Tag Archives: blood test

Wednesday 9th November 2016- AT LEAST THE WEATHER …

… didn’t let me down today.

I was expecting the sun to be out and that we would have brilliant weather today seeing as I was leaving Oostende today. But instead, it was pouring down and windy just like the rest of the time that I had spent here.

As soon as the alarm went off I was up and about, even before the reminder. And I’d had a really good night’s sleep too, with nothing to disturb me whatever. A long time since I’d had such a deep and satisfying sleep, even though there was only six and a half hours of it.

after a quick shower and a change of clothes, I was downstairs for breakfast. First yet again although I was soon joined by others. And once I’d finished, I was back upstairs, packed and out of the door by 08:40.

I had plenty of time to wait for my train at the station, although it was cold there in the temporary waiting room. I wasn’t half pleased to be on the train. It was bang on time too and really comfortable, so much so that I cracked on with the work that I’ve been doing on my website.

It was still pouring down when I arrived in Leuven, and after gathering my wits I went off to Caliburn to drop off the stuff that I don’t need, and that was a long walk in the rain. And one thing that I did was to find the fleece lining for my rain jacket. I’d been freezing in Oostende.

Bang on time at the hospital, and I was quickly organised. They plugged a catheter in and took a blood sample. And my blood count is stable, as is my protein loss. That’s a surprise. I only wish that the blood was stable at 12.2, not 9.7.

And then – they forgot me yet again. And after reminding them, they finally got back to me at 17:45. It seems, in what can only be really bad news, they need to take two-weekly controls of my urine and kidneys for the next … errr … three months at least. And that’s before we start talking about the blood situation – for which I have an appointment next week.

You’ve no idea just how dismayed I am by all of this.

At least there’s a room free at the hostel and so I’m now back there for a week. And who knows? I might even be able to go home again after my appointment next week if there’s a fortnightly pause. But I want a place of my own. I can’t go on like this living out of a suitcase in a hostel room.

Alison came round later and we went out for a meal and a coffee. And a guided tour of Leuven as a new one-way system that’s been installed led us everywhere except where we wanted to go.

Now I’m off to bed. Thoroughly depressed, thoroughly fed up.

and if my next blog is from Mars or Uranus or somewhere like that, don’t be surprised. What is happening in the western world has filled me full of dismay for the last twenty years and the news this morning has made me want to emigrate to another planet somewhere.

Whatever is the world coming to?

Thursday 3rd November 2016 – GRRRR!

Yes, you’ve guessed it. It’s not good news.

Last night was quite a disturbed night and I even sweated a great deal. Dunno whether it was concern about what today might bring me, but there we are. It was quite a struggle to leave the bed after the alarm went off and head off to breakfast, but there I was all the same. And by 07:30 I was out and on the road to the hospital.

The morning was a misty, foggy cold morning and so I walked briskly up to the hospital. By 07:50 I was at the registration desk and by 08:00 I was in the waiting room.

The wait was longer than it ought to have been but eventually I was seen and the blood pressure and blood samples were taken. and then I had another long wait until about 11:00 until the doctor saw me. He asked me all of the usual questions and I had the usual thorough examination, and then I had to wait again.

Lunch was the usual soup and bread, which didn’t take me too long to wolf down; And then I had to wait again.

The nephrologist saw me at 14:30. She said that the protein loss was slowly increasing, and they needed to make yet further tests. I had to go for another set of x-rays. And then I had to wait again.

By 17:30 I was fed up of waiting and so I asked what was going on. It appears that some nurse had told the nephrologist that I’d gone home. And so nothing had happened. The nephrologist told me eventually that she wanted me to come back in on … errr … Wednesday next week. So not even a week before my next appointment. How I’m fed up with all of this.

And my blood count? It’s down to 9.7. I’m pretty fed up of that as well.

I was fed up of all of the waiting too, but at least I was able to do tons of stuff on the web pages that I’m writing.

But it was far too late to do anything else so I booked a room at the Ibis Budget and went there via Caliburn to pick up some spare clothes. I had a good deal too at the Ibis.

After a shower, a shave and a change of clothes, Alison turned up and we went to the fritkot, for a meal and a good chin-wag.

Now I’m having an early night. For I have a cunning plan in the morning. Whatever it might be, you’ll have to wait and see.

Thursday 13th October 2016 – WELL, YOU MIGHT HAVE GUESSED.

Blood count is down. And protein loss is up. The result of all of that is that I have to go back in just two weeks.

This is a bitter blow to me of course. I need to move on and do things, and I was hoping for six months – or even three months would have done me. But not two weeks.

But I’m not surprised, because I had a horrible night.

I wasn’t in bed all that early, and even so I just couldn’t drop off at all. I gave up trying to sleep at 05:45 and started to read a book – and that had the desired effect, albeit 6 hours too late. It really was a struggle to crawl out of bed at 07:15.

And despite the small amount of sleep, I’m managed to go a-wandering. I was in a car driving down a lane and ended up crossing two railway lines, about 40 yards apart. I’d always believed that they were simply each track of a double-track line built by someone with a sense of humour, but the book that I bought on Sunday in Montreal convinced me that these were just another set of “parallel lines” laid by the Canadian Pacific Railway and the Canadian Northern Railway during the Canadian Great Railway Wars.

It’s funny how, even when I was asleep, I was able to think along logical lines like this, because it’s perfectly true. If you think that the Railway Wars between companies in the UK was savage, vicious and extremely wasteful, you haven’t seen anything until you read about what took place between the Canadian Pacific, the Canadian Nothern and the Grand Trunk Railroad. The useless infighting and unnecessary duplication of routes cost Canada millions of dollars and bankrupted a couple of the companies for no good purpose.

And so at 07:15 I crawled out of bed, at 07:30 I crawled out of the shower (so much for thinking that it would do me some good) and by 07:45 I was crammed like a sardine along with about 500 other people into an articulated bus, having grabbed a coffee on the way. I was decanted out at St Rafael so that I could go down to Caliburn to drop off the stuff that I had bought yesterday.

Having left all of my vegan cheese behind (that’s bad planning if they had decided to keep me in) I then boarded the wrong bus that led off in a completely different direction. I ended up having rather a long walk.

