Category Archives: Belgium

Tuesday 6th December 2022 – I WAS RIGHT …

… about the plasma transfusion. I was knocked out for a couple of hours afterwards. It took that much out of me.

What else I was right about concerning this plasma was that it did come up by messenger, it was a nurse who coupled it up and I didn’t see a soul at all from the Oncology department.

Instead, I listened to the dictaphone. I was getting married but because I was now a priest I could perform the marriage myself, which I did. There was also another couple behind me who was wanting to marry too so I took the ceremony involving me. Of course being my first ceremony it ran on and on. These people behind were extremely impatient. I made something of a mess of my ceremony as a result of which it over-ran. Then I had to marry these two people. It was difficult because I could hardly remember the words. There was a question of writing out the marriage certificate. My brother was in the middle of writing one out for someone but had left it. I had to take out the carbon paper and put carbon paper in for my marriage certificate because everything had to be done in order. The people behind were urging me to get on with my certificate. I started but it was a nightmare. I had everything wrong, I couldn’t remember where the phone box was where I’d first met my wife. It turned out that it was right outside my brother’s house and that would cause some embarrassment to someone, just generally speaking I was making a total mess of it. It was taking hours and these people were extremely impatient. They said something to me that they needed this certificate urgently. I could see that whatever reason they were giving was now completely ebbing away. I felt embarrassed but I had to do mine first even though it was a total mess. I hadn’t even begun to think about witnesses for the certificates and my wedding party had broken up a long time ago. This was all going to be an extreme embarrassment.

Later on I was holding a football training session last night. There were several kids there and several senior players from clubs like Manchester City, Liverpool and Birmingham City etc. We’d been playing there for most of the morning and it became lunch. I gathered everyone around me and said that I’d treat them all to lunch so I needed to collect their order. People were giving me orders for fish and chips and cans of drink. I was writing it down ready to go off with Caliburn to buy everything. One of the Liverpool players said that he would use the lunch break to practise his techniques about this and that and also try to commentate to see how a commentator would be. Of course all the ears of the young kids pricked up. They all decided that they’d stay too so that they’d have some experience with this Liverpool guy. Another senior professional said that he’d stop. The 2 Manchester City guys said that they’d go home and come back later but almost everyone there decided that they’d stop to see what this Liverpool guy could do for themselves in their lunch break. I had a feeling that this lunch break was going to run into a fortune but nevertheless I’d promised so I took everyone’s order for fish and chips or whatever and canned drink and made arrangements to go off to buy them

Who else I didn’t see was the priest who told me that he would be back to see me today, and although the doctor from yesterday came by to gloat earlier in the day, she didn’t “come back to see you later” as she said she would either.

Not of course that I’m worried. As I told Liz when we were chatting on the internet and as regular readers of this rubbish will recall, I’ve met their sort before and they don’t worry me in the slightest. It’s just one more raccoon skin on the wall, as the delightful saying goes, and the world will still turn round regardless of their best efforts to throw a spanner into my works.

What was much nicer – so much nicer in fact – was that the Iranian refugee who is nursing here and the student nurse who has featured regularly in these pages, both came to see me to say “goodbye”. We had quite a chat, much to the chagrin of the other patients on this side of the ward who were presumably waiting for attention, but they will just have to wait.

And so tomorrow I shall wake up slowly, go for a shower, change into my own clothes, throw my possessions into a red and white spotted handkerchief, attach it to a stick, throw it over my shoulder and set off to meet my fate.

One thing that I did say to the doctor was that as it’s 600 metres or so through the hospital to the bus stop, I’ll be organising a sweepstake among my friends around the world on the internet to see how far I get before I fall over.

And that reminds me. The physiotherapist from yesterday came to see me today to take me for a stagger down the corridor and a crawl back.

She was insisting that I have one of these two-wheeled, two legged perambulator things but I flatly refused. I walked in here and I’ll be walking out. I can’t see why my condition in this respect should have deteriorated so much while I’ve been in the care of the hospital and if it has, then that’s their problem rather than mine.

This led to quite an argument but I stood firm. I’m not walking in normally and going out like a handicapped person. It defies all logic.

She then asked me whether I would like to do some kind of cycling exercise. I replied “how would I know? I’m not the physiotherapist – you are” and that led to another argument.

Anyway, she brought in a kind-of bicycle thing that you can use while sitting on a chair. She set it up for 15 minutes in 1st gear and left me “to care for another patient”.

As she hadn’t come back by the time it stopped, I worked out how to configure it and set it off for another 15 minutes but in 8th gear. As if 1st gear is going to do me any good.

When she came back she took away the machine and disappeared without even checking the data on the computer screen. All of this therefore sounds pretty pointless to me.

What wasn’t pointless was the amount of sleep that I had last night. I must have fallen asleep quite quickly because I awoke with a start round about 23:15, presumably because of something on the Old-Time Radio.

So having switched off the computer I tried my best to go back to sleep and must have gone back to sleep because I awoke once more with a start at 06:00. And again at 06:30 when the alarm went off.

For some reason I was absolutely wasted and couldn’t move from my bed. But what surprised me was the silence. It was as if everyone had been beamed up by aliens and I was the only person left on the ward. However, eventually a clattering of bedpans from down the corridor brought me to my senses, such as they are.

But anyway I was unable to leave my bed before breakfast and consequently I was rather late making a start today.

Perhaps I ought to mention that there was a Welsh lesson today with it being Tuesday. I was dipping in and out as different people came to visit me but I made it through to the end although it could have passed off rather better.

We’ve discussed all the excitement today and that really is that I suppose. Things need to calm down now because tomorrow I’m on the road again, as I said earlier.

A good sleep will probably do me some good but it will all pale into insignificance if I can’t get out of the door.

What a state to be in, hey?

Monday 5th December 2022 – SO THAT’S THAT THEN.

On Wednesday I shall be out on my ear. Complete, presumably, with the dressing on my left shoulder but without the virus, without my mobility and without an answer to the dozens of questions that I have asked.

And without the possibility of going for this physiotherapy thing either. Apparently there are strict criteria about who is and isn’t permitted to go and I don’t fit.

So what are the possibilities of going home?

  • having an ambulance (actually a Voiture Sanitaire Legère) to take me to my door – at a cost of €3600
  • having an ambulance of the hospital deposit me anywhere I like within the borders of Belgium
  • being shown the door here and left to fend for myself

Quite obviously, the first option is out of the question. It’s an absurdity.

The second option is out of the question too. Being deposited at Quévy or Doornik where I don’t know anyone or anything, don’t know where the railway stations or the hotels are – those kinds of options are out of the question too.

And so n°3 it is. I’ll stagger to the bus stop if I can, take the bus to the railway station and then head for the Ibis Budget at the back of the station and plan my next move.

Of course, going home and arriving as quickly as possible is my goal and I can’t wait to to be in the comfort and safety of my own four walls. But if I have a fall I’ll find myself in the Casualty department. The hospital isn’t the only thing that can play at going round and round in circles and eventually disappearing up its own catheter.

The doctor took quite a delight in telling me this. You could see her trying to suppress a smile as she spoke. She actually said “although we know that you’re not in any fit state” to make my own way home, or something like that. You can imagine the guffaw that that brought forth.

The Social Services woman just sat in a corner trying to pretend that she wasn’t here so I took a great deal of delight trying to drag her into the chat, much to her dismay.

Of course you can imagine how this developed. I told her that if this had happened 40 years ago no-one would have believed it. But what would have been satire 40 years ago is now very much the norm these days and no-one bats an eyelid any more.

Half an hour after they had left, bang on cue, the priest turned up – the one who saw me a while ago. He asked how I was so I told him the situation. He was appalled as you probably are by the whole situation.

So seeing as I had his attention I rather bent his ear with my problems. I concluded my rant by saying that the Byzantine administration is totally divorced from reality. He described it as an administration disjoncté (we were talking in French) and that’s a phrase that I’ll remember for future use.

In the end he wandered away. Somehow I’d managed to beat him down. I don’t think that anything will actually come of this but as I have said before, “throw a lot of whatsit onto a wherever and some of it might stick”.

Actually, I’m rather lucky. Their plan was to heave me out tomorrow morning and then I’d have to come back in the afternoon for my appointment with the Oncology department. But they agreed to let me stay until Wednesday and the Oncology department will come to me on Tuesday.

In actual fact, what I bet will happen is that instead of coming to me, the oncology department will send a messenger with the plasma and a nurse will couple me up. No-one from the Oncology department will set foot in here.

That would be in accordance with usual practice from the departments involved in my (lack of) care.

On the good side though, once more my friends have rallied to the flag. I was chatting to Rosemary later on the ‘phone and she said “why don’t you come and stay with me? Get the train down here”.

