Category Archives: leuven

Friday 17th June 2016 – THAT WAS A WEIRD TEA TONIGHT.

Yes, I should have had rice, bulghour, lentils and vegetables for tea tonight. But I mistakenly took a tin of vegetables for couscous with me, and ended up with chick peas and tomato sauce mixed in with it. The taste was unexpected, but not disagreeable.

You can tell that I’ve been to the shops today. I’m starting to run out of certain foods and so it was to the Delhaize supermarket in the town centre. Apart from the baguette, I bought some tomatoes, bananas and peaches, and then some rice, bulghour and vegetable stock cubes. All of the proteins in that lot should keep me going for quite a while. I need to concentrate on those as you know.

Apart from that, I’ve not done too much today. I was up early yet again, had breakfast and then spent most of the day on the laptop. I’ve been continuing the reading of the American enquiry into the sinking of the Titanic, which is extremely intriguing.

And I’ve managed to dispel one rather mischievous story about the enquiry, which has pleased me greatly. I have no time whatever for Senator Alden Smith, the chairman of the enquiry, but he was ridiculed in all of the Press for asking an officer of the Titanic “what is an iceberg made of?”. Especially when the answer of “ice, I suppose” was given.

But this is VERY VERY selective news reporting – for in fact at least two other witnesses gave evidence that an iceberg is made of ice plus stones plus soil plus all kinds of other things – with the idea that it was the stones caught up in the iceberg that damaged the hull of the ship, and one person even suggested that the shallowness of the Grand Banks was caused by centuries, or millennia of rocks and soil in the icebergs falling out of suspension and sinking to the bottom of the sea when the icebergs begin to melt. Alden Smith was simply trying to clarify the position when he asked the question and in my opinion, he has been unfairly pilloried.

I had a long chat with Liz on the internet too. She’s enjoying herself in Normandy in her little turret and having a good time by the seaside. Long may it continue.

So now I’m off to bed – not quite as early as I wanted, but never mind. I fell asleep listening to the radio last night and I’ll probably do the same again.

See you in the morning.

Thursday 16th June 2016 – I’VE BEEN OUT GALLIVANTING …

… this evening.

Alison was coming into Leuven so we arranged to meet up and go for a meal, a coffee and a chat. And so, as indeed you might expect, when it was time for me to go off to meet up with her, it started to rain.

However, at least it did prompt me to have a shower, a shave and a change of clothes so it can’t be all bad, can it? And I must say that I needed it all too. And in another major step forward, I’ve tracked down a launderette so I can give all of my clothes a good going-over as soon as I have a bag full.

The launderette is actually on the way to the boulangerie, and seeing as how I had a full complement of everything that I needed today, I reckoned that instead of the supermarket I’d just nip to the boulangerie to see what it’s like. The baguettes cost €1:25 but they are enormous and I had something of a struggle to eat it all. And while I was in the kitchen preparing lunch I was joined by one of the students and we had quite a chat. Not only that, one of the girls is leaving on Saturday and there’s a party for her, and they have invited me to attend. Isn’t that nice of them?

I didn’t have the sleep that I wanted last night. I awoke twice with the urge to visit the porcelain horse and it’s a flaming long way down (and an even longer way back) especially in the middle of the night. But years of living in a van have taught me a trick or two and I have come well-prepared for eventualities like this. One day, I’ll explain my littie secret to you.

I’ve been on the internet for much of the day, reading the report of the American enquiry into the sinking of the Titanic. I read the British Board of Trade report years ago but the other day I came across the American one. This is very interesting because it was the first of the two enquiries and there was a huge argument recorded in its pages between the officers on one hand and the seamen of the other hand about whether the Titanic split in two before it sank. Most of the seamen who expressed an opinion were firmly of the opinion that the ship had split in two, whereas the officers disputed this idea.

The conclusion reached by the inquiry was the ship had not split in two, and at the British enquiry, the point was not pursued as firmly. Yet when the wreckage of the Titanic was discovered and filmed, they way that it was lying on the sea bed left no doubt that the ship had indeed split into two before sinking.

I met Alison at the parking of the Sint Jacobsplein and went for a walk through the rain into town. Yet another gorgeous meal at the city centre fritkot followed by a coffee around the corner, and then a slow wander back to Alison’s car, seeing as it had stopped raining by now. It’s nice to be sociable and meet up with friends.

Back here, I’m having a little late night for a change. Serve me right for drinking that coffee!

Wednesday 15th June 2016 – I FELT SORRY …

… for my landlord. He came all the way here with a new flourescent tube for my little room, and I didn’t use it.

I was in bed listening to radio programmes on the laptop, long before it went dark. And I must have crashed out completely because I remember nothing until waking up to switch off the laptop round about midnight. And that was about that until 06:33 when I awoke. And I did feel much better after that.

