… special visitor during the night last night – someone who hasn’t been to see me for quite some considerable time.
But more of that anon. This time tomorrow I shall be … well … not sitting in a rainbow, but sitting in a hospital bed in Paris where they will be starting this Rituximab cancer treatment.
Or, rather, restarting it, because, as regular readers of this rubbish will recall, that was the product (or Mabthera, a generic thereof) that they gave me right at the beginning back in February 2016 after the chemotherapy failed.
And it worked at that moment too. Regular readers of this rubbish will recall that I was unable to walk and so ill that I had to live with friends because I was unable to cope by myself, yet six months later I was in Canada. I’m not expecting the same miracles this time, but any little help and relief that it might give me will be most welcome.
And in other news, it looks as if this apartment move will be taking place during the week of 18th-25th of August. That seems to be when the usual suspects are collecting themselves together, and I’m recruiting further volunteers if anyone else would like to join in. All are welcome and I do not practise any kind of discrimination at all. I hate everyone equally, regardless of race, creed, colour or sexual orientation.
Meanwhile, back at the ran … errr … apartment, had I exerted myself last night I could have been in bed well before 23:00 but as usual, dillying and dallying about, it was about 23:30 when I finally crawled in underneath the covers.
When I awoke at 05:20 I was somewhere about in the dialysis centre but whatever it was that I was doing evaporated from my mind immediately … "not that there’s much in there to hold it in" – ed … which is just as well because, as regular readers of this rubbish will recall, I don’t like to dwell on that place when I’m not there. It’s bad enough that I do when I am.
The first task that I undertook when I finally settled down at the desk (at … errr … 05:50) was to listen to the dictaphone notes to find out where I’d been during the night. And, as I said earlier, I had a special visitor come to see me. There was a group of us in a house somewhere and who should come in but our old friend (or mine, anyway), Zero. And what a long time it’s been since she last put in an appearance. I wanted to say “hello” to her but she walked right through the front of the house all the way to the stairs. I pretended to chase after, and she saw me, let out a squeal and ran upstairs. Her mother said something about going to frighten her away and that I had to look after her at that end of the room. My brother was upstairs in his room at the time and I could hear him and Zero talking to each other. I thought “how am I going to look after Zero at this end of the room if she has already gone upstairs?”. I thought in any case that he was supposed to be busy doing some things that he needed to do rather than sit around talking, but apparently not.
So here we go again. Zero having far more sense than to hang around chatting to me, and a member of my family turning up in my nocturnal rambles to spoil all my fun. I thought that we’d put all of that behind us, but apparently not. Presumably, some psychiatrist somewhere would come out with a few interesting remarks about this kind of situation, but it would all be news to me. There’s no other logical explanation for it, although whatever logic would have to do with what went on in my head during the night would also be news to me.
Round about 07:00 everyone else began to surface so I went for a good wash and scrub up ready for dialysis and Emilie the Cute Consultant, although I forgot to shave. And then we sat around waiting for Isabelle the Nurse to come to see me.
Almost as soon as she left, the taxi came round to take me to the Medical Centre to see the doctor about my heart.
At first, I saw his assistant who coupled me up to an echograph machine with a rapidity that took me quite by surprise.
"That’s not the first time that you’ve done this, is it?"
"Oh no" she replied. "Only a few thousand times.".
When she’d finished, she took me into the doctor’s room where he gave me a thorough examination.
"It’s not your heart that’s causing your problems" he said. "That’s working fine."
And that’s just as well because it’s only my heart that is keeping me going. With my low blood count and low blood pressure, my heart is having to beat about twice as fast as anyone else’s. Anyone’s heart can do that for a while, but mine’s been doing it for almost ten years. When it gives out, I’ll be gone in an instant.
But at least he found my heart and I still have one. I’ve not turned into a Conservative yet.
"Where’s all your paperwork?" he asked.
"No-one told me to bring any" I replied. "The dialysis centre arranged this appointment. I imagined that they would have sent you whatever you needed"
"You should always bring all of your medical paperwork with you when you come" he said
"I’ll remember that" I replied. "Do you know where I can hire a fork-lift truck?"
But as Kenneth Williams and Alfred Hitchcock once said, "it’s a waste of time telling jokes to foreigners."
Back here (in the rain) I was halfway through eating breakfast when the ‘phone rang.
"What are you doing tomorrow?" a voice asked
"Not a lot" I replied.
"Good. Come to Paris and we’ll start the Rituximab"
So there we are. Now a frantic ringing-round to book taxis and obtain permission from the Securité Sociale.
My cleaner turned up as usual to fit my anaesthetic patches and then we waited around for a while. As the weather was now back to sunshine, we went downstairs to wait outside.
The taxi was bang on time with our other passenger already in, and we shot off to Avranches at the Speed of Light, me with my eyes closed. It’s not very often I feel nervous as a passenger these days.
And as I have said before … "and on many occasions too" – ed … there’s no point being ten minutes early anywhere if you have to spend that ten minutes washing your underwear.
When we arrived there were three ambulances ahead of us unloading the horizontal patients so I knew how this would pan out. And when one of those ahead in the queue had a crisis and everyone had to rush to help, I knew that that was that.
Having a trainee didn’t improve my morale much, and my 13:30 arrival turned into a 14:30 coupling up.
The doctor came round to see me to ask me how I was.
"OK at the moment but it won’t be for much longer if you keep on prescribing me these" and I showed him one of the boxes of tablets that I’d been prescribed on Saturday, a product that contained lactose.
"And your doctor moaned at me a few weeks ago when I had that attack of pancreatitis"
He didn’t stay very long after that.
The dietician came to see me too, to ask how I was getting on with the disgusting drink that she prescribed for me.
When I told her that I was taking it as instructed, she replied "Good" and renewed the prescription for another three months. I should have said nothing.
Julie the Cook was back from her holidays and she had ten minutes to come to sit on my bed for a chat, which was nice. She’s a really nice, bubbly, cheerful girl and always has a smile on her face. She can also perch on my bed any time she likes.
When I was uncoupled, I went out to the taxi but we had to wait (and wait, and wait) for another passenger who needs a lot of assistance. And who is dropped off first so it was at 19:37 when we finally arrived home.
My adjustable stool had arrived this afternoon and so things are looking much more positive downstairs. The stool will certainly ease my cooking issues, as I can now sit down while I’m at the worktop cooking, and take the weight off my knees.
Tea tonight was baked potato, salad in balsamic vinegar and a mix of falafel and veggie balls. It was delicious as usual.
Tomorrow I have bags to pack, sandwiches to make and food to rustle up, seeing as I don’t know how long I’ll be staying. They say that I’ll be back on Wednesday, but we shall see. I’m really grateful that my friend is here to deal with the kitchen that will (hopefully) arrive.
But first, I’m off to bed in the hope that Zero will come back.
Seeing as we have been talking about the doctor’s surgery just now … "well, one of us has" – ed … the patient before me was complaining about having a very sore throat
"Right" said the doctor. "Go over to the window, stick your thumbs in your ears and stick out your tongue as far as you can."
"Will that make me feel better?" asked the patient
"Oh no" replied the doctor. "My wife’s standing on the pavement outside."