At the hospital, I had my blood test and a chat with the doctor. 2 hours later, the doctor came to see me. “It’s about yuor blood test …” she began. That sounded ominous, and no mistake. But she carried on to say that the blood testing machine had broken down and I would have to hang around for the results. Clogged up with root beer and maple syrup, I reckon.

Kaatje the Social Services girl came for a chat and I had to fill in a form. And having spent most of the morning reading Lord of the Rings I promptly wrote out “13th Orcober”. Yes, it’s getting to me, isn’t it, all of this?

Anyway, I managed just about to keep awake during the afternoon and about 16:30 they came back with the bad news.

With that ringing around in my ears, I went downstairs for a coffee and to make a phone call. And so here I am – back in the hostel where I stayed during the summer. There was a room available – not at the same good price that I was offered last time unfortunately – and so I took it. It’s cheaper that going back home and coming straight back and far less stressful. Stress – or the elimination of it – is quite important.

I set off for the hostel but within 20 minutes I was back in the Day Centre. Bane of Britain has, once again, gone off with his catheter still plugged in. You couldn’t make this up, could you?

And it’s good to be back on familiar territory with no pain at all. And I can have my old room back on Monday too. In the meantime, this one will do. I settled down for a while and then a bit later nipped down the road for a falafel butty for tea. I’ll rescue all of my supplies from Caliburn tomorrow.

Having organised that, I’m off to bed. Nice and early. Remember that I had a bad night last night.

Tuesday 2nd August 2016 – I’VE HAD …

… my mapthera this morning.

But never mind that for a moment – it’ll come as no surprise for you to learn that I had the usual night last night – awake and down the corridor every two hours or so, including disturbing my room-mate in the bathroom at 06:00.

But after that, I was stark out and the nurse had to jump through all kinds of hoops to wake me for a blood test at 08:40. It was quite a job for her. And then after that, I had breakfast.

The plan after breakfast was to crash out yet again, but it didn’t quite work out like that. Just as I was settling down, they came round with the initial perfusion and a pile of pills for an antidote or whatever they are for. Once I was hooked up to that lot, I tried to settle down a second time, but then the doctor came round for a chat.

She told me that the blood test had shown that I could take the mapthera (which I had already worked out for myself) but that I’d have to stay in until at least tomorrow while they check up for side-effects. And so I’m stuck in here for yet another day now and that’s really getting on my wick now. I want to go home.

But something that the doctor said has dismayed me more than just a little.

“It must be dreadful for you living in this hospital with an environment like you’re in and with none of your personal possessions around you”.
“It does rather, but it’s impractical for me to commute back and to to France as things stand” I replied
“So have you considered moving to Belgium?”

And so it looks as if they think that I’ll be here for quite a while needing regular attention and follow-ups. This is the worst news possible as far as I’m concerned. I really didn’t want to hear this.

They fetched me the wrong meal for lunch and tea today but I still managed to eat a healthy meal both times. But my appetite seems to be back as I’m starving right now and I’ve been nibbling away at all kinds of stuff that I’ve had stored here and my room-mate is starting to look quite appetising.

And so apart from crashing out for an hour this afternoon, I’ve not done anything very much. This mapthera takes it out of me a bit but I don’t seem to have any side effects right now except dying to go to the bathroom – but then they did give me something for that this morning to try to reduce the water on my legs.

But I do hope that I can leave here tomorrow. I’m fed up.

Monday 1st August 2016 – AHH WELL!

Yes, here I am, still here in the hospital.

I had a blood test this morning and while the doctor couldn’t remember the red blood cells count, there’s too much infection in my blood to give me the Mapthera. So here I have to stay while the infection goes down and, according to the doctor, it could be any length of time.

I have a new doctor too, apparently. I don’t know what happened to Hermione – maybe I’ve frightened her away – but this one doesn’t seem quite as friendly. I could be wrong, of course, but time will tell.

There’s been plenty of other bad news too. Firstly, I have a new room-mate. I thought that being on my own was too good to last for any length of time. He seems to be quite quiet, which is good news. I hope that he doesn’t snore.

And I’ve also had the Police here too. Someone has reported Caliburn as being abandoned (which is of course far from the truth, but there you go). The Police made all sorts of enquiries and actually asking the hospital if there was a patient of my name in residence didn’t occur to them until their enquiries were almost complete(ly failed). Anyway, they turned up this afternoon, asked me a couple of questions, and then cleared off, rather red-faced.

But it seems that I will have to do something about finding a new home for Caliburn. That will have to be top of my priorities when I’m thrown out of here. Last thing that I wanted was any interaction with the Belgian farces of law and order. Regular readers of this rubbish will recall a few occasions over the years …

I had the usual messed-up night and I did go off for a nocturnal ramble, but don’t ask me where to now. It’s gone completely out of my head.

07:40 was when I saw the light of day, thoroughly exhausted but brought to life, such as it is these days, by the clatter in the corridor now that everyone has started work after the weekend. The blood test was before breakfast nad, apart from lunch, that was the highlight of the day. I’ve not done anything else – hardly in the mood.

Having to stay here is depressing me, though. I want to go home, or, at least, back to my little room. The people here are very nice and very friendly, but it’s not a patch on being chez soi. I hope that I don’t have to stay here too long.

But there is some good news. The nurse has just this minute come by for a chat, and it seems that my blood count is now a record 10.5. It’s never been this high before since I’ve been ill, and certainly not under its own steam, and that’s something to celebrate.

Friday 29th July 2016 – LAST NIGHT …

… was very much like the other nights just recently. Going to sleep fairly early and then waking up at regular intervals during the night. This is wearing me out and how I long for a really good sleep.

I did however fit in a little nocturnal ramble somewhere. I don’t remember too much about it except that it involved FC Pionsat St Hilaire, a shot at goal that hit the post and rebounded back into play and then the backspin on it that took it just over the bar and onto the roof of the net.

And I learnt something new about my room-mate – not only does he snore occasionally, he talks in his sleep too. But then I shan’t be troubled by any of that tonight because he left hospital this afternoon. I’m on my own tonight so I hope that I’ll be able to take advantage of it.

07:30 was when I awoke this morning, thoroughly exhausted, and it took me a good hour or so to come round. I had my breakfast much later than everyone else – apparently they wanted me to have a blood test this morning.

