with a bad back at the very least at the end of all of this if she doesn’t stop, come back to us and co-operate with the pattern that we are trying to do. There were some other people involved in this dream who lived in a nearby house that was actually a chateau but I can’t remember what their actual involvement was.

The secretary came to see me after the doctor had gone. “Your car will be here between 16:00 and 16:30” she said, meaning that she had only just phoned for it. So I settled down to do some work and … errr … a little relax.

By 17:00 they all wanted to go home so they began to harass me a little and eventually they moved me into a waiting room outside. And 20 minutes later the ‘phone rang
"Where are you?" asked a voice
"Batiment Heuyer" I replied.
"Ohh, not where you were last time?"

It seems that no-one had told him where I was, even though I’d given the taxi company a copy of my convocation and the secretary had said nothing when she rang, so he’d been trying all of the doors in the building where I was last time.

Eventually we set off for home, right through the Paris rush hour and hit the open road. It was a good drive – I’ve had this driver on a Paris trip before and I’ll travel with him again – and we even had a 10-minute break.

At one point on the journey I dozed off, and then had one of those really dramatic awakenings that I have sometimes when I suddenly sit bolt upright. It scared my driver to bits.

What made me laugh though was the taximeter. Somewhere on the autoroute between St-Lô and Villedieu les Poeles it rang up over the €1000 mark and by the time we pulled up at my door at 21:45 it was showing €1178. It’s a good job that the Social Security has prise en charge the journeys.

First thing that I did was to make myself a big bowl of porridge and then collapse in my comfortable chair.

This weekend I’m not going on the bus to the shops. First task will be to go through all of the papers from the hospital and work out what to do. Then to check Liz’s vegan wellington, order the stuff (or ask my cleaner to buy it) and send off the next big order to LeClerc.

Right now I’m totally exhausted but as usual, after a journey, I can’t wind down enough to sleep. In the old days when I was chauffeuring, I’d go for a run and that would help me unwind but these days I can’t even go for a walk.

How the mighty have fallen, hey?

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