… that I have my defining interview at the Universiteit Ziekenhuis Leuven – the University Hospital of Leuven.
And so this morning I was up fairly early, bumping into Alison on the way downstairs.
I’d been back on my travels during the night too. Back to the UK in fact. There I was, rushing to catch a train at what was supposed to be Stafford railway station and my brother was there with me and he was holding me back by trying to have a discussion with me, talking to me about all kinds of stuff and I was rushing to catch this train and I wished that he would shut up and let me get on with it. Next to get in my way was a plant seller going on about how we all ought to buy plants and how everyone in the USA ought to learn gardening and all of this kind of thing and I wished that he would shut up too. There was then some American with a small wicker basket full of growing plants and a British guy was there with an almost-identical basket of plants that he had bought somewhere for just 3p more. And as I rushed for the train, a train was pulling in so I burst into the station and towards the stairs but then I realised that I didn’t have a ticket so I had to run off to buy one for Crewe. And then I ran down the stairs to the platform where the train was standing – a train of old-stock maroon coaches. The guard was leaning out of the window of a first-class carriage saying that it was full in there and then he stepped down from the train to a group of his colleagues led by a young female platform manager. I asked if this train was going to Crewe to which they replied that it was going to Birmingham which is of course in the opposite direction. But there was another train pulling in behind and the guard suggested that this might be the one. I asked the female manager if this was the London train (even more in the opposite direction to Crewe) and she came out with a sarcastic comment. I told her to stop making these witty remarks designed to do nothing but bring a smile tothe face of her sycophants and answer my question. And there I was, wanting to go on to Crewe and no-one would tell me which train I wanted to go to Crewe.
Alison had taken a day off work to look after me, which was very nice of her, so after breakfast we went into the centre of Leuven for a look around and a coffee. It’s been years since I’d been there and I couldn’t remember the place all that much, but Alison knew of a café where they served decent coffee so that did us fine for the morning, just chatting and watching the world go by.
At lunchtime, seeing as we were in Belgium, there’s only one place to be and sure enough, we soon found a fritkot. That would do us fine and it goes without saying that the chips were beautiful.
As for the hospital, it’s absolutely HUGE, and I do mean that. So much so that you could fit the hospital in Montlucon into the foyer and instead of having a trolley park like they do in a supermarket, they have wheelchair parks where you can borrow a wheelchair.
I had to be registered, which took ages, but at least everything was properly explained to me, not like Montlucon. They even gave me a brochure and I had a choice of language – Flemish, French and English.
“Follow the blue line” said the receptionist once she had finished with me, and about two hours and three miles later we arrived at another reception desk. My documents had arrived by internal intranet quicker than I had arrived on foot so I was told to take a seat in the waiting area. This was the corridor facing a row of doors which were the consulting rooms – 15 in all, which is a massive improvement on Montlucon.
I was summoned into n°13, which I found rather ominous, and I presented my papers. Not all of them, I have to say, because I was selective in what I let them see. Anything that might have prejudged the issue, I selectively held back as I don’t want the results from Montlucon to influence their minds. They can see all of the scans and all of the reports and all of the examinations, but nothing that suggests a diagnosis. I want them at Leuven to make their own diagnosis.
But I did let them see a letter which I personally think is quite infamous and which has annoyed me greatly. It’s a letter from the surgeon to my own doctor saying “the operation is a success and there are no after-effects to consider. Mr Hall can slowly pick up his former life bit by bit, the only constraints being the effects of his severe anaemia”.
That’s right – the only thing that is holding me back is my severe anaemia, and that’s what I went into the hospital for in the first place, and there’s no mention of them now looking for a cure for it. It’s as if they have abandoned hope of dealing with it, and that has upset me enormously. Hence my visit to Leuven.
As expected, the doctor picked up immediately on this, and was also totally confused about my 3.8 blood count. “Do they measure the blood on a different scale in France?”. But when I reassured her, she too was horrified by my problem.
After a good hour there of tests and examinations and questions (and a blood test) she excused herself, saying “I’ll have to go and have a word with my professor”. And that filled me full of optimism. You wouldn’t get this in Montlucon. And when she came back, we had a discussion and a debate, and the result is exactly the result that I wanted. I could have been detained for two or three days there, which I didn’t really want. I could have been told to go home, and come back in three weeks (or maybe not at all) qhich I am, quite frankly, not up to. But instead, they took all my papers away to read and told me to come back on 31st March at 15:30. That’s exactly what I wanted and it means that I can have a nice relaxing week by the seaside.
Alison and I then came home via the scenic route and after another lengthy chat – that took us up to about 22:30, I went off to my attic and to bed.
So why, I hear you ask, have I chosen Leuven for a second opinion?
There are a variety of reasons and I’ll do my best to explain them.
The first of which is that France, like many countries in the world (including the UK and the USA, before anyone says anything) is very chauvinistic. If I were to ask my doctor to recommend someone for a second opinion, he would probably send me to someone whom he knew in a neighbouring hospital. That’s no good, because he would only have had the same training and experience as my doctor.
The hospital at Leuven is huge, as I have said. It’s a teaching hospital – a University Hospital – so it’s constantly at the forefront of the latest news and development in medical treatment. It will(I hope) know everything about new discoveries and techniques long before the news filters down to a small rural hospital in France.
Alison was treated successfully for a very serious illness, as were a couple of other people whom she knows, and I’ve heard good things about it from my time in Brussels.
Furthermore, my experience is that the Belgians are much more cosmopolitan than most people in the world. They have no false chauvinistic national pride as such and so it’s much more likely to be the place that, if they can’t help me with my problem, a doctor would say “well, I heard about this illness being treated successfully in Los Angeles or Vladivostok”, without a hint of misplaced national pride. And with my medical insurance, I can travel the world looking for treatment.
Of course, having said that, I bet that it won’t work out at all like that. But it’s clear that Montlucon isn’t working and I’m going nowhere there. I have this medical insurance that entitles me to treatment anywhere and so I may as well make use of it. I’d be silly not to. And here in Leuven, I can speak the language after a fashion (and after a week here, I’ll speak it better too and I love the Flemish language) so all in all, it’s the ideal place for me to take my first step on the road to what is likely to be a very long and interesting journey.
And, of course, I’m amongst friends too and that’s very important. I may not have many friends but quantity is not important, it’s quality and I have some of the best friends that anyone could wish for, as events since November have proved.
Where would I be without you?