Hermione the doctor came to see me a little later on. The infection is going down now so they are going to keep me on the antibiotics until Monday. On Monday I can have yet another session of Mapthera and provided that there are no unpleasant side-effects, I can go back to my little room in town.

Talking of little rooms, the girl from Social Services came to see me a little later this morning. And she had quite a job because, as tired as I was, I was absolutely stark out. Well and truly crashed. She’s come up with another option of a place to stay. It’s further out from the centre where I want to be, but it seems to have private facilities (and kitchenette) and it’s slightly cheaper than where I am now. I shall follow that up in due course when I’m out of here.

I managed a good lunch, except for the diced swedes that were in a cheesy milk sauce and the soup which tasted of nothing but salt. I seem to be eating a little better now, which is good news.

This afternoon I had a chat with Liz and with Rosemary on the internet. Rosemary has invited me to England for a few days which is really nice of her. But I’ll need to be in good shape if I go. I don’t want to take a pile of microbes and viruses with me.

Later on after tea I crashed out again, only to be awoken by a nurse who wanted to take my temperature. This is what usually happens when I make myself comfortable – someone always comes along to spoil it. And I had a couple of attacks of nausea this evening. I don’t know why that was.

And so I’m on my own tonight. No room mate to distract me, keep me awake or to awaken me after I’ve dropped off. What this means in real terms is that there will be half a dozen nurses coming along to awaken me instead.

That’s what usually happens, isn’t it?

Monday 25th July 2016 – IT REALLY COMES TO SOMETHING …

… when you arrive at the hospital day centre and the nurse takes one look at you and says, in a horrified tone, “But Mr Hall – you look dreadful”. But that really is an understatement of just how I’m feeling at the moment.

I didn’t sleep too badly last night, I have to admit, and round about midnight I was feeling reasonably lucid which makes a change from how I was feeling when I went to bed after my pizza. I was soon back asleep again though, with one or two of the usual interruptions. I’d been on quite a few vivid voyages too, but the only one that I can remember concerns two extended-cab pickups. One was red, rather like a Ford Cortina estate but a pick-up, and the other one was a real pickup coloured a sort-of light lime green and with a black interior. Although I had arrived at this spot in the red one, I found myself spread out on the rear seats of the yellow one, half-asleep, with someone whom I didn’t recognise at all in the front.

The alarm went off at 07:15 but there was no way that I was going to leave my bed at that time of morning. In fact I went back to sleep again and awoke at 07:30 when the second one went off. I crawled upstairs to the kitchen and made myself a small breakfast as I’m still not all that hungry, and then off for a shower. If I’m going to have nurses poking and probing me, they would expect me to be clean and tidy.

For the next half hour we played “hunt the keys” for Caliburn. I didn’t find them but by this time it was far too late to do anything about it. I staggered off for the bus (remembering on the way to the bus stop that my keys are in my sac banane) and off to the hospital.

While the nurse took my blood sample I poured out my woes to her and repeated the story to the doctor. Not Hermione though – the one who replaces her when she’s not there. The Social Services girl came to see me and I told her everything too.

The doctor came back to see me a little later. The good news is that my blood count is still 10.0. It’s not gone up any for the last four weeks, but it’s also not gone down any and considering how ill I’m feeling, that’s really quite remarkable. It’s also quite remarkable that I haven’t had a blood transfusion for … ohhhh … weeks and weeks.

The bad news is that I have a raging chest infection. They packed me off for an x-ray (I’ve not had the results back yet) and then they reached a decision – that they are going to keep me in hospital for “a few days” so that they can give me some liquid food, some steroids and some medication for the infection.

So here I am, up on a ward,with a raging temperature of 39.5°C, sweating everywhere, and hopefully going to be cured – at least of this infection. But as it has been said so often, I’m at risk from all kinds of illnesses now that my my spleen has been removed, and while the lymphoma probably won’t kill me, I could be wiped out by something that I catch and won’t be able to fight off.

I hope that my room-mate here doesn’t snore. But he has enough to put up with with me coughing.

Monday 18th July 2016 – I WENT TO THE HOSPITAL …

… this morning, and just for a change, seeing as how I’m not too well, I went up on the bus. I definitely can’t be feeling up to it if I’m having to travel by bus and spend €1:40.

Just for a change I’d had the best night’s sleep that I’d had for ages. Apart from one trip down the corridor, I was out like a light until the alarm went off at 07:00, and then promptly went back to sleep until the alarm went off again at 07:15.

I’d been on my travels too. Back driving a coach tour along the North Cornwall coast. The holiday had come to an end and we were ready to go home. The advertised way was down across the county to Exeter and then up the M5, but the prettier way, even if it was a longer way, was along the coast and so I asked the passengers if they would like to go that way. Many of the passengers had been with me last year when we had gone along the coast too. They were having a discussion about that and so I decided to move the coach off to a safer spot. However I had a hell of a time getting the coach to start and when it finally did start there were clouds of white smoke everywhere and the coach wouldn’t accelerate. This was a bad start to the final day’s holiday and I was hoping that the passengers hadn’t noticed.

I had another go at having a decent breakfast ready for my long day, but I ended up leaving half of it. I’m still not up to it, I reckon. And it was scorching outside, even at 08:00. I’m glad that I had decided to take the bus.

At the check-in at the day care centre I was taken by surprise. I was sent straight to a little room instead of having to go through all of the preliminaries downstairs. That didn’t sound too good. And I had a nurse who had exactly the same accent as Goldmember. That was worrying too. She fitted me with a drain and took a blood sample. And I have to give a urine sample too and that’s taking the p155.

My weight has gone down by 3kgs, which is probably normal seeing as how little I’ve been eating just recently.

The Doctor came to see me – not Hermione unfortunately – but the other one and we had a good time discussing everything that has been going on with me just recently. She’ll know more when she has the results of the blood test later today but to her it sounds as if I have caught an infection and it will soon pass through. I hope that she’s right.

She did however send me to have my chest x-rayed. Done on the spot!

Strangely enough, in between the blood test and the visit of the doctor, I’d suddenly started to feel so much better. How is that for an irony? I managed the soup and bread for lunch, as well as a large packet of crisps that Alison had bought me and which I’d taken along for emergencies.