This is on a par with Rachel’s offer to fly over from Canada to look after me. As I’ve said before, I don’t have many friends but those I have are the best in the world.

Unfortunately I had to decline Rosemary’s offer. If I’m going anywhere, I’m going home. I need to have my things around me, regroup my forces, and make plans for the future. if I’m going to stay at home and let nature take its course, I won’t be able to negotiate the long journey home from Rosemary’s whenever it becomes necessary,

Last night I needed to regroup my forces because I had something of a rough night. I went to sleep late but awoke at about 03:00 with the computer and the Old-Time Radio going and my headphones on. I switched everything off and tried my best to go back to sleep. But that wasn’t easy.

It was a very tired and exhausted me who dragged himself out of bed when the alarm went off at 06:30. I was playing about on the laptop when the student came to see me. She told me that my breakfast would be delayed as they needed a blood sample.

When she came back with all of the equipment she told me that she’d heard that there was a lot of trouble trying to find one of my veins and that they moved about quite a lot.

Nevertheless she crawled all over me inspecting my arms until she found something that she thought would do. “Be brave” I urged, so she dived in with her needle. It was the most painless that I have ever had and she cried “look, it works!” and I was so pleased for her.

When she’d finished I asked her how she’d managed to do it so well if it was so difficult and my veins moved around so much.

“Before I come to work” she said “I practise skipping with a rope to keep myself fit.”

She also tells me that she has a deep-sea diver’s licence and has been scuba-diving around the odd wreck or two. Here’s a girl who has a lot to say for herself.

Before she left she took my blood pressure etc. And after all of her mountaineering it’s hardly a surprise that half an hour later a qualified nurse came by to take my blood pressure again.

“Your blood pressure was rather high just now” she explained.

“Ohh really?” I asked. “I wonder why”

The rest of the day has passed between falling asleep and being shaken awake for something or other.

There was a new physiotherapist who took me down to the door at the end of the corridor. It was the usual stagger down there and a rather undignified stumble back here. It’s clear to almost everyone that never mind the 600 metres to the bus stop – I can’t even make 60 metres right now.

She had me doing a couple of exercises afterwards and I managed to tear a muscle in the side of my thigh. This bodes well for Wednesday, doesn’t it?

The doctor passed by during the morning too, presumably to soften me up for the meeting this afternoon. There are very strange things happening in this place, to be sure.

At some point I transcribed the dictaphone notes. I dreamt that all the nurses were trying to do something to me, pulling me about some on one side of the bed, some on the other so I couldn’t actually roll over into a comfortable way for them. I suddenly awoke and found that it was 02:15 and I still had the headphones on and the radio on the computer was still going. It was a programme about doctors and nurses coming to the bedside. I had something of an imaginary fight trying to deal with the skeleton of this situation before I realised what was going on and decided to go to sleep.

I’m not sure if I recorded this but somewhere during the night I dreamt that there was probably 20 people sleeping with me last night, all officers in different army regiments who had somehow come down to see where I was and what I was doing, and who I was doing it with, and ended up sleeping all around me. What I’d done was that I’d awoken early and switched everyone’s alarm clock around so that they would all be awoken at the wrong time, or each person would be awoken at the wrong time so that I could have a lie-in that particular morning

While I was asleep in the morning I was dreaming that I was Ali Baba. I was actually at an office and we were having a Christmas party. It was a fancy-dress parade and I’d bought everything for the people who worked for me, some little presents. When they’d all left after this party in this room that the office was throwing I changed into someone who was half-naked and climbed into some kind of silver sack kind of thing, a mesh sack, and went into the room where the party was taking place as Ali Baba in his laundry basket. I went to have a look and there were all kinds of stalls over at one end of the room with flowers and Christmas wreaths etc. There was some kind of stall selling DiY tools, all old kinds of stock that you’d typically find in a market stall including liquid easing oil at £2:99 a tin, like a reasonably-sized spam tin size. It was all quite interesting, this old stall selling these tools that were there. The strange thing was that no-one too any notice of me. I thought that my costume of Ali Baba was extremely ingenious but no-one made any kind of comment about it whatever. I was quite disappointed about that.

So right now I’m off to bed I’ve had enough for today and with the Oncology department becoming involved it’s going to be a tiring day.

And then there’s Wednesday and leaving here too. I’m not looking forward to that but even so, I need to be on form.

Sunday 4th December 2022 – I WAS RIGHT …

… yesterday when I said that Sunday would be pretty much the same as Saturday. But then, it was no surprise, was it.

One of the minor differences though was that when the doctor came to see me, I was in bed. I hadn’t had my morning wash yet.

She didn’t have anything new to tell me and I didn’t have anything new to tell her. However I did have a lot to say for myself (as you might expect) which was cut short by her saying “Mr Hall, we’re just going round in circles”.

As indeed we are but until she (or anyone else for that matter) answers the questions that I raise, what did she expect?

Anyway she cleared off mid-discussion and I’m sure that you never expected anything else.

They are still intent on expelling me, even though my blood count, that rose from 6.6 to 8.8 after the blood transfusion the other day, had fallen to 8.5 by Friday.

For the benefit of new readers, the accepted blood count for a healthy individual is between 13.0 and 15.0. The lower the blood count, the faster my heart must beat to convey the necessary oxygen to the various parts of the body. The critical limit is 8.0 by the way.

And as is pretty evident, my heart can’t keep on beating at this rate for ever. Vous avez le coeur du champion – “you have a champion’s heart” said a doctor at the beginning of all this back in 2015 and it’s only that which has kept me going. If it begins to fail, then I will have real problems.

And so now you know why I’m so concerned when my heart and my breathing start to show signs of breaking down, and why I’m on the warpath when they seem to be ignoring my concerns.

There were a few concerns about the events of the night.

The computer and Old-Time radio was still running at 23:15 so I switched it off and tried to go to sleep. I was still awake at 02:00, having spent some of the time surfing the internet on the mobile phone because I couldn’t go off to sleep. It’s really hard to sleep, light sleeper or not, when nurses and patrolling doctors have meetings right outside your open door.

Something else was that I allowed my imagination to run off on its own for a while and that will be important later.

I was having a really bad night. I was awoken at about 05:15 by a nurse who asked something like “where did I get something or other?”. I really can’t remember anything about it but I remembered what it was that she wanted to know but I’d forgotten now but I can remember when she said it what it was.

I was also at one time thinking or talking to a girl whom I knew from school and asking her next time why doesn’t she wear a skirt instead of jeans or trousers?. But where that came in I don’t know. I’d actually been thinking a lot about her before I’d gone to sleep while I was tossing and turning, as I mentioned earlier, so that was possibly something to do with it too

There was also something more than this too but if you’re eating your tea right now you don’t want to know about it.

After all of that I didn’t go back to sleep. When the alarm went off I made it to the bathroom, weighed myself on my return (I’m still below my upper target weight) and settled down with my laptop.

“You’re starting early” said the doctor who came in at that point. And I don’t think that she was prepared for the torrent that that comment unleashed.

Breakfast was late again and from then on the day just drifted. Much of it was spent either being asleep or shaken awake, which is no surprise after the catastrophe of last night.

Later in the afternoon Rosemary rang me for a nice chat and I had a lovely internet chat with Liz, although I think that I took her by surprise.

What must have been an even bigger surprise was my niece Rachel. She’s appalled, really appalled, by what’s happening and she asked me whether she should come over from Canada to look after me. And that’s the nicest thing that anyone has said to me for quite a while.

Of course I declined. I can’t drag someone a quarter of the way around the world. I’m pretty sure that as long as I manage to make it home I can manage to look after myself with a bit of help from the neighbours.

But right now I’m going to look after myself in bed. There’s a meeting about me tomorrow, to which I’m not invited of course, when they will discuss my future. I bet that they’ll vote to expel me on Tuesday morning.

And seeing as I have an appointment at the Haematology Department on Tuesday afternoon, will I have to come back for the appointment or will they simply cancel it?

We are living in interesting times.

Saturday 3rd December 2022 – IT’S THE WEEKEND …

… and so it’s been quite quiet in here yet again.

There was a brief visit from a cardiologist though but she didn’t even give me time to sit down. She did come into my room and bellow my name while I was shaving and as a result I have a cut upper lip.

When I did come out, she pounced on me before I’d even had time to sit on the edge of the bed. She gave me the usual platitudes so I sent her packing with a flea in her ear by giving her my usual spiel about what I reckon is going to happen on Tuesday next week.

As Hawkwind once said, YOUR ONLY REAL PROTECTION IS FLIGHT and she adhered to Michael Moorcock’s counsels.

