Tag Archives: hospital

Wednesday 12th October 2016 – AT 03:45 …

… I was still awake, tossing and turning around, but I don’t remember too much about anything after that.

However, I do remember the alarm clock going off at 07:00 and again at 07:15. and when they started using a percussion drill at 08:30, I remembered waking up then – just for a brief moment. It was 10:15 when I finally rose from my stinking pit.

I’d been on my travels too – rambled for miles and miles, but I don’t remember too much about it. All that I can remember was that I was in the trenches in the front line in World War I. I went to put my suitcase in the store, which caused my colonel to burst out laughing and he told me to take my rifle out of it – I’ll need it. He was right too because later on, there was a huge attack by the enemy – dressed in early 19th-Century uniforms. They came in several parallel point formations, really powerful, deep and strong. We were told initially to retreat but then to regroup and fight off the enemy. The point that was attacking where I was stationed was led by a soldier in his 20s with big round spectacles. We fired into the group but it had little effect and the leader, who had bayoneted several of my colleagues, ended up bayoneting me too.I wasn’t seriously wounded at all, and the attack line swept over me. Then it went calm and I was wondering whether to surrender or to try to creep back to wherever my lines might be, once it had gone dark.

First thing I did was to go to the supermarket downstairs and buy some stuff for breakfast. But surprisingly, I didn’t feel all that hungry so I didn’t eat it. And back here I carried on with some work that I needed to do. I even managed to miss out on lunch.

Round about 14:00 I started to sort out my belongings and packed everything into my suitcase that I won’t be needing tomorrow in the hospital. Once this was organised I set off for a long walk. All the way out to Caliburn in fact.

As I was passing by the Hema, I popped in. I’d seen a really decent wok in there, much better and heavier than the old one that I had been using back at home. I’d decided while I was in Canada that I would treat myself to that, but I also picked up a new small frying pan of the same model, and as well as that a new saucepan – a nice small heavy-duty one.

The Bank was the next port of call and I checked my bank accounts. Everything seemed to be in order there, especially as two payments had been made in without anything being withdrawn. That’s always nice to see.

And I also encountered something about which I had completely forgotten, and it didn’t half bring back many memories of when I was Roxanne’s stepfather for those three years.

That’s right, Rhys. Forget all about your school buses. In Belgium they have the school crocodile. Three or four parents and groups of the kids of the school, each group with its own route and dropping off the kids at their house or apartment. How environmentally-friendly is this?

Caliburn was a little sluggish to start – no surprise after being laid upf or almost seven weeks. And it was good to be behind the wheel with a proper steering wheel, a clutch and a real manual gearbox. We all enjoyed ourselves – just like old times. There was a parking place just opposite the hotel, which is a real surprise as you know. And so I picked up my suitcase, heaved it into the back of Caliburn and then drove him back to his parking. Strawberry Moose quickly installed himself in his habitual place and then I set off back to my room.

On the way back, I noticed a shoe sale in a really good-quality sports shop. My shoes are falling to bits and the boots that I have back home aren’t much better. And so I nipped in. And nipped out again with a really good pair of all-weather mud and snow leather walking boots at just €60:00 and a pair of high-quality trainers reduced to a final reduction price of €20:00. And these are the most comfortable shoes that I have worn for years.

There’s a glorious art-deco building in the pedestrian street. It’s a library and community centre with a café-restaurant in the basement. I felt that after my exertions today I deserved a coffee.

But you just have to love Flanders and the Flemish language. I don’t know about you, but I’m always up for a bit of a taart, especially if there’s a slagroom available. And at €4:00 a go – well, it makes me wish that I was a few years younger.

After the coffee, I headed back to the hotel and went for a shower. Now, where are my clean clothes? Where’s my razor?

Ohh I know – I don’t need them in hospital. They are … errr … in my suitcase that I had just taken right across town to Caliburn.

I just about made it to Zeeman in time before closing. Now I have some razors and undies and the like and I could have my shower and shave. And having showered and shaved I headed off into town to meet Alison, because we had agreed to meet up for a chat and a meal.

There’s a new vegan restaurant opened in the city and so we headed off there. The food was rather expensive (or, rather, there wasn’t a lot of it for your money) but it was delicious.

And that wasn’t all either because there’s a shop there. And that sold vegan cheese at the cheapest price that I have seen in Belgium, and some spray-on vegan cream. That is now in a paper bag by my bed ready to be taken up to the hospital (the cheese that is, not the cream) in case I am detained.

That’s right – I’m back at the hospital tomorrow.

We went to a couple of cafés for some stuff to drink and to continue our chat, and then Alison dropped me off back here. Now, I’m organising myself ready for tomorrow and my appointment with destiny. How did I do after six weeks without medical treatment?

