Tag Archives: leuven

Wednesday 6th April 2016 – THE BEST-LAID SCHEMES …

… of mice and men gang aft agley, as Rabbie Burns once wrote. And how right he was. I reckoned that I lasted maybe for 5 minutes of my film before crashing out.

I was only awoken three times during the night – once by the usual need to take a stroll down the corridor, the second which was by one of the nurses who wanted to take my temperature, and the third time my a nurse asking me if I was okay. And had my reactions been any quicker, she would have had a pillow in the face as well. GRRRR!

But during the night I’d been looking at old cars for sale. I’d come across a garage that sold classic cars and my eye was caught by a maroon Wolseley 1300 (the same as Nerina used to have, except that hers was Black Tulip) that was for sale at €1,883. But I ended up playing in a rock band once more with Hans and also with a female on drums. We were playing at a concert up on the Chester road, slightly north of the Bluestones traffic lights near Acton (and we’ve been here before) and warming up, we played an impromptu blues number that I made up on the spot, called “I’m the accused”. Of course, the word “accused” is one of the easiest words in the English language to rhyme – there are so many other words that go with it, but it was still impressive that I could write a whole song “off the cuff” while actually performing it. And if I could write music, I’d write it down because I can still remember it even now.

And so the morning came round quick enough and I was soon tucking into breakfast. And with a sweet smile, I was even able to negotiate a second pot of coffee. I then had a shower (which made me feel so much better after yesterday) and a blood sample.

The blood sample wasn’t so easy though. They tried to take it out of the drain in my arm but for some reason that had become blocked. In the end, they had to take out the drain, fit another one in the other arm and take the sample from there.

An hour or so later they were back. “Your blood count is only 7.3, so we need to give you a transfusion today”
“So what was if before I had the transfusion on Monday?”
“6.5”
No wonder I was feeling like death in Givet last weekend.

We then had some amusement with the cleaner too. Doing her best to speak English to me (and I will never ever mock anyone’s attempts to speak a foreign language), she said “you must stay on your bed when I’m cleaning. It’s dangerous when I’m around”
“I know the feeling” I replied. “People often say that it’s dangerous when I’m around too”.

I found some time (although not very much) to start to write up the notes of my Canada 2014 voyage – I really need to get cracking with this – but it ground to a halt at about 15:00 when they came to give me more chemotherapy. This time, they took their time and it was soooooooo slowwwwwwwwwww. The blood came next and that needed to be heated to 41°C so they had a bizarre kind of coil heater machine to do it.

Foolish me should have gone to the bathroom at that moment because the blood transfusion was even slower. It crawled along and wasn’t finally over until 23:00, by which time I was bursting.

It meant that there was no chance whatever of me leaving the hospital today so I’m in for another night. And my neighbour is snoring like a pneumatic road-drill. It looks as if it’s going to be on of THOSE nights.

0

Tuesday 5th April 2016 – I DON’T KNOW …

… what they put in one of those pochettes that they gave me, but I’ve never known anything like it.

They had a timer and some kind of feeder set on it. We started off at 20ml/minute (or something like that) and it gradually increased every 30 minutes or so until in the end I was having this stuff at 120ml/minute. And this is where the roof fell in.I went freezing cold, shivering like I have never shivered before, and having attack after attack of nausea. It was so bad that in the end they were obliged to switch if off for an hour while I recovered, and then start up again, with a limit of 50ml/minute.

But for that 10-minute period, I felt really and utterly dreadful.

Despite my bad night, I had a good sleep and didn’t wake up at all, not even for the bathroom. We didn’t have the same early start as we had in Montlucon either – about 07:20 if I remember correctly.

Breakfast was, as you might expect, jam butties with coffee (which was very nice) and then I was introduced to the student nurse who has been assigned to me. She’s from Denmark apparently, and the idea is that we can both learn Flemish together. That’s not quite what I had in mind, although there are some Flemish words that I learnt when I was chauffeuring in Brussels that I’m sure she doesn’t know. And she went and liberated another pot of coffee for me too, which was very nice of her.

The dietician came round too and spent half an hour with me. In quite a contrast to Montlucon, she knew what she was talking about. I have a severe protein deficiency, and need to increase my intake of fats. We spent all of the time talking about my diet for when I return home, and she’ll try to organise a few things here too.