The perfusion was ready quite quickly and didn’t take long. By about 14:45 it was all finished. The doctor came back with a prescription for the medication that I had finished off, and told me some good news. My blood count is 10.0 – exactly the same as it was 2 weeks ago. And given all that I’ve done and all that I’ve been through this last 2 weeks, that’s quite impressive. I’m very pleased with that.

And when was the last time that I have had a blood transfusion?

She told me that I do have an infection too. She’s not too worried about it and it’s one of the things to which I’ll have to become accustomed giving the loss of my spleen, but she wants me back next week (instead of in two weeks time) to see what is happening.

She did offer me the chance to stay at the hospital. Had I been living anywhere else that I had during the last three months, I might well have taken her up on it. But I’m comparatively comfortable here so I decided to come back home. I must be feeling better.

Having paid the odd account or two, I set off home – on foot too – and ended up in town at the supermarket buying a few bits and pieces. I’ve even eaten tonight – nothing special or exotic but proper food. And three good meals too.

And not only that – it’s now 23:45 and I’m still awake and not in the least but tired despite my full, exhausting day.

Things are looking up.

Ans we’ve had more excitement in Parliament today. During the debate on the new Trident replacement, the new Prime Minister, Theresa May, attacked Green MP Caroline Lucas for speaking against the proposals, saying that Lucas was “defending the UK’s enemies”.

Now have a close look at this speech – “Naturally the common people don’t want war; neither in Russia, nor in England, nor in America, nor in Germany. That is understood. But after all, it is the leaders of the country who determine policy, and it is always a simple matter to drag the people along, whether it is a democracy, or a fascist dictatorship, or a parliament, or a communist dictatorship. Voice or no voice, the people can always be brought to the bidding of the leaders. That is easy. All you have to do is to tell them they are being attacked, and denounce the pacifists for lack of patriotism and exposing the country to danger. It works the same in any country.”

Did you notice the bit about “denounce the pacifists for lack of patriotism and exposing the country to danger” which has clearly influenced Theresa May’s speech? The speech that I quoted just now was one given by none other than Hermann Goering.

Having had the B Liar paraphrasing the Nazi speeches during his period in office, it looks now as if we’ve got yet more Nazi clones in charge in Drowning Street.

That’s a frightening thought now, isn’t it? Or were we all expecting it?

Monday 13th June 2016 – IT’S NOT VERY GOOD NEWS!

No, I had the results of the two samples that were taken from me the other week.

The first bit concerns the bone marrow. Whilst it’s true to say that the lymphona hasn’t spread into my bone marrow, the fact is that the bone marrow itself is quite fragile and as a result they won’t be giving me any more chemotherapy. This is because the marrow is quite fragile and they fear that the chemotherapy may damage it.

The second thing is, if anything, even worse. And that is that my illness has spread to my kidneys and that is what is the matter with them.

I don’t know if the situation is dangerous or not – I didn’t ask. What I do know is that they are going to have a meeting on Wednesday to discuss a course of treatment and I have been summoned for next Monday to a meeting to find out what will be the plan. All that I can say is that I don’t like the sound of this at all.

I had a difficult night’s sleep again, awake quite early and having a trip or two down the corridor. When the alarm went off at 07:15 I was awake but it still took me a good few minutes to leave the comfort and safety of my nice warm bed. After breakfast I packed everything away and even found time for a shower, then paid up for my stay and hit the road.

It was pelting down with rain this morning and traffic queues everywhere. However I made an executive decision (an executive decision being, for the benefit of new readers of this rubbish, a decision that if it happens to go wrong, the person making the decision is executed) to follow the signs for the motorway once I reached Korbeek-Lo and that was a much better idea. There was heavy traffic on that road but it was all turning off to the various business parks down there and it didn’t take long to hit the motorway. And once on the motorway it took me a mere 10 minutes to reach the hospital by going right round the city and onto the campus from the rear. I was there half an hour early.

A couple of doctors, one of whom was the girl whom I normally see and the second one was the urologist – she who gave me the bad news – came to see me. That wasn’t all that she gave me either because she ordered an injection for me – one that would help purge me of excess water. And I’ll tell you what – that worked in spades and made me feel so much better.

The Social Welfare girl came to see me too. We discussed my accommodation situation and she’s going to make further enquiries for me. Mind you, although she’s given me a great deal of moral support she hasn’t really gome up with too much in the way of practical help. But then again, I don’t suppose she encounters too many people who have my kind of problems.

They gave me a blood test too, and my blood has dropped down to 7.6. That of course meant a blood transfusion and I had two pochettes of blood. What with all of that, it was nearly 19:00 when I left the hospital. I had a walk down into town and stopped off at a fritkot for a falafel butty and chips for tea – all for €5:50.

And then it was back here to my new home for my first night.

There’s no internet (there’s a student.net site but of course I don’t have a password for it) and there’s a leak around rthe edge of the roof light.

As I said yesterday, I’m glad that I’m only spending a couple of weeks here.

Friday 13th May 2016 – NOW, THAT’S MORE LIKE IT!

Last night, I dropped off to sleep during the middle of one of the Boris Karloff “Mr Wong” films, and apart from a trip down the corridor in the small hours, that was all that I remember until 06:25. It was one of the best nights’ sleeps that I’ve had since I left France and I enjoyed it so much.

I’d been on my travels too, playing bass in a rock band somewhere and we had a concert to play, part of a huge music festival. And although we were set up and ready, our drummer (a friend of mine from way back) hadn’t turned up. He hadn’t sent a message or anything to say where he was or what he was doing, and because we weren’t therefore ready, our spot at this festival was slowly being whittled away by the organisers. And with him being my friend, my bandmates were having a little whittle at me about it. Everything was here from this drummer – his tent, his drums, even the roller skates for his roller skate hire business – everything except him.

So breakfast all eaten and done long before the alarm went off, a nice warm shower and clean clothes long before 08:30, even time to spend on doing some more blog updating before hitting the road at 09:30. And I apologise to Pellenberg for some of the things about it. Not because they aren’t true, but because it’s only half the price (like €10:00 per night) to stay here. I’m prepared to put up with the inconvenience at €10:00 per night.

First stop was the bank, where I had business to perform. And I learnt a thing or two there that I didn’t know either and that made me feel bettertoo. And afterwards, I went to LIDL where I bought myself a set of three new toys – some 800mm (massive) SDS drill bits, 16, 18 and 24mm, at €9:00 (for three, not for one) and these are so impressive.