But here’s the most exciting news of today, and that is that I may well have found somewhere else to stay for the 11 weeks that I need a place. I had a reply from a kind-of tourist hostel and so I went off to have a look at it. It’s right by the Sint Jacobsplein where the famous fritkot is situated, which is extremely handy and very well-situated for the hospital. It’s a big house which, admittedly, has seen better days, but nevertheless, it’s still quite acceptable.

I’m having a single room all to myself, with a shared bathroom and kitchen. Everything is provided – wi-fi, bed-linen, cleaning and so on, and there’s a breakfast included in the price – and it’s going to cost me about €26 per night. It’s more than I wanted to pay, of course, but it’s here and it’s now, and a lot less that I would have to pay in a hotel. And, of course, once I’m in, I’m in and if I need to extend my stay for any reason, I can do that from the comfort of within rather than from out in the street in some kind of desperation.

As well as that, the included breakfast will save me some money. The presence of a kitchen will help me in this respect too – I can live on tinned food and so won’t have to pay for meals out in the evening. I reckon that if I’m careful, I can keep within my means but there won’t be a lot spare.

Anyway, it’s all now reserved and I’ve paid a (substantial) deposit. Just watch the place burn down now.

Apart from that, we have the internet working. The college’s intranet runs on an underlying public access internet network and one of the students here let me have the access code for the public access part of it, which was quite nice of her. So now it’s all systems go.

We had a torrential rainstorm at lunchtime too about half an hour after I went out to the shops for my lunch stuff, and so I was rather caught out in it and was soaked to the skin. It’s a long time since I’ve been out in a rainstorm quite like that and my baguette was all soggy in places.

Tonight for tea, I finished off the kidney beans and mixed veg from last night, along with some pasta and tomato sauce. And, of course, the spicy cake and soya dessert for pudding.

Now, I’m going to have an early night and a good sleep. I’m off gallivanting tomorrow.

Tuesday 14th June 2016 – SO HOW WAS MY FIRST NIGHT IN MY NEW DIGS THEN?

The answer was “not very comfortable”.

What with one thing and another, it was long after midnight before I ended up going to bed. And once I was in, I had a little listen to the radio but it wasn’t long before I switched everything off and settled down for the night.

But the mattress, which I have put on the floor, as I have no intention of climbing up to the eaves of the room, is really uncomfortable. It’s a very cheap mattress to start with and it sags just about everywhere. But it wasn’t long before I’d dropped off to sleep, and that was how things stood until all of … errr … 05:30. I’m not used to the big city and all of the traffic and the like.

It goes without saying that I didn’t actually leave the stinking pit at that time, and when I finally did, I had plenty to do up here. Breakfast was therefore at 09:00 where I made the acquaintance of one of my co-cottiers. I had to run up and down the stairs twice as well – the first time wasn’t too bad but I was on my knees for the second. This is clearly not going to be sustainable.

The walk up to the hospital was quite pleasant even though it was all uphill. I called at the boulangerie that I had discovered yesterday. and of course, it’s closed on Tuesdays. But there’s an Asian supermarket across the road and they sold baguettes, so that’s that problem resolved.

The parking problem for Caliburn is semi-resolved too. I picked up a document from the hospital yesterday setting out my visits to date, and with this I was able to apply for a parking card for a free car park in the vicinity. This was duly granted.

But having the pass is one thing – finding a free space there is quite something else. I ended up making an ad-hoc space for myself at first, and then going back out at lunchtime to pounce on a liberated space. And that took quite a wait. By the end of the afternoon though, there were a few free spaces so if I do decide to go anywhere in Caliburn it will have to be in the late afternoon that I come back.

I made use of the hospital’s internet to check up on things and to send off another pile of e-mails. I’ve already had two replies from this load of messages, but they were both refusals.

Walking back here was pleasant too in the early evening sun and I encountered the landlord in the building, changing a few light-bulbs including the one that doesn’t work in my room. I also had an encounter with a couple of the girls here, sorting out a place for me in the fridge.

Tea tonight was pasta, kidney beans, veg and tomato sauce followed by slices of spicy cake and soya dessert. Loads of proteins in all of that. And now, having almost fallen asleep a couple of times at the hospital, I’m off for an early night.

I hope that I can have a good night’s sleep tonight.

Monday 13th June 2016 – IT’S NOT VERY GOOD NEWS!

No, I had the results of the two samples that were taken from me the other week.

The first bit concerns the bone marrow. Whilst it’s true to say that the lymphona hasn’t spread into my bone marrow, the fact is that the bone marrow itself is quite fragile and as a result they won’t be giving me any more chemotherapy. This is because the marrow is quite fragile and they fear that the chemotherapy may damage it.

The second thing is, if anything, even worse. And that is that my illness has spread to my kidneys and that is what is the matter with them.