Did I survive?

I suppose that I don’t really want to know.

Wednesday 31st August 2016 – FATE HAS A VERY STRANGE HABIT …

… of dealing with its own issues without very much input from oneself, no matter how hard one might try to interfere with things. And in the end, one quickly discovers that one didn’t even need to interfere at all.

And so it is with my accommodation, because the situation has resolved itself without any input from me, no matter how hard I tried.

I was told this morning that I can leave the hospital today. My blood count is back up (and over) to 12.2 – the highest that it has ever been, and there was no infection in my blood. And when do I come back? The answer is – 13th October – in 6 weeks time in fact. And then I’ll be required to check in every 6 months or so. Consequently there is no need at all for me to stay in Leuven and I can go back home.

Except that I am not going home at all. I have a cunning plan, and it certainly does not involve Belgium.

I had a bad night at the hospital, but then, that’s only to be expected. I always have bad nights at the hospital. I didn’t get off to sleep until about 01:30 and I was wide awake again by 05:30, tucking into a nectarine and a banana, followed by a coffee.

A blood sample followed (I didn’t mention the fruit), and then breakfast, and then we had the endless stream of visitors. And this was when the news was given to me about leaving.

Having had my lunch (I’m not going to miss out on this) I set off for home, remembering half-way down the hill that I had forgotten my vegan cheese in the hospital fridge. And when I arrived here, I had a phone call – could I go back to the hospital and allow them to take out my catheter? Yes, who forgot to have it taken out then?

So back up the hill to the hospital, remembering on the way that I had to collect my vegan cheese from the fridge. Sophie, my third-favourite nurse was there and she took it out without even a wince. The best one that I’ve ever had. Then downstairs and bumped into Evie who was going home, and we had a long chat.

From there, I walked back home, remembering half-way down the hill that I had forgotten my vegan cheese in the hospital fridge YET AGAIN.

Back here, I put things in motion and as a result I’m leaving here on Saturday afternoon, and leaving for goog too, 12 days before my time is up. And where I’m going on the train, you’ll all find out in due course. But it’s not back home to Virlet.

I’ve had my tea – mushroom curry – and now I’m having an early night. I have so much to do now for the next few days.

Tuesday 30th August 2016 – WELL HERE I AM AGAIN!

That’s right, all bright-eyed and bushy-tailed … "well, yes" – ed … here in the hospital, ready for my final session of mapthera.

And bright-eyed and bushy-tailed I ought to have been too, because I was asleep relatively early too. Not that it did me much good of course, because round about 01:00 we had a party of fellow-residents returning from a night out in the town and they certainly let everyone know that they were back.

Not only that, I had a nightmare too! How long is it since I had one of those? Things are definitely being rather depressing around here right now if that’s the level to which I seem to have sunk.

An early start and a reasonable breakfast in the bright morning sum did much to restore my morale and then after a little relax to gather up my wits, not that it takes too long these days … "you said that the other day" – ed … I set off for the long trudge up the hill to the hospital.

I was here early too, and soon installed in a nice room by a couple of my favourite nurses (but not the cute and sweet Tara as yet). It’s nice to be on my usual ward with everyone so friendly and helpful. And I had a new doctor too. It looks as if Hermione is now a thing of the past. No more Ericus Reparo.

And we’ve had some very bad news too. They took my blood count and it is DOWN – from 12.0 to 11.0. It’s true to say that 3 months ago I would have happily settled for 11.0 and gone home smiling and whistling, but not after I’ve been up as high as 12.0. Here I was, thinking that I was out of the woods. It seems however that I have merely moved into different woods.

On the other hand, they have now made a formal announcement of the illness that I have. It seems that I have Waldenströhm’s disease (I should have kept well-clear of Waldenströhm, I suppose). It’s quite rare, which is probably why they were having issues with dealing with it at Montlucon, but then again it’s not as if I’m likely to have anything plebeian, is it?

They talk about vision loss, which as regular readers of this rubbish will recall is something that I have mentioned frequently over the last year or so, and a change in mental state. Well, you can all make up your own minds about that one.

They also say that it’s incurable, and that there’s a life expectancy of between 5 and 11 years (now, of course, 4 and 10 years) and I don’t like the sound of any of that at all. But as far as you lot are concerned, at least it gives you all some kind of idea of how long you have to suffer theremaider of this rubbish that I churn out.

I had all of the antidotes and calmants and stuff like that, and then I had the mapthera. That didn’t take too long and by 17:00 I was all done and dusted, having had an hour or so away with the fairies meantime. Now I have to wait the 18 hours to check for the side-effects, and I do hope that my room-mate doesn’t snore. And I suppose that he’s hoping that I don’t cough.

