… the photos of my kitchen last Wednesday (that I have finally managed to find the time to upload) and I change the day on yesterday’s blog post (and well done, Seàn, for spotting the deliberate mistake) I shall tell you about my day today.
It was quite late when I finally went to bed last night, and I listened to some music for a while as I would usually do.
But not for long, though, because a wave of fatigue swept over me after my exertions of Monday, so I switched off everything and went to sleep.
For a change, I slept all the way through to the the alarm going off at 06:29. That’s most unusual because at most hospitals (this one included) there’s a huge rattle of noise all the way through the night and with me being a light sleeper, I usually hear every moment of it.
The first thing that I did was to listen to the dictaphone to find out what I’d been doing during the night.
Nerina and I had had another one of our arguments. We had been out with some friends and something had happened and I had ended up with some money from them about something or other I told Nerina about it and told her that she could take out of it some of the money that I owed her and could use it as some of the money that I owed her, and we could go to do something together She went into a really bad mood about that and announced that she was going to bed She didn’t understand, she said, why the first thing that I would do would be that when I had some money, to give her her share of the money rather than give it to her from my own funds I couldn’t understand her argument, because she now had her money back However she was really quite adamant so in the end I just gave her all the money, telling her that I’m not one of these people who counts Pounds and shillings and pence. She can have it all if she wants. I’m not interested I just don’t want the arguments or the hassle, but it seemed to carry on and it was not doing anyone any good. It was wearing me down.
That was one of the problems with our marriage (although I don’t doubt that Nerina had a few more suggestions of her own). We didn’t know how to talk to each other.
We were both totally stressed out and we showed it in different ways. I’d had a serious road accident that had left me with a fractured skull and, I don’t doubt, a personality change. Keeping the information from Nerina was probably, in hindsight, the wrong thing to do.
It took me years to come to terms with the new me and, at times, I still have some difficulty, especially looking back on some of the irrational things that I have done since and wondering “what on earth was going through my mind at that moment?”. It must have been very difficult for Nerina to understand what was going on.
But anyway, all of that was water under the bridge.
After the dictaphone, I had a leisurely ramble through cyberspace for an hour or so until breakfast arrived. And I asked for a double-helping of bread because I knew that after the chemotherapy, I wouldn’t be eating very much, and I knew exactly what the lunchtime menu was going to be.
Once breakfast was over, I had a little pause because I had an appointment to have my catheter port fitted at 09:30.
Consequently, for my 9:30 appointment, they came to pick me up at 11:15.
We had an amusing little incident at about 10:10 when a doctor came to see me. "Ohh, are you still here?"
I was sorely tempted …. , as I’m sure that you can imagine, but I was very proud of the fact that I restrained myself and made a very non-committal reply. It’s very hard to work out, in a foreign country, who has a sense of humour and who doesn’t.
At the operating theatre, I had to wait and wait to be seen.
When it was my turn, I discovered that the operating table wouldn’t lower itself down to a height that I could climb aboard. I couldn’t make the steps so they had to look for a stretcher that rose up and down.
Interestingly, the table would rise upwards, as I found out later when they wanted to take an x-ray of their handiwork. So why they couldn’t have it so that it would go down is a mystery to me.
Back in my room at 12:50 they brought me my vegan lunch, that included a pork fillet. I suspected that there would be something like that in my meal. I’m not sure how they would expect that to go down well with a large population of ethnic minorities for whom pork is taboo.
We were then blessed with a stream of visitors who wanted to connect me u with all kinds of perfusions, including one litre of hydrating fluid, which I told them to cut out. They had told me at dialysis to try to cut out as much liquid perfusion as possible as it plays havoc with my body and with their machine.
"But it’s a medication" they argued, and read out the list of ingredients. When they reached the word “potassium” I reminded them that I have an excess of potassium in my body and I am taking medication to remove it.
This just proves that there is no such thing as “joined-up thinking” between the various bodies that are handling my illness and I’m going to be pretty much on my own in this respect.
They did however give me the first part of the chemotherapy – the Rituximab, which has very few unwelcome side-effects so I don’t mind that too much.
Tea tonight included fish for my vegan diet so I left that. What I didn’t understand though was why it didn’t come until almost 21:00. Luckily I’d taken some sandwiches with me so I munched on one or two earlier.
But now, it’s 21:40, I’m just about to write up my notes, and they have come to tell me that I am right now going to have my second instalment of chemotherapy.
This is the stuff that wipes me out for hours so I’ve no idea when I’ll be writing again.
However, I hope that you enjoyed the photos of my new kitchen. As usual, click on the thumbnail image to see a larger version
But before I go, seeing as we have been talking about the operating theatre … "well, one of us has" – ed … I expressed my dismay at being called so late.
"Why is that?" the surgeon asked.
"I’d rather the operation would be done as early as possible" I replied. "It’s the best chance you have of the scalpel being sharp."