That’s really about all of the excitement today, although one of the nurses – and not a student nurse either – seems to be starting to become a little over-familiar. As if I don’t have enough on my plate.

Last night though was another strange night. I went to bed late as you might expect, and couldn’t go to sleep for quite a while. I’d turned off the computer (and the Old-Time Radio) at some point but still didn’t go off to sleep. I was left hanging on for quite a while.

At some point I must have fallen asleep because the alarm awoke me at 06:30. And so I had a listen to the dictaphone. I awoke 3 or 4 times and saw someone’s father kicking an animal. It might have been a beaver or something each time that I awoke. It was so real that I almost called someone to make a note of it because it really seemed as if that was what he was doing each time I awoke around 01:45.

After breakfast (which was rather late today) a nurse turfed me out of bed so that she could change my bedding. I cleared off for a wash and that was when I had my encounter with the doctor from Cardiology.

On several occasions I fell asleep – and deep sleeps too – only to be awoken by various nurses for various treatments and on one occasion for lunch.

And we’re back on the old soya burgers that I don’t like again. That was a shame after the nice burgers that we had had yesterday.

Apart from a chat with Liz today, nothing else has happened, except this over-familiar nurse. It’s been as boring this afternoon as boring can be.

Tomorrow will be the same too, I reckon, so I need to have a good sleep to prepare me for the effort that I’ll need to make o keep awake.

It’s all go, isn’t it?

Friday 2nd December 2022 – THE SOCIAL SERVICES …

… lady came to see me this afternoon, with a student trailing along behind her.

“Is it Thursday already” I asked innocently. Nothing like knocking them out of their stride. But then again, if they say that they’ll see me on Thursday then what do they expect?

Their plan apparently is that they can send me home in an ambulance and my health insurance would pay 80% of the costs.

“So what has happened about this physiotherapy at Pellemberg?”

“Ohh that’s another department looking into that”.

In other words we have a couple of different departments looking into different things and consequently working against, if not competing against, each other. I shall have to scotch this straight away before it’s gone too far.

But the idea that I’m too ill to go home under my own steam so they have to send me home in an ambulance is a horrendous idea. What happens next when I have to fend for myself with no after-care?

If anything signifies the beginning of the end then this is it, isn’t it? If I need an ambulance to go home, how on earth am I supposed to be well enough to come back?

And come back I have to as well. Not only do I have an appointment on 6th December, there are several more on 2nd January and then another on 13th March.

As I expected, the story about my breathing issues is going to run and run. And as I don’t have much longer to live, I may as well not bother. I told the Social Services person that I may as well stay at home and let nature run its course.

We talked about euthanasia but I don’t think that she took me seriously. But as for me, I’m in … errr … deadly earnest.

Especially after last night. Having gone to sleep at something like 22:00 I was awake again at 23:15 complete with headphones, listening to the radio. I switched everything off and lay there trying to sleep for several hours, watching the clock go round and round.

Eventually after several hours I must have fallen asleep because the alarm went off at 06:30 and awoke me. And having slowly come to my senses (which takes much longer these days than it ought given the amount of senses that I don’t have these days) I prepared to face the day.

There was some stuff on the dictaphone. I just dreamt that the whole floor here had been whitewashed even when I awoke and wanted to go to the bathroom I still didn’t leave my bed for a good few minutes thinking that it had been whitewashed and someone would come in very shortly and give me some instructions. It took me a whole 5 minutes to be able to pluck up whatever was necessary in order to put my feet on the floor and to find out that it was still the same old floor that it had been the last time I’d got up to go to the bathroom.

It really was quite amazing.

Nothing much happened for a while and eventually I fell asleep again. I was however shaken awake on a couple of occasions, most noticeably by someone who wanted to take me to an echography.

No schoolgirl around this time but I had a nice long wait in the cold and draughty corridor until I was seen. And then some technician poured all over me with the machine thing.

When she let me go I had another wait until someone came to fetch me. Back here my lunchtime meal was already served up. We had different Quornburgers for lunch and they were quite appetising.

The nurses came along shortly afterwards and they gave me an infusion of antibiotics. And immediately afterwards the Social Services people turned up.

So here they are, talking about releasing me from hospital with one hand and giving me an intravenous drip with the other hand. What on earth is really going on with all of this?

Later on in the evening there was football. Pontypridd v Cardiff Metropolitan.

Cardiff played some really nice football but lacked a cutting edge up front as they have done for the last couple of seasons. Pontypridd, second from bottom, played like it and offered even less but nevertheless it really did look as if anyone was going to score it would be a Pontyridd breakaway against the run of play.

However, a hopeful, aimless cross from the Met into the Pontypridd penalty area and a wild slash from a defender took it out of the hands of the Ponty keeper and that, dear reader, was that.

The match was rather like how I feel like now. A desperate rearguard action combined with a few moments of brilliance, only to be brought down by something completely out of my control.

So what do I do now? A taxi back home is not the answer but if it’s the only game in town I’m not sure what is.

Thursday 1st December 2022 – I’M JUST BEGINNING …

… my sixth week in hospital, following an infection that laid most Canadians low for just three or four days.

I’ve had half a litre of fluid drained from my heart, I’ve had pneumonia of the lungs, I’m riddled with infection, I can’t use my left arm since the operation in my chest and since they put a catheter in the back of my hand and I need re-education on my lower limbs because I’ve lost the ability to walk and my balance is all over the place.

Every few hours I have antibiotics pumped into me and ointment smeared into my eyes. That latter, incidentally, explains all of the typos.

All I can say is that it’s a good job I didn’t catch Covid in Canada, isn’t it? I’d have been pushing up the daisies a long time before this.

Today should have been the day when the Social Services person should have been to see me to tell me how they are going to deal with my expulsion. All that I can say is that she’ll have to get a move on because it’s quite late.

In fact the only “official” whom I’ve seen today has been the record-breaking house doctor whom I saw yesterday. And if her visit was record-breaking yesterday, today’s smashed it into pieces. I don’t know how long it was because I forgot to switch off the stopwatch. And she wasn’t dragged away by a ‘phone call either.

She did however tell me that they were planning to carry out some kind of echography examination on my heart on due course. Knowing her record-keeping, this was probably the one that I had the other day when that schoolgirl helped out.

Last night I was awake at 00:45. I’ve no idea what disturbed me but it was probably some of the usual clatter. I was having a really interesting dream too and I managed to dictate it. We were making a film in Germany last night. It involved a little girl riding a bike. I was somehow involved in this scene waiting at a road junction. The girl kept on interrupting the editing by wanting less and less of me and more and more of her. In the end we decided that we’d just photograph again from a different perspective with me 90° on to the action and just simply watch her go past on her bicycle. This was what we began to do. She set off on her bicycle, heading straight on up this hill. I was parked at a side road where the traffic lights were against me knowing full well that I’d never be in this shot. There was an agricultural tractor pulling a huge trailer, the kind in which they put green silage and there was something else with it, coming up to this road junction. I thought that this is never ever going to stop. Just as it reached the road junction 2 gunshots fired out, presumably aimed at this tractor. We had an absolutely perfect film of this girl being hit twice in the open mouth with the bullets that had gone across almost as if they had been fired from my shoulder but must have been fired from behind me at some point, really high velocity, and she’d cycled past with her mouth open taking breath and they had gone through the open mouth and out through the cheek wall. There were these two bullet holes. She staggered into the room where we all were with the camera equipment etc. You could clearly see the gunshot in her mouth and one of them actually embedded in the wall behind her (we were actually doing some green-screening with all of this) but a bullet had gone and embedded itself in the wall behind her. She’d been hit twice in the mouth. I was absolutely bent on putting this scene in the film because you would never ever in your whole life have an incident like that unfold in front of you – one of your actors doing something banal like that and end up being shot twice. The fact that she was still on her feet walking was a miracle in itself. One part of me felt absolutely horrible that I’d been left out of a scene in a film but another part of me felt that this was a magnificent moment for something in this film to develop. You can imagine how my emotions were being torn. I knew full well that they would have her and this gunshot into this film somehow even if it meant that I’d be edited out. I’d just put it down to a fact of life.

Later on I was commentating on a Wales football game, an International. Wales were losing. I was busy talking about an injury that was taking place down on the left-hand touchline but making a few references to the game as a whole.

Come 03:00 and I was still awake, what with all of the noise going on, but I must have gone off back to sleep at some point because the alarm awoke me at 06:30.

Round about 09:15 the physiotherapist came round. He awoke me and I didn’t need telling what the score was. I was up and half-way down the corridor before I was even properly awake. He’s certainly had a rocket judging by how keep he was to get me going.

As usual, it was an agonising walk down to the end of the corridor and then coming back was the usual hell. I’m not sure how I managed it but I did.