I had a blood pressure test and pulse check too, but how they ever think that they are going to obtain a serious and meaningful reading from me when they send in four young student nurses into my room to make the measurements I’ll never know.

Lunch was a vegan chili (with soya chunks) and tomato sauce, with steamed potatoes and for what it was, it was delicious. And then we got down to business.

I told you about the first part of the treatment. That apparently is for marking the bad cells in my body. And there must have been plenty to affect me like that. And then once I’d recovered (which took a while) the system was cleansed for 20 minutes or so and then I was given the second stage of the treatment, interrupted by tea which was … errr … jam butties.

By 19:00 all of that was finished so I could prepare to receive my visitor. And sure enough, at 19:30 Alison appeared for a chat. She brought me a towel which was good of her, and some soya yoghurts and desserts, and a fruit salad (which was delicious for supper, thank you).

Now I’m going to stay awake until I fall asleep (which isn’t an Irishism at all – usually I go to bed and talk myself into sleeping) and watch a film maybe. There’s no alarm set for the morning either, for I imagine that I’ll be awoken by the hustle and bustle of the nursing staff.

But I need to increase my intake of proteins and fats.

Where’s the nearest fritkot?

0

Monday 4th April 2016 – I WAS UP …

… quite early this morning and on the road almost straight away. I wanted to be at the hospital early and it’s a good job that I was because there were traffic queues and road works all over the place.

Once I’d found a good spec for Caliburn (there’s an outside car park that I needed to locate as the main car park has a 2-metre height limit), I went off on a route march to sign myself in. And that reminded me of the queue for registering a vehicle at Riom – I was ticket 259 and they were dealing with n°208.

But with 10 registration desks open (not like at Riom where there is just one) I was all done and dusted within 10 minutes and even had time to go to the café for breakfast. That worked out to be somewhat expensive for some bread and jam, but it would have been a lot cheaper had I realised that what I took to be orange juice was actually freshly-pressed mango.

I found the day hospital, and it’s nothing like Montlucon in that there were probably 100 people there. But I was pretty quickly whisked into a side ward and had a drain fitted. From there, I was shunted off into another room to wait for my blood.

But it’s not like Montlucon in another respect either. I hadn’t been in there long before someone from the Welfare Department came to see me. And never mind the interminable wrangle that we had at Montlucon (and is still going on) about payment – she was brandishing photocopies of my Insurers’ registration form and we filled it in on the spot. They are of course much more used to my situation here and are fully prepared.

We also discussed the situation about my accommodation for when I’m released. She went off and came back 20 minutes later with the news that I have been booked for two weeks into the “family guest-rooms” at the old hospital in the city centre. That’s pretty quick, I have to say. And it’s pretty good news too. All of which is compounded by the fact that the parking here at the hospital (€4:00 per day for inmates) is capped at €12 per week for long-term visitors, and they expect me to be undergoing treatment for … gulp … six months. And so this two-week “stay of execution” gives me time to think of a “Plan B”.

But treatment here wasn’t as straightforward as it might have been. They needed to do all kinds of tests and so on that hadn’t been carried out at Montlucon apparently, and by the time that they had finished everything and the blood had finally arrived, it was 15:30. For food, it was jam butties because, having caught them à la depourvu, there was nothing arranged for me, but at least there was a free coffee machine just around the corner.

By the time that my transfusions were over, it was 19:30 – far too late for chemotherapy and far too late for me to go anywhere else, and so they have found a bed here for me until Wednesday, and chemotherapy will start tomorrow morning. But I’ve missed the evening meal tonight because of all of this, and so I had … errr … jam butties for tea. However, I went down to Caliburn for my things, and profited by stuffing the suitcase full of goodies.

But damn and blast my neighbour. I’m having to share a room and of course, he snores. It’s been a long time since I’ve been still awake at 01:00. This is going to be a very long night.

0

Thursday 31st March 2016 – TODAY’S THE DAY …

… when I might learn something about my state of health and whether the Hospital at Leuven will do something about it.

But before I can think about that, I have other fish to fry. Hans is coming back from Zeebrugge this morning and we’ve agreed to meet up at the Motorway serviced just down the road from here for breakfast.