I don’t know if the situation is dangerous or not – I didn’t ask. What I do know is that they are going to have a meeting on Wednesday to discuss a course of treatment and I have been summoned for next Monday to a meeting to find out what will be the plan. All that I can say is that I don’t like the sound of this at all.

I had a difficult night’s sleep again, awake quite early and having a trip or two down the corridor. When the alarm went off at 07:15 I was awake but it still took me a good few minutes to leave the comfort and safety of my nice warm bed. After breakfast I packed everything away and even found time for a shower, then paid up for my stay and hit the road.

It was pelting down with rain this morning and traffic queues everywhere. However I made an executive decision (an executive decision being, for the benefit of new readers of this rubbish, a decision that if it happens to go wrong, the person making the decision is executed) to follow the signs for the motorway once I reached Korbeek-Lo and that was a much better idea. There was heavy traffic on that road but it was all turning off to the various business parks down there and it didn’t take long to hit the motorway. And once on the motorway it took me a mere 10 minutes to reach the hospital by going right round the city and onto the campus from the rear. I was there half an hour early.

A couple of doctors, one of whom was the girl whom I normally see and the second one was the urologist – she who gave me the bad news – came to see me. That wasn’t all that she gave me either because she ordered an injection for me – one that would help purge me of excess water. And I’ll tell you what – that worked in spades and made me feel so much better.

The Social Welfare girl came to see me too. We discussed my accommodation situation and she’s going to make further enquiries for me. Mind you, although she’s given me a great deal of moral support she hasn’t really gome up with too much in the way of practical help. But then again, I don’t suppose she encounters too many people who have my kind of problems.

They gave me a blood test too, and my blood has dropped down to 7.6. That of course meant a blood transfusion and I had two pochettes of blood. What with all of that, it was nearly 19:00 when I left the hospital. I had a walk down into town and stopped off at a fritkot for a falafel butty and chips for tea – all for €5:50.

And then it was back here to my new home for my first night.

There’s no internet (there’s a student.net site but of course I don’t have a password for it) and there’s a leak around rthe edge of the roof light.

As I said yesterday, I’m glad that I’m only spending a couple of weeks here.

Sunday 12th June 2016 – I’M GLAD …

… that I’ll only be in this new place for two and a half weeks. It’s nothing at all like the kind of place that I would like to be and, even worse in my opinion, I’m up in the attic three and a half floors up and I was having something of a struggle to find my way up there. If I do manage to meet a nubile nymphette and invite her upstairs to see my etchings, I’ll be in no fit state to do anything about it.

But I’m not going into too much detail about the place. It’s just outside the centre of Leuven, not too far away from the hospital that I visit, and it’s €10:95 per night, everything included. That’s all that you need to know about it. The cheapest hotel in Leuven is €37:00, to give you some idea of what is involved.

I had something of a mixed night last night and was up and about long before the alarm went off, having had breakfast and a chat with someone whom I knew who was on the internet this morning. And then I went off to that boulangerie that I discovered the other day. Half of Belgium was in there in front of me, but I was seen eventually and picked up my baguette. And it was nice too – well-worth the wait.

This afternoon I’ve been tidying up in here and everything has gone down to the new place, except for the stuff that will fit in my backpack. I’ll take that to the hospital with me, leave Caliburn on the car park, and then walk down to the new place from there, and see if I can find a boulangerie in the neighbourhood. I had a quick drive around and couldn’t see one, and I need to put my priorities in the correct order.

On the way back, I stopped off for a pizza – after all, it is a Sunday. I sat on the car park of the Carrefour at Korbeek-Lo and ate it, and pretty good it was too. Then I came back here for pudding.

I’ll have an early night tonight and see what tomorrow brings. It’s the day that I have my hospital results and so I’m not much looking forward to it. I shudder to think what they might have found.

Friday 10th June 2016 – I’M ANNOYED!

In fact, I’m furious!

Yes, that nice place that I went to see, the landlord has now decided that he didn’t want to rent it to me after all.

So let me tell you the full story. He advertised several rooms, the one of which I wanted was available from 15/06 until 15/09. But when I arrived, it had gone. He did have another, from 01/07 until 15/09, and I said that in principle I would take that if I could find somewhere for the period from 13/07 until the end of the month. So he sent me an e-mail with all of the details of a place that he knew, and that was what I booked. And so I told him that all was arranged and could we go ahead. This was when he sent me a mail to say that he didn’t want me as a tenant.

I don’t have a big issue with that, but what I do have an issue with is why he wasted my time getting me to go to this other place and booking there for two weeks. I could easily have found another place for the whole three months on this web-site that I’ve been using. Why send me a mail with this information? Why not just tell me in the first place that he had changed his mind?

Mind you, I suppose that I do have another two weeks to look around, and it does give me more leeway to find out what they will tell me on Sunday.