He also had me doing a few more exercises before he cleared off at the end of his half-hour or so.

There has been bad news too. My little first-year student told me that this is her last week on the ward. She’s back in Nursing School next week. I told her that she will be sorely missed – especially by me if not by anyone else. As a little “goodbye” I let her couple me up to the liquid antibiotics and uncouple me afterwards.

One thing that I told her that the injection of the cleaner into the catheter is done depending on how well you like the patient. If you don’t like him or her you give the shot all at once with a violent shove to sent a freezing cold wave of liquid swarming through the body. If you like them, you do it gently, smoothly and slowly.

And as a result, she was gentleness itself. I’m glad that I’ve been able to help her and talk to her about her work from a patient’s point of view to give her a better understanding of what her job involves. That’s something that is often overlooked

That’s really everything. I’ve had a little chat with Liz too and that, exciting in itself, is just about as exciting as it was today. Nothing else of any importance happened.

Tomorrow is the last day of the week so I’m interested to see how things unfold. If they really are kicking me out on Tuesday they only have 2 working days and there’s a lot to fit in.

Wednesday 30th November 2022 – I MIGHT JUST HAVE …

… solved the problem of doctors wandering off on phantom ‘phone calls just as I start laying into them

During the day today I’ve had no fewer than three “official” visits from various doctors and specialists. And each time that they have set foot in here I have gone on the offensive.

And believe me. If it’s “offensive” you want, then in the words of the late, great Bob Doney, “I’m your man”.

What I’ve done is to set the stopwatch on my ‘phone to start. And then I explained to the doctor or specialist concerned that my world-wide friends on the internet and I are having a sweepstake to see how long the interview lasts before there’s a ‘phone call.

And surprise! Surprise! The interviews have played out to a conclusion without a single ‘phone call.

Of course, tomorrow is another day. And today might have been a pure coincidence. Nevertheless it was still rather hilarious.

More of that anon. Last night I was asleep by 22:00 or thereabouts and wide-awake by 00:45. I’d been on my travels too during this little window. I was at a Spacerock festival. There was a lot of time between the groups. They had nothing whatever arranged so I fetched my CD and tape deck from home from my old hi-fi unit where I had a CD unit, a triple tape deck etc. I brought it down and wired it into the PA of the band and blasted out all my Hawkwind records. I was there with a girlfriend of mine, it might have been Percy Penguin, I dunno, but it was someone who knew nothing about it. She was giving me all the help she could. Quite a lot of the fans were disappointed with the quality and output but the DJ in charge explained that this was the best we had. It was all Hawkwind and this was what they wanted to hear if only they would hear it. One of the groups suggested another way to broadcast instead of using *.mp3 off the tapes etc. I knew that that would take a lot of work but the punters were in no mood to wait for me to configure anything. I just had to continue blasting out CD after CD and tape after tape. The guy from one of the groups said “go on! You have a chance to make music history here. You’ll be famous for ever if you do it”. I was sitting there thinking “I’ll be more likely lynched if I don’t”. I had really no option but to carry on with this because at least something was working and some music was going out and calming the fans. I didn’t know what to do. All I knew was that if I kept on doing what I knew what to do then at least something would work. This girl was helping me bringing the CDs, helping me plug in decks to the PA etc. I felt really sorry for her because she had nothing whatever to do with this. Neither had I, yet here we were.

There was a guy who had the care of two children, girls aged about 7 and 11. I was bringing them up in some kind of environment where there were a great many other people who didn’t like or appreciate the way in which he was bringing up these two girls. However it was clear to most people that he was doing his best considering he’d never been parenting before he’d had these two girls dropped upon him. It was a slow battle of trying to win the other people round to his way of thinking while at the same time trying to be fair with these girls, in particular the older one. He had to give her some lessons in basic subjects like Maths, Geography etc. It was clear that he was completely out of his depth. He was doing his very best as far as he could to make sure that in particular the older one had some kind of education. There was much more to it than this but I can’t remember – a whole lot more than I’ve described.

This morning started off with the blood pressure tests and the like. And my blood pressure was surprisingly high.

So much so that the Senior Ward Nurse came to see me a short while later.

“We need to redo the blood pressure test” she said. “It seems to be unusually high.”

Actually, I didn’t like to tell her that the cute little student nurse is back on duty and she had already taken it this morning.

And it’s a good job that the Senior Ward Nurse came to redo the blood pressure test BEFORE the cute little student nurse came back to climb all over me to change my dressing from Sunday.

It was quite interesting watching her do it in a textbook fashion rather than in the ad-hoc way in which the trained nurses do it. I had to help her through one or two procedures and to remind her of things that she’d forgotten. But she IS cute.

Not long after I’d gone back to sleep I had the physiotherapist round. I was right about the rocket that he must have had inserted into his nether regions because he had me out of bed and setting off for a stroll down the corridor before I was even properly awake.

It was a rather aimless shambles of a scramble down the 20 metres of corridor to the doors at the end that we only just about managed, and the trip back was even more exciting.

He kept on asking me “are you okay?” and “would you like to sit down?” every couple of paces and believe me, I was ready to slosh him before we’d gone five metres

The first of the official visitors was a guy from cardiology – or was he from the pneumonology? – department. He spent a great deal of time running over the history of my case and then told me that they had a few tests lined up for me – a couple of weeks after I’ve been expelled.

Of course I asked if these were tests that I’ve already undergone on my two or three previous visits to his department, but he replied that he didn’t know. He thought that they might be new ones so I asked him why they hadn’t been undertaken when I was there on one of my previous visits.

It goes without saying that his response was that he wasn’t there at the time and wasn’t involved in the decision-making back then. I asked him if he realised just how much of a cop-out that sounded and would he really be satisfied with such a weak excuse?

At least he stayed to the end of the interview and cleared off in his own time without a phone call.

Next up was someone from the physiotherapy department. He asked about my mobility so I told him to consult his own department and in particular the guy who comes to see me every working day.

He replied that he had done so but wanted my own opinion. I told him that I was struggling to go 20 metres but the hospital wanted me to go 700 kms at the beginning of the week. I reckoned that I would be in the Casualty department long before I was at the bus stop.

After much discussion and debate he asked me whether I would be interested in going to the clinic out at Pellemberg for an intensive course in therapy – a couple of weeks of two hours in the morning and two hours in the afternoon.

As regular readers of this rubbish will recall, I’ve been to physiotherapy in Granville for almost a year – one hour per week for about 30 or 40 weeks. What they are offering me is 40 hours of intense therapy in two weeks that is going to be tailored much more to my individual needs.

There needs to be a place to come free of course but having thought about the matter during the discussion I decided that if the opportunity presented itself I would accept it.

It won’t do anything to ease the trapped nerve but I may be able to climb steps and to pick myself up if I fall over.

The third official to visit me was the house doctor who seemed to be several weeks behind the time and hadn’t updated her notes. She hadn’t, for example, noticed that I’d been in the Stargate thing or that I have a trapped nerve and a couple of slipped discs.

It seemed to me that she realised it too because her visit to me, without a ‘phone call to disrupt it, lasted all of 4 minutes and 57 seconds and that was that.

The rest of the day has been dealt with being fed medication by various nurses. And Rosemary telephoned me too. Just a short conversation too – only one hour and seventeen minutes today.

There hasn’t been much else of any interest but that was enough to keep me going for a day.

Mind you, if this re-education thing comes off, it might be well worth a go. It will put on hold many other plans that I have but I think that this might be an opportunity too good to turn down.

We’ll have to see how things unfold.

Tuesday 29th November 2022 – IT LOOKS AS IF …

… I’ll be out on my ear next week.

Not actually out of the hospital though, but out of my bed and out of my room. But as anyone who has been here will tell you, it’s a long walk from the door of this room to the bus stop at the end of the hospital premises and there are opportunities for anything to happen along the way.

Someone from Social Services came to see me this afternoon to give me the “bad” news but before I tell you about that, let me tell you about my strange encounter with someone from some kind of service that may have been Cardiology.

He was the one who gave me the hint that my time in here is drawing to a close. He told me that they will be arranging “a whole collection of appointments” to deal with the issue, presumably of my breathing, but “at some point in the future” after I’ve “been discharged”.

Discharged? It looks more like I’m being expelled, I reckon.

He also told me the bad news that although there’s a trapped nerve and two slipped discs (that are trapping the nerve) in my back, it’s a high-risk operation. Therefore, nothing can be done.

Consequently I asked him if he was REALLY going to send me home uncured and whether he was REALLY expecting me to come back uncured at some point or other for a series of examinations that could easily have been performed while I’ve been here?