I was up early and off out to fahr’n fahr’n fahr’n down the autobahn about 3 miles to the service station where I waited.

And waited.

And then I had a phone call – “just pulling into the Services now – it was Tienen, wasn’t it?” as a matter of fact, it wasn’t. I was at Heverlee and so a quick thrash down the motorway brought me to Tienen and breakfast.

We had a good chat for a few hours and then I had to return to Alison’s, for she was intending to run me into the hospital, which was very nice of her and something that I appreciated a great deal.

First port of call was for a blood test. And sure enough, my blood count has gone quite down. It was 9.1 the last time I was here, but now it’s down to 7.8. That’s set a few alarm bells ringing at the hospital, make no mistake.

The doctor who saw me asked me quite a few questions and gave me a good examination, and then summoned her Professor – the kind of thing that always makes me feel better. But the news that I received deflated me rather rapidly. It seems that the Hospital here at Leuven thinks that I have a different type of lymphoma than that diagnosed by Montlucon. They didn’t understand the need for the removal of the spleen and, in agreement with the opinion of the District Nurses who have been visiting me at Liz and Terry’s, they don’t understand why I need to have these anti-coagulant injections and think that they might be doing more harm than good. The first week or so, yes. But today it’s long-beyond the bounds of necessity and I can stop immediately.

As for treatment, they propose a course of Chemotherapy. There are two types of this – a standard type that is the most common and which is recommended in 99% of cases. There is another type – about 10 times more expensive (and so it’s not reimbursed by the Belgian authorities) and 10 times more effective. And this is what they propose for me – a course of treatment that might last for as long as 6 months and they intend to start it on Monday morning. Furthermore, it has been reimbursed by my Medical Insurance in the past in other cases, and someone from the Social Services department of the hospital will be coming to see me on Monday to “help me” make the application for this treatment. Yes, not backwards at coming forwards, here at Leuven.

They aren’t sure how this is going to pan out though. I’ll be treated as an out-patient but I need to spend a few days recovering from each session. I’ve told them that I’ve nowhere to go to stay (I can’t keep on relying on other people’s generosity) so they told me that there is some guest accommodation at the hospital. The Social Services department will help me here too, to see if I qualify for a place.

And so here we are. I had my operation on 27th January and since then, nothing much has happened at Montlucon with regard to my illness. Here at Leuven, they have a decision within 9 days and propose a course of treatment starting in 4 days time.

It’s very easy to say, with hindsight, that it was the wrong decision to allow Montlucon to go ahead with the removal of the spleen, but there was a good chance that it might have worked and I was worried about any further delay. Had I known that the treatment would begin less than two weeks after my first visit, maybe I might have thought differently. And then again, Leuven has had access to all of the tests and analyses carried out by Montlucon which aided quite considerably the speed of the diagnosis. How long would I have had to have waited for all of this?

We went shopping afterwards to a Charity Shop rather on the style of a Canadian Value Village. Loads of interesting furniture, including a lovely coffee table that, when cleaned and polished, would look lovely in my little house. But all of this is a long way away.

Anyway, I’m off for the weekend. I’ll find a river somewhere and lodge myself in there for a few days to relax. I need it.

0

Wednesday 30th March 2016 – OFF TO BRUSSELS.

And I’d forgotten what a horrible place Brussels was. That I can tell you for nothing.

I fought my way through the traffic and left the Motorway at Woluwe, only to find myself in a huge set of roadworks that seemed to go on for ever – way beyond the Woluwe Shopping Centre. But eventually I found myself on the car park of the Carrefour at Boisfort, right by the Demey metro station.

It goes without saying that the metro station was closed – in fact about half of them were, so I had a weary trudge all the way back in the opposite direction and beyond, to the station at Hermann-Debroux.

I arrived at the bank, which was to be my first port of call, where I needed to transfer some money from my savings to my current account. But I ruled that out when I discovered that I’d left my passport behind in Caliburn. That was no use.

But I made about 30 phone calls to the EU’s Personnel Department (I refuse to use the derogatory term of “human resources”. I’m a human being, not a unit of production, and the whole world went wrong when employers stopped treating their staff as human beings and started to treat them as just another business resource) before someone answered the phone. I explained my problem – and I’m not sure why I had to because the person to whom I was speaking couldn’t see me. So wasn’t that a waste of time? But she did say to call back at 16:00 precisely as her colleague would just be back from a meeting and I might just catch him before he leaves the office.

