Tag Archives: blood transfusion

Monday 13th June 2016 – IT’S NOT VERY GOOD NEWS!

No, I had the results of the two samples that were taken from me the other week.

The first bit concerns the bone marrow. Whilst it’s true to say that the lymphona hasn’t spread into my bone marrow, the fact is that the bone marrow itself is quite fragile and as a result they won’t be giving me any more chemotherapy. This is because the marrow is quite fragile and they fear that the chemotherapy may damage it.

The second thing is, if anything, even worse. And that is that my illness has spread to my kidneys and that is what is the matter with them.

I don’t know if the situation is dangerous or not – I didn’t ask. What I do know is that they are going to have a meeting on Wednesday to discuss a course of treatment and I have been summoned for next Monday to a meeting to find out what will be the plan. All that I can say is that I don’t like the sound of this at all.

I had a difficult night’s sleep again, awake quite early and having a trip or two down the corridor. When the alarm went off at 07:15 I was awake but it still took me a good few minutes to leave the comfort and safety of my nice warm bed. After breakfast I packed everything away and even found time for a shower, then paid up for my stay and hit the road.

It was pelting down with rain this morning and traffic queues everywhere. However I made an executive decision (an executive decision being, for the benefit of new readers of this rubbish, a decision that if it happens to go wrong, the person making the decision is executed) to follow the signs for the motorway once I reached Korbeek-Lo and that was a much better idea. There was heavy traffic on that road but it was all turning off to the various business parks down there and it didn’t take long to hit the motorway. And once on the motorway it took me a mere 10 minutes to reach the hospital by going right round the city and onto the campus from the rear. I was there half an hour early.

A couple of doctors, one of whom was the girl whom I normally see and the second one was the urologist – she who gave me the bad news – came to see me. That wasn’t all that she gave me either because she ordered an injection for me – one that would help purge me of excess water. And I’ll tell you what – that worked in spades and made me feel so much better.

The Social Welfare girl came to see me too. We discussed my accommodation situation and she’s going to make further enquiries for me. Mind you, although she’s given me a great deal of moral support she hasn’t really gome up with too much in the way of practical help. But then again, I don’t suppose she encounters too many people who have my kind of problems.

They gave me a blood test too, and my blood has dropped down to 7.6. That of course meant a blood transfusion and I had two pochettes of blood. What with all of that, it was nearly 19:00 when I left the hospital. I had a walk down into town and stopped off at a fritkot for a falafel butty and chips for tea – all for €5:50.

And then it was back here to my new home for my first night.

There’s no internet (there’s a student.net site but of course I don’t have a password for it) and there’s a leak around rthe edge of the roof light.

As I said yesterday, I’m glad that I’m only spending a couple of weeks here.

Sunday 29th May 2016 – WHAT A BORING DAY!

Sometimes I think that it’s just as well that I go off on some of these nocturnal rambles because it’s the only excitement that I seem to be having these days.

Today was one of those days where not a single person came along to break the monotony. Fair enough – I had my pulse and temperature taken twice but that was it. For most of the morning I was crashed out on my bed and for the rest of the day I’ve just been sitting around mooching over the internet and reading a pile of stuff to keep me going. I can’t say any more than that.

Well, yes I can, I suppose. I’ve run out of cheese.

To be frank, I didn’t expect to be here like this. I imagined that Monday would have been a check-up (and maybe a blood transfusion) as it always is, and then I expected to be called back on Friday for a long weekend of chemotherapy. That’s what usually happens. That would have given me all of the time in the world to do all of the shopping that I wanted, but of course it didn’t work out like that, did it? Here I am, it’s Sunday night and they haven’t even started on the chemotherapy, let alone almost finished. No wonder that I’m so fed up.

I’d had a bad night too – taking ages to go to sleep and then waking up regularly through the night. It’s quite true to say that I’m a very light sleeper but the amount of clunking and clanking that goes on in this place is unbelievable.

Mind you, I did manage to get away during the night. I was on a long-distance bus travelling to the Bus Station (which one, I’ve no idea) and Laurence was a passenger too, although I wasn’t “with” her. It was just after 02:30 when we arrived and we had a couple of hours to wait for our connection that would take us to the airport. I immediately grabbed my stuff, made a kind of bed on the floor, and settled down for a short sleep. However, the woman from the cafeteria on the bus station came out to remind us all that the café closed at 02:30 – clearly incorrect because it was after 02:30 by now, so we imagined that she meant 03:30. That didn’t bother me because I reckoned that I would be back awake by then, and if not, it didn’t matter anyway. Neither did all of the people who were taking a rather unusual interest in my sleeping arrangements.

Friday 27th May 2016 – IF ANYTHING …

… my night last night was even worse than the previous one. I was awake for ages before going to sleep and then I awoke again at about 03:30. every time I tried to go to sleep something or someone brought me back round again and that was annoying.

None of the foregoing though stopped me going on a wander. I started off with my old rock group and we were practising in the concert room of some workingmen’s club somewhere. The club opened at 18:00 but the concert room didn’t open until 19:30 so we were able to hire it for that 90-minute period every so often. Things were a bit shambolic and anarchic and it was clear that we weren’t getting on too well together but we had to persevere.
From here we went on to the house of someone whom I know in France. There was agroup of us there and two of our number, the lady owner of the place and her friend, went out for a walk. They hadn’t been gone for more than a couple of minutes when there was the most astonishing thunderstorm and the heavens simply opened. I’d never seen so much rain in all my life. The house leaked like a sieve and the rain roared inside. The two people outside came running back and we asked them whatever possessed them to gooutside when the weather was threatening like this. I wanted to go into the next room but a stream of water cascading down the walls and down the door made me unwilling to open the door but someone else did so and we were thus able to leave the kitchen and go into the living room. But as we went inside, the daughter of the house (who was already in there) shouted “you should see the water going into the bucket”. What was happening was that there was an avalanche of rainwater falling down inside the house, bouncing off the stair rail and going straight into a sink at the back of the living room. But the whole house was inundated, soaking wet, and everything was being ruined.
A short while later, I was at another house and suddenly a couple of people arrived, one of whom was Nerina. They had been to the shops and bought tons – and I do mean tons – of stuff and they were unloading the car and dumping the stuff everywhere. Our task was to take it where it was supposed to go. I remember that there were four huge picture frames but what was in them I do not know because they were wrapped in Christmas gift wrapping. I had two of these and was taking them to another room, but trying to fight my way out with all of the rest of the items and everyone else in the way was proving to be much more difficult than it ought to have been.

The dietician came to see me this morning, and brought one of his drinks to show me. But even though it has no milk as such in it, it’s jam-pack full of milk proteins and so that’s no use to me unfortunately. Apart from that, he doesn’t really have too much of an idea as to where to go from there.