And before he could say anything about viruses, I mentioned that the virus and I had gone together, without any ill-effects by the looks of things, down to the operating theatre the other day and I wondered what Excuse n°2 on the cheat sheet might be.

At that point, in case you hadn’t guessed it, his telephone mysteriously began to ring. “Give me a minute” he said, went outside the room and that was that.

A couple of hours later I saw him nonchalantly strolling down the corridor in the company of couple of other doctors, rounds finished, on the way towards the lifts, home and tea.

Nothing like putting the patients in their place. It was downright insulting.

In between my two sightings of the doctor I had a visit from the Social worker as I mentioned above.

Apparently there had been a meeting between the medical staff and Social Services about what to do with me. She asked me what I thought and I told her that as far as I was concerned it wasn’t a matter for me at all.

She asked me what I intended to do, to which I replied that my immediate preoccupation would be to make it as far as the bus stop. She expressed an interest in my walking state so I told her to ask the physiotherapist.

He’d been past this morning and after a couple of exercises we’d set off for the end of the corridor. He had to help me down to the end and the trip back to my room was … errr … somewhat “interesting”.

She told me that she’d seen the physiotherapist, which makes the plot sicken even more, and so I told her that she has had her answer.

Reading between the lines, it looks as if the physiotherapist will be visiting me more often and the flogging will continue – either his or if necessary, mine – until my mobility improves.

Anyway, back to the plot.

She wanted to know whether I fancied Brussels or Leuven. I told her that Brussels was right out of the question under any circumstances.

She asked me about my previous history in Leuven. I told her about Sint Pieter and Pellemberg and that strange hostel, and then when they put me onto three-monthly visits I headed off in search of the apartment of my dreams.

Shortening the time between visits became a major inconvenience but I had no intention whatever of abandoning my little corner of Paradise.

She made a point of saying that my choice of hospital and my subsequent choice of accommodation was a free choice, all of my own and I had to accept the consequences. I replied that I was quite happy with my choices and had no intention of changing it. If necessary I was quite prepared to go home, stay there and let nature run its course.

That rather shook her and so I told her that as far as I was concerned that was the end of the discussion, particularly after I’d described the antics of the doctors over the last couple of days or so, but she said that she had no intention of leaving until she’d had her say

Ohhh! For a few doctors like that!

The discussion went round and round in circles. She wanted me to stay in a hotel but not even she could afford the €55 per night – €1700 per month – to stay in the Ibis Budget.

She mentioned a few other suggestions that might have been slightly less expensive and ended with me eventually making the suggestion that I would abandon all forms of medical care and stay at home until the end. That certainly brought the conversation to an end apart from the odd bit of discussion here and there.

She told me that there would be a further meeting and that she’s see me again in a couple of days with further news.

It might not sound much like it but it was rather an acrimonious meeting. If they know how difficult it is for me to walk the 10 or so yards down to the end of the corridor, heaving me out to go 700 kms home is bad enough but then expecting me to come back in a week or two is an absurdity when they have had me here for five weeks.

During the night last night we’d had another wrestling bout with a nurse trying to find my hand under the bedclothes to plug in my antibiotics. She awoke me of course so I told her that for obvious reasons it’s much better to awaken me before doing anything like reaching for my hand.

Nevertheless she had another go at hunting for my arm to uncouple me while I was asleep instead. That’s a recipe for disaster, for obvious reasons.

So apart from the odd falling asleep and being awoken by nurses and having the odd official visit from the physiotherapist etc as stated, the day drifted off into rather more of the usual – or should I say “habitual” way in which things have been developing just recently.

There was plenty of stuff on the dictaphone from during the night. I was having a dream, I don’t know what about but it was something to do with the radio. Someone taking part in this dream disagreed with something or other and so set out to prove that they started up with a song. Someone brought round a piece of paper with all of the options for this song on it but only half were there. I said that they would have to reduce the font size then everything could fit on one piece of paper. In the meantime this song that we were supposed to be singing was playing away in the background. Suddenly I realised that I’d been asleep with the radio on and it was an episode of the Old Time Radio and the song was actually in the radio programme to which I was listening while I was asleep and it had awoken me

This next one is a story about a group of preteen girls in wheelchairs going to a big football match in Glasgow. I can’t remember whether it was a Rangers or a Scotland match. All at different times they had to go to the ladies’. The only ladies’ was somewhere on a roundabout somewhere outside the stadium. The last 100 yards to reach it was extremely difficult for people in a wheelchair. They had to be carried. There was one girl whose mother didn’t think that it was bad at all but the mother was afraid of mice. When the girl reached this final 100 yards where her mother was going to refuse to carry her she pointed out a mouse to her mother, which made her scream. That brought someone else along. There was also someone else there whose guardian thought that it wasn’t really rough. They had to persuade the guardian to carry the person. A third person found a Rangers scarf in the bottom of a bag while she was in the ladies’. There was a fourth girl there who when she finally reached the ladies’ there was an old guy there listening to the radio in Welsh. She asked what was happening. he said that no matter who you are and where you are and who you follow your first duty lies with your home town team. It was Penrhyncoch on the radio to which he was listening. Ever since then she became a lifetime fan of Penrhyncoch in the Welsh pyramid. It was all about these preteen girls in wheelchairs at this Scotland or Rangers match having to be carried down that last 100 yards to the ladies’ because the path was supposed to be too rough for wheelchairs.

And finally I was back in school. There was something going on about the local newspaper. It was having some kind of something where people talked about the connections that their family had with different areas in the distant past. The newspaper marked it up on a blackboard and the idea was that all people from school would be able to interchange different stories about different areas and hope that it would bring to light a lot more answers and information than it has done. I was looking at the blackboard, which they were constantly changing, and I could see some interesting things coming up about the Wem area. I was beginning to wonder whether there was some information coming up that might be of interest to me when we seemed to skip a few pages when we were talking about my particular family history going back several generations. It was all dark, as if my eyes were permanently closed but I could hear everyone talking “they are disgusting people” and events about which I know nothing. I wished that I was able to take notes. This story drifted again into people from the USA being present and my brother talking to them as if they were long-lost family. They were discussing apples and how as kids they would all eat them together. Then people began to take their leave but I realised that one American boy was staying behind so I thought that I’d go over to talk to him but for some reason my brother, even though he was trying to leave, wouldn’t leave the guy alone. It was impossible for me to actually manage to talk to him even though I couldn’t see him now and I was somewhere in Chester near the river. I could feel that the river was in the vicinity right below. I could see a few things, I could see the guy but he was talking to my brother. This conversation was never-ending. I thought that I would never ever have a chance to talk to the American guy even though he seems to be staying behind and everyone is leaving. Quite simply my brother didn’t seem to want to leave even though he was saying goodbye all the time. That meant that I couldn’t manage to talk to the guy.

And then there was the Welsh lesson. I wasn’t disturbed too much and so apart from the odd interruption here and there, I saw it out from start to finish and that was much more like it compared to last week’s disaster

But not for long. If they are heaving me out net week I need to work on how I’m going to get down the corridor without help.

Monday 28th November 2022 – I’VE HAD A FEW …

…lovely interactions with some friends today, and isn’t that nice?

Ingrid phoned me this afternoon and we had a lovely chat that went on for about an hour or so where we discussed our problems. And “our” problems too because Ingrid has several of her own that at time make mine pale into insignificance.

And not just Ingrid either. Lots of other people have a lot more problems than I have right now and I do ought to stop moaning about them.

None of the foregoing stopped me bending Alison’s ear when she put in an appearance a little later. She came to see me later in the day too and we had an interesting chat as well. There’s quite a lot going on right now what with one thing and another.

But she’d been on a mission to Germany last week and she brought me another pile of vegan chocolate. That should keep me going for quite a while and I’m grateful.

Liz had messaged me at one point or another during the early evening so we had a lengthy chat as well and discussed a few of the issues that are arising out of my stay in here and which are of considerable interest following my visit to the operating theatre with my virus on Sunday morning.

It was nice to discuss them with several sympathetic ears and I appreciate their patience and forbearance.

Someone else whose ear was much less sympathetic but who nevertheless had to listen to my spiel without much of an option was the doctor who’s on patrol in this ward this week.

She got the “what’s next on the list of excuses?” speech and her answer was to fob me off with the thing about “you need to speak to the doctor concerned” to which my reply was a rather curt “if they don’t ever come to see me, how can I speak to them?”.

Once again, there was no answer to that – not that I was expecting any.

So last night having been to bed at some ridiculous time, I was awake this morning at 04:28. And having had a trip across the room to the bathroom I just lay there counting the minutes until the alarm went off at 06:30.