Now here’s a thing. In the absence of the cute and sweet Tara, I’m being attended to by the just-as-cute and just-as-sweet Evie. And she wants to know why it is that whenever she takes my blood pressure, it’s always higher than when the other nurses take it.

Ordinarily, I would tell her – but not when my room-mate is listening and the door to my room is open.

Monday 29th August 2016 – BLIMEY! WHAT A STORM!

I can’t remember when it was that we last had a terrific rainstorm. But the one that we had this morning was a corker!

At about 06:30, when I awoke this morning, it was quite grey and overcast. And also quite a lot cooler which made a pleasant change. And although it was an early start, it wasn’t that early when I went up for breakfast. I seem to be becoming quite lazy in my old age.

Yet another leisurely morning (just by way of a change) and round about 10:00, just when I was thinking that I ought to go out and buy my baguette, the heavens opened in a dramatic fashion and that was that. And so instead of going for my baguette I went upstairs for a coffee instead – to find another group of residents whom I hadn’t noticed before.

The rainstorm eased off round about midday but I couldn’t really care less because I was doing something else – but I can’t remember what it was now. It was round about 14:00 when I finally remembered that it was lunchtime, so I nipped down to the supermarket on the corner for the baguette. With no hummus I used vegan cheese with my tomato, olives and lettuce and it was of course just as nice.

The weather improved this afternoon but I missed some of it because I crashed out (yet again!) for an hour or so – something that is becoming too much of a habit these days. But I managed to drag myself into the bathroom for a shower, a scrub and a shave. Add to all of that a change of clothes and I was then ready for anything, especially for meeting Alison.

Going down to the car park I took with me a bottle of the Raak Campagne Pils that I had bought in the Netherlands in March. I’d mentioned root beer to Alison the last time that we had met, and Alison had never tasted it. I mentioned ages ago that this Raak was the nearest thing to root beer that I had ever found in Europe and so I donated a bottle to the cause.

We went into town for a plate of falafel with salad and chips and a good long chat and then off to a nice café in the city centre for a coffee. It was such a pleasant evening that we went for a walk afterwards and I took her to see this studio that I had been shown in the city centre last week and then we ended up back at our end of the city.

Now I’m off to bed. Tomorrow I’m off to hospital for what I hope will be my final course of treatment.

Friday 26th August 2016 – WELL, I’VE DONE IT NOW!

Yes, This lunchtime I signed my life away – or, rather, the next 12 months of it.

I went to see that studio this morning. It’s in a modern building, quite clean and tidy and looks quite respectable. It’s round the corner from here in the Tervuursestraat and even closer to the hospital, which is definitely a bonus. The studio is on the 5th floor, which is actually a series of penthouses, and the 5th floor is quite clean and tidy too.

As for the place itself, it’s the smallest studio that I have ever seen – 17m² to be precise – and it’s so small that there’s no room for a bed. Just a sofa bed. And a wardrobe, a desk, a table, a couple of chairs, a kind-of kitchen area and a small shower room.And it’s painted white, which I hate as you know.

However, the size is perfect because it means that there’s less to clean. And the floor is tiled like my old place at Duysburgh, and that means that it’s easy to clean. And, it’s clean, tidy and modern. All one wall (the longest wall) is full-length window so it’s light and airy. There’s a flat roof from the lower floor just outside the window and while I can’t use it as a terrace, it’s ideal for lettuce and herbs and all of that kind of thing.

The downside is that there were two of us visiting it, and we both wanted it. But I filled in the application form, gave them details of my salary and bank accounts, and now it’s up to the owner to decide. And I do hope that I’m the one who is chosen. It’s €395 per month and €50 per month for the service charges and that makes it very affordable from my point of view. And it’s a 12-month contract, so that’s idea, I reckon.

But I’ve never seen a place as small as this. The studio that I bought in Brussels in 1993 was a mere 48m² – almost three times the size.

My night last night was very mixed. After the shower that I had (and I’ll be having another one tonight I reckon) I tried to doze off but in the heat it was impossible. I did eventually drop off to sleep, and I only woke up the once too. and to everyone’s (including my) surprise, I was awake again fractionally before the 07:00 cacophony.

There was another accommodation opportunity that appeared in my mailbox too. That looked even more perfect from the photos, but once again I was up against a “couldn’t care less” estate agency who couldn’t possibly fit me in to visit it until the end of next week. I really do wonder how these people manage to stay in business.

But having seen the other one, I had to gather up the paperwork and shoot off to the letting agents before lunchtime to register my interest. It was a beautiful walk along the old canal and the old quay and the walk back through the old part of the city and along the river was even nicer.