I bought some bread and tomatoes and had lunch in the Parc Solvay, then went on the bust and tram to Ixelles and the Health-Food shop to buy some more vegan sliced cheese. Four packs, so that’s me OK for a while. And then I went off to see Marianne and have a chat. She was probably surprised to see me, and she’ll be even more surprised shortly if I end up in there with her. But I’ll be heading in the opposite direction, that’s for sure. They are stoking the fires already.

By now, I’d pulled a muscle in my right leg and was in agony. But I pressed on and found my way back to Schuman, having been obliged to take a really circuitous route there, due to “perturbations”. passing through Maelbeek Station, which is all fenced off and covered over, the thought did occur to me that this bomber can’t have been much good, and his infrastructure even worse. Just 400 metres further on is the Arts-Loi metro station, which is the key hub of the underground network, and it doesn’t take much in the way of brains to realise that had his bomb gone off there, he could have crippled the Brussels Metro for good.

I’m on record, and from as far back as 2002 too, as saying that the only reason that there aren’t more of these attacks is that the perpetrators can’t be bothered.

And it’s no use crying about it either. The time for crying was in 2002 when millions of people took to the streets to protest at the actions of Western Europe in becoming involved in a war that had nothing to do with us. But the politicians took no notice, and here we are. And only a politician or a westerner can be so naïve as to believe that if you declare war on someone and start to attack them, those people aren’t going to turn round and fight back.

Ever since 2002, the West should have been preparing for casualties. The first actions of the UK politicians in 1939 was to order 200,000 cardboard coffins “just in case”. The naîveté of the West, its politicians and its citizens, has been unbelievable.

As Douglas Haig once famously said, “fear of heavy casualties is a good enough reason for not going to war, but it’s a pretty poor reason once you are already fighting” or something like that.

I telephoned my Personnel guy bang-on 16:00 and he answered the phone. And I could feel the disappointment in his voice as I spoke to him. But 15 minutes later, there I was and he gave me a few bits and pieces of useful information that I have filed away for future reference, including the fact that I’m entitled to claim travelling expenses for all of my appointments at Montlucon and if I can persuade them at Montlucon to wash their hands of me, which they have done already, for travelling expenses to Leuven too.

But I had the shock of my life in the coffee shop round the corner where I stopped for a rest. Regular readers of this rubbish will recall the regular appearances of a young girl known by the name of Zero after an Al Stewart song, the lyrics of which were extremely relevant – a girl whom I haven’t seen for … ohhh … 8 years, I suppose. But breezing into the coffee shop was a girl who would have been the spitting image of this girl, allowing for the passage of time. Even the shade of red hair was correct to the minutest detail. The surprise was so complete that I dropped my coffee. Of course, it probably wasn’t her but nevertheless, it was an astonishing resemblance. I felt like bursting out into the Warren Zevon “there’s a red-haired girl in a red silk dress. I’m asking her to dance with me, she might say yes!”

But I dunno – it quite caught me à la depourvu, as the French say.

At the moment, the Metro is closing at 19:00 so I leapt on a bus and asked the driver to throw me out when we reach a tram route. This was at the Arsenaal and I could board a tram 25 and then the bus 71 which ended up by me being at the fritkot that does lovely falafel.

From there, another bus dropped me off at the Place Weiner from where I could take the tram 94 round to Hermann Debroux and Caliburn again.

And then back to Alison’s.

I’ve had my money’s worth today, although my leg is killing me and I’m thoroughly exhausted.

But seeing this girl has quite disturbed me. Whatever is going on these days?

0

Wednesday 23rd March 2016 – BACK ON THE ROAD

So here I am again – hitting the road to the Netherlands coast in West-Zeeland – the bit that’s to the western side of the Scheldt estuary. I’ve never set foot in this bit before so I’m determined to put that right – not the least of reasons being that we haven’t had a Ship of the Day since last October and up there in the Wester-Schelde you can see these huge 300,000 tonne supertankers and container ships making complicated manoeuvres just hundreds of yards offshore as they line themselves up for the entrance to the harbour at Antwerp.