And the doctor came too. She was dismayed when I told her that just half an hour earlier, my “stomach trouble” had reappeared – and in spades too. I did think yesterday that it was too early to go crowing about it. But she tells me that they have decided against the chemotherapy that I’ve been having. They are going to give me some other sort of treatment. However, it does have all of the same side effects such as the shivering and the fever and it’s every three weeks, not every four, so I’m not sure how much further down the road we are going to be with this.

I have a horrible, nagging suspicion that my illness isn’t going to respond to anything really and that I’m going to be stuck like this for ever. seeing them bring another pochette of blood to me this afternoon did nothing to allay my fears.

The spinach that I ordered for lunch came smothered in a creamy kind of sauce which was clearly no good for me so it looks as if I’ll have to abandon my idea of a varied diet and stick with the mixed veg, rice and extra carrots for now.

In case you are wondering, it’s true that I’m feeling pretty disillusioned right now. Not with the hospital, which is doing everything that it reasonably can do to help me out, but with the way things are working. I was hoping that by now I would have shown some kind of improvement and would slowly be starting to get on top of everything, but it’s clearly not working out like I wanted. All of this is generally making me feel quite miserable and when I look back on all of the things that I was doing a year ago, or four years ago, or 10 years ago, it’s beginning to drag me down to think that I might never be doing that again.

So this afternoon I sat quietly (or as quietly as I could – only two visitors per patient are allowed at the bedside at any one time and so a huge family that has just come from Africa to see a relative is all crammed in the day room and as they rotate two-by-two they are creating something of a carnival atmosphere in here and I’m in no mood to enjoy it) and read a pile of stuff on the internet.

Still, tomorrow is another day. It’ll be quieter because there are no ancillary staff members on duty, but I don’t expect it to be any different.

Wednesday 25th May 2016 – JUST FOR A CHANGE …

… I had a pretty good night’s sleep last night.

I was in bed by 22:00 and I don’t remember very much after that before I went to sleep, but apart from one or two trips to ride the porcelain horse, that was effectively that until about 07:30. It’s a long time since I’ve had a sleep quite like that in a hospital.

Today, I’ve had a couple of visits. Firstly, the doctor came in for a chat with me. She’s concerned about my general health, which I might have said the other day, but she’s even more concerned about my dramatic weight loss. I’ve lost 11.6kgs since all of this started and she’s worried that if it keeps on at this rate, I’ll be starting on the muscles and proteins and that could be serious. She did however mention that my blood count has gone up after my transfusion – it’s now 8.7.

a short while later, the dietician came to call. Not the usual one (she’s away for a couple of days) but another. he told me that the doctor had sent me and that they wanted to know much more about my eating habits.

He spent a great deal of time chatting to me and seemed to be very thorough in what he was trying to do. He didn’t, unfortunately, have any instant solutions (I would have been surprised had he done so) but he’s going to try to put together some kind of plan and he’ll get back to me tomorrow.

Apart from that, that’s all really. I’ve had a quiet, relaxing day of not doing very much at all, and I’ve managed to force some food down – to such an extent that you might say that I’ve had a couple of decent meals for once. They remembered to bring me biscottesinstead of bread for breakfast – but forgot the jam!I’m hoping that I can have a pretty good sleep tonight too and maybe feel a little better for tomorrow.

But what’s worrying me is that I’m feeling like this already and I haven’t even started the next lot of chemotherapy. Remembering how bad I felt last time once the chemotherapy was over (and that was starting from a good healthy position), whatever am I going to be like in a week’s time?

I shudder to think.

Monday 23rd May 2016 – MY LIBERTY …

… didn’t last all that long, did it?

Here I am, back in the hospital, in a different ward, and here I’ll be staying, I imagine, until the cows come home. I’ve no idea.

And despite all of the money that I spent on some decent accommodation last night, I had something of a bad night. Having crashed out last night by 21:30, I was awake long before 03:00 and I don’t recall going back to sleep afterwards.

I had a visitor during the night too. A local farmer came to see me back at my place in France (it wasn’t my place in France, actually, but never mind). He complained that I’d been going too fast past his fields and he would appreciate it if I didn’t go so fast and that I didn’t take the short cut through the mountains. I didn’t recognise him so I asked him to show me which were his plots of land, and eventually he whipped out a map of the area, which turned out to be the Arran Peninsula in Scotland. After a good look, I could work out that there were parts of France marked on this map too but I was having difficulty trying to identify them. And while I was doing that, he was explaining that he was part of a committee that oversaw various rules and regulations and had the power to fine transgressors as much as three Euros for any breach thereof.

This morning it was lashing down with rain and there were traffic queues everywhere. Luckily the traffic going my way was moving steadily and I wasn’t delayed by much. In fact, I was at the hospital in the day centre by 09:15, 15 minutes before my appointment.

The place was crowded too and it took a while to be seen, but it wasn’t too long before I was stuffed into a side ward and given what looked like half a gallon of antibiotics. My blood count is down too (although this is no surprise) to 7.4 and so a transfusion is on the cards.

And what with one thing and another (and once you make a start, you’ve absolutely no idea how many other things there are) they’ve decided that rather than kick me out and call me back on Friday, they’ll be keeping me in. Still, focus on the positives – it means that I’m not having to pay any accommodation fees anywhere.

I had to wait ages, though, for a free bed and it wasn’t until 20:30 that I was wheeled upstairs. A different ward, as I said, and no-one speaks English here which is just as well for I need to stretch my Flemish.

I have a room-mate and he seems to be quite cheerful enough and, to my great delight, he doesn’t seem to snore. How I’ve longed for a room-mate like this.

So I’ll settle down for the night now and see how it goes, and I’ll give you all an update tomorrow. If ever I drop off to sleep, that is, because for some reason or other (possibly because I had something of a sleep during the afternoon) I’m not feeling in the least bit tired at the moment.

Sunday 1st May 2016 – THEY FINISHED …

… the second round of chemo much earlier yesterday and so at about 22:30 I was able to settle down to go to sleep. In fact, I fell asleep halfway through one of the James Lee Wong films starring Boris Karloff in the title role.

But I wasn’t asleep for long. Not just tossing and turning either but my right had swelled up quite dramatically and there was a procession of nurses and doctors who came to see it. But I can do without all of this, I can tell you.

I’ve also developed a kind of air-bubble in my left ear too. I’ve no idea where that has come from but they will get a specialist to look at it tomorrow.

By breakfast time, the swelling had gone down enough that I could at least make a fist, but I’m off my food yet again. Jam and soya drinks are now on my proscribed list so you can see that things are definitely looking down. Lunch however was quorn fillets with potatoes in a tomato and mushroom sauce, and I enjoyed that very much.

I also enjoyed the shower that I had although we are going through another session of where I don’t want to look in the mirror to see what they have done to me.