After lunch, the heat was overwhelming and I crashed out for a while, although not before cutting my hair. It was getting far too long and I can do without it in this weather. And then we had the siesta – I wasn’t up to much, that was for sure. and I shan’t be up to much tonight. I’ve had my tea and I’ll be having a shower in a minute, and then I’ll be off to bed.

And I do hope that I’m the lucky one with this studio.

Tuesday 23rd August 2016 – PHEW! I’M WHACKED!

I’ve been on my feet all afternoon and tramped all the way around Leuven. And on the hottest day of the year so far too!

And it hasn’t been without its incidents too – some of them good, some of them bad.

The bad incidents concern the attitudes of various estate agents who, in many case, quite frankly couldn’t care less about potential clients and make no effort to give any assistance to anyone calling at the door.

Not only that, I doorstepped the Tourist Information Office about potential holiday lets lying vacant over the winter that might be let out profitably on a mid-term basis. But to give you some idea of what I’m up against here in Belgium, this was met with an outraged “but that’s illegal!” And so you see – trying to do something out of the ordinary here in Belgium is a waste of time.

But there has been some good, positive news. And it’s been a long time since I’ve had any, isn’t it?

Firstly, I found some information about a couple of flat-hotels in the city. And so I went off on the prowl. The first one was right out of town on the road to Kessel-Lo (you can see how far I walked), and the second one was, quite appropriately, right next door to the Nick, so I won’t have far to go when they find out about me.

The first one was the cheaper of the two. It looked rather like a barracks and the rooms were rather spartan, but it had everything that I would be likely to need. The second was in a much more beautiful setting and I really liked the look of the place, but this too was rather spartanly-finished and I could smell the damp. However, the price worked out at less than I’m paying here, and that’s with all of my own facilities. Consequently, we are starting to pull ahead a little (and about time too).

But I turned up trumps in another estate agent’s that I discovered by accident. The guy there downed tools and took me round the corner to show me a studio. On the third floor (with a lift) of a small building in the pedestrianised street between the city centre and the railway station was a small (and I do mean small) furnished studio – nice and clean with a wooden floor and with modern furniture. It’s basic I suppose but it’s there and while I don’t like the situation much, I’ve learned that I can’t afford to be choosy.

Another possibility is a flat by the seaside and some estate agent in Oostende has come up with something too. This was a long shot – something round about Plan Z I reckon – but once more it’s an option.

And so I’ll keep on trucking, but I’ll see what this place is like tomorrow afternoon. If it muts the custard, I’ll be taking that one seeing as how it’s situated near to the hospital. But if it’s no good, I’ll be going for the one in the town I reckon.

It was a long way back tonight and I was thoroughly exhausted. And soaked in sweat too. after a coffee and a little doze I went and had a shower and a change of clothes.

Tea was quite exciting too, especially after I dropped almost all a bottle of hot spicy tomato sauce into my pasta tonight. And the garlic bread was delicious too.

And I wish that these Flemish girls would stop wearing these skimpy skin-tight shorts in this hot weather. It isn’t ‘arf interfering with my breathing.

Wednesday 17th August 2016 – I HAD ASKED FOR …

… a good night’s sleep last night. And did I have one? Did I heck as like.

It wasn’t the fault of my room-mate either. He was one of the better ones that I have had. And there was someone down the corridor talking in his sleep which might have been quite interesting had my Flemish been any better. But despite all of that, I was still awake at 02:00. But why my room-mate would want to have a good wash at 04:20 is totally beyond me.

I did manage to doze off at some point but the usual morning clatter put paid to everything.

It must me this Mapthera though that is giving me this insatiable appetite that I mentioned the other week. I had a full breakfast and even sent for more bread. That was what started me off.

The doctor came and gave me the news. No side effects, no untoward problems, and so I can leave as soon as the nurses take my drain out. I asked about my blood test results. The red blood count has soared up to 12.0 – and that’s before the Mapthera too. Isn’t that a far cry from when I staggered into the doctor’s last November with a blood count of just 3.8.

The doctor is quite happy with that, but as for me, I’m delighted. I wasn’t expecting anything like this. I have to come back (to be hospitalised like this time) on 30th August and then that will, if everything goes according to plan, be the final treatment. And it’s bang-on schedule too, if you remember the initial programme. All I will need then are some regular check-ups after that.

But how regular will the check-ups be? That’s the big question isn’t it? It’s upon this that my future depends. Do I stay or do I go?

They took out the drain at about 11:30 but seeing as how it was nearly lunchtime I stayed on until I’d eaten it and then I set off in the delightful sunlight to walk back home.

On the way back I organised some bread and made myself a cheese butty. And then an hour or so later I made myself another one. See what I mean about this appetite.