Years ago, there used to be a vehicle ferry across the river to Vlissingen but that’s now closed and replaced by a tunnel. We are told by Wikipedia that it is a “bored tunnel” and so Strawberry Moose, Caliburn and I have decided to go there to cheer it up and bring it some excitement.

So having now decided on my seaside trip, I’m awoken today not by the birds chirping under the eaves but a torrential rainstorm cascading down onto the roof. And that awoke me from a very deep reverie.I had been off in the mountains of Tennessee or Kentucky last night, some time back in the 1920s or 30s and I met a girl called Lousey (that’s pronounced “Luzie” by the way). She was very young and blond but was in what we would 50 years ago have called an “irregular union” with a boy only a couple of years older than she was, and they were living in a cabin with Lousey’s mother. Someone had called a priest, or maybe a Justice of the Peace down to this village to discuss this “irregular union”. It turned out, following an inquiry, that this boy and girl were in fact living together but the boy was a scavenger of scrap metal and donated the income from this into the household. He was thus deemed to be supporting Lousey the best he could despite his limited abilities. Accordingly, this relationship was deemed by the judge or the priest to be exceptionally a “regular union”, despite the extreme youth of the two people involved. We drifted on from there down a street called Losey Road, which we were told was named after this girl, and at the top of the road there was some kind of queue involving all of the people from the village. I was with someone, who might have been Liz but I can’t remember now. I had a small bottle of sun-cream and so I put a small amount on my hands and started to rub it into the skin. Lousey was just in front of me and she had the same kind of cream and was doing the same thing. She noticed that I was only using a little bit so she pulled a face, laughed and said that she used tons more of the stuff when she did it. I showed her my jar and replied that I only had this small jar and there wasn’t much left. If I had more I would use ten times as much and I’d rub it all over me. Everyone in the queue except Lousey and my companion burst out laughing because they had seen a double-entendre in my remark but my companion turned round to Lousey and said “would you swallow that, Lousey?” meaning the remark that I had made. By now, everyone else, including me but excluding my companion and Lousey, was rolling aound on the floor in fits of laughter about this even more outrageous double-entendre that had gone clean over the heads of my companion and of Lousey.

Downstairs, Alison had already gone to work so I had my breakfast and said goodbye to Brian, thanking him for all of his hospitality, and then I hit the road.

I missed my turning into Leuven, ended up going by Nossegem instead, following the signs for Machelen instead of Mechelen and then being stuck on the Antwerp motorway due to a road accident, being unable to exit for the turning to St Niklaas. It really was not my lucky day.

But I am going to have to change my stereotyped ideas about the Netherlands and write a different script. I ended up in a “Jumbo” supermarket in Breskens which sold, inter alia a non-alcoholic drink called Raak Campagne Pils. One look at the label told me what this might be, and one sip out of the bottle later that night told me what it was. It was indeed the nearest thing that we can buy in Europe to Canadian Root Beer so now I am properly set up. But that wasn’t what I wanted to say. What I mean by my comments is that here in the “Jumbo” there was a bench for customers to sit, and we had free wi-fi, free coffee and free biscuits and I’ve never ever had anything like this anywhere else.

finnlines ro ro freight carrier wester scheldte vlissingen antwerpOn the beach at Breskens, we could peer through the rain and see right across the river to Vlissingen and the huge Finnlines ro-ro freight carrier that runs a regular service between Antwerp and Helsinki.

If that doesn’t qualify for a ship of the week, I dunno what will because this thing is huge, and I do mean huge.

Mind you, it had plenty of competition including an MSC container ship that was coming up behind it, which I didn’t photograph, for reasons which will soon become apparent.

sonche trader cadzand wester scheldt antwerpFirstly, I was distracted by this monster turning into the river at Cadzand.

This is the Sonche Trader, built in 2009 of 53,000 tonnes and flying the flag of Liberia. she’s coming in from Callao in Peru via several other ports. Her last port of call was Rotterdam, although it might not look like it.

And as I turned my attention to the MSC container ship, it was here that I was distracted once more because I had a phone call.