This afternoon, it goes without saying that I crashed out. That’s the usual procedure following chemotherapy as I know from last time. But they did wake me up to give me two pochettes of blood. I suppose they think that that might revitalise me but the way that I’m feeling, it’s going to take more than two pochettes of blood.

They have given me a tablet to prevent bits of me swelling up, but what it is in fact is a diuretic. Every time I drink something, then 5 minutes later I have to dash to the bathroom. What a silly thing to give me so close to bed-time.

So if things go according to plan, I’ll be leaving here tomorrow so I’d better have an early night if I can. But we’ve all heard about plans before, haven’t we, so I’m saying nothing at all.

Thursday 14th April 2016 – TODAY’S THE DAY …

… when I find out if the first lot of chemotherapy worked or not. I hope that it did, because I don’t want to go through too much more of it. Horrible, nasty stuff!

And so I celebrated by finding the toaster (in the cupboard under the sink), and had toast for breakfast. and a second mug of coffee too, seeing as how it was so nice. I dunno who makes the coffee at this place but they can come and make it for me any time they like.

I needed it too because I’d been well away on my travels during the night. It was something of a disturbed night, tossing and turning and waking up, and so much of what happened and where I went to has long since disappeared into the mists, but what I remember of it was all pretty exciting enough.

I started out with Nerina yet again and we were on our travels in Europe. There was a magnificent site that, to me, could only be an Iron-Age hill-fort but no-one else seemed to agree with me, and some of it had been demolished. I took Nerina to see it and gave her something of a lecture about it, explaining that it was maybe dating from the Visigoth or more likely, perhaps the Merovingian era (although neither lived in hill-forts, but we mustn’t go letting facts get in the way of a good nocturnal ramble now, must we), and that regardless of any rumour or speculation (because the Merovingians have always throughout history been treated as something quite different, even by the Church, and some have even speculated that they might have been spacemen) were just another unknown wandering Eastern tribe that finally collided with Western “civilisation” during the great Western migrations. And I pointed out loads of things that related to the hill-fort that had caught my eye. I didn’t realise it at the time that my “lecture” had drawn quite a crowd and a family came over to me afterwards and asked me to give them a guided tour. I explained that I knew nothing and was merely interpreting, as an amateur, what I was seeing, but they were most insistent.
A little later, I was in Crewe, right down the end of West Street by where Barlow Brothers scrapyard used to be, and I had a pick-up that was towing a trailer. I was out of the vehicle doing something on the verge when a huge lorry went past and the draught sucked my pick-up off down the road. I was sure that I’d applied the handbrake and left the pick-up in gear, but there it was – going off down the road. I ran after it but it was long-gone, and suddenly it burst into flames, going faster and faster down the street. A horse of mine (now, what would I be doing with a horse?) leapt off the trailer and ran back towards me. It was on fire, and quite badly too by the looks of things, but a passer-by threw some water on it and doused the flames. I had a look at the horse and although the hair was charred, the skin looked okay and so I debated as to whether I should call a vet as I put it back in my back garden. But my pick-up was long-gone by now.
And even later, I was driving along a dual-carriageway, “my” side of which was under heavy repair and the road was limited to one lane and was in dreadful condition, so most vehicles were driving the wrong way along the outer lane of the other carriageway. I attempted to do the same but was cut up by a big van so had to continue trudging along, and at the next break in the central reservation, the same big van cut me up yet again. I ended up at my doctor’s, on the second floor of a tall terraced house, right by the side of this dual-carriageway and by now the road had deteriorated into one massive construction site and vehicles were picking their way through it as best as they could. Some young boy in a souped-up American sports saloon of the 1970s was driving like a maniac and as we watched, he clipped a small car coming the other way and turned it over, and spun into a pick-up and totally flattened it. He, of course, escaped unhurt. The small car that was on its side, the construction workers used one of their machines to try to turn it right-side up but they dropped it into a water tank and had to fish it out with a fork-lift truck. After all of this, a small woman with a shaven head emerged from the car. All of her worldly belongings were in the car, ruined by now, and she was destitute. She looked quite shaken and so I beckoned her up to the doctor’s. When she arrived, I explained that the doctor was busy but we would let her go in next for a check-up. She was clearly upset, and was going on about her car and her goods and however was she going to find a mortgage to replace everything?

Having resolved the issue of breakfast, off I toddled to the hospital. My appointment was at 10:50, and do you know what time I was seen? Anyone from the UK would never ever guess correctly – they would be at least a day or two out – but I was seen at 10:50 precisely – bang on time.

They took a blood test from me and fitted a drain in me, and then I was told to wait in the waiting room. And wait I did – for all of about half an hour when I was summoned to see the doctor – a nice young female trainee who can soothe my fevered brow any time she likes. I told her everything – about my arm, about the compression in my chest, about the loss of appetite, the fatigue, the nausea – absolutely everything, and she poked and prodded me just about everywhere – right at the end she asked me “may I feel your groin?”. Well, who am I to argue with that?.

She then went off to consult her professor, and came back 10 minutes later. “We need an ecography of your stomach”.
“When is this likely to take place?”
“14:15” she replied. You can see that we are clearly not in the UK. That was only 90 minutes, not 90 days away.

So I had my ecography and then went back to hear the news.

And I suppose that you are all dying to hear what is going on, aren’t you? Well, I’ll tell you, but it doesn’t make pleasant reading – not for me and probably not for many others either. But here we go.

Basically, the embolism is back in the right arm. It seems that the veins in there are not good enough to support a drain. This means that everything will have to happen in the left arm, and the veins aren’t all that much better in that arm either and they are worried. In view of everything else that is likely to happen to me, more of which anon, they propose to fit a catheter port in my chest. This news (the catheter in the chest, not the embolism) has filled me with complete dismay.

Secondly, they have detected some gallstones. These are by no means a problem but they are blocking a good view of my intestines. They are talking about sending a camera down, but this, I assure you, they will do over my dead body. I’ll suffer like this before I suffer like that.

Thirdly, the chemo hasn’t worked as well as has been expected and so I have to have another transfusion. I had one pochette on the spot then and there, as well as an injection to stimulate the red blood cells.

Fourthly, I have to go back for more chemotherapy, and that’s fixed for 29th April. This is after the end of the 15-day period during which I’m allowed to stay here, so something needs to be done. Those of you with long memories may recall that I was given “advice” by that guy in the European Union’s Social Services department, but the net result of that as been zero. He hasn’t even bothered to reply to my e-mail, never mind do anything about the issues involved. What a waste of time that was!

However, the girl from the Social Services at the hospital seems much more helpful – she sought me out today at the hospital and we had a little chat, and she thinks that once she knows what the programme is, she might be able to help me find somewhere to stay in the neighbourhood. That’s the ideal solution – she seemed to know what she was doing while all of this was going on.