Unsurprisingly, I crashed out for a while this afternoon. That did me some good. And with there still being no internet here, I went off to the launderette again where I was the recipient of a catty remark from a customer. But the advantage of being a foreigner is that you can pretend not to understand it.

I made a really good tea tonight – lentils, veg and boulghour with garlic fried in butter. All of this with rice too. And now, I’m going to watch another film and have an early night.

I hope that I’ll have a good sleep tonight!

Tuesday 16th August 2016 – I HAD A BETTER …

… sleep last night. I was off with the fairies fairly early and although I had to leave the bed once during the night, I was pretty much asleep for most of it until I awoke – bolt-upright – at 06:10. And you won’t be interested in hearing where I’d been during the night either, because you are probably eating your breakfast or some such.

I had breakfast early too – at 06:30 I was up in the kitchen.And we had the muesli back as well, much to my delight. And afterwards I packed my things ready for the hospital, as well as having a little crash-out for about 10 minutes.

It was such a pleasant morning that I had no doubts whatever about walking up to the hospital, even though I had my larger, heavy bag with lots of stuff in it. But not, as I was to discover later, my slippers. And not my vegan cheese either. This was bad planning!

They weren’t expecting me at the hospital this morning. It transpired that they were full and so I’d been sent to a different ward – one where the people aren’t quite so nice and friendly (I’ve been here before). Waste of time me prettying myself up in case I were to encounter Tara, the cute little nurse, wasn’t it?

They installed me in a room and because I was first I could choose my bed. And so I’m next to the bathroom (ease of access) and away from the window (far too hot in summer).

It looked as if it was all going to be super-efficient. I was quickly rigged up with my catheter (didn’t feel a thing) and given the antidotes and so on. And then I waited

And waited

And waited.

16:30 or so when they came around with the Mapthera. Wasn’t that a waste of a day? but at least I’d had a lunch and it was something that I could vaguely eat too. Tea was a bit miserable though, especially without the vegan cheese, but luckily I’d brought one of the big packets of crisps that Alison had bought for me the other day. Good old Alison!

So now that I’ve been disconnected from the drip, I’m going to settle down for an early night and watch a film. I hope that my room-mate doesn’t snore or anything like that. He likes his TV so it’s a shame that he doesn’t have any ear plugs. I on the other hand have comfortable headphones, as long-term readers of this rubbish will remember.

I do hope that I’ll have a good night’s sleep.

Monday 15th August 2016 – THIS TIME LAST YEAR …

… I was on my way from Lyon Airport to Zurich in Switzerland ready to board my flight which would eventually take me off to Montreal, Canada. And how I wish that I could be doing exactly the same this year. But what with the health issues that I’m having, it’s not possible, and if I can’t organise my health issues properly in the future, I might not be going again. If I need to have a health check every week or two, it’s clearly going to be impossible. And the way that things are going, I’ve no idea what is going to be the future – and neither, does it seems, does anyone else, even in the hospital.

So last night I was in bed quite early and after watching a film on the laptop, I was asleep quite early. But not for long because we have some new neighbours who seem not to have grasped the concept of corporate silence in communal lodgings.

It took me ages, and a couple of trips down the corridor, to go back to sleep after that. I definitely remember 01:30. But back to sleep I must have gone because the next thing that I remember was the alarm going off at 07:30. I’d even managed to sleep through the 07:00 cacophony.

To say that I remember nothing is not quite true. I’d been on my travels too. Part of it involved another footballing session in Bangor, North Wales, and another part of it I shan’t recount as you are probably eating your breakfast or something right now.

I had company at the breakfast table too. The late arrivals last night were already there when I arrived, and after they left I was joined by the family who had joined me yesterday. That knocked me out of my stride as you know. I don’t do socialising and I much prefer to be on my own.

The internet is still out too this morning. As a consequence I set off to the launderette again and took advantage of the wi-fi there. I had a good two and a half hours in there doing all of the things that I needed to do, and then I came back here. I passed by the supermarket where I picked up another black plastic food tray – did I tell you about the one that I picked up the other day. Again, thrown away in the rubbish pile but now it’s had a really good wash and all of my food is nice and properly stacked tidily – and about time two.

There were also a couple of small, solid wooden orange boxes. I liberated those too, and they will be on their way to Caliburn to replace the cardboard boxes in there.

Me? Organised? Whatever next?

Despite my reasonable sleep, I crashed out for a really good 90 minutes this afternoon. Properly away with the fairies I was. It’s starting to become rather silly, this one. And it’s also becoming a habit, which I don’t like at all

Back in the launderette this evening to see what the world has been up to, and then back here for tea. And what a tea it was! While the pasta was cooking, I fried some garlic in some of the soya margarine, and then added a small tin of mushrooms and the rest of the vegetables left over from Saturday. A pile of boulghour and the rest of the jar of tomato sauce, with the pasta all mixed in and it was totally delicious.