One thing that I do like about being a dazzling European cosmopolite … "did you forget “modest”?" – ed … is that here I am heading south to north via several different countries, and I have another dazzling European cosmopolite friend heading east to west through several other different countries, and our paths dramatically cross.

hans field selfie ted ferry terminal zeebrugge belgiumAnd so half an hour later, Strawberry Moose and I are in the ferry terminal in Zeebrugge, Belgium, having a coffee and a chat with my friend Hans and his travelling companion, Selfie Ted.

They are travelling from their home in Munich on his way to the UK to see family. You’ve no idea just how small the world is, and regular status updates of your social networking sites, so that your friends can see where you are, make it even smaller still

pauls hotel duinbergen knokke heist belgiumIronically, before I drove up to Belgium I was planning on coming up on the train, and if I had a few days spare, like now, I had planned to come to Knokke-Heist to stay.

And when you are feeling tired and ill and you need to stop, you find the first available hotel regardless of price. And so here I am, in Knokke-Heist of all places, at a shabby-gentille hotel at €70:00, breakfast included, and for Europe, I’m quite satisfied with what I received.

Surprisingly, there’s no fritkot in the vicinity because I went for a slow walk to look around, and I’m not taking the van out to go to look. A packet of biscuits (and my root beer) will do me for tonight.

Tomorrow, we’ll hit the bored tunnel, cheer it up and then go off to Zouteland on the island of Walcheren to see what we can find.

0

Tuesday 22nd March 2016 – TODAY’S THE DAY …

… that I have my defining interview at the Universiteit Ziekenhuis Leuven – the University Hospital of Leuven.

And so this morning I was up fairly early, bumping into Alison on the way downstairs.

I’d been back on my travels during the night too. Back to the UK in fact. There I was, rushing to catch a train at what was supposed to be Stafford railway station and my brother was there with me and he was holding me back by trying to have a discussion with me, talking to me about all kinds of stuff and I was rushing to catch this train and I wished that he would shut up and let me get on with it. Next to get in my way was a plant seller going on about how we all ought to buy plants and how everyone in the USA ought to learn gardening and all of this kind of thing and I wished that he would shut up too. There was then some American with a small wicker basket full of growing plants and a British guy was there with an almost-identical basket of plants that he had bought somewhere for just 3p more. And as I rushed for the train, a train was pulling in so I burst into the station and towards the stairs but then I realised that I didn’t have a ticket so I had to run off to buy one for Crewe. And then I ran down the stairs to the platform where the train was standing – a train of old-stock maroon coaches. The guard was leaning out of the window of a first-class carriage saying that it was full in there and then he stepped down from the train to a group of his colleagues led by a young female platform manager. I asked if this train was going to Crewe to which they replied that it was going to Birmingham which is of course in the opposite direction. But there was another train pulling in behind and the guard suggested that this might be the one. I asked the female manager if this was the London train (even more in the opposite direction to Crewe) and she came out with a sarcastic comment. I told her to stop making these witty remarks designed to do nothing but bring a smile tothe face of her sycophants and answer my question. And there I was, wanting to go on to Crewe and no-one would tell me which train I wanted to go to Crewe.

Alison had taken a day off work to look after me, which was very nice of her, so after breakfast we went into the centre of Leuven for a look around and a coffee. It’s been years since I’d been there and I couldn’t remember the place all that much, but Alison knew of a café where they served decent coffee so that did us fine for the morning, just chatting and watching the world go by.

At lunchtime, seeing as we were in Belgium, there’s only one place to be and sure enough, we soon found a fritkot. That would do us fine and it goes without saying that the chips were beautiful.

As for the hospital, it’s absolutely HUGE, and I do mean that. So much so that you could fit the hospital in Montlucon into the foyer and instead of having a trolley park like they do in a supermarket, they have wheelchair parks where you can borrow a wheelchair.

I had to be registered, which took ages, but at least everything was properly explained to me, not like Montlucon. They even gave me a brochure and I had a choice of language – Flemish, French and English.

“Follow the blue line” said the receptionist once she had finished with me, and about two hours and three miles later we arrived at another reception desk. My documents had arrived by internal intranet quicker than I had arrived on foot so I was told to take a seat in the waiting area. This was the corridor facing a row of doors which were the consulting rooms – 15 in all, which is a massive improvement on Montlucon.