It wasn’t all doom and gloom though, for I was out gallivanting just now. Alison and her cousin Jennifer came to visit me and to inspect my country estate, and we ended up going back into Leuven together for a fritkot and a coffee. That made a very nice change indeed – it’s very pleasant to spend an evening in the company of interesting and stimulating people and I was sorry when it was time to go home. I don’t meet enough interesting people these days.

So what else have I done today?

Ahh, yes. I went to the big Carrefour at Korbeek-Lo for shopping. I spent quite a sum in there but then I needed to because this new place where I’m going is far from the big shops and I’ll have no transport while I’m there (there’s no parking in the vicinity so Caliburn will be staying at the hospital) and so I needed to stock up with tins and the like to drop off there when I go by and leave my stuff on Sunday evening. Whatever else I need to buy, I can do that bit-by-bit as I’m out on my travels.

But I did make one small boy’s day today. At the Carrefour they give away football stickers and models depending upon how much you spend, and I was given quite a few. Not that they are of much interest to me but there was a boy of about 6 in the queue behind me, all dressed in Belgium football gear, so I gave the lot to him. He’ll have more fun with it all than ever I will.

The bank was next on the list too. I had a couple of hospital appointments to pay for, and I wanted to do that as quickly as possible. Put everything like that out of the way so that I’m up-to-date. When I’m in the hospital, I’ll check to see if there is anything else to pay.

Now that I’m back home, I’ll have an early night ready for tomorrow. But I’m still fuming about this flaming landlord and his blasted room.

Tuesday 7th June 2016 – I WAS STILL WIDE-AWAKE …

… at 02:00 this morning, having been for a walk (as I said that I would) and having been reading a book for ages too. None of this is a surprise of course, after having crashed out for so long yesterday evening.

But once I’d dropped off to sleep, then I really was away. And a long way away too. And here’s an interesting story of a young couple (neither of whom was me, for a change) of which the female of the party had been diagnosed with a major life-threatening illness. Which would cost thousands to treat and which would bankrupt them completely. Sitting on the roof of their house (they could do that by climbing out through the skylight) they were discussing various options of raising the money and a chance glance at a piece of formed metalwork drilled with holes gave them the first part of the idea – which was to go around and drill huge holes in the roofs of a couple of cars belonging to people who had annoyed them. They had an old Maxi that they could adapt for the purpose. The second part was much more interesting and they discussed it with a female friend who was sitting on the roof with them but she was totally opposed to the idea, a fact which made no difference whatever to their plans. And so off they went, each performing his or her own little bit, and all went according to plan. The roof-drilling bit worked like a charm and the female’s idea, of dressing in a really extravagant outfit of the kind that you would find in a Noel Coward performance of the 1920s or 30s and doing a striptease as she walked out of this pub and down the steps to the main road, was stunning. Of course, they were both arrested and charged with various offences, but the fines were minimal. However, the ensuing publicity caused the money to come rolling in and they managed to clear all of their debts in respect of this hospital treatment.

It’s not very often that there’s an evening’s entertainment and I don’t appear in it, is there?

The noise in here (because the place echoes like a drum) awoke me at about 07:30 this morning and I felt so much better after my sleep.

After breakfast I spent a couple of hours on the internet and then went off to look for a baguette. Having tried going east from here last time I stayed, and driving about 100 miles to find one, I decided to head west this time. And I needn’t have bothered because it was even farther to the nearest baguette in that direction. I did however encounter a patisserie but it was closed. Maybe having a day off, I dunno, so I’ll go to check it out tomorrow. But I can’t say that I’m too impressed with the (lack of a) boulangerie around here.

After lunch I started on my quest for accommodation for the next three or four months. And I have found the ideal place – a small room in the attic of a very modern house, right on the outskirts of Leuven within sight of the hospital, and with off-street parking too. It’s clean and tidy with a friendly young landlord, all mod cons (shared with two others), and another good advantage is that there is a beautiful garden with seats and the like so I can sit in the sun.

It’s a mere €325 per month and so I’m determined to take it until mid-September (when the students return) but the downside is that it’s not free until July 1st. I’m okay here until 13th June and so I need to find a place for two and a half weeks. I shall have to get on with that and look to see what are the possibilities. I have a few ideas already.

This evening, the beautiful weather that we have been having for the last two days broke – and broke with a vengeance too. I could feel it brewing this afternoon, but when it let go, it really did let go and we had a terrific thunderstorm and downpour. I was soaked going out to Caliburn to make my tea, but my tea really was nice. I had pasta, mixed veg and lentils, all mixed up with some spicy tomato sauce. And that was followed by fruit salad and slices of spiced cake with soya vanilla dessert custard. Fit for a King.

And so now I think that I’ve done enough for today so I’ll have an early night. Tomorrow I’ll get on with tracking down some more accommodation.