Next stop was to Spit. This is a charity shop in Leuven that sells books, records, clothes and tons of furniture. It’s huge and full of stuff and I spent a pleasant hour in there looking for stuff. Not buying anything, of course, just looking. But I could have bought several items had I been of such a mind. There was some good stuff in there.

Lunch was at the fritkot at the Jacobsplein, and then off to the hospital for my check-up.

I gave a blood sample and it came back as 8.1. And that, surprisingly, is quite stable for the last couple of weeks. In fact, since I’ve been undergoing treatment, the blood count hasn’t dropped below 7.8. They reckon that I can go for a week without a transfusion because they are keen to see how I hold up. I explained that I’ll be doing a lot of driving but they seem to think that I’ll be fine.

I do like their optimism.

So they heaved me out at 16:00 – minus the transfusion – and I hit the road for home. And I don’t mean “home” as in Pellenberg but “home” as in the Auvergne because I’m coming back for a week. I need more clothes, more books, more stuff in general if I’m to stay here until September and I reckon I should grab it while the grabbing is good. My next appointment is Monday 23rd so I have a little 10-day window to do it.

But it was horrendous coming back. Totally horrendous. The traffic queue started just outside Leuven and lasted until well after Valenciennes. And then there were all kinds of perturbations on the Francilienne. All in all, a journey of less than 4 hours to Melun took just under six hours to complete. Ironically, before I set out, I was toying with the idea of going back via the old road to Auxerre but I reckoned the motorway would be less stressful.

Ohh woe is me!

If this isn’t bad enough, the Première Classe Motel where I’m spending the night (in view of my state of health I’m doing the trip back in easy stages and in comfort) isn’t actually in Melun, it’s in the neighbouring commune. However, there’s a street of the same name in Melun so that when you programme the street name and “Melun” into your GPS like someone around here did, you end up in the middle of some rather insalubrious council estate somewhere. That took me a good 20 minutes to sort myself out.

But as the legendary Marechal MacMahon once said – “j’y suis, j’y reste” or “here I am and here I’ll stay”. Or as Martin Luther put it – “hier stehe ich – ich Kann night anders” or “I’m staying here – I can’t do anything else”.

I’ve had enough for one day.

Thursday 21st April 2016 – BACK IN THE HOSPITAL AGAIN!

But I nearly wasn’t! I vaguely remember the alarm going off at 08:00 and had it not had a snooze setting to ring again 10 minutes later I would be still asleep now, I reckon.

Mind you, this isn’t a surprise. Although I was soon asleep after watching another Bulldog Drummond film, I was awake again at 00:35 and once more at 03:00. And that time, I was awake for hours, even watching dawn slowly filter its way through the curtains. But I must have gone back to sleep at some point, if only to sleep through the alarm.

Mind you, I was on my travels during the night, and strangely enough, I wasn’t appearing in my first voyage. I vaguely remember a young, rather inept parish priest who was continually having difficulties with life in his parish, to such an extent that his bishop and a canon came down to see him. At some time during the proceedings the bishop and his canon ended up locked in the police cells due to something that had happened involving the priest, and it was up to the priest to convince the authorities to release them, not that anyone had any optimism that he might be successful based upon his track record to date.
But once I had gone back to sleep during the morning, I found myself with my brother (and I do wish that my family would stop becoming involved in my adventures). He had a BMC 1300, the same metallic green colour of my Vanden Plas and it had broken down somewhere in a small French town. He’d pushed it into the town square and left it outside some friendly person’s house and that was where it stayed. I was then roped into have a look at it. The first time that we went down there to see it, I had a good poke around and couldn’t find any reason why it wouldn’t go – it all seemed fine to me – and the friendly neighbour made us both a cup of coffee. The second time we went, I could still find nothing wrong with it and this time someone (a friend of ours but I don’t know who it was) brought us a couple of huge plates of macaroni. There was so much that I hardly made a dent in mine and in the end we left out plates on the dinner table of this neighbour. On making enquiries of my brother, it turned out that what had happened to the car was that one of the driveshafts – the left-hand one – had tightened up. I immediately suspected the CV joint but that wasn’t something that we were going to fix then and there, so I needed to go and fetch my trailer and hope that wecould winch it aboard. I reached in through the window of this house for our plates, passing my brother’s plate to him, but I upset mine and half of the macaroni went all over the floor.I apologised to the neighbour about that but he was quite OK about it, which was quite nice of him. And then I asked my brother about what he intended to do about thanking the neighbour who had kept an eye on his car for him, made us both coffee and so on. My brother didn’t think that he needed to do anything about it, which I thought was rather mean of him. I reckoned that a bottle of whisky was a good idea, but then again, it wasn’t really a concern of mine.

At breakfast this morning, we were a strange crowd. There was only one person whom I recognised, and all oth the others seemed to be quite young couples. We seem to have had a dramatic change of inhabitants overnight. And whoever made the coffee this morning – it was nothing like as good as usual.

I was on the bus at 09:45, sitting next to the girl with the viola whom I had seen on the bus last time that I’d come here. And by 10:10 I was at the reception. It didn’t take them long to see me either and I’ve had a drain fitted in my arm. They also weighed me, and it seems that I’ve gained 3 kg since last time. That doesn’t sound right to me.

They gave me a blood test and while waiting for the results, Sophie the trainee doctor who had seen me last week called me in to see her. After giving me a good going-over (including another feel of my groin) she told me that I need to come back next Thursday 28th April. They’ll give me a series of X-rays and fit a chemo port in my chest, then on Friday I’ll start my next session of chemotherapy. I’ll be here, apparently, until the following Monday and believe me, I’m not looking forward to all of that – not in the least. 5 days – and 4 nights – in hospital. I hope I have a room-mate who doesn’t snore!

Another task that needed to be done was to give me a scan of my legs. This swelling isn’t improving and they are worried that I might have another nomadic blood clot. But it seems to be a problem about water retention. Perhaps I should ask Terry to give me a tap on the ankles.

But although it doesn’t seem much like it, there is good news. Firstly, my blood count is at 9.1 and so I didn’t need a transfusion. That cheered me up a little. As did the news that the mouth-wash and the anti-biotics can be stopped as soon as the supplies run out, which will be in about 2 days, I reckon.