So beaten, battered and bewildered, I left the hospital and went to move Caliburn around the car park and to rescue the clean clothes that I forgot the other day. And then, I took the bus back here.

I did have a pleasant surprise tonight though. I’m limited with what I can eat right now as my taste buds are out of order and I still have some nausea. I seem to be limited to pizza and to the cheapo pasta shop up the road and round the corner. But tonight, looking for a change of diet, I found an Asian take-away. They did a huge portion of vegetable stir-fry and rice for just €5:00.

I’m not a big fan of food from the Chinese end of Asia, but I did cheer up when he started chopping up half a broccoli. And I do have to say that this was one of the nicest commercial stir-fry meals that I have ever eaten (I stress the “commercial” because nothing whatever can match Liz’s stir-fry). I shall add this place to my list.

So tomorrow I need to start work. I need to sort out this accommodation question because I reckon that I’m going to be here for the duration, so I may as well come to terms with it.

Wednesday 13th August 2016 – NOW, ABOUT LAST NIGHT …

… I was in bed by about 21:30 and it didn’t take all that long at all to drop off to sleep. And the next thing that I remember was that it was 05:35. I can’t have been for a wander during the night and I vaguely remember only the basics of some kind of nocturnal ramble going on during the night. It concerns Renown Garage where my taxi business was based during the late 1980s. They had dug up the petrol pumps and were concreting them, with this huge cement mixer. However, instead of water, they had mixed the concrete with petrol which had infiltrated into the foundations from the old petrol tanks. This had the effect (at least, it did last night) of making the concrete set quickly and super-hard, and they had far too much of it that they didn’t know what to do with it. I immediately seized on the opportunity to offer my back garden as a dumping ground for the concrete – with the aim of course of covering it over as a place to park my vehicles.

I felt quite better this morning, and even had an appetite for breakfast. And afterwards, now that I’ve bought some soap, I went for a shower and sorted out all of my clothes for washing. And this was when I realised that I only have one spare pair of undies and trousers – no socks, tee-shirt or jumper. Nevertheless, I put everything ready to wash.

I had to wait hours for the machine to free itself, seeing as the cleaner seemed to have gone berserk with the cleaning cycle, but it didn’t take long to wash. Meantime, I’d gone round to the supermarket for my baguette, tomato and banana, and as well as that, bought myself a bag of sweets and a bun because I was starving. This is definitely an improvement.

And my relentless thirst seems to have calmed down too, which is a good thing. You’ve no idea how much liquid I’ve demolished this last few days.

This afternoon I had a doze again for an hour or so and later on went out for tea. Thanks to all of the vegan cheese that I have, I went for another pizza and I polished that off quite comfortably.

Yes, definitely feeling a little better.

But you missed all of the excitement while I was out. Some young guy thought that he would be clever by cycling on the pavement around a traffic queue in the street. Instead, he cycled right into a grid in the gutter, his front wheel jammed and he went head-over-heels right over the handlebars.

Yes, I did have to laugh.

But tomorrow I’m back at the hospital. I’m having a blood test at the day centre and that will tell us whether I need another transfusion, or whether the chemotherapy is actually working.

It’ll be interesting to see what’s going on, and I hope that it’s working because I don’t want to go through too much of this under any circumstances whatever. It’s horrible.

Friday 8th April 2016 – I WAS RIGHT …

… about last night. Another dreadful night where I couldn’t drop off to sleep and at 04:00 I was still wide awake. How I hate this. And it’s a long time since I made so many trips down the corridor too in one night, but I didn’t really care about that. If I’m suffering, so should everyone else too.

But I did manage to drop off and go on the odd ramble or two. The first part of my little voyage involved producing a rock concert for one of my heroes – the Welsh rock group “Man”. I decided that their long concert of two and a half hours would be played in two sets, each of an hour, and then a third set of whatever remained. The group seemed to be okay with it, although I did have the impression that they would have agreed to anything that I proposed. I went off to do something and on my way back I noticed that one of the group was busy siphoning some diesel out of the fuel tank of my lorry, which was an old ex-army three-ton truck. I was annoyed about this but I had to remember that for important and valuable clients, you need to be prepared for this kind of thing.
From here, I was back at University and it was the first day back. We were all in a huge group sprawled over a great big bed and other groups of people were dressing up in disguise or in some kind of prop, swarming over the University grounds. One or two were heading our way so I had to warn our people that they were coming. No-one was taking any notice however and this was annoying me (my bad mood seemed to spread all through my rambles during the night) so in the end I lashed the head of the bed with a length of chain. Even so, although this did lead to people beginning to talk, it didn’t have the effect of galvanising them into action and I was quite disappointed, if not totally fed up, of all of this.

First off this morning, I had to give a blood sample and the nurse had an enormous amount of difficulty trying to find any. But then, as you know, she’s not the only one who has had difficulty doing it. And then I had to wait.

And wait

And wait.

And then the blood came round at about 11:15 and we started off the transfusion. I’m to have two pochettes apparently (so this is going to be another all-dayer and we’ll see about whether I’ll be able to leave today).

But the Professor and the Doctor came to see me. The plan seems to be that I can leave after the transfusion, and go to this guest room in town. I need to come back in a week for another blood test, and then again in two weeks time for another go at chemotherapy. If this all works, then I’ll need chemo every month and I might maybe no longer need any blood transfusions. And won’t that cheer me up too!

But I’ve been led up the garden path before, so I’ll believe it when I see it.

However, to my surprise, the transfusion was over by 15:00 and by 15:30, armed with a date for a further appointment and a prescription for the gout from which I seem to be suffering (and which was missed by Montlucon, apparently) I was heaved out into the unsuspecting public.

I picked up a few things from Caliburn, moved him around the car park to make sure that it looks as if he’s in regular use, and then caught the bus into town. Four or five stops away, Sint Pieter’s Hospital is, and that’s where I’ll be staying for two weeks. It’s basic and primitive, but quite clean and reasonable comfortable, and €20:00 per night including breakfast, so you’ll hear no complaints from me.

But check-in isn’t until 17:30 so I left my luggage behind in the office and went for a walk because that was quite clearly a big mistake. I came over all queer after about 15 minutes and had to retrace my steps to the hospital where I crashed out in a chair in the waiting room.

Once I had been admitted to my room (which is, as you might expect, room 13) I crashed out and that was that. The strain is clearly telling on me these days.

Wednesday 6th April 2016 – THE BEST-LAID SCHEMES …

… of mice and men gang aft agley, as Rabbie Burns once wrote. And how right he was. I reckoned that I lasted maybe for 5 minutes of my film before crashing out.

I was only awoken three times during the night – once by the usual need to take a stroll down the corridor, the second which was by one of the nurses who wanted to take my temperature, and the third time my a nurse asking me if I was okay. And had my reactions been any quicker, she would have had a pillow in the face as well. GRRRR!