Monday 6th June 2016 – THAT WAS DEFINITELY…

… the correct decision too, to stay here at the Ibis. The beds are the most comfortable that I have ever slept in (apart from my own, of course) and I wasn’t awake long once I’d settled down for the night. Someone – or something – awoke me at about 05:00 but I was soon back to sleep again, right the way through to the alarm and I remember nothing at all. As far as I’m aware, I didn’t go on a nocturnal ramble, not even for a ride of the porcelain horse.

Once I’d finished off a pile of work that needed doing, I hit the road and headed around Leuven’s inner ring road, past the prison and out on the N3 in the direction of Tienen. I stopped off at the big Carrefour for a pile of shopping for the week and made yet another massive discovery, which I forgot to photograph so I’ll do that tomorrow, and then headed out here.

It was a gorgeous afternoon so I sat outside in the sunshine and read a book for an hour or two before going to sign in for my room. I’m in room 205 now, next door to the one that I had last time I was here. It’s all very plain and all very basic, and hasn’t had a coat of paint for 40 years I reckon, but it’s €10 a night so I’m not complaining. And, of course, it’s out in the countryside in some beautiful grounds.

But despite having had a really good sleep for the last couple of nights, I inexplicably crashed out at about 17:00 and I was stark out until 21:15. I couldn’t understand how come I was so tired – it’s not as if I’ve been doing anything.

But now it’s 23:25 and I don’t feel in the least bit tired.I might even go for a walk in a minute if I can’t drop off to sleep.

Sunday 5th June 2016 – AND WHILE LAST NIGHT …

hotel premiere classe hotel feignies maubeuge nord france… didn’t match the previous night’s sleep by any means, it was still one of the best that I’ve had for quite some time.

I was up quite late, what with one thing and another, and it took a while to drop off. We had the usual trip down the corridor and then a noise in the corridor awoke me some time during the night, and I couldn’t go back to sleep for ages after that. But when the alarm did go off, I was flat out and away with the fairies.

I’d started off the night back in Crewe somewhere around Gresty Road and I’d met a girl there. I’d had quite a few things to do and she was roped in to help me. We had been making quite a bit of progress, so much so that we had finished long before I was expecting to,and so I was making plans to leave. It was at this point that the girl announced that she was going to miss me very much – a strange thing to say seeing as how she was due to be married in four weeks time – and I had to spend a lot of time persuading her to concentrate on what was going to be her future without me being anywhere in the picture.
A little later on, I was joined by my brother and I wish that he would badger off out of my night-time wanderings. I’d been building up a kind-of database of girls whome I knew, and making little notes about them (I was much younger in those days) and out of the blue, my brother asked me “who’s this ‘blond stunner’ then?” I replied that it’s none of his business and that I would thank him to give me back my notes. He replied that he didn’t have them, all he had were copies, but that led to yet another one in a series of dismal family arguments.

It’s hard to believe that I left home when I was 18, one of the reasons being to get away from all of this nonsense and have some peace and quiet. I can’t believe that after all these years, they are still following me around. I still can’t seem to find any peace.

I had some things to do before I left, and it was 11:30 when I hit the road, stopping off for a baguette down the road at the supermarket. The Lady Who Lives In The SatNav took me round a few lanes and we completely by-passed Maubeuge which was nice because it’s a bit of a maze around there.

The drive up to the motorway services at Heverlee was quite uneventful, and I took my time. I was in no hurry. And by the time I arrived, the sun was out for the first time for a couple of weeks so I sat outside on the grass, ate my butty and read a good book for an hour or two.

It’s no surprise to learn that I’ve booked myself in at the Ibis on the motorway. It’s €69:00 for the night but it’s the most convenient for parking and it’s nice to have a little luxury every now and again. Tomorrow I’ll be off to Pellenberg at … errr … €10:00 per night and that’s quite a difference, both in price and luxury.

Before settling down for the night, I nipped into Leuven and the fritkot on the Jacobsplein for some chips and a veggieburger. Now I’m all ready for a good night’s sleep – I hope. A really deep and peaceful sleep will do me the world of good.

Friday 3rd June 2016 – I’M BACK …

… in Soissons again – at the Hotel Premiere Classe of course and I suppose that you are all wondering why I don’t move in here.

But the reasons why I’m back are twofold – firstly, I’ve come to recover my mobile phone (which I now have in my sweaty little mitt until I leave it somewhere else) and secondly, and more importantly, I’ve been let out of hospital today.

The doctor came along this morning and told me that nothing now is likely to be done to me until they receive the results of my samplings back from the laboratory, so if I were to stay in the hospital, I’d be just kicking my heels until then. And so I decided to take my wracked and ragged body off for a change of scenery, and they’ve given me an appointment for Monday 13th (yes, the thirteenth – good job it’s not a Friday!) of June. That’s when we’ll (hopefully) find out where everyone has been going wrong with my diagnosis.