A shower and a shave this evening – must make myself clean and tidy for the hospital tomorrow. After all, the cute little Tara might be there to look after me so I need to look my best. Yes – I can still chase after the women, even if I can’t remember why.

And now a film and an early night – hoping that I won’t be disturbed as I was last night. That really annoyed me, that did.

Sunday 14th August 2016 – IT WAS ANOTHER …

… unsettled night last night. I was in bed early enough and even watched a film on the laptop from start to finish, but eben though I was quite tired I had trouble dozing off to sleep.

And not only that, I had to leave the comfort and security of my stinking pit on more than one occasion too, for reasons that I don’t really understand as I had been very careful not to drink anything as the evening wore on last night.

The final time – round about 04:20 – and I couldn’t go back off to sleep and just lay here ruminating until the crowds started to emerge at about 06.50. And no chance of going back to sleep once they were up and about, no matter how tired I was feeling.

I’d been on my travels during the night though. I’d taken Zero, together with her mother (although the woman in the dream wasn’t actually her real mother) to one of these adventure parks somewhere. She’s met a girl of about 13 or 14 and they were hanging out together going on the rides and so on and I was keeping an eye on them, making sure that they didn’t get into any mischief.

There was no internet again this morning, which is rather miserable, I reckon. Dunno what’s happening here and the office is closed all day today so that won’t be sorted out for a while. I shall have to do something in real life instead. Meanwhile, after breakfast, which I took in company with another couple or three of my housemates, I headed off to the laundry around the corner in the Ridderstraat to take advantage of their wi-fi connection. I can see this becoming something of a habit.

I’d picked up a baguette from the boulangerie on the corner for lunch. With the hummus, tomatoes, olives and salad mix, it was very delicious too.

This afternoon I had a play around with my 3D program and then had a shower and a shave and a change of clothes. I’m dining out with Alison tonight so I need to look my best. I’d also found a plastic crate that had been abandoned, so I washed and cleaned that in the shower too and sorted out all of my tins of food to make the place look prettier and, more importantly, so that I know what I have. Tidying up, me? If I’m not careful, I’ll be sorting myself out before I’m too much older, and that will never do.

When Alison came round, we went off into town to hunt down some more flats and studios, and then Alison took me to a small restaurant that she had discovered – a Thai restaurant where my vegetable curry was outstanding. We had a coffee or two in the square, watching the world go by, and then had a slow walk back here. And Alison had a surprise for me too – she’s been to the English shop and had bought me a couple of packets of vegan hummus-flavoured crisps. Just the thing to smuggle into the hospital on Tuesday.

So now I’m back home. Still no internet so I’ll be having another early night with a couple of films on the laptop. And it looks as if I’ll be off to the launderette tomorrow if this internet situation isn’t sorted out.

Thursday 11th August 2016 – NOW HERE’S A THING!

Yes, having had blood counts recently of 9.4, 10.0 and 10.5, today’s blood count is … 11.9. And that’s without any medication whatever. It compares with the “normal” figure of between 13.0 and 15.0, and the count that I had when I was first diagnosed with lymphoma – namely 3.8.

In fact, the hospital was so impressed that the doctor refused to give me the blood stimulator that I have every visit, and I was thrown out without having even a pretence whatsoever of medication.

This is astonishing, as far as I’m concerned. And so is the hospital. The doctor has said that I’ll have just two more sessions of Mapthera and that will be that. The next session will be next Thursday – and they will keep me in hospital overnight to check for side-effects – and again three weeks after that, and then I’ll be done. If things go according to plan, I’ll just need a regular follow-up to check my immunity situation and that my blood count is holding up.

And this is causing me no amount of issues. Had I still had my spleen and my immune system, I’d be half-way home by now so you’ve no idea just how depressed I am by that. I’ve said before that it’s not going to be the lymphoma that will kill me but something that I will pick up that I can’t fight off. I can’t even vent my spleen about that.

And not only that, the time scale is all wrong. They don’t know how often I will need following up and the second helping of Mapthera coincides with the date that I leave here. So do I risk renting a studio for 10 months and waste the money by being allowed to go back to France? Or do I bank on going home and then have to come back every week or fortnight at whatever the expense of the journey might be?

But nevertheless, it’s a major step forward and you’ve no idea just how pleased I am by my news today.

Last night I had another miserable night – still awake at 02:00. I was up though at 07:30 for breakfast (and still no muesli) and even had time to go for a shower before setting off for the hospital – on foot af course because I’m feeling better. I picked up my injection, but didn’t need it so the hospital nurse took it back to the apothecary.