But during the night I’d been looking at old cars for sale. I’d come across a garage that sold classic cars and my eye was caught by a maroon Wolseley 1300 (the same as Nerina used to have, except that hers was Black Tulip) that was for sale at €1,883. But I ended up playing in a rock band once more with Hans and also with a female on drums. We were playing at a concert up on the Chester road, slightly north of the Bluestones traffic lights near Acton (and we’ve been here before) and warming up, we played an impromptu blues number that I made up on the spot, called “I’m the accused”. Of course, the word “accused” is one of the easiest words in the English language to rhyme – there are so many other words that go with it, but it was still impressive that I could write a whole song “off the cuff” while actually performing it. And if I could write music, I’d write it down because I can still remember it even now.

And so the morning came round quick enough and I was soon tucking into breakfast. And with a sweet smile, I was even able to negotiate a second pot of coffee. I then had a shower (which made me feel so much better after yesterday) and a blood sample.

The blood sample wasn’t so easy though. They tried to take it out of the drain in my arm but for some reason that had become blocked. In the end, they had to take out the drain, fit another one in the other arm and take the sample from there.

An hour or so later they were back. “Your blood count is only 7.3, so we need to give you a transfusion today”
“So what was if before I had the transfusion on Monday?”
“6.5”
No wonder I was feeling like death in Givet last weekend.

We then had some amusement with the cleaner too. Doing her best to speak English to me (and I will never ever mock anyone’s attempts to speak a foreign language), she said “you must stay on your bed when I’m cleaning. It’s dangerous when I’m around”
“I know the feeling” I replied. “People often say that it’s dangerous when I’m around too”.

I found some time (although not very much) to start to write up the notes of my Canada 2014 voyage – I really need to get cracking with this – but it ground to a halt at about 15:00 when they came to give me more chemotherapy. This time, they took their time and it was soooooooo slowwwwwwwwwww. The blood came next and that needed to be heated to 41°C so they had a bizarre kind of coil heater machine to do it.

Foolish me should have gone to the bathroom at that moment because the blood transfusion was even slower. It crawled along and wasn’t finally over until 23:00, by which time I was bursting.

It meant that there was no chance whatever of me leaving the hospital today so I’m in for another night. And my neighbour is snoring like a pneumatic road-drill. It looks as if it’s going to be on of THOSE nights.

Monday 4th April 2016 – I WAS UP …

… quite early this morning and on the road almost straight away. I wanted to be at the hospital early and it’s a good job that I was because there were traffic queues and road works all over the place.

Once I’d found a good spec for Caliburn (there’s an outside car park that I needed to locate as the main car park has a 2-metre height limit), I went off on a route march to sign myself in. And that reminded me of the queue for registering a vehicle at Riom – I was ticket 259 and they were dealing with n°208.

But with 10 registration desks open (not like at Riom where there is just one) I was all done and dusted within 10 minutes and even had time to go to the café for breakfast. That worked out to be somewhat expensive for some bread and jam, but it would have been a lot cheaper had I realised that what I took to be orange juice was actually freshly-pressed mango.

I found the day hospital, and it’s nothing like Montlucon in that there were probably 100 people there. But I was pretty quickly whisked into a side ward and had a drain fitted. From there, I was shunted off into another room to wait for my blood.

But it’s not like Montlucon in another respect either. I hadn’t been in there long before someone from the Welfare Department came to see me. And never mind the interminable wrangle that we had at Montlucon (and is still going on) about payment – she was brandishing photocopies of my Insurers’ registration form and we filled it in on the spot. They are of course much more used to my situation here and are fully prepared.

We also discussed the situation about my accommodation for when I’m released. She went off and came back 20 minutes later with the news that I have been booked for two weeks into the “family guest-rooms” at the old hospital in the city centre. That’s pretty quick, I have to say. And it’s pretty good news too. All of which is compounded by the fact that the parking here at the hospital (€4:00 per day for inmates) is capped at €12 per week for long-term visitors, and they expect me to be undergoing treatment for … gulp … six months. And so this two-week “stay of execution” gives me time to think of a “Plan B”.

But treatment here wasn’t as straightforward as it might have been. They needed to do all kinds of tests and so on that hadn’t been carried out at Montlucon apparently, and by the time that they had finished everything and the blood had finally arrived, it was 15:30. For food, it was jam butties because, having caught them à la depourvu, there was nothing arranged for me, but at least there was a free coffee machine just around the corner.

By the time that my transfusions were over, it was 19:30 – far too late for chemotherapy and far too late for me to go anywhere else, and so they have found a bed here for me until Wednesday, and chemotherapy will start tomorrow morning. But I’ve missed the evening meal tonight because of all of this, and so I had … errr … jam butties for tea. However, I went down to Caliburn for my things, and profited by stuffing the suitcase full of goodies.

But damn and blast my neighbour. I’m having to share a room and of course, he snores. It’s been a long time since I’ve been still awake at 01:00. This is going to be a very long night.

Wednesday 16th March 2016 – HOW WE LAUGHED …

… when the nurse said something last night about it going to snow today. And so would you have done, given the glorious day we had yesterday.

But coming back from Montlucon, and passing through Villebret where you start to climb up into the Combrailles, I saw a few suspicious-looking white flakes being blown about in the sky. By the time I climbed up over the Font Nanaud and down the other side towards St Gervais, the sky was clear again but about half an hour after arriving back here, we got the lot. There’s now about 10mm of snow outside and it’s still falling.

Yes, and I have to go back (GRRRRR!) to Montlucon and the hospital tomorrow too. I arrived there nice and early but had to wait for almost three quarters of an hour before I was seen properly by the nurse. She examined where I’d been injected and where I’d been patched, and told me that there is some reaction so I need to return for further tests.

You don’t need me to tell you what I think of that.

But anyway, off up to the day hospital and the blood transfusion. My favourite nurse and my second-favourite student were there and once more there was a decent and convivial crowd in the room. We all had quite a laugh and a good time, which made us all feel better and helped the time pass by.

Lunch was the usual disgusting muck but at least it was something, I suppose. And although I was finished by 14:30 I told them that I wasn’t leaving until I had had my mid-afternoon coffee.

On the way back from Montlucon I got myself lost in the back streets trying to find the short cut to LIDL. I needed some of my vitamin B12 juice and some sparkling water, and I also bought a couple of big packets of crisps and some packets of sweets to nibble on while I’m driving to Leuven. And they sell 1-litre bottles of orange juice in there and they are just the thing to drink in the van while I’m driving but as usual, Bane of Britain forgot to buy any.

I was going to go back home for a couple of hours afterwards too but it was rather cold and that made me think for a moment, and then with the white stuff, I decided that being back in the warmth and off the road was a much better plan.

And here I am and there I’ll be in a moment – in bed. I’m not going for a walk tonight as I’ve walked far enough today (as well as going all around the hospital I had to go off to find the Records Department to pick up a copy of my file to take to Leuven).

