Tag Archives: swollen legs

Monday 21st August 2017 – I DID MANAGE …

… to go to sleep last night – to such an extent that I was away on my travels.

I was in Winsford having to go to Northwich and there was a choice of two routes to take. And they were the same distance too so I couldn’t decide which one to take, especially seeing as I was going on foot. But eventually I arrived there and came out of a building that might have been the railway station (but which isn’t). On the left was some kind of 1960s tower block which the town council was using as its headquarters and to the right was an old Victorian building rather like a school which was owned by the Council and which had been their previous HQ but was now derelict, and there was some scandal about the deal which had led to the Council vacating the building and leasing the more modern one for a fee which many people considered to be excessive. I was in a crowd across the square watching this old building, in the company of none other than Liz Ayers – and how many years is it since she’s been on a nocturnal ramble with me? I saw a movement over the roof of this building and couldn’t explain what it was – something like a shadow but I called it a light, which it most certainly wasn’t. But as I said it, six red lights appeared in the sky quite low down just underneath the fullish moon. “Space Laboratory” immediately came into my mind. I tried to explain this to everyone but as they all turned to look, some old woman on a broomstick – a witch – came flying out of the moon.

It was a very restless night last night with me tossing and turning so much, but I was asleep yet again when the alarm clock went off. Sleep is one thing – crawling out of bed is quite something else.

But I had a quick breakfast, made my sandwiches and went with Rachel into the office.

Making myself useful, I cleaned out the bathroom from top to bottom and threw away tons of stuff that had accumulated in there. Now it’s quite clean and shiny, but it did take ages and I had to sit down for a while afterwards.

Having gathered my strength I went round with Rachel to Bob’s house and finished off the vacuuming now that I had located the bags. And we did some general tidying up too.

I hope that I’m still in this kind of mood when I return home.

We had a knotty accounting problem to deal with this afternoon. Ellen is still running the accounts on the basis of Canadian 19th Century accounting, poor Rachel is struggling to understand it and explain it to me, and I’m trying to do it with British 21st Century accounting principles based on Ellen’s templates and Rachel’s explanations. And so between the two of us we ended up in a hopeless tangle.

But we sorted it out eventually once it suddenly clicked with Rachel and she could explain it to me.

In the meantime I’d crashed out, woken up, and gone for a walk around the old railway station site for some fresh air.

Amber and her boyfriend brought me back here where I promptly crashed out again. But a shower brought me round and a nice tea of the rest of the salad and soup from Saturday made me feel even better.

Now I’m having an early night and I hope that I’ll feel better in the morning. Because my legs have swollen up again and that has depressed me mightily.

Thursday 27th October 2016 – THIS WAS NOT WHAT I WANTED

I went to hospital this afternoon for my tests. I had the usual catheter fitted and blood sample taken. And then I had to wait.

My blood pressure is up again and my legs are starting to swell up. That’s a couple of things to worry about, but the lymph nodes that have bedevilled me – the doctor can’t find them. If they really have gone, that will be the best news that I’ve had for ages.

I had an echograph this afternoon and my kidneys appear to be quite normal as far as their make-up goes, but there is still a problem in that according to the urine sample that I gave, the protein loss from my body is accelerating.

But the worst news is about my blood count. That’s now down to 10.0, a loss of 9% over the last two weeks. Considering that while I was away in Canada for – weeks, then over that period of time I lost 10% of my count – that’s about a third of the current rate of loss.

That is causing them a considerable amount of concern and so the upshot is that I have to come back … next Thursday!

Yes, just one week, and that’s not even enough time for me to go home and come back again. How I hate all of this. But at least my little room in the hostel hasn’t been taken so I’ve moved back in and I’ll stay here. But what I’m going to do next if i’m on weekly visits I have no idea.

I had a difficult night last night – it took me hours to drop off. And then I had a very disturbed sleep. I was off on my travels too but as usual I forgot absolutely everything as soon as I awoke.

After breakfast I tidied up my room and then had a good shower and a change of clothes. And once I’d organised myself I went off to fetch Caliburn to load him up with the stuff from here. And I nearly squidged a cyclist who rode straight out of a side street without even a pretence at a glance at oncoming traffic.

I sat in the lounge here until it was appointment time and then walked up to the hospital for my appointment with destiny. 14:15 was the time of my appointment, and I was seen at … errr … 14:10. A far cry from the situation in the UK
“I needed an urgent appointment, and the hospital has made a special effort to fit me in. They are going to see me at 20:20”
“You mean at twenty past eight in the evening?”
“No – I mean in four years time”
Such is life with the British Health Service.

And I made all of 20 yards down the corridor on the way home with my catheter today. I’m improving.