There was some stuff on the dictaphone from the night. There was a group of ballerinas who came into the room where I was lying and began to do their exercises. One did a big kick and ended up straddling the rail on the wall. She was stuck there for quite some time. I said that if she wasn’t very happy about where she is and what she’s done, then as far as I’m concerned she can come to where I am and do that any day of the week and I’d be more than happy to see it. That was the first intimation that she’d had of the fact that there was someone present in this room and she and her colleagues were all embarrassed and went off to fetch the shoe if this dancer while I talked to her. It turned out that I was living in the north of England in a home. I went to these events with my half-litre of hot water or tea or coffee etc. For some reason that disturbed her quite a lot. She vowed that she wouldn’t work anywhere at all beyond the mayor’s office in any particular town.

The highlight of the morning was the visit of the doctor. She was the only member of the medical staff (apart from the nurses of course) who came to see me throughout the whole day. Had it not been for Liz, Alison and Ingrid, it would have been an awful day.

Compounded by the fact that my two little students and my Iranian refugee are now working elsewhere on this floor. I seem to have been entrusted into the care of a retired Bulgarian weightlifter. I wonder why.

On the subject of Ingrid though, we both remarked that the only difference between this and a prison is that this door here is open. And that’s a sad state of affairs, isn’t it?

But tomorrow is another day and maybe I’ll be feeling better. My Welsh class might bring me some kind of interest and who knows? The priest might come and see me again.

Things can’t get much lower than they are now.

Sunday 27th November 2022 – SO HAVING GONE …

… off to sleep at some kind of early night and I was in the middle of a dream but I can’t remember, although at one point I was being pulled somewhere by someone. Then I awoke to find that it was the nurse pulling on my hand trying to connect me up to some kind of antibiotic fluid that she’d put up on my portable patient thing. I thought “didn’t I feel funny and silly trying to resist whatever was going on?”.

But anyway, that could have been quite an interesting moment had I been the kind of person who talks in his sleep.

Half an hour or so later just as I was about to drop off to sleep the nurse came back and disturbed me by uncoupling me and then I settled down again to try to go back to sleep but really that was that as far as sleep was concerned.

In the WORDS OF AL STEWART, “.. all that is left is the clock on the shelf
as it ticks one day into another”
.

As regular readers of this rubbish will recall, back in the old days when I had fewer preoccupations in my life I had regular visits during the night from three young ladies, one of whom was nicknamed “Zero” after the “girl, she’s almost a woman” IN THE SONG and there are more truths in this song than you would ever realise.

Yes, it was getting to the stage of Warren Zevon and “A RED-HEADED GIRL
IN THE RED SILK DRESS
YA’ KNOW, I’M ASKING HER TO DANCE WITH ME
SHE MIGHT SAY YES”

By 03:00 I had given up everything and had the laptop up and running with the Old-Time Radio going. First up was an episode of Paul Temple, and there’s nothing quite like THE CORONATION SCOT at 03:00 to stir the spirit.

And I settled down later under the bedclothes with the headphones and the computer still going ready for the alarm at 06:30 and wondered how deep asleep I would be right now had the doctor yesterday not decided to wreak her petty revenge on me last night by disobeying standing instructions by telling me about my operation later in the day

Regular readers of this rubbish will recall that I have requested no knowledge whatever of any surgical intervention. I prefer that they say nothing, creep up behind me with a length of 4×2 and deal with whatever surgery is required while I know nothing about it.

At about 05:00 I was shaken awake by a group of nurses wanting to take a blood sample and reminding me of my operation, which I now know is going to be at 07:30.

Apparently the catheter in the back of my hand isn’t the right kind of catheter to take a blood sample. They had to insert a needle somewhere else in my arm to continue the work of trying to transform me into a pin cushion or a junkie or something.

When they finished the sample they dumped a pile of washing stuff in the bathroom and told me to get washed. I don’t know if I replied with an expletive but if I did, I wouldn’t be surprised.

When the alarm went off at 06:30 I grudgingly staggered off towards the bathroom.

At 07:00 a nurse came to see me, one of those who had awoken me at 05:00. She asked me if I was ready for the operation. I ran through the timeline of what had happened during the night and expressed my feelings in no uncertain terms.

She beat a hasty retreat and for once I was left alone.

Only until about 07:15 when a nurse came to weigh me. I made her wait while I went to the bathroom. She retaliated by cleaning my catheter port with a force that doubled me up and connecting me to an antibiotic. So I’m not going for my operation at 07:30.

Anyway at 07:30 regardless of anything else they came to fetch me, antibiotics and all, and wheeled me off down into the basement and I saw parts of the hospital that I never new existed.

Eventually I arrived in some kind of holding area where I waited. And waited. And waited.

At about 08:00 they came to fetch me. And in the operating theatre –
Our Hero – “am I the first patient of the morning?”
Assistant Surgeon – “in this theatre, yes”
OH – “well let’s get going while the knife’s still sharp”.
But as Kenneth Williams and Alfred Hitchcock once famously remarked, “it’s a waste of time telling jokes to foreigners”.

They actually used a laser on me to remove my infected and damaged catheter port. And now I know what burning human flesh smells like even if, because of the local anaesthetic I couldn’t feel it.

When they had finished (in an operation that had lasted 28:55 according to the stopwatch on the ceiling) I was put in another holding area where they took my blood pressure. and I reckon that 94/67 is pretty low in anyone’s calculations.

It was 10:15 when I arrived back after a lengthy stay in the Recovery Room, and you’ve no idea how much I was looking forward to coffee and breakfast. And as you might expect, it was strawberry jam this morning.

They had taken a sample of blood a little earlier this morning which showed a blood count of 6.6. I wasn’t aware that I had lost so much blood during the operation and I told the little junior doctor so. She asked me if I’d been bleeding anywhere else so I told her the story of the carcinogenic protein and gave her a small lecture on basic volumetrics.

While I was at it, I did ask her about what’s going to happen now that we know that the story about “being too full of virus for an operation”. She replied that “this was a different type of operation” so I took great delight in showing her last night’s blog entry.

She thinks that I need to see one of the doctors who sees me during the week but regular readers of this rubbish will recall that we don’t see them every day.

And as she left, I couldn’t help but say that “well, we both knew that this story about ‘too full of virus to operate on me’ was a load of nonsense, didn’t we?”

All very juvenile and childish of me I’m afraid, but you can imagine how I was feeling.

With breakfast being so late, I wasn’t in much of a mood for lunch especially in the middle of a blood transfusion. But at least that’s over now.

Having had a really bad morning I spent much of the afternoon asleep or else chatting with my friend in Eastern Kent – or is it my Eastern Kentish friend? I can’t remember which is which.

After my rather stressful day it’s time now for me to settle down under the covers ready for the rigours of tomorrow.

It’s strange, isn’t it, that I was worrying about having a very quiet day and it turned into one of the most difficult to date. Tomorrow will have to go some to match the events of today

Saturday 26th November 2022 – I WOKE UP …

… this morning – (cue Blues introduction here) – in a deep dark depression.

And the only thing that has changed during the course of the day is that it’s gone worse and I have slipped even deeper in.

The only surprise here is not that I’m in a deep dark depression but the fact that it’s taken as long as this.

So having to contend with not only the regular ointment in my eyes but also an uncomfortable catheter in the back of my left hand, I’ll tell you all about it.

It all began to go wrong last night at about 21:30 when a nurse came by to check the catheter port in my chest.

She pulled out the catheter and went to fit a new one. And then she pulled it out because she said that it wasn’t working, fitted another, still couldn’t get it to work. She said that she’d have to go off and see the night nurse.

At some point I must have fallen asleep because I awoke at 03:30 with the headphones still on and the old-time radio on the computer still going, and still no night-nurse.

A couple of hours later I started to worry about the night-nurse knocking off so I pressed my bell.

An orderly came along followed closely, surprise surprise, by the night nurse. She said that she knew nothing whatever about the problem and suggested that maybe the person last night had contacted the specialist catheter unit.

By now it was too late for me to go back to sleep. The alarm was set for 06:30 and it wasn’t long before it went off.

After breakfast the doctor came to see me and it really was the wrong kind of day for that to happen but it was rather too late to worry about that.

She told me nothing that I didn’t already know so I launched into my usual spiel. When I reached the bit about the trapped nerve and my leg she RAN AWAY – actually ran away from me out of the room.

There was nothing left for it but to turn to my social network to vent the spleen that I don’t have any more. That in itself led to a lengthy discussion and a subsequent chat with Liz which was very nice.

Much of the rest of the morning was spent asleep and then, as I expected, the afternoon simply dragged and dragged aimlessly and endlessly.