I wasn’t in the mood for jam butties for lunch so I settled on a visit to the shop in the foyer. They have a selection, would you believe, of vegan food and although the chick pea salad looked vaguely interesting, I settled on a vegan spiced loaf. I ate half of it and the rest I can add to the supplies up here.

On the way back here (I walked back, by the way) I found a wallet on the car park. I was tempted to take it to the police but I’m trying to keep a very low profile while I’m here because, as regular readers of this rubbish will remember, I’ve had more than my fair share of run-ins with Belgium’s finest in the past so I don’t want to go looking for interaction, so I brought it into the hospital downstairs and handed it in at the desk, giving a little white lie that I had found it outside. The net result will be the same, in that seeing as the owner’s identity card is in there, it will find its way home eventually. But just without my involvement.

Leuven was packed tonight, I don’t know why, and I had to wait 25 minutes for my pizza to be cooked, such was the pressure in the kitchen. And it wasn’t as good as usual either, but I suppose that they were rather rushed.

So once again, it’s an early night for me and then a relaxing day with nothing planned for tomorrow. So I’ll have a nice quiet day totally free of interruptions. Just you watch someone come along now and spoil it.

Thursday 14th April 2016 – TODAY’S THE DAY …

… when I find out if the first lot of chemotherapy worked or not. I hope that it did, because I don’t want to go through too much more of it. Horrible, nasty stuff!

And so I celebrated by finding the toaster (in the cupboard under the sink), and had toast for breakfast. and a second mug of coffee too, seeing as how it was so nice. I dunno who makes the coffee at this place but they can come and make it for me any time they like.

I needed it too because I’d been well away on my travels during the night. It was something of a disturbed night, tossing and turning and waking up, and so much of what happened and where I went to has long since disappeared into the mists, but what I remember of it was all pretty exciting enough.

I started out with Nerina yet again and we were on our travels in Europe. There was a magnificent site that, to me, could only be an Iron-Age hill-fort but no-one else seemed to agree with me, and some of it had been demolished. I took Nerina to see it and gave her something of a lecture about it, explaining that it was maybe dating from the Visigoth or more likely, perhaps the Merovingian era (although neither lived in hill-forts, but we mustn’t go letting facts get in the way of a good nocturnal ramble now, must we), and that regardless of any rumour or speculation (because the Merovingians have always throughout history been treated as something quite different, even by the Church, and some have even speculated that they might have been spacemen) were just another unknown wandering Eastern tribe that finally collided with Western “civilisation” during the great Western migrations. And I pointed out loads of things that related to the hill-fort that had caught my eye. I didn’t realise it at the time that my “lecture” had drawn quite a crowd and a family came over to me afterwards and asked me to give them a guided tour. I explained that I knew nothing and was merely interpreting, as an amateur, what I was seeing, but they were most insistent.
A little later, I was in Crewe, right down the end of West Street by where Barlow Brothers scrapyard used to be, and I had a pick-up that was towing a trailer. I was out of the vehicle doing something on the verge when a huge lorry went past and the draught sucked my pick-up off down the road. I was sure that I’d applied the handbrake and left the pick-up in gear, but there it was – going off down the road. I ran after it but it was long-gone, and suddenly it burst into flames, going faster and faster down the street. A horse of mine (now, what would I be doing with a horse?) leapt off the trailer and ran back towards me. It was on fire, and quite badly too by the looks of things, but a passer-by threw some water on it and doused the flames. I had a look at the horse and although the hair was charred, the skin looked okay and so I debated as to whether I should call a vet as I put it back in my back garden. But my pick-up was long-gone by now.
And even later, I was driving along a dual-carriageway, “my” side of which was under heavy repair and the road was limited to one lane and was in dreadful condition, so most vehicles were driving the wrong way along the outer lane of the other carriageway. I attempted to do the same but was cut up by a big van so had to continue trudging along, and at the next break in the central reservation, the same big van cut me up yet again. I ended up at my doctor’s, on the second floor of a tall terraced house, right by the side of this dual-carriageway and by now the road had deteriorated into one massive construction site and vehicles were picking their way through it as best as they could. Some young boy in a souped-up American sports saloon of the 1970s was driving like a maniac and as we watched, he clipped a small car coming the other way and turned it over, and spun into a pick-up and totally flattened it. He, of course, escaped unhurt. The small car that was on its side, the construction workers used one of their machines to try to turn it right-side up but they dropped it into a water tank and had to fish it out with a fork-lift truck. After all of this, a small woman with a shaven head emerged from the car. All of her worldly belongings were in the car, ruined by now, and she was destitute. She looked quite shaken and so I beckoned her up to the doctor’s. When she arrived, I explained that the doctor was busy but we would let her go in next for a check-up. She was clearly upset, and was going on about her car and her goods and however was she going to find a mortgage to replace everything?

Having resolved the issue of breakfast, off I toddled to the hospital. My appointment was at 10:50, and do you know what time I was seen? Anyone from the UK would never ever guess correctly – they would be at least a day or two out – but I was seen at 10:50 precisely – bang on time.

They took a blood test from me and fitted a drain in me, and then I was told to wait in the waiting room. And wait I did – for all of about half an hour when I was summoned to see the doctor – a nice young female trainee who can soothe my fevered brow any time she likes. I told her everything – about my arm, about the compression in my chest, about the loss of appetite, the fatigue, the nausea – absolutely everything, and she poked and prodded me just about everywhere – right at the end she asked me “may I feel your groin?”. Well, who am I to argue with that?.

She then went off to consult her professor, and came back 10 minutes later. “We need an ecography of your stomach”.
“When is this likely to take place?”
“14:15” she replied. You can see that we are clearly not in the UK. That was only 90 minutes, not 90 days away.

So I had my ecography and then went back to hear the news.

And I suppose that you are all dying to hear what is going on, aren’t you? Well, I’ll tell you, but it doesn’t make pleasant reading – not for me and probably not for many others either. But here we go.

Basically, the embolism is back in the right arm. It seems that the veins in there are not good enough to support a drain. This means that everything will have to happen in the left arm, and the veins aren’t all that much better in that arm either and they are worried. In view of everything else that is likely to happen to me, more of which anon, they propose to fit a catheter port in my chest. This news (the catheter in the chest, not the embolism) has filled me with complete dismay.