And now I’m having an early night. I’m exhausted.

And fed up too.

Tuesday 2nd August 2016 – I’VE HAD …

… my mapthera this morning.

But never mind that for a moment – it’ll come as no surprise for you to learn that I had the usual night last night – awake and down the corridor every two hours or so, including disturbing my room-mate in the bathroom at 06:00.

But after that, I was stark out and the nurse had to jump through all kinds of hoops to wake me for a blood test at 08:40. It was quite a job for her. And then after that, I had breakfast.

The plan after breakfast was to crash out yet again, but it didn’t quite work out like that. Just as I was settling down, they came round with the initial perfusion and a pile of pills for an antidote or whatever they are for. Once I was hooked up to that lot, I tried to settle down a second time, but then the doctor came round for a chat.

She told me that the blood test had shown that I could take the mapthera (which I had already worked out for myself) but that I’d have to stay in until at least tomorrow while they check up for side-effects. And so I’m stuck in here for yet another day now and that’s really getting on my wick now. I want to go home.

But something that the doctor said has dismayed me more than just a little.

“It must be dreadful for you living in this hospital with an environment like you’re in and with none of your personal possessions around you”.
“It does rather, but it’s impractical for me to commute back and to to France as things stand” I replied
“So have you considered moving to Belgium?”

And so it looks as if they think that I’ll be here for quite a while needing regular attention and follow-ups. This is the worst news possible as far as I’m concerned. I really didn’t want to hear this.

They fetched me the wrong meal for lunch and tea today but I still managed to eat a healthy meal both times. But my appetite seems to be back as I’m starving right now and I’ve been nibbling away at all kinds of stuff that I’ve had stored here and my room-mate is starting to look quite appetising.

And so apart from crashing out for an hour this afternoon, I’ve not done anything very much. This mapthera takes it out of me a bit but I don’t seem to have any side effects right now except dying to go to the bathroom – but then they did give me something for that this morning to try to reduce the water on my legs.

But I do hope that I can leave here tomorrow. I’m fed up.

Saturday 28th May 2016 – I WAS PLANNING …

… on having something of an early night last night but as with all of the best-laid plans of mice and men, it didn’t turn out like that.

First Liz and then, coincidentally the girl who has often in these pages been described as “The One That Got Away” put in an appearance on the internet waves and as a result it was long after 23:00 when I walked down the corridor to my room. Mind you, it didn’t half cheer me up and I felt much better than I had been feeling, especially seeing as how TOTGA offered to come over here and soothe my fevered brow.

I didn’t have a very good night though last night. Despite being exhausted, I still couldn’t drop off to sleep straight away. It took me ages to settle down comfortably, what with all of the noise in the corridor. But I did manage to have a sleep without needing to use the facilities, which is one thing for which I ought to be grateful, and I did manage to go off a-wandering too.

I was back running my taxis again last night and although it was the Modern Era, I still had my fleet of Ford Cortinas and they were all pretty-much the worse for wear. But then it did occur to me that the Cortinas still on the market must be in much better condition and much better restored than mine ever were, so why didn’t I go off to the motor auctions to see whether or not I couldn’t pick up one or two new ones to put in the bank for when the licenses of the existing taxis needed to be renewed.

So that was the plan and I would have put it into effect had my room-mate not awoken me by having an early trip to the bathroom. I had a good session in the bathroom too. With there being nothing connected to me right at the moment, I took the opportunity to have a really good scrub and a change of clothes.

This morning I had the usual visits from the nurses but, as expected, no doctor and no dietician. On the other hand, my room-mate had some family in to visit him as early as 10:00 which disturbed my morning peace. Eventually, I gave up and retreated into the common room.

And that’s where I’ve been for most of the day – in the common room not doing very much at all. And once or twice, having just a little doze as the afternoon wore on.

I had the odd visit, a nurse came to see me and a doctor too. Apparently on Tuesday I’m to have an biopsy on my kidneys to find out more about this protein loss that I’m suffering. And while I’m extremely grateful that the hospital is taking such good care of me, it’s really a peripheral treatment and isn’t going to solve the underlying issues – and that for me is the priority.

But we did have a little perturbation at midday. I wasn’t at my bedside when the food came around and when I returned, I discovered that I’d been given the wrong meal. Someone else has had my steamed vegetables and rice and I ended up with a pile of stuff that I couldn’t eat. It’s a good job that my appetite is drifting away otherwise I would have been quite upset.

And not only that, My legs have started to swell up again. The left one in particular is looking pretty miserable. How I’m fed up with all of this.

Still, I’ll go to bed in a bit, hope that I can have a good night’s sleep, and hope that tomorrow will bring me a better day.