And while I’m on the subject of files and records, I did ask the doctor there to prepare his file and records ready for me to pick up. And so I went to see his secretary and it will come as no surprise to you all to learn that he hasn’t done so. I told her “Friday at the latest” (well, actually vendredi au plus tard, but you get the idea).

So I hope that I have a more interesting and exciting sleep than I did last night. I was out like a light in a very deep sleep and the only recollection of what happened was what was on the dictaphone. And we were dealing with football issues yet again.

We were talking about the Controle Technique in football (well, exactly!) and one of the issues in this is that the player concerned has to take a penalty kick. Now it doesn’t matter whether the player scores or misses, or whether it’s saved by the keeper – it’s all down to whether the player is capable of kicking the ball in that situation. One player having his Controle Technique came out onto the field. He was wearing a red football shirt with his name on the back – a really long name that ended with Platini. He was preparing to take the kick but we noticed that underneath his shirt he was wearing a Father Christmas outfit complete with hood trimmed in white and with a white bobble – and his hood is up on his head. He runs in to take the penalty as soon as the whistle is blown, but almost immediately the whistle is blown again to stop the kick being taken, in order to order him to put his hood down so that the controller could see his head and face. And so he does, and then he runs in and takes the kick again. However the keeper is really quick off his line and manages to block the ball with his knees. The ball thus ricochets off his knees up into the air. Now the goal that they are using for this is actually an over-bridge, so it’s clearly the correct dimensions for a goal underneath it. The ball balloons up and over the bridge past the people who are crossing the bridge and then back down the other side and goes quite a way away. The man who has taken the penalty now needs another ball to do something different and so he climbs up the side of the cutting which this bridge crosses, and plucks another ball that was in a bush that was growing on the top of the cutting, so they can continue this Controle Technique.

After all of that, I was down here early yet again, breakfasted and off on the road at 07:30 with the coffee in my Tim Hortons thermal mug. The drive was pretty uneventful with no-one in my way and even though I stopped at the bank to add to the fighting fund, I was at the hospital for 08:20.

I spent most of the day dealing with my Canada 2014 voyage for the month of September. I’ve now arrived back on Nova Scotia (travelling backwards of course) but then I had to start from the other end at Montreal and reach as far as the Sorel – St Ignace ferry across the St Lawrence because there’s a gap in my notes. I know that they are there because I remember transcribing them and I’m sure that I’ve seen them, but they are probably out of order so I’ll need to find them – and the easiest way to find them is to start at the other and and file the stuff from there, and eventually I’ll come across them.

That’s a nice job for me tomorrow then, seeing as how I have to spend all blasted day in that perishing mausoleum.

Tuesday 15th March 2016 – I’VE BEEN OUT …

… for a walk after lunch this afternoon.

gorge de la sioule toureix sauret besserve puy de dome franceAnd quite right too, because it really was a beautiful day.

I took my time and slowly walked to the end of the lane and then up the main road for 400 metres or so to the turning to Toureix, enjoying the warm temperature of the sunny spring afternoon. From here, you can look down the hill to the turning to Le Fournial and further on over the Gorge de la Sioule.

And I learnt something new today too, which is always a good thing. There’s a huge steel mill about 10 miles from here, right out the other side of Les Ancizes in the countryside. It’s the most surprising thing to find in the countryside and I’ve always wondered why. And now I know the answer.

It turns out that when the built the Viaduc des Fades at the turn of the 20th Century, they correctly identified the potential of the water in the Gorge de la Sioule as a source for hydro-electric generation.

They weren’t wrong either. Today, there’s a big modern dam right across the valley but back in those days 100 years ago they installed a basic, simple hydro-electric turbine which produced its first electricity in 1917.

And then they discovered something important. The generator was a success but they had overlooked to find a market for the electricity. No-one around here had electricity in those days and the transmission of electrical energy was in its infancy and there was nothing like a National Grid to distribute the power.

And so if they couldn’t send the electricity out to clients, they needed to bring in a client from elsewhere. And hence the arrival of Duval’s.

As you know, I had an early night last night. It took me ages to drop off to sleep and once I’d gone off, I remembered almost nothing. I really must have been exhausted. There are just snippets of this and that on the dictaphone that don’t mean much, but then I suppose that after the marathon epics of the last couple of nights, you would welcome the rest.

We started off at the football again during one of my nocturnal rambles and strangely enough, when I awoke in the middle of the night I could name the entire Sheffield United starting line-up but in the time that it took me to reach for the dictaphone, the whole lot had disappeared completely. There was a small guy leading the attack and another small guy in the team and he had been whingeing at me about something or other that had actually started off this particular dream. And I couldn’t recall that either.
But not to worry. I was soon back to sleep, going off somewhere with Liz in her Volkswagen and all of a sudden she came over really, really ill and I had to help her back to the car. I called Terry and he appeared too, so we both helped her back. He was really upset and panicking abut how ill she was and being really nice to her, encouraging her back to the car even though she was in agony. Back home, I was making this salad with rice and chick peas, all kinds of things. I was having to boil up these ingredients separately to go into this rice and someone else was helping me. Liz was there supervising and giving directions. We had boiled up something for quite some time and stuck it in this salad but there was something else on the boil, which I thought was something quick and so I tipped that into the salad as well. It turned out to be dried chick peas so I asked Liz how long they needed to be cooked, as I imagined that it was quite some time. She said that they needed just 2 minutes, and so seeing as they had been on the boil for longer than that, that was OK. I then was curious to know why, if they only needed two minutes, we hadn’t cooked them with the rest of the food. All of this, by the way, was going on in the really cramped kitchen that we had in Davenport Avenue when we were kids.

That was basically it, I suppose. But then I was awake early and downstairs before the alarm went off. I’ve not done too much though because I’m still not in the mood for very much, but I’ve finished off all of the notes for 2015 and done the dictaphone notes for October 2014 and part of them for September 2014 too. But my heart wasn’t in it really – I could do with a change of scenery right now but I’m in no fit condition to do anything about it.

I’m on the move tomorrow anyway because I have the hospital. The allergy clinic followed by the blood transfusion service. Neither of these would have been necessary had the removal of my spleen done its job, but it’s no use crying over spilt milk now.

And so I suppose that I’d better have an early night.

And you can all have an early night too. Only 903 words tonight – I’m clearly losing my grip.

And quote of the week must be that from Terry, listening with only half an ear to the football on TV –
“Manchester City have SEX OFFENDERS in the team tonight???”
“No, Terry” I replied. “He said ‘six defenders'”.

Monday 14th March 2016 – WELL THAT’S ME TOTALLY P155ED OFF!