Tea was delayed while a nurse took out the catheter in my arm and fitted a new one in the back of my hand, leaving me to bleed over my hummus butties. Luckily the cute little 1st-year student nurse was in the store across the corridor so she brought me a beautiful smile and a plaster.

Apparently this afternoon she’s working on the other end of the ward so I told her to ask for a transfer.

Later in the evening the doctor came back She told me that as my catheter port in my chest was redundant they were going to operate on me tomorrow morning to remove it so I must go into famine mode at midnight.

And she cleared off really smartish-like before I had time to tell her that now that we both know that this story about not doing an operation on my while I’m full of virus is total tosh, what’s her excuse now?

We’ll probably not have the answer to that tomorrow but we can at least try to find out.

My betting is that we’ll get a “this is a different kind of operation”.

What’s your bet?

Friday 25th November 2022 – SO HERE I AM …

… stuck in my hospital bed and had it not been for the physiotherapist and several urgent needs for trips to the porcelain horse, I wouldn’t have put my sooty foot outside my bed today.

The nadir of my existence is that they haven’t even been to make my bed today and I haven’t had a wash or anything because no-one has brought me any clean clothes or washing material.

In fact, I seem to have slid downhill from Celia in “As You Like It” and her “I like this place and could willingly waste my time in it.” yesterday to Macbeth’s “To-morrow, and to-morrow, and to-morrow creeps in this petty pace from day to day” in the space of about 18 hours.

It’s all been brought about by the most boring afternoon that I have ever had. Absolutely nothing at all happened this afternoon to relieve the boring monotony of what didn’t go on.

Last night I fell asleep at some time in the early evening and awoke in a panic at some point thinking that it was quite late and I still had on my headphones. However it was only 23:40 so I switched off everything with a big air of disappointment.

At a couple of other times during the night I awoke and ended up at the bathroom but when the alarm did go off at 06:30 I was already wide awake.

There was quite a bit of stuff on the dictaphone. I was messing about as usual, dismantling cars, building little projects, getting electric circuits going, making lights flash etc. I ended up at University. I found an empty room so I moved a car and something else into it, put a bench in it, and began my car dismantling again and my little serendipitous experiments etc. I was having great fun. Then the idea came to me “why don’t I invite others from the University to come and share the fun with me,”. I announced that one evening I’d have a meeting in this room. The room was packed with people who came to listen to what I had to say. I told them what I wanted to do and hoped that they’d take part in it etc. The numbers whittled down during the talk. It came to a question of ghosts and it whittled down even further even though I had my notes about the experiences I’d had from ghosts in the past. I could see from the questioning of the two who remained that I’d have a hard core of maybe half a dozen people similar to me and we’d have something. However I was rather dismayed with all of the negativity that was coming from a few of these people even though I’d managed to talk my way into a University room etc. I thought that I’d done really well and maybe deserved a little more appreciation than I was receiving.

And then back at home the alarm went off and we all got up. It was the birthday of a girl who was staying with us. Nevertheless there were some presents that had to be wrapped for some other occasion so we began to wrap them. About an hour later my father appeared. he was the one who should have been wrapping these other presents but didn’t, saw that we were almost finished and made a few remarks. he said to the girl whose birthday it was “there’s a little present down there. It’s not very much, just a token of our appreciation. Is a fiver any good to you?”. She looked rather embarrassed but said “yes. Thank you very much”. My father said ‘you’ll probably receive much more than that after you take over this family once I’ve gone”. I could see the change of look in her eye, thinking of the impoliteness of what he had said to her etc, this little box with this fiver in it while we were wrapping all these big boxes for him. I could see the change in her face from one of annoyance to one of starting to make plans. I wondered how long it would be before my father found himself over the bannisters and this girl taking charge of the family

After breakfast the doctor came, bringing with her another junior doctor. And as I hadn’t seen anyone for a couple of days I gave the two of them a blast of what is rapidly becoming my trade-mark speech about the wasted opportunities that are happening, or not happening as the case may be.

She explained a little more about what is happening, such as this blood infection that seems to be coming from my catheter port and how on Monday I might be having another examination.

My point that with a lifespan that expires in 2026 at the latest I can’t afford all these delays. She replied that there wasn’t much that anyone can do about my underlying health condition while everyone is fighting the effects of this virus, but I was of the opinion that I would have expected all four professors from the various departments standing around me discussing my case in order to put an end to this bickering and continued case of “pass the parcel” that is wasting my life away.

In the end she went away. Not that I think that anything will happen but of you throw enough whatsit at a wherever some of it might stick and make its was back to the professors concerned.

Shortly afterwards the physiotherapist came by. He gave me a few exercises to do while I was in bed and then a few more to do standing up and even walking to the bathroom door and back.

While we were chatting, I mentioned that strengthening my muscles was one thing but it wasn’t solving the underlying problem of mu right lower leg folding up underneath me.

He was completely taken aback by my remarks, almost as if he hadn’t heard them before.

Anyway, I launched into my story, and gave him all of the information yet again but I wasn’t convinced that he took much notice of what I was telling him

So however all of this pans out, I bet that it won’t be exactly how I would like it to be, viz and to wit, to solve the problem of my leg definitively.

In case regular readers of this rubbish can’t recall the situation, the reason why “I like this place and could willingly waste my time in it.” is because I’m too scared to leave. All of these issues about viruses, infections and the like mean absolutely nothing to me in the normal run of things but I don’t think that I’d get 100 yards from here on my feet without falling over.

And then I don’t have the strength to pick myself up.

The rest of the day has been spent falling asleep and being shaken awake by a selection of nurses. It’s really been a most boring afternoon and the next couple of days will be just as bad as the hospital quietens down for the weekend.

So now I’m off to sleep. And having spent most of today trying to fight off waves of sleep, I bet that I won’t be able to fall asleep at all now.

Thursday 24th November 2022 – YOU’VE NO IDEA …

… how much I enjoyed the shower that I had this morning.

It’s the first shower that I’ve had in the four weeks that I’ve been here and it was wonderful to be underneath the hot water instead of rubbing myself with a flannel.

The only issue was that had the cute little student nurse who came to check on me come 5 minutes earlier, she could have scrubbed my back.

Last night I was asleep in bed by 21:00 and I slept all the way right through until .. errr … 00:45 when I had to leave my bed for reasons that any man of my age will tell you.

And then we had a disaster. It’s Wednesday evening and I’ve just had a nightmare. I fell asleep and dreamed that I was at some kind of party where one of the nurses was feeding me with pills etc, force-feeding me. I rang the emergency bell and it was the nurse whom I thought was trying to poison me who came along to see what was happening. I told her that I must have had a nightmare and there was no real cause for alarm etc. I was sorry that I’d called her.

It took ages to go back to sleep again but when I did I was off on my travels. I was on a coach trip. I had a Leyland Duple Laser. I’d taken these people from Stoke on Trent down to a cricket match. They’d stayed there the day, watched the match and then I’d brought them home. They had a whip-round on the coach for me that brought in about £2:20. It wasn’t all that much but surprisingly one of the girls I actually worked with but she didn’t recognise me or let on that she knew me and neither did I. After I’d parked up the coach on the way back I had to come back on Nerina’s bicycle but a tyre on it was flat so I had to ride around until I found a street light with a kerb edge where I could prop up the bike to pump it up. There was a big grid just there. I thought that if I dropped my keys or something they’d be gone completely down the hole but I had to find a place in the light to pump up the tyre so I could cycle all the way home from this Motorway service area where I’d left the coach.

And later I’d been for a walk across a park or golf course etc. There was an area where people could walk their dogs but they couldn’t walk them everywhere. When I reached the end a car came. It was driven by someone whom I knew. There were quite a few of us there, Jean-Marc and some others. Eventually we all crammed into this car, 6 of us. We thought that the car was overcrowded. We made jokes about sardines etc. We set off, and I had a map so I could see roughly where we were going. Another guy in the car, an old guy, made some kind of remark like “are we going anywhere near (such-and-such) street?”. As far as I could tell we were going down a street with a similar name but not that exact street. he said “it’s near a park” which this street certainly was. He needed to stop at a “Super L” supermarket in the street to pick up something. I couldn’t find a “Super L” supermarket. I didn’t even think that it existed. There was a “Super U” somewhere in this street on the corner. I wondered if he was confusing himself about where he wanted to go and what he wanted to do and the name of the supermarket, which was easily done.

The alarm went off at 06:30 as usual to awaken me but I do have vague memories of all kinds of nurses and the like coming to do something or other to me.

During the early part of the morning I was poked and prodded about by various nurses but eventually a doctor appeared.

She told me that there is an infection in my bloodstream that looks as if it’s come from my catheter port in my chest. Consequently it can no longer be used.