But as for the nurse who saw me, she was quite brutal with my catheter and I can still feel the pain even now. Ohh for Tara – the pretty little nurse on the ward where I stayed who was so gentle with me.

Back here in time for lunch (and yet another brisk walk in the rain) and then after a good chat with Liz I crashed out for an hour or two – properly too. I was well away.

Tonight, I finished off the pastries and potatoes and veg and it tasted just as nice as last night. I shall have to look into the idea of making my own vegan pies some time.

So tonight I’ll try – yet again – to have an early night. And hope that I’ll be on my travels again. I was off during the night and I was in the company of the girl who has been described on many occasions as “The One That Got Away”. She didn’t get away last night either – we were planning on visiting the north coast of Norway or Russia, but ended up on a snowy island like Svalbard where we spent most of the night encountering polar bears. And it was another night where I awoke in the middle of it all to go off down the corridor and then went back to bed, and to sleep, right at the very position where I had left off my ramble. That’s been happening a few times just recently.

But Ironically, just as last time she featured in a nocturnal ramble, there she was on the internet having sent me a message just about the time that all of this was going on. This clearly signified something, but I’ve no idea what it might be.

Wednesday 10th August 2016 – I HAD A QUIET DAY TODAY

And that’s no surprise either. I had another bad night – still being awake at 02:00 this morning, and then having to make a couple of trips down the corridor during the night.

The alarm went off at 07:30, and it was something of an effort to crawl out of bed, but it had to be done. And then I staggered off upstairs for breakfast.

We seem to have run out of muesli and no-one has replenished the container. So it was cornflakes for breakfast with my toast, coffee and orange juice and somehow it’s not the same. I hope that they will refill the container sometime soon although when I was up there making tea it was still empty.

This morning I haven’t done too much at all, but at lunchtime I went for a walk. I checked on Caliburn in his new home and he seems to be fine. And then I went off to spy out the ALDI down the road from there. They don’t sell baguettes unfortunately but they so have some cheap stuff including the soya desserts and soya milk, as well as having a small range of vegan food like burgers and falafel. I’ll check this out when I find a proper place to stay. But it just goes to show you how far France is behind the times when it comes to this.

This afternoon, I crashed out for an hour or so – and quite right too for I was feeling pretty miserable what with having a bad night. But I wasn’t as miserable as the weather, which had rained when I was out and about on my travels at lunchtime although it did clear up later.

For tea, I cooked some of the vegan pastries that Alison had bought me, together with potatoes and mixed vegetables cooked in butter and with garlic. That was a very good tea, and there’s enough left over for tomorrow. The little oven here isn’t very powerful but it managed to do the job, and I need to look out for a small, cheap baking tray. Looks like a trip to IKEA is on the cards, especially as now I can access Caliburn without any effort. Renting this parking place looks as if it’s a good move.

So now, I’m going to try again to have an early night. And quite right too because my appointment at the hospital is for 09:10 tomorrow so I have to be early. I’ll pack some stuff in case I have to stay the night but if I don’t, I’ll be on the phone afterwards trying to sort out some accommodation. I have a few ideas, and a few phone numbers, up my sleeve.

But all of this assumes that they can tell me how long I have to stay here. I need to have some kind of idea so that I can make further plans.

Tuesday 9th August 2016 – HERE’S CALIBURN …

… in his new home.

As regular readers of this rubbish will remember, we had an “interaction” with the Belgian police about him being parked on the hospital car park. Nothing wrong with that of course – I’m perfectly entitled to leave him there – but the interaction is something that I can well do without. I’m hoping to keep a low profile.

And so when I was out for my walk on Sunday in the Kapucijnenvoer, I noticed a warehouse-type of place that was advertising car-parking places to let. €45 per month is not too unreasonable, but it means less hassle with the farces of law and order, and also that Caliburn is much, much closer to hand.

I had an appointment to see it at 10:00 this morning with the owner, and by 10:02 the deal was done. And it’s not too bad really. After all, I’ve had four and a half months of free – and hassle-free – parking. Who am I to complain?

From there I walked up to the hospital (I’m clearly feeling much better – I hardly broke into a sweat going up the hill).

Leuven is full of little alleyways with little rows of workers’ cottages and here’s one in the Van Waeyenberghlaan that looks quite interesting. A little cottage up there would suit me fine, but I daren’t tell you the price. I’m planning on renting a tiny studio for staying here

Up at the hospital I ordered my injection for Thursday, confirmed the time of my appointment (and forgot the letter, which is on Caliburn’s dashboard), picked up the food that I forgot and then went to rescue Caliburn.

Part of the rental for the parking was immediately paid off by going to the big Carrefour supermarket where everything is so much cheaper than the one in the centre of town. I did a mega-shop and brought everything back here along with the clean washing that I had left in Caliburn the other day.