I spoke to the girl at Social Services and after an inordinately long wait, she confirmed that they would have me back at Pellenberg from Monday until the day that I go for my results. That gives me a week to track down a room in a house and now that I have my phone back, I hope that I can do that.

But the result of having to wait around so long was that it was 15:30, instead of 14:00 when I left the hospital. And after another session where I jammed the exit at the car park, I was of course decanted straight into the traffic. Not quite as bad as the last time, but bad enough all the same. I stopped off to pick up some fuel at Mont St Jean, given the excitement that’s going on in France at the moment.

The drive down was uneventful although I did pick a new route – down the péage and then onto the motorway for Reims and Lyon, leaving somewhere short of Coucy. And luckily, there was a guard on duty at the tollbooth who recognised Caliburn as a van and not a lorry and I paid just €4:40 for the tolls and not four times that. I hate these automatic tolls.

The road into Soissons is a road that I know well from the old days, bringing me past the walled city of Coucy-le-Chateau (which readers from way back will recall us doing the touristy visit early one morning in midwinter many years ago on our way back from an Open University Students Association meeting) and straight into the town, and now I’m holed up in the Premiere Classe where I’ll be staying until tomorrow.

And I hope that I have as good a sleep as I had last night. Not the best, it has to be said, but my room-mate didn’t snore at all as far as I could tell and once I’d finally managed to go to sleep, I just had the odd awakening here and there and was dead to the world when the nurse awoke me. I’d been on a voyage too, but don’t ask me where because I’ve no idea now.

Still, tonight I’ve asked for the quietest room in the house and judging by this and that, I might actually have it too. Let’s see how I’m feeling after a good rest and a good breakfast tomorrow, hey?

Thursday 2nd June 2016 -THE BIG PROBLEM …

… with crashing out so thoroughly like I did yesterday early evening is that you can’t go back to sleep again later. Especially when you have a room-mate who not only snores like a bull but who goes to the bathroom more often than I do.

In fact at one stage I do remember dropping off round about 04:00 only to be awoken by him going to the bathroom 10 minutes later. I’m going to definitely change my mind about leaving as soon as I see the doctor, and go and have a really good sleep somewhere else. It’ll mean a change of room too for when I come back (at least, I hope so anyway).

But I did drop off sometime later (but when, I’m not sure) only to be awoken by a nurse who wanted to take my temperature and blood pressure. I was stark out at that moment so I’ll be like a bear with a sore head (or in my case, a hare with a sore bed) for the rest of the day.

But somewhere in all of this, I’d found time to go on my travels again. I was driving somewhere (on the right-hand side of the road) and at a roundabout I had to turn right. On the corner was a school playing field (younger readers of this rubbish might not know what one of these is) with the kids playing all kinds of weird games. I made a few enquiries to find out the name of the school and then I obtained a brochure. The kids who were playing were the “Green” house of the school and this was nicknamed “the Dead”. The reason for this was that the kids in this house were selected for their “fun and spirit of enjoyment” but generally took twice as long to carry out academic tasks than their fellows in other houses.

I was allowed breakfast this morning, and then I had to wait around. And around. And around for my visit for the bone marrow. It wasn’t until 14:30 that they came to collect me and even then I had to wait half an hour before I was seen to.

The monotony was broken by the doctor who came to see me. I asked her if I really could go away for the weekend and she said that she would see the Professor who is handling my case. It seems that whatever happens next, the results of my kidney and of my bone marrow analyses won’t be through for a week so nothing will be decided before then anyway, and the discussion could easily take place at the Day Centre.

So what I need to do now is to speak to the girl at Social Services and see if she can find me a place in the family accommodation at Pellenberg starting on Monday and for a few days. That will give me a weekend away to go and pick up my telephone and then when I come back, a few days to find some accommodation such as a room in a house somewhere with shared facilities. I’ve seen them advertised via the University for as little as €200 per month (and as much as €750 per month too) and that will help me out during the summer while I organise myself.

But retournons à nos moutons as they say on the southern side of the linguistic frontier, we were discussing bone marrow a few minutes ago. And those regular readers of this rubbish will recall that they took a sample in Montlucon back ages ago and I can still feel the pain even now.

But they must have been butchers, not doctors, because the most painful thing about the bone marrow extraction today was the injection for the local anaesthetic. That’s not to say that it wasn’t uncomfortable of course, or that it was totally painless (or without stress because I’m useless in hospital) but it wasn’t anything near as bad as I was imagining.

First thing that I did when I returned here was to change out of my surgical gown and put my own clothes on. That’s much more like it. And now I have to wait for night to fall, and to hope that my room-mate doesn’t sleep on his back tonight. I’ll be glad to get away from here for a few days.

But I can’t go without mentioning a little incident here this evening. I was chatting to one of the nurses (one of the more … errr … mature ones) about what’s been going on, and she expressed a great deal of sympathy for me, ending up by stroking my arm.