I had my blood test at the hospital this morning, and the blood count has gone down yet again to 8.1. And that’s despite having a blood transfusion the other day. The operation that I had to go through 6 or 7 weeks ago has clearly done no good whatever and I might just as well have saved myself the agony.

The thing that gets me though is that no-one in the hospital seems to care. Here they are, messing about with allergy tests for a different medication to deal with the immunity issues following the removal of the spleen, and on Friday I’m in hospital for a scan on my lung to see where this blood clot (the one in my lung that I picked up in hospital) has got to.

But as to my underlying illness and the causes of it, and any potential solution – not a word!

What made me even more depressed about all of this is that while I was sitting in the allergy clinic with all of these patches and injections and so on, I was editing all of the photos that I took in Montreal and sorting out all of the notes that relate thereto. And then I got to thinking about just how much I enjoyed the city and how much I felt at home there. And then I reached a conclusion.

And that is that seeing as how no-one cares, then I don’t either. if nothing definite comes out of my visit to Leuven next week and they can’t sort something out, then I’m on the next plane to Montreal. I’ll find a quiet room in a house somewhere around the Cote des Neiges, which really is my favourite part of Montreal, and let nature take its course.

I can’t go on like this. it’s nothing short of purgatory for me to have to go through all of what I’m going through and for no good purpose either. I may as well not be here and be somewhere else instead, whether in this world, the New World or even the next world.

What didn’t help matters very much was that I had another one of those comfortable, reassuring dreams where everything went according to plan, our hero got the girl and we both walked off together into the sunset and all of that – something that never ever happened to me in real life and how I wished that it had.

I was back playing in my rock group from the 1970s again and we were totally unrehearsed – we hadn’t played together for years and we were featuring in a venue somewhere. This was downstairs in a basement somewhere, rather like Enoch’s in Crewe used to be, and we weren’t even sure what numbers we were going to play, never mind how we were going to play them. This went on and we didn’t have all that much idea about what we were going to do. We spent so much time discussing and debating it that we weren’t actually getting anything done. There were quite a few of our friends there, including one particular girl whom I fancied and who I was trying to impress, who were coming to see us and so we HAD to be organised. Came the afternoon of the gig and we decided that we would have a rehearsal. I headed off towards the rehearsal room, carrying my bass guitar and there was some girl, whom I had seen vaguely back in the past but I hadn’t particularly noticed very much, came over to me and asked me if my guitar was a Gibson SG. I told her to count the strings, which she did, and agreed that there were just four of them. And so I told her that it was in fact a Gibson EB3. We started to talk about bass guitars and musical instruments, and she said that she had a mandolin with four strings on it. Of course – a mandolin – that brings back Lindisfarne and “Road to Kingdom Come” and “No Time to Lose”, all of that kind of thing. We ended up having quite a chat about this kind of thing, and she said that she could actually play some Lindisfarne music on the mandolin. It’s always been my ambition to play in a folk-rock group like Lindisfarne so I egged her on to go and fetch her mandolin,which she did and we had a brief jam session. After that, we wandered off together hand in hand. As I said earlier, this was another one of these comfortable situations and I wish that I could remember who she was, or even what she looked like – rather different from the Girl from Worleston the other night whose face is still vividly fixed in my mind. Anyway, off we went, hand in hand and there were a few people loitering in the vicinity who noticed the pair of us together like that and gave a little smile to each other. We walked to a rocky wall where there were a few seating areas set into it at various levels – just flat, grassy areas. I invited her to sit down with me but she said that she had other things to do and didn’t have the time. I continued to encourage her to sit down, she continued to be doubtful and it was at this moment that I woke up rather dramatically and shattered the illusion, much to my dismay.
After the usual crawl down the corridor I ended up at the football – Nantwich Town in fact. And while Nantwich Town might have a new ground, down on Kingsley Fields, this match wasn’t being played there. And neither was it being played on their old ground at Jackson Avenue either, but in the street in London Road right more-or-less outside Churche’s Mansions. I was watching the game, with about 4 or 5 others (huge crowds they have in Nantwich), a couple of girls and a couple of kids, having a kick-around with the balls.There was a really strong, swirling wind blowing that was creating havoc and on one occasion, much to my surprise, I actually caught the match ball one-handed, swerving around in the wind as it went out of play and that was really impressive. For the rest of it, the conditions were really difficult and catching the ball, even a simple catch, was really difficult if not impossible. We were actually watching this at the back of a river and the house rear yards backed right onto it. One small boy was climbing over the back wall and the wooden fence on top and lost his footing, sliding straight down into the river and emerging all covered in green slime. That certainly looked unhealthy! All of these houses had basements that were well below the level of the water but were somehow really dry. I wouldn’t have liked to have lived down in there, although there were people quite happily doing so. There were two teenage girls watching this football match and they lived in one of the houses. At half-time they went back to their house where the mother was cleaning the room of one of these girls, and one of the girsl asked the other what she would like for breakfast. The other replied that she would like one round of cheese on toast with half a packet of crisps and a coffee. I said “breakfast? It’s getting on for 10:30 and most of us had eaten breakfast long before this match kicked off”. But anyway, the first girl dragged a big metal wood-stove out from a corner into the middle of her little basement room ready to fill it and light it to make the toast and put the kettle on. They asked me what I would like to which I replied that I’d had my breakfast a long time ago, but I’ll have a cup of coffee with them. They next asked me what coffee I wanted and what mug I wanted and I thought that they weren’t half making life complicated when all that I wanted was a simple cup of coffee.

But anyway, enough of this. I was up early enough, breakfasted and on the road by 07:40. And what a beautiful morning it was too. I was in Montlucon at the hospital by 08:30 and in the comfy chair by the power point at 08:40 too.

I had the blood test, as I mentioned, and then had the drain fitted, and then injected and patched with all kinds of things. My companion from the other day was there too and we had quite a chat. And while I might have won the “mine’s bigger than yours” competition by having the largest lump on my arm, I felt really sorry for her with all of the tests that she was going through and the mess that they had made of her arm. In consolation, I let her have my mid-morning cake to cheer her up.

We had quite a few moments of humour too, including when one of the others asked if she could leave the room to use the bathroom.
“You’re supposed to raise your hand” I retorted.
“Just like school” said someone else.
At least, despite everything else, there’s a good feeling of cameraderie there in that clinic and the nurse is a really good sport too, which is good.

But the bad side of this is that I’ve had a few adverse reactions so I need to come in again. I explained my situation, all of my hospital appointments and my visit to Belgium and as a result, exceptionally, they can fit me in provisionally at 09:00 on Thursday.

I mentioned that at this rate I ought to be looking for an apartment here in the vicinity of the hospital and asked the young girl here with me whether she had a spare bed in her room. She said she did, but her mother wouldn’t like it. I asked “who cares about your mother?” which made everyone smile, but didn’t have the desired effect.

Not that I expected it to either, but there you go.

