… this has been. I certainly seem to have packed a lot into it. And there will be more to come in due course – much more.
And considering how little sleep I had last night, I reckon that I did quite well too, even if I did have a little doze off once or twice in the taxi coming back from Paris. Yes – I’ve been to Paris and back today in a taxi.
But not for much longer, so they seem to think.
Last night, any dream that I might have had about going to bed early was shattered by yet more prevarication and aimless wandering around in cyberspace before I could summon up the energy. And with the alarm set for 06:30, I knew that it was going to be a short night.
But never mind the alarm. I needn’t have bothered because I was wide awake yet again at 05:50 and up and about, having a really good scrub, by 06:00.
No medication this morning, and no breakfast either. I’m working on the principle that “what doesn’t go in won’t want to come out at some inconvenient moment in the middle of a four-hour journey”.
Instead, I came in here to listen to the dictaphone to find out where I’d been during the night. I was with Sherlock Holmes and Doctor Watson last night. We were on the trail of some kind of primitive life-form like a large snake or slug that was slithering around London bringing terror with it. We – or someone – had come across it and there had been some kind of conflict, and the creature had escaped so Sherlock Holmes was reviewing the confrontation. He decided that it was light that frightened it more than anything else so later on Sunday night we arranged for all of the lights in a certain area of the city to be turned off and we set out to hunt it. Watson made the point that surely this is dangerous with all of the people wandering around the streets. Holmes said that there’s not one member of the serving class of London who would be out on the streets at this time of night. We heard a noise and saw a movement so we constructed our ambush, which was basically to be in the dark and have a light burning underneath a dark lantern so if the creature were to come to us as we were the only people on the street we could illuminate it with this dark lantern and be able somehow to overpower it and deal with it accordingly.
A dark lantern is just like an ordinary lantern, except that it has a thick black cover over the lens. You light the lantern, close the cover, and there is no light emitted. When you want there to be light, you simply lift up the cover. It’s the Victorian equivalent of an on-off switch.
Regular readers of this rubbish will recall however that in the past we have been on several nocturnal rambles with Holmes and Watson, although I don’t recall that we had too much success at whatever it was that we were doing.
Later on, I dreamed that I was in hospital and it was dialysis time. I had to make myself ready for dialysis and was not looking very forward to it so I was sitting there in my bed and then drifted off to sleep. I awoke again with someone shaking me awake, like at the hospital yesterday when it was a nurse but today it was no-one – I just awoke and slipped off to sleep in the middle of that dream again
It sounds just like the little student nurse who awoke me yesterday, with a little shake. But it’s really sad that I’m dreaming these days about dialysis. As if I don’t have enough problems about it during my waking hours, never mind spoiling what are supposed to be enjoyable, relaxing rambles.
Isabelle the Nurse turned up nice and early to sort out my legs, and she brought with her the first of today’s news. There is apparently a large van outside the building and my tenant and her friends are busily loading it up. So it looks as if this move might actually be on.
It’s a good job that Isabelle came early because no sooner had she left than the taxi turned up – a good half-hour earlier than I was expecting and I was nowhere near ready.
Nevertheless, in the glorious sunshine I staggered down the stairs and across into the waiting vehicle, seeing for myself that this move really is happening. However, as I have said before … "and on many occasions too" – ed … I have no sympathy with her, and even less now, having seen her walking across the yard carrying boxes of things when I can’t even carry a saucepan out of the bathroom.
The drive to Paris was exciting – road accident after road accident, bus on fire, car overturned on its side, half a dozen collisions. And the queues around Paris meaning that despite setting out half an hour earlier, we were half an hour late arriving.
The news about the biopsy the other week is that they have actually found something. It seems that I might be suffering from something called AMYLIODOSIS. Traces of amyloids have been found in the nervous system in my legs.
This is apparently what they were suspecting ever since the beginning and why I have had so many tests. However, until just now, the amyloids have been remarkably good at hiding.
It seems that the thinking in the past was that my recurring illness was something that was causing my neurological issues, but now they are slowly coming round to wonder if it’s not the reverse and that it’s the neurological issues that are causing the other problems.
The first positive result is that the anti-cancer treatment, that costs €4950, can be stopped as of right now. This begs the question “what do I do with the full, unopened bottle sitting on my shelves?”.
The second positive result is that the doctor tells me that the treatment they are going to try is one that involves a stay in hospital for a couple of nights every month or so …. and when he said that, a few bells began to ring in my head.
… and they will throughout that time be giving me an intravenous drip … which rang yet a few more … called Rituximab. And that was when the siren inside my head went off
"Haven’t I done this before?" I asked.
"As a matter of fact, you have" he said. "Back in 2016"
So in nine years and many, many miles, we have gone round in one big circle. If we aren’t careful, we’ll end up like the Oozelum Bird.
But it’s not all doom and gloom. Regular readers of this rubbish will recall that I was so ill back in 2015 and 2016 that I couldn’t fend for myself and luckily, Liz and Terry took me in for four months and nursed me, something for which I shall always be grateful.
One of the problems there was that I was having enormous difficulty walking and had to learn from the very beginning again. However, after six months of treatment with Rituximab (actually, its generic equivalent, Mapthera), I was IN CANADA.
Of course, I’m not pretending that I can do the same thing again, but being able to walk would be something. However, I mustn’t build up any wave of optimism. I’ve been told quite clearly that this isn’t going to be a cure – just a relaxation of the symptoms at best.
They have told me that the first two sessions will be done here in Paris, and if it all goes well, they’ll find a more local hospital, that might be either Caen or Rennes. So it’s just possible that if it works, I might not be going back to Paris.
The drive home was completely uneventful – there wasn’t even the slightest sign of a traffic queue until the autoroute junction at Caen. And we were home by 17:30, when I found that my apartment downstairs was indeed empty and shuttered up. No keys in my letter box though. I shall have to see the letting agent about those.
Back in here, I had a disgusting drink break and then relaxed in the chair until tea time – a taco roll with rice and veg followed by ginger cake and soya dessert.
So early as it might be, I’m tired and so I’m going to bed in a few minutes to see if I can have a good sleep after my exertions.
But seeing as we have been talking about Holmes and Watson … "well, one of us has" – ed … on one of our previous rambles I spoke to Holmes.
"You don’t seem to be as popular these days as you used to be" I said
"It’s true" he said. "The young people don’t seem to care for me these days. I relate mostly to the previous generations"
"I see" I replied. "You’re more like an Old People’s Holmes then"