Secondly, they have detected some gallstones. These are by no means a problem but they are blocking a good view of my intestines. They are talking about sending a camera down, but this, I assure you, they will do over my dead body. I’ll suffer like this before I suffer like that.

Thirdly, the chemo hasn’t worked as well as has been expected and so I have to have another transfusion. I had one pochette on the spot then and there, as well as an injection to stimulate the red blood cells.

Fourthly, I have to go back for more chemotherapy, and that’s fixed for 29th April. This is after the end of the 15-day period during which I’m allowed to stay here, so something needs to be done. Those of you with long memories may recall that I was given “advice” by that guy in the European Union’s Social Services department, but the net result of that as been zero. He hasn’t even bothered to reply to my e-mail, never mind do anything about the issues involved. What a waste of time that was!

However, the girl from the Social Services at the hospital seems much more helpful – she sought me out today at the hospital and we had a little chat, and she thinks that once she knows what the programme is, she might be able to help me find somewhere to stay in the neighbourhood. That’s the ideal solution – she seemed to know what she was doing while all of this was going on.

So beaten, battered and bewildered, I left the hospital and went to move Caliburn around the car park and to rescue the clean clothes that I forgot the other day. And then, I took the bus back here.

I did have a pleasant surprise tonight though. I’m limited with what I can eat right now as my taste buds are out of order and I still have some nausea. I seem to be limited to pizza and to the cheapo pasta shop up the road and round the corner. But tonight, looking for a change of diet, I found an Asian take-away. They did a huge portion of vegetable stir-fry and rice for just €5:00.

I’m not a big fan of food from the Chinese end of Asia, but I did cheer up when he started chopping up half a broccoli. And I do have to say that this was one of the nicest commercial stir-fry meals that I have ever eaten (I stress the “commercial” because nothing whatever can match Liz’s stir-fry). I shall add this place to my list.

So tomorrow I need to start work. I need to sort out this accommodation question because I reckon that I’m going to be here for the duration, so I may as well come to terms with it.

Wednesday 13th August 2016 – NOW, ABOUT LAST NIGHT …

… I was in bed by about 21:30 and it didn’t take all that long at all to drop off to sleep. And the next thing that I remember was that it was 05:35. I can’t have been for a wander during the night and I vaguely remember only the basics of some kind of nocturnal ramble going on during the night. It concerns Renown Garage where my taxi business was based during the late 1980s. They had dug up the petrol pumps and were concreting them, with this huge cement mixer. However, instead of water, they had mixed the concrete with petrol which had infiltrated into the foundations from the old petrol tanks. This had the effect (at least, it did last night) of making the concrete set quickly and super-hard, and they had far too much of it that they didn’t know what to do with it. I immediately seized on the opportunity to offer my back garden as a dumping ground for the concrete – with the aim of course of covering it over as a place to park my vehicles.

I felt quite better this morning, and even had an appetite for breakfast. And afterwards, now that I’ve bought some soap, I went for a shower and sorted out all of my clothes for washing. And this was when I realised that I only have one spare pair of undies and trousers – no socks, tee-shirt or jumper. Nevertheless, I put everything ready to wash.

I had to wait hours for the machine to free itself, seeing as the cleaner seemed to have gone berserk with the cleaning cycle, but it didn’t take long to wash. Meantime, I’d gone round to the supermarket for my baguette, tomato and banana, and as well as that, bought myself a bag of sweets and a bun because I was starving. This is definitely an improvement.

And my relentless thirst seems to have calmed down too, which is a good thing. You’ve no idea how much liquid I’ve demolished this last few days.

This afternoon I had a doze again for an hour or so and later on went out for tea. Thanks to all of the vegan cheese that I have, I went for another pizza and I polished that off quite comfortably.

Yes, definitely feeling a little better.

But you missed all of the excitement while I was out. Some young guy thought that he would be clever by cycling on the pavement around a traffic queue in the street. Instead, he cycled right into a grid in the gutter, his front wheel jammed and he went head-over-heels right over the handlebars.

Yes, I did have to laugh.

But tomorrow I’m back at the hospital. I’m having a blood test at the day centre and that will tell us whether I need another transfusion, or whether the chemotherapy is actually working.

It’ll be interesting to see what’s going on, and I hope that it’s working because I don’t want to go through too much of this under any circumstances whatever. It’s horrible.

Friday 8th April 2016 – I WAS RIGHT …

… about last night. Another dreadful night where I couldn’t drop off to sleep and at 04:00 I was still wide awake. How I hate this. And it’s a long time since I made so many trips down the corridor too in one night, but I didn’t really care about that. If I’m suffering, so should everyone else too.

But I did manage to drop off and go on the odd ramble or two. The first part of my little voyage involved producing a rock concert for one of my heroes – the Welsh rock group “Man”. I decided that their long concert of two and a half hours would be played in two sets, each of an hour, and then a third set of whatever remained. The group seemed to be okay with it, although I did have the impression that they would have agreed to anything that I proposed. I went off to do something and on my way back I noticed that one of the group was busy siphoning some diesel out of the fuel tank of my lorry, which was an old ex-army three-ton truck. I was annoyed about this but I had to remember that for important and valuable clients, you need to be prepared for this kind of thing.
From here, I was back at University and it was the first day back. We were all in a huge group sprawled over a great big bed and other groups of people were dressing up in disguise or in some kind of prop, swarming over the University grounds. One or two were heading our way so I had to warn our people that they were coming. No-one was taking any notice however and this was annoying me (my bad mood seemed to spread all through my rambles during the night) so in the end I lashed the head of the bed with a length of chain. Even so, although this did lead to people beginning to talk, it didn’t have the effect of galvanising them into action and I was quite disappointed, if not totally fed up, of all of this.

First off this morning, I had to give a blood sample and the nurse had an enormous amount of difficulty trying to find any. But then, as you know, she’s not the only one who has had difficulty doing it. And then I had to wait.

And wait

And wait.

And then the blood came round at about 11:15 and we started off the transfusion. I’m to have two pochettes apparently (so this is going to be another all-dayer and we’ll see about whether I’ll be able to leave today).