M response was to wish good luck to whoever gets the job of finding a vein in which to insert a catheter.

After she went I saw the physiotherapist who gave me a few exercises and I actually lost my balance at one point although the physiotherapist caught me before I hit the ground. He told me as he was leaving that I ought to walk more.

And so when the nurse offered me a shower I declined the wheelchair that she had brought and said that I’d walk there holding onto my portable patient thing. I had to stop for breath several times but I made it in the end. The nurse showed me the controls and left me to my own devices.

And it was wonderful.

The cute little student nurse who came to check on me found me trying to tidy everything up so she took my stuff back to my room and then came back to accompany me there.

As on the outward trip I had to stop a few times to catch my breath but it was successful in that I didn’t fall over and I was quite pleased. It was a long way.

A little later the nurse said that she had to fix a catheter in my arm, which was why I suspect that they wanted to me to take a shower first.

The little student was there so I asked her how many catheters she had fitted. “Not many’ was the response so I gave her my arm and told her to get on with it.

The nurse gave her a little talk first and then she went and did it – found a vein and fitted the catheter with her first go. She was ever so impressed and I was ever so relieved. It could have been much worse. I don’t mind the students practising on my but I do have my limits.

Anyway they have now been able to give me antibiotics throughout the day

A doctor came to see me too. She didn’t have much to say so I asked her why they had cancelled the raft of appointments that were booked for yesterday and today. She replied that they were all breathing-test exercises and according to her I was in no fit state to take them.

Once again I expressed my dismay at what was happening. Here was an ideal opportunity for everyone to work together to find out what’s going on with my breathing but they are just delaying and delaying the issue.

And I don’t have the time for delays, as regular readers of this rubbish will recall.

So having had a really busy morning, the afternoon was a disappointment. Apart from the nurses coming to give me these antibiotics, nothing happened at all. No-one else came by and I was left to my own devices yet again. I listened to all of a 3.5 hours of a Paul Temple radio programme.

But right now I’ve had enough and I’m going to bed. I expect that I’ll be awoken at some point during the night with a nurse trying to take my blood pressure or something. I may as well sleep while I can.

Wednesday 23rd November 2022 – FREE AT LAST!

This evening while I was trying to eat my evening meal someone from the cardiac unit turned up and said that she could take out the drain in my heart.

Not exactly the easiest thing to do while I has trying to eat my hummus rolls but nevertheless she did her best.

You’ve no idea how much it hurt but as they said in Macbeth, “If it were done when ’tis done, then ’twere well it were done quickly” and sure enough even with it done quickly, it hurt like hell.

So right now I’m free. There are some antibiotic perfusions too but they are on a portable patient stand, not tied to the foot of the bed like the sac of the drain in my heart.

Anyway, I’m sure that you are wondering how I celebrated my new-found freedom. The answer is that I went for a good ride on the porcelain horse.

You’ve no idea how much of a relief it was to go as well. This chair thing that I managed to negotiate has a considerable amount of drawbacks that only become apparent when you are half asleep and in some other parallel universe at 05:00.

That kind of thing is a recipe for disaster, as events were to prove. For the rest of the day I quietly abstained. I didn’t want another repeat.

It’s quite true to say that i was deep in the arms of Morpheus last night. I was tucked up in bed early, round about 21:00 and went straight off to sleep. When I awoke at 03:00 I still had on the headphones and was listening to the radio. I just about managed to summon up the energy to take off the headphones.

And then there was the 05:00 disaster but we won’t talk about that.

All of my meals were absolute disasters today. Breakfast was interrupted by the Professor in charge of the Training School telling me that the students would be on the ward this morning.

Regular readers of this rubbish will recall that I’m one of the first to offer myself to a bunch of students in order to be poked and prodded about. Consequently I agreed to be examined and at 10:05 a pair of students appeared at the door.

Third-year students they were, and for the next hour or so they poked me and prodded me, sometimes with the Professor looking in, and eventually the went away quite satisfied with their morning’s examination.

We had quite a laugh though at one point.
Student A “I need to look for your spleen”
Our Hero “I hope that you have good eyes. Last time I saw it, it was in a jar in a hospital in Central France”

While lunch was being served, the assistant dietician appeared. She’d seen my recent blood test results and made the point that there’s still far too much potassium in my blood. She wants me to give up all fruit and salad.

That’s only a temporary measure, she told me. The chief dietician will come to see me at some other point in the near future. Presumably with some even more draconian measures.

This afternoon the physiotherapist stuck his head into the room with an assistant. They ended up by giving me some exercises to do but it’s not easy when I can only move half a dozen paces from the bed if that.

There was the person from Cardiology to disrupt my evening meal at teatime but apart from that there’s not been a whiff of a doctor coming to see me. It seems that since my somewhat … errr … frank discussion with the Priest yesterday (which he has doubtless reported back to the authorities and which was part of my plan) the senior medical staff has gone to ground and are in shelter waiting for the whirlwind to pass by overhead.

Consequently I reckon that I need to be a bit more frank with the Priest next time I see him.

All through the day I’ve been having some lovely chats with Liz, Rachel and Rosemary. It’s nice to know that I have such wonderful family and friends.

As I have said before … “and on many occasions too” – ed … I don’t have many friends but those I do have are the best in the world.

Tuesday 22nd November 2022 – I WAS WRONG …

… about having a good night last night. All kinds of things were going off.

But never mind that – something much more important and unusual happened this morning.

In fact, a priest came to see me.

The timing makes me think that it’s to do with my request for euthanasia but he never mentioned the subject. He listed to all of my complaint. He even made me ages late for my Welsh class but I wasn’t all that bothered because I enjoyed his visit, strange as it it to day it.

However the antics of last night were hilarious.

Having an urgent need to visit the bathroom and tied to the bed by the sac of fluid from my pericardium, I asked for a bottle.

Sitting in bed trying to use a bottle was psychologically impossible so after a while I changed position and sat on the edge of the bed to try again

Just then a nurse came in and asked how I was doing My reply of “nothing yet” brought forth a lecture about the dangers of a full bladder

She measured it and found that it was indeed full so she went to find another nurse who subjected me to yet another lecture on the subject of full bladders and insisted on fitting a catheter. Naturally we had quite a stand-off on this point and the argument raged for quite a while.

At some point a third nurse joined in the fun. and with three nurses now watching me, however was I supposed to use the bottle under these circumstances?

In the end I chased them and their catheters away and once they had gone it took about 10 minutes to make use of the bottle.

The upshot of all of this is that they brought me a “toilet chair” that I can use in comfort and taunt whoever it is who is interested in my “output”.

Eventually I finally managed to drop off to sleep. There was something about being in a cricket pavilion last night. I was there with Nerina. There was something about people had to register and register the clubs from which they had come and where they were signing for. After 3 or 4 entries it all became very confused. There was some kind of issue about Derbyshire but nevertheless I wrote “Derbyshire” on the form and thought that I’d deal later with any flak about it. It was raining outside. I thought “how are they going to start this cricket match?” but anyway they did, as far as I knew. Later on I was standing on a bank at the side of the road when a large lorry pulled up, a farm cattle truck-type of thing. It was Sherman Downey with a couple of rubber edgings for doors or windscreens. I was surprised and said that I hadn’t actually ordered anything at the moment. That took him by surprise too. he was there with these 2 rubber edges that I didn’t want.

So with the priest making me late for my Welsh lesson I joined in the class somewhat later. And I wasn’t there for long before an endless stream of nurses kept on interrupting me. In the end I logged out.

This afternoon I went for a couple of tests and examinations. The last one of this bunch was an echograph performed by a doctor with an assistant who looked as if she was about 12.

After he finished with his examination with the echograph I asked the little girl if she’d like a go and so with a big smile and with help from me and from the echpographist she used the echograph to examine my heart

The net result is that here is no more water around the heart for now – just a bit of sediment that causes no problem

After the echographist went to make his report, I had a chat with his little assistant. I asked her how long she’d been a student and she replied “2 days!”.

She’s actually a schoolgirl on a work placement and she was ever so pleased because I was the first patient she’s ever examined. But as regular readers of this rubbish will recall, I’m all in favour of letting the students practise on me.

They have to learn somehow.

So right now I’m off to bed. I’ve finished my notes, had a good chat with Alison and Rosemary and have everything prepared just where I need it.

And I’ve had a fever too – a temperature of 38.7°C. They’ve packed me in bed with a few ice-packs and it’s down now to 37.9°C

After falling asleep yesterday evening and having all kinds of issues during the night, I want a peaceful evening and a good sleep. I wonder how someone might come along and disrupt me again.

It goes without saying that they won’t let me have any peace and quiet. This crew in the ward this week are nothing like the kind souls of last week.