… I’ve left the table, leaving a pile of food on my plate. This is something that is beginning to worry me. It seems that these days, I’m living on a few mouthfuls of food and a pile of protein drinks, and that can’t be good for me.
And neither is going to bed late either, but here we are. last night, it was just after 23:30 when I finally made it into bed. I really don’t know where the time goes these days. It’s not as if there’s a great deal to do when I have finished my tea.
So after writing my notes, checking the statistics and backing up the computer, I went and sorted myself out in the bathroom and then a very weary me headed off to crawl underneath the covers.
For a change, I had a decent sleep. I remember tossing and turning a few times during the night, but that was about everything. At least – until about 06:20 when I had another one of these dramatic awakenings.
Only nine minutes to go for the alarm so I hauled myself quickly out from underneath the covers and switched off the alarms. The storm seemed to have died down somewhat, which was good news. One of the ideas going through my head was that if the wind was blowing anything at all like yesterday, I was going to cancel my trip to the Centre de Ré-education.
Being out of bed at 06:20 is one thing. Actually standing up and heading to the bathroom is something else completely, as regular readers of this rubbish will recall.
After a good wash and the medication, I came back in here to listen to the dictaphone. And it was rather disappointing. Nerina and I had had a friend come round to visit us. We went for a drive into Crewe – the town centre. As we turned into Flag Lane, there was the Workingmen’s Club place on the right-hand side in the old temporary buildings so we stopped and went in. The person with us was extremely impressed. He’d never seen a place like this before – hundreds of people lounging around, playing darts or snooker, carpet bowls etc. I said that I’d been here a couple of times to give talks on different things. It’s the kind of place where you would come where there was a big football match on the TV and it’s a place where you would have plenty of atmosphere in here with the crowds watching it.
In Crewe, there were plenty of Workingmen’s Clubs and Family Social Clubs, although a lot less these days than there used to be. In my mis-spent youth I used to go to play snooker and table tennis (and have the occasional drink) in one or two of them, and I’ve even played in groups that have played in them. The buildings to which I’m referring though are the old Catholic primary school which, according to one of these street view things, has now been demolished and replaced by a flock of bats.
There’s an interesting story about the communal TV though. When I was very young, in the late 1950s or early 1960s, there was a cup game featuring Crewe Alexandra being televised. The parish council hired a television for the night and there were probably a couple of hundreds of us crammed into Shavington Village Hall watching the game on this tiny 405-line TV screen.
“The Good Old Days”, anyone?.
The nurse was early today. Apparently another one of his clients has been hospitalised … "what’s he doing to them all?" – ed … so his round is rather shorter. We talked about dialysis and the blood clot. He was formerly a dialysis nurse, and he told me that had it happened when he was working there, they would have cleaned the needle and re-inserted it, rather than abandon the procedure.
After he left, I made breakfast, even though I wasn’t all that hungry, and then came back in here to work.
There were a few things that needed doing, and the rest of the morning was spent sorting out some more music for a couple of radio programmes.
There were a few interruptions. Firstly, my cleaner came in with the injections for next week, and then Rosemary ‘phoned up for a chat. Just a brief one, because I needed to prepare my things for going out.
My cleaner came back a little later to do her stuff, and when the taxi arrived, she helped me out to the car although the wind was nothing at all as bad as yesterday.
At the Centre de Ré-education they put me through my paces.
Firstly, they had me working on a kind of press, sitting down and pushing weights with my feet.
Secondly, they attached a length of strong elastic to a pillar and I had to pull on it, keeping my upper arms parallel to my torso.
Those exercises were for fifteen minutes each
Thirdly, I was worked over by the physiotherapist who had me doing all kinds of things, even walking on my hands and knees. Thirty minutes of all of that was more than enough, thank you.
After a rest, during which I was drifting in and out of semi-sleep, I was given twelve minutes on the exercise bike. That was really tough, given the state of my knees and lower legs, but I managed to travel 1.3 theoretical kilometres. At one stage, I was developing as much as eleven watts of power.
It wasn’t just the exercises either. For many of the exercises, they had me sitting in low seats, from which it is almost impossible for me to haul myself up. It was a real gymnastic effort to do that, but, as they say, if it’s not hurting, it’s not doing you any good. I reckon that if that’s the case, then today I must have done a lot of good.
Just like chemotherapy, you don’t have a minute to recover before you are turfed out. It’s a labyrinth in there and you have to walk miles to where the taxis wait. Being disabled and in an exhausted state, it’s no picnic. When I arrived back here, I fell straight into a chair for an hour to recover.
Once I’d caught my breath, I came in here to sort out some more music and then went to make tea.
Tonight, I had a stir-fry of noodles, vegetables, bean sprouts and chick peas in soy sauce, but as I said just now, half of it went into the bin. I’m really not doing too well with my food and I can foresee serious problems ahead if I can’t find my appetite from somewhere.
But since chemotherapy, everything tastes of salt, I have the most incredible wind and I feel full all the time. What on earth is going on with my body?
Anyway, I’ll worry about that tomorrow because right now, I’m off to bed, hoping for a better day tomorrow. It’s dialysis, though, and we’ll see how the events of the last few days have affected that.
But before I go, seeing as we have been talking about having the wind … "well, one of us has" – ed … I mentioned to a doctor at dialysis the fact that I have wind.
"Can you give me anything for this wind that I have?" I asked.
He went away, and came back five minutes later with a kite.