But the Professor and the Doctor came to see me. The plan seems to be that I can leave after the transfusion, and go to this guest room in town. I need to come back in a week for another blood test, and then again in two weeks time for another go at chemotherapy. If this all works, then I’ll need chemo every month and I might maybe no longer need any blood transfusions. And won’t that cheer me up too!

But I’ve been led up the garden path before, so I’ll believe it when I see it.

However, to my surprise, the transfusion was over by 15:00 and by 15:30, armed with a date for a further appointment and a prescription for the gout from which I seem to be suffering (and which was missed by Montlucon, apparently) I was heaved out into the unsuspecting public.

I picked up a few things from Caliburn, moved him around the car park to make sure that it looks as if he’s in regular use, and then caught the bus into town. Four or five stops away, Sint Pieter’s Hospital is, and that’s where I’ll be staying for two weeks. It’s basic and primitive, but quite clean and reasonable comfortable, and €20:00 per night including breakfast, so you’ll hear no complaints from me.

But check-in isn’t until 17:30 so I left my luggage behind in the office and went for a walk because that was quite clearly a big mistake. I came over all queer after about 15 minutes and had to retrace my steps to the hospital where I crashed out in a chair in the waiting room.

Once I had been admitted to my room (which is, as you might expect, room 13) I crashed out and that was that. The strain is clearly telling on me these days.

Thursday 7th April 2016 – WHY DO I ALWAYS …

… seem to be given the perishing room-mate who snores? There I was at 05:30 still not able to drop off to sleep.

But I must have gone off at some time or another because I was on my travels again. I started off trying to make some sandwiches with white bread but every time I went to spread anything onto the bread, it tore the bread away from the crust and after a while that started to annoy me greatly. I decided to go out for more bread but I needed someone to do some baby-sitting for me while I was out (don’t ask me why) and just at this moment a young girl – someone who has featured once or twice in our nocturnal rambles – came along. My idea was to grab hold of her to stand in for me but she was rather uncatchable, discreetly drifting away every time I tried to ask her to help out. But in the end off I went, in an old early base-model Mark I Ford Cortina 2-door, dark blue. MY route took me up a track at the back of some houses, through the daffodils, only to find my way blocked by an old car that I hadn’t noticed, so I had to retrace my steps.
A while later, I found myself in France again and I’d been following this trailer with an old car on it – a Peugeot 203. This was taken off the trailer and pushed up an overgrown lane to where there were another two of them. I couldn’t stop there as it was on the side of a hill, quite exposed and with bad bends, so I parked up in the nearby village and set out to walk back. even though it was a Sunday, there were hordes of people about and I wanted things to be much more quiet than this but I just couldn’t escape the people. I lost my way in the village and was surrounded by curious onlookers and I couldn’t find my way to these cars. Most of the people were British and there was clearly something going on of which I didn’t like the look at all – a drugs deal or other criminal activity maybe and this was an uncomfortable place to be. And somewhere along the line, this girl appeared in it again.
And yet another while later, I was in a car with, having made a dramatic reappearance, this same young girl. We were watching these British people and they were making a film – something like one of the 1970s “Cops and Robbers” dramas on British TV. This involved a car chase – the part in which she was interested – and so was I when I saw that the car being chased was a gorgeous Daytona Yellow Ford Taunus – the model from 1973-76. It was the most beautiful car of its type that I had seen for years and I had my heart set on it but I knew in my bones exactly what was going to happen to it – and I was right too. They slammed it right into the external corner of a wall and put a huge V-shaped dent in the front of it. I was furious and leapt out of the car calling them all kinds of names and in the end, after the chase had passed by, I man-handled the Taunus onto my trailer, which just happened to be attached to the back of my car. I asked this girl what her plans were for tomorrow and she told me that she “had to go to check out a scene for the Sweeney” – one of the aforementioned “Cops and Robbers” programmes and I took it to mean that she had to go and look at a location to see if it would be suitable for filming. I thought to myself that she isn’t half having some interesting and important tasks for a girl of her age.

But it’s amazing in a way that the same person can appear in all three parts of my little voyage during the night, and that I was of the opinion that it was all interconnected in some way. It’s not the first time that I’ve stepped out of a little nocturnal ramble only to step right back into it later at more-or-less the same place.

Anyway, after this, I did finally go back off to sleep and I remember being off again, but being awoken at 07:30 so that they can take a blood sample, well before you’re back in the land of the living, means that wherever I went has gone forever.

We had the cleaner coming along quite early and she showed quite clearly that she must have studied under Hattie Jacques. It must have been the turn of our room to have “the works” because she went over it from top to bottom, to such a thorough extent that Hattie Jacques would have been quite impressed. I kept to my bed while she was at it. That seemed to be the safest course.

I had a whole stream of visitors – nurses, doctors, Professors and the like. And each one told me a different story about my stay here. But one thing became clear, and that was that my blood count isn’t so good. The transfusion that I had the other day brought the count up to just 8.1. That’s close to the critical amount of 8.0 and so they are proposing another blood transfusion to bring it up to something more like it.

First off though, was to have more chemotherapy. They’ve decided that I’m fit enough to have a second helping of that before they give me more blood and so they made the necessary arrangements. And remembering how things unfolded last time, they took it slowly. That meant that they didn’t finish it until about 18:30, by which time it was too late to do the blood transfusion and throw me out.

That disappointed me – it means that I’ll have to stay here for yet another night and go without sleep once more. It’s ruined my day completely, the effects of last night without sleep because I’ve been drifting in and out of sleep all day and I’ve not really been able to accomplish anything that I’ve set out to do. How I dream for a good night’s sleep and a proper day of some kind of effort.

Not only that, OH Leuven were at home to White Star Brussels this evening. I’ve never seen Leuven play, but the last time that I saw White Star, they had about 200 supporters and a brass band. I was looking forward to going this evening, but I’ve had to rule that out which has annoyed me greatly.

Alison came by the visit too. Her cousin had some over for a short stay so she had been to pick her up at the railway station. On their way back, they came to visit, bringing a few edible bits and pieces with them and they will go down quite nicely.

So now everyone has finished what they are doing and we are supposed to be settling down for the night. But fat chance of that with my neighbour rattling off like he is. I’m thoroughly fed up of this, I can tell you.