As for the blood test though, it’s on the limit of the blood transfusion level, but that’s not good enough for me. I’m off to Leuven next week – 800-odd kilometres by road – and I need to be on my best form for the journey. So what I’ve done is to change my little one-hour appointment back at the allergy clinic from tomorrow to Wednesday at 09:00 seeing as how there was a space, and then went up to the day-hospital and persuaded them to take me in straight afterwards for a blood transfusion. That way, then at least I’ll be in something-like reasonable health to undertake the journey. Coming back won’t be too much of a problem as I don’t have a time-limit for that so if I’m tiring out, I can take a good rest and carry on later.

But as I also said earlier, I’m thoroughly depressed by the way that all of this is panning out. I’m thoroughly hating the past, hating the present and hating the future too.

To cheer myself up, I went to Carrefour and the Flunch to have a plate of chips and vegetables but that was a waste of time as they were stone-cold. Liz had given me a little shopping list that involved going to Grande Frais and the Carrefour so I bought the necessary and looked for something else to cheer me up but there wan’t anything there that took my fancy. That’s always the case when you’re in the middle of a black depression – nothing will pull you out of the pit.

Back home – for only an hour as Liz wanted the shopping by 16:00 – I still couldn’t find my copy of Paint Shop Pro or anything else that I needed. But there was a little issue that the water in the home-made 12-volt immersion heater was off the temperature scale. I had to drain off 5 litres of the water and put 5 litres of cold water into it. I’ve also plugged the fridge into the main circuit so that it’ll now be working 24 hours per day. I’ll have to do something because with no-one there drawing any current, there’s tons of surplus electricity and it’s all dumped into the hot water.

Yes, 41 amps of surplus energy was being generated when I arrived and the cables to the immersion heater element were stone-cold – a far cry from 6 months ago when they overheated at half of that and I had to rewire everything. All of this, the temperature in the water and the amps that the cables are currently … "ohh! Very good!" – ed … handling just goes to show how much current was being lost by the rubbishy cables that I had been using. Decent cables, even half the diameter, properly crimped and soldered, is definitely the way to go and I wish that my soldering techniques would improve.

However, if things continue like this, my soldering techniques won’t be an issue.

I stopped for diesel on the way back and also to the pharmacie at Pionsat for the next lot of anti-biotic prescriptions (which wouldn’t have been necessary except for this spenectomie, and what a waste … "you’ve done that already" – ed … and then back to Liz and Terry’s.

After tea, which was a stir-fry with the stuff that I had bought earlier, I said “sod it!” and went to bed. I’ve had enough disappointments for one day. I’d already crashed out for half an hour on the sofa and it was beyond me to keep on going – not when I wasn’t in the mood to go on fighting.

Tomorrow is another day. Let’s see how we get on with that. Not any better, I bet.

I’ll leave you all to sit and read this rubbish – all 2322 words of it.

And serve you all right too!

Tuesday 8th March 2016 – FIRST EXCITING THING …

… to happen today was that my web-host’s server went down. And was down for about three hours in total and so you were all denied the pleasure of reading about my ramblings in the early part of the afternoon.

But that wasn’t what upset me the most about it. What did annoy me was that I had been actually using part of the blog from October, and when it all went down, my work came to a shuddering halt. As I mentioned the other day, the next part of the magnum opus which is the collating of the photos that I took in Canada last year with the relevant notes that I made on the dictaphone – that’s also coupled with the entries that I made on my blog so I needed to cut and paste the relevant sections out of there to correspond with whatever I dictated on the dictaphone. And of course, with the blog being down, that I could not do, and so that was that.

Second exciting thing was that the nurse remembered to come this morning. And as a result, I had my blood test. I’ve had the results too, which show that my blood count has now gone back up to 9.0. “Good news” you might be thinking, but it should be tempered with the fact that I’ve had a blood transfusion with two pochettes of blood in between this one and the last one. It’s going to be much more interesting to see what happens at the blood test next week and see where we have got to.

Third exciting thing was that Nerina came along to visit me again during the night, which certainly makes a change from members of my family. Regardless of anything that might (or might not) have happened in the early 90s, I would prefer her company any day to three or four of the others whom I’ve met recently while I’ve been out and about in the middle of the night.

But it was not she who made her appearance during the early part of the evening, but some others with whom I can well live without. I can’t remember what was happening here now with this first bit but I had nine somethings – was it nine stitches? Nine rows of stitches? But they had to be taken out and while this was going on I was surrounded by a load of people whom I knew – some of whom worked in the OUSA offices. But I do remember in my dream passing out long before we reached the end of what was going on there.
But after the trip down the corridor, the next part was a lot more coherent even if I couldn’t remember the beginning of it. I’d been out for a drive with Nerina, each of us in our own car. Both of them were markIII Cortinas – mine being a lovely pale-green late-model one but Nerina’s was an old 2.0 bronze-coloured one. But I was ill and having difficulty driving mine, having been told not to go too far in it, but that wasn’t likely to stop me. After a while, we came to a petrol station and I was feeling really uncomfortable by this time. Nerina suggested that we swap cars as hers was fitted with power-steering and so it would be easier for me to drive. And so we swapped. The fuel gauge in Nerina’s car wasn’t working so I reckoned that I had better fill it up to make sure that I had enough fuel to make it back home again. I told the girl in charge of the petrol pumps to “fill ‘er up”. But after a few seconds, the counter on the petrol pumps stopped working so she tried with the next one, and the same thing happened. And so on, and on. But anyway, it seemed that Nerina’s car was almost empty so I was filling it right to the top – as much as would go in it. Not that that annoyed me – what was annoying me was that the fuel read-outs on the pumps weren’t working. As you probably know, ever since I started with my taxis in 1979 I’ve always kept fuel records for the vehicles that I’ve used, and I still do so even today with Caliburn. I was telling the girl at the fuel pumps about this and she replied “don’t worry, sir, it’ll all be okay. We’ll work it out somehow”. I was wondering just how she was going to do this with all of this confusion about changing from pump to pump, how much fuel had gone into Nerina’s car and how much it was going to cost me. And then how was she going to prepare a receipt for me with all of the details that I needed to keep up with my records as I usually do. The delay was now starting to get on Nerina’s nerves, and she mentioned that I had only invited her out for half an hour and now I had her doing all of this (and it wouldn’t have been the first time that I had heard this complaint either). And I hadn’t even checked the water in the car yet.

But then downstairs, wait for the nurse, work on the web pages as much as I could, coffee and vegan banana muffins for break, baked beans on toast for lunch and home-made vegan lasagne for tea. I’ve told you before, … "and you’ll tell us again" – ed … if I ever recover from this illness that I have and am fit enough to go back home, I shall immediately find something else that might be wrong with me.

Much as I love my little house and miss it very much, I shall miss Liz’s home cooking even more.