Once I’d unloaded, I took Caliburn back to his new home and left him there and then walked back here and made myself a coffee. All of this incredible day of work (well, for me just recently) was done and dusted by 11:30. Yes, I must be feeling better.

Last night, I had another miserable night. Not as bad as last night but it was still well after 01:00 that I went to sleep. And the bells awoke me at 07:00 ready for my busy day. I managed a shower and a shave too before going out, and with a change of clothes I look almost human now.

For the rest of the day I’ve done nothing much. Had lunch, crashed out, had tea. What else is there to do?

But I’m glad that Caliburn is now accessible and we might even go out for a drive in the near future. That will be nice.

Wednesday 3rd August 2016 – AFTER MANY VICISSITUDES …

… I’ve finally made it back to my little room, and how nice it is to be here again.

Krystof, the male nurse, came to see me at about 09:30 to confirm that I was on my way, but I had to have a perfusion of something to take the water off my legs. “It won’t take long”, he said.

He was right, too. After about 15 minutes, it was all done. “You just have to wait for the doctor now” he told me.

The doctor turned up at about 11:00. The blood’s okay, the infection is under control, the kidney details have been passed to the specialist, and there are no side-effects. No reason me for me to stay, so they would do the paperwork and then I can go.

And so I waited.

And waited.

By 18:00 i’d given up. I imagined that they had either forgotten me or changed their minds, especially as I saw her a-wandering up and down the corridor a couple of times. But at 18:45, just as I was starting to settle down for the evening, they arrived with all of the paperwork.

They had a couple of prescriptions for me, including an injection that I need to buy and bring with me for my next appointment, which is on Thursday 11th August. There’s also a letter that I need to give to my doctor in Pionsat – if I can remember where Pionsat is these days.

But then I was off. Up to the car park to check over Caliburn and give him a good run around the car park to warm him up and keep the rust off the discs, and then a pleasant walk back here in the cool evening breeze. It was pouring down earlier but it stopped for my walk home, and started again just after I arrived here. For once, the Gods were on my side.

I was pretty well loaded up for the return journey so I ended up leaving most of the clean washing in Caliburn. I’ll bring it back down here after my next visit to the hospital.

So I’m hoping to have a better night’s sleep tonight. In fact, it wasn’t all that bad last night. I was asleep by 23:00 last night and awake at 04:00 and, more permanently, at 06:00. I did manage to drop off again but the 07:30 clatter brought me back to earth.

And my room mate left today as well, so I could have had a decent sleep there too – maybe – but I do have to say that he was one of the quietest people whom I’ve shared a room with. No complaints there.

But it’s good to be back here, and I can go back into my old routine.

Tuesday 2nd August 2016 – I’VE HAD …

… my mapthera this morning.

But never mind that for a moment – it’ll come as no surprise for you to learn that I had the usual night last night – awake and down the corridor every two hours or so, including disturbing my room-mate in the bathroom at 06:00.

But after that, I was stark out and the nurse had to jump through all kinds of hoops to wake me for a blood test at 08:40. It was quite a job for her. And then after that, I had breakfast.

The plan after breakfast was to crash out yet again, but it didn’t quite work out like that. Just as I was settling down, they came round with the initial perfusion and a pile of pills for an antidote or whatever they are for. Once I was hooked up to that lot, I tried to settle down a second time, but then the doctor came round for a chat.

She told me that the blood test had shown that I could take the mapthera (which I had already worked out for myself) but that I’d have to stay in until at least tomorrow while they check up for side-effects. And so I’m stuck in here for yet another day now and that’s really getting on my wick now. I want to go home.

But something that the doctor said has dismayed me more than just a little.

“It must be dreadful for you living in this hospital with an environment like you’re in and with none of your personal possessions around you”.
“It does rather, but it’s impractical for me to commute back and to to France as things stand” I replied
“So have you considered moving to Belgium?”

And so it looks as if they think that I’ll be here for quite a while needing regular attention and follow-ups. This is the worst news possible as far as I’m concerned. I really didn’t want to hear this.

They fetched me the wrong meal for lunch and tea today but I still managed to eat a healthy meal both times. But my appetite seems to be back as I’m starving right now and I’ve been nibbling away at all kinds of stuff that I’ve had stored here and my room-mate is starting to look quite appetising.

And so apart from crashing out for an hour this afternoon, I’ve not done anything very much. This mapthera takes it out of me a bit but I don’t seem to have any side effects right now except dying to go to the bathroom – but then they did give me something for that this morning to try to reduce the water on my legs.

But I do hope that I can leave here tomorrow. I’m fed up.

EPIC HALL

The Poisoned Pen (or Poisoned Chalice, more like) – or my relentless struggle against reality