… a showdown at dialysis this afternoon.
This outrageous fatigue is continuing to lay me flat out, so I decided to take the bull by the horns.
The chef de service was on duty today so I seized the opportunity. I explained my week to him – dialysis Monday, Chemotherapy Tuesday, Chemotherapy Wednesday, dialysis Thursday, Centre de Ré-education Friday and dialysis Saturday.
"When am I supposed to have any time for myself?" I asked. "As if I don’t have anything else to do." And so we had a lengthy discussion. Whether anything comes of it or not, I really don’t know. Probably not, because so far, I have the impression that I am talking to a wall.
It’s no wonder, with a programme like that, that I am thoroughly exhausted. If I could concentrate on my notes and finish them at a reasonable hour, that would be a start. But sometimes I’m too tired to concentrate.
Like last night, for example. It should have been an early night but what with one thing and another … "and until you make a start, you have no idea how many other things there are" – ed … by the time I’d done everything that I needed to do, it was 23:10 when I finally crawled into bed.
So much for my aim of being in bed by 22:30.
Once I’d managed to fall asleep, I was flat out until all of … errr … 04:10, and at one point I was seriously thinking of leaving the bed. However, I must have gone back to sleep because the next thing that I remember was the alarm going off at 06:29.
As seems to be the case these days, it took me an age to raise myself from the Dead and head into the bathroom. And then it was a very leisurely start to the day while I made my ginger, honey and lemon drink with which to take my medicine.
When I’d finished that, I cut the loaf into two and put one half in the freezer. And then I cut up the cake into squares and put them into an airtight container.
Isabelle the Nurse took me by surprise again, and I had to sit quietly … "if that’s possible" – ed … while she took my blood pressure.
Once she’d done that, she looked after my feet and legs, and then I made breakfast.
After breakfast, I had a listen to the dictaphone to find out where I’d been during the night. The Confederate Army had a kind of hospital where they put their. I was going there as part of the sick. One thing that I had noticed was that there seemed to be no sense of urgency in defending the fort, and no plan of what to do if the enemy were to attack. They didn’t seem to be in too much of a hurry to have everyone installed. The Union Army launched a campaign in that area and the hospital came under threat. However, it was the Union Army this time that prevaricated and seemed to waste every possible moment before launching an attack. Had it been a decisive attack quite quickly, it might have succeeded. The dream went on from there but unfortunately, I can’t remember it
What a shame that I can’t remember it. But it seems that I’m stuck in the American Civil War and I’ve no idea why. Regular readers of this rubbish will recall that WE VISITED SEVERAL CIVIL WAR BATTLEFIELDS and we’ve been reading bits here and there, but I don’t know why it’s become so imprinted in my subconscious mind.
Over the past couple of days, I’ve been reading AB-SA-RA-KA, LAND OF MASSACRE by Margaret Carrington, and at long last, after many years of searching, I’ve found that which I’ve been seeking.
In the back of the book is a large fold-out map of Wyoming and the Dakotas, with the various trails and campaigns marked out, along with the sites of the forts and the major battles.
It doesn’t fold out so well in a *.pdf but a series of judicious screen prints and a good graphics editing program has produced an impressive *.jpg image.
The book does not contain a list of all of the battles (she says that it would be far too long) which is a shame, and I’m sure that the map is not complete, but how I wish that I had had it with me on my various forays into “Indian Territory” over the past twenty-odd years.
Doing that took up most of the morning, and in the remaining time, I edited the radio notes that I’d dictated the other day.
When my faithful cleaner appeared, I went into the kitchen where she applied my anaesthetic. And then I waited for the taxi.
It was early today, so I was early arriving. I was connected up quite quickly, which is nice. However, I tried a couple of times to doze off to sleep, to catch up on the sleep that I’ve been missing, but everyone seemed to awaken me today. In the end, I gave it up.
Towards the end of the session, the chef de service came to see how I was. He gave me a brief explanation of what’s happening, and then he went to leave.
"That’s OK" I replied "if you don’t want to hear what I have to say."
That rather took him by surprise.
Now that I had his attention, I described my week to him. I also mentioned that despite having told the Centre de Ré-education that any more than three sessions per day is killing me, they gave me four last week, and there are four next Wednesday too.
What with the chemotherapy too, I feel as if I’m being kept alive simply for the purpose of being alive for the next medical appointment, and so on after that. There’s no quality of life any more, I have plenty of things that I would like to do that I cannot do because of all of this, and the way that my life is being run right now, I’ve become a slave to the medical system. It’s no surprise that, with all of this, I’m so tired.
His reply was "you are seriously ill and we are doing our best to keep you alive."
My reply was "but if this is the best that I can have, I simply don’t see the point. There’s no point in staying alive if all that they can promise me is another medical appointment the following day. We may as well call it a day, all of it."
Of course, he wasn’t happy. But then again, neither am I.
In the end, he put a note in my file to hand to the chemotherapy people tomorrow, and he says that he’ll send a message to the Centre de Ré-education. As for the dialysis clinic, he’ll chat with his colleagues and see if it might be possible to reduce my sessions to two per week.
Whether he does actually follow it up, and whether the hospital at Rennes and the Centre de Ré-education react remains to be seen, of course. But something needs to change because I can’t go much longer on like this.
And in case you think that I’m not being serious, I promise you that I am.
The taxi driver, the young chatty one, was waiting. He had another passenger with him and we had an interesting chat all the way home. We arrived early for once and after I’d gathered my wits … "with the amount of wits that he has left, I’m surprised that it takes him so long" – ed … I amended the running order of the tracks and re-paired and re-segued them, as I mentioned a week or so ago that I would…
Isabelle the Nurse came to take my blood pressure as usual. It was as high as 13.4 – that’s extreme hypertension for me and it shows just how worked up I’ve become over this affair. She had to wait ten minutes for me to calm down.
Tea tonight was mashed potatoes in butter with peans and a breaded spicy vegan burger followed by chocolate cake. And once more, I ate it all.
Now I’m off to bed, ready for chemotherapy tomorrow, I don’t think.
But seeing as we have been talking about the Wars in Indian Territory in the late Nineteenth Century … "well, one of us has" – ed … General Crook admitted to being impressed with the standard of horsemanship of the Lakota Sioux. He is on record, according to JG Bourke’s ON THE BORDER WITH CROOK as saying that they were "the finest light cavalry in the World"
When he finally met up with Chief Red Cloud, he asked him how they managed it.
"We’ve had plenty of practice riding horses over the last couple of Centuries."
"How come?" asked Crook.
"We had to" replied Red Cloud. "You try carrying a horse and see how far you can travel."