Things are looking up!

Wednesday 1st June 2016 – YES, 1st OF JUNE ALREADY …

… and here I am, stuck in here still. I was going to complain about missing all of the summer but, looking out of the windows and hearing all of the news from home, then maybe I’m better off here. And so I would be too, if it weren’t for the health issues and the monotonous food (which is still, nevertheless, &0 times better than in any other hospital that I’ve visited. Heaven help me if I had still been incarcerated in Riom where the food was the worst that I have ever tried to eat).

Last night I was on my own in my room (and don’t worry – it didn’t last) and I has possibly the best night’s sleep that I have had. I didn’t go to sleep early and I had to nip off for a ride on the porcelain horse at 05:00 but apart from that, I didn’t feel a thing until a nurse awoke me at 07:40 to take my blood pressure and temperature.

I’d been on my travels too – driving around the south of England somewhere around London. Someone asked me what I was doing for lodging so I explained that I was quite comfortable with everything that I had “in the back” – implying that I was in a lorry with a sleeper cab but in reality I was, as usual,camping out in the back of Caliburn. From here, a bunch of us decided to drive back north and (shock! horror!) I let someone else drive Caliburn (which as you all know, is something that would never ever happen) while I was dozing off in the back. But I was awoken by the sound of the driver over-revving the engine and that annoyed me so I told him to take it easy. and then we turned off the A5 somewhere round about Dunstable to go to pick up something that ha had bought on eBay. Where we went to was some housing estate – all modern expensive flats in a kind of woodland-parkland surrounded by an old stone wall, a parkland that was actually the grounds of the local council offices which were in some kind of stately home. You could see where all of the 19th Century terraced houses were built and came to a dead stop at the stone wall.

I wasn’t given any breakfast this morning. Upon making enquiries I was told that nothing was allowed before my “visit”. That was apparently due at 11:30, so the doctor told me. And I made a big mistake when the doctor came round. She told me that I could go home this weekend but not being quite “with it” at that moment I told her that I had nowhere to go. Fool that I am, I should have said yes, gone anyway, done my shopping and then nipped down to Soissons to pick up my telephone. I wonder if it’s too late to change my mind.

It was 10:30 when they came to pick me up, and dressed in the new modern fashion – to wit, one surgical operating gown – off I trollied to the operating theatre, being pushed on my bed. And once down there, I had to wait for ever until someone came to deal with me. And while I was in the waiting area I could observe everyone entering and leaving the area and if I were to have a Pound for every person who thought that the exit door was automatic rather than manual, I’d be dictating this to a couple of floozies sitting on my knee, somewhere in the Bahamas.

I’m not going into detail about what happened in the operating theatre except to say that it was unspeakable and indescribable agony, but what was worse was that they strapped something like a huge stone to my back where they had made the incision, and I had to lie on it without moving for three hours. This, apparently, was to close up the incision.

And after three hours, believe me, that was even worse than the incision and I was feeling like hell, especially as seeing that I developed cramp in my left leg and couldn’t do anything at all about it. Believe me, when they finally unstrapped me, I was in paradise. At least the ecography that they gave me showed that I haven’t suffered damage due to what they did.

When I returned to my room, I found that I have a new room-mate. That’s a disappointment for sure. But still, I don’t suppose that it can be helped.

This was when I found myself in trouble too. Sitting up on the edge of my bed doing something or other, I was told that I was supposed to be lying down to give me intestines a chance to recover. No-one said anything at all about that to me.

and so I lay down – and promptly crashed out until about 22:00 when the most enormous thunderstorm awoke me. I didn’t realise that I was so tired, especially after such a good night’s sleep.

And my new room-mate snores. B@$t@rd!

And on a final note, I’ve been receiving many expressions of solidarity from well-wishers who have been reading this rubbish just recently. I’d like to thank you all for your comments – they mean quite a lot to me in this difficult time.

Tuesday 31st May 2016 – IT’S NOT GETTING ANY BETTER.

Well, maybe the sleep thing did last night. I seemed to have something of a (slightly better) night and when the nurse came to take my blood pressure and temperature at 07:40 I was dead to the world. In fact the sudden shock of waking up completely dislodged every last detail of wherever it was that I was a-wandering, which is a shame.

After breakfast, I had a couple of visits. Firstly, the nurse came in to change the needle in my chemotherapy port. And I know the nurse from my other visits to the hospital – she’s quite efficient and she didn’t hurt me half as much as any of the others have done. And that’s something, I suppose.

And then I had the doctor, and she brought me some more depressing news (if that could be possible). Firstly, the biopsy on my kidneys is postponed until tomorrow and I don’t like that idea – I just wish that they would get it over and done with.

But secondly, she told me that they have now officially decided that chemotherapy isn’t working as it is supposed to. Like me, they were expecting to see something positive in the way of results by now and they are a little bewildered. As a result, they are going to take another sample of bone marrow on Thursday – and how I will detest that (I can still feel the last lot) and see whether that will give them a further clue. But this isn’t the news that I was hoping to hear – not in the least – and I’m starting to become a little concerned.

The third visit that I had, after lunch, was only guaranteed to increase my apprehension. It was the surgeon who is going to work on me tomorrow. He wanted to tell me – in great detail too, about what he is going to do to me, and I almost had to sit on his head to stop him. I’m useless in hospital and I don’t want to be hearing about things like this. It just drives me into a cold sweat and then I spend all night worrying about it and that’s horrible.

Other news is that my room-mate has been discharged. This could be good news (I might end up on my own for a while and I’m much better on my own as I’m sure that you know) and it could be bad news, because my previous companion was quite good, quiet and didn’t snore. I’m not sure that I’ll find another one so companionable. I bet that it’s unlikely.

And so apart from that, I’ve been chatting to Liz on the internet and doing some work updating my blog and not very much else. As I have said before, it’s very hard for me to summon up the enthusiasm right now.

But we’ll see what tomorrow brings. I’m not looking forward to it, or for the following day either. And the results will be even worse, I reckon. But I must stop thinking like this. Focus on the positives – I mean, I haven’t spent a single cent in over a week and that’s surely something to celebrate.

Monday 30th May 2016 – ONE THING THAT I’VE LEARNT TODAY …

… is that I won’t be having my next chemotherapy session for quite a while.

It seems that in the opinion of the hospital, I’m far to ill right now to go through all of the stresses that chemotherapy will provide and they think that I ought to recover first.

I have to say that I don’t like the sound of that one little bit. As far as I’m concerned, being ill doesn’t make the slightest difference. I don’t see an issue about chemotherapy making me any more ill – I’ll be suffering just the same and the quicker the treatment starts, the quicker it will be over and the quicker I’ll start to recover. Waiting until I’m feeling better and then making me ill again is just in my opinion absurd. I only want to be ill once.

And if I don’t improve, then I won’t ever have the chemotherapy and then I’ll be back where I started all of these months ago and that’s really defeating the purpose of my coming here.

As you can tell, I’ve had a visit from the doctor this afternoon. She didn’t stay long and didn’t even give me a check-over – she just came to give me the news.

I had a really bad night again last night. I took ages to go off to sleep, mainly due to the fact that I had a really bad pain right across the right side of my chest. It just wouldn’t go away and I just couldn’t find a comfortable position. It was so bad that I felt like calling for some emergency help (now that’s not like me, is it?) but I managed to hang on.

And then once I did drop off, I kept on waking up time after time after time. I really can’t sleep properly at all in this place. But drop off I must have done, because I was off on my travels again.

I was in a house that I owned, in Nantwich down by Crewe Road end but it wasn’t a terraced house such as is there but a modern semi-detached property. I’d had the morning off work and was due to go in for the afternoon but all kinds of delays were holding me up. eventually, I’d sorted out my pushbike, found my heavy blue-grey overcoat, decided what cap I was going to wear (because it was teeming down outside) and eventually I set off. But it was freezing cold too and I decided that I needed my gloves so had to turn back. And this made me wonder whether it was worth setting out again as the office would be closed by the time that I arrived. But as I reached back home I noticed my red Ford Cortina estate, XCL 465X, in the drive and it had been driven in instead of reversed in, as I always do without fail when I’m parking. That took me completely by surprise.
And a little later we were at a huge Open University Students Association (OUSA) meeting and there were hundreds of us in attendance. I found my way in, nearly last (not like me) and struggled into a corner where there were several people whom I knew, including a girl called Jane who was in my class at school (what she was doing at an OUSA meeting is anyone’s guess). We were having a chat about old times when the meeting abruptly started. The first speaker, a woman we knew, started to talk but went so quick that we couldn’t make notes and everyone bellowed at her in unison to slow down and start again – which she did, but after a couple of minutes started to roar off again and we found it impossible to keep track of what we were saying.

The doctor wasn’t the only visitor that I had either. I had a hospital visitor come to chat with me for a couple of minutes and that was quite a break from my routine. She didn’t have much to say, which was no surprise, but she tried her best to cheer me up and encourage my morale and you can never criticise someone for that.

But while I was talking to her, I somehow managed to put my back out of joint and that hurt for ages. I’m definitely breaking up, aren’t I?

The rest of the day has been quite quiet. I’ve sat in the day room and, for a change, done some work (I need to keep myself properly organised and properly focused), and that’s really my lot. As you know, there’s not really a lot else that I can be doing right now. I need to exert myself a little but it’s not easy. Even if I were to find the motivation, there ust aren’t the opportunities just now.

Still, maybe I’ll cheer up tomorrow.