I was summoned into n°13, which I found rather ominous, and I presented my papers. Not all of them, I have to say, because I was selective in what I let them see. Anything that might have prejudged the issue, I selectively held back as I don’t want the results from Montlucon to influence their minds. They can see all of the scans and all of the reports and all of the examinations, but nothing that suggests a diagnosis. I want them at Leuven to make their own diagnosis.

But I did let them see a letter which I personally think is quite infamous and which has annoyed me greatly. It’s a letter from the surgeon to my own doctor saying “the operation is a success and there are no after-effects to consider. Mr Hall can slowly pick up his former life bit by bit, the only constraints being the effects of his severe anaemia”.

That’s right – the only thing that is holding me back is my severe anaemia, and that’s what I went into the hospital for in the first place, and there’s no mention of them now looking for a cure for it. It’s as if they have abandoned hope of dealing with it, and that has upset me enormously. Hence my visit to Leuven.

As expected, the doctor picked up immediately on this, and was also totally confused about my 3.8 blood count. “Do they measure the blood on a different scale in France?”. But when I reassured her, she too was horrified by my problem.

After a good hour there of tests and examinations and questions (and a blood test) she excused herself, saying “I’ll have to go and have a word with my professor”. And that filled me full of optimism. You wouldn’t get this in Montlucon. And when she came back, we had a discussion and a debate, and the result is exactly the result that I wanted. I could have been detained for two or three days there, which I didn’t really want. I could have been told to go home, and come back in three weeks (or maybe not at all) qhich I am, quite frankly, not up to. But instead, they took all my papers away to read and told me to come back on 31st March at 15:30. That’s exactly what I wanted and it means that I can have a nice relaxing week by the seaside.

Alison and I then came home via the scenic route and after another lengthy chat – that took us up to about 22:30, I went off to my attic and to bed.

So why, I hear you ask, have I chosen Leuven for a second opinion?

There are a variety of reasons and I’ll do my best to explain them.

The first of which is that France, like many countries in the world (including the UK and the USA, before anyone says anything) is very chauvinistic. If I were to ask my doctor to recommend someone for a second opinion, he would probably send me to someone whom he knew in a neighbouring hospital. That’s no good, because he would only have had the same training and experience as my doctor.

The hospital at Leuven is huge, as I have said. It’s a teaching hospital – a University Hospital – so it’s constantly at the forefront of the latest news and development in medical treatment. It will(I hope) know everything about new discoveries and techniques long before the news filters down to a small rural hospital in France.

Alison was treated successfully for a very serious illness, as were a couple of other people whom she knows, and I’ve heard good things about it from my time in Brussels.

Furthermore, my experience is that the Belgians are much more cosmopolitan than most people in the world. They have no false chauvinistic national pride as such and so it’s much more likely to be the place that, if they can’t help me with my problem, a doctor would say “well, I heard about this illness being treated successfully in Los Angeles or Vladivostok”, without a hint of misplaced national pride. And with my medical insurance, I can travel the world looking for treatment.

Of course, having said that, I bet that it won’t work out at all like that. But it’s clear that Montlucon isn’t working and I’m going nowhere there. I have this medical insurance that entitles me to treatment anywhere and so I may as well make use of it. I’d be silly not to. And here in Leuven, I can speak the language after a fashion (and after a week here, I’ll speak it better too and I love the Flemish language) so all in all, it’s the ideal place for me to take my first step on the road to what is likely to be a very long and interesting journey.

And, of course, I’m amongst friends too and that’s very important. I may not have many friends but quantity is not important, it’s quality and I have some of the best friends that anyone could wish for, as events since November have proved.

Where would I be without you?

0

Monday 21st March 2016 – SO OFF I SET …

new access hotel crouy soissons france… from Ice-Station Zebra at 09:15, straight into the Intermarché over the road for a tomato and baguette to go with my vegan cheese for lunch. And of course, with it being Monday, there was no fresh bread. Still, start as you mean to go on, hey?

But I got my own back on the hotel for the miserable night that I’d had here. I helped myself to an extra mug of coffee, an extra orange juice and a third lump of bread to go with the jam – so saving on the heating didn’t save them anything in the long run. But as I have said before, at €35 per night plus €5:00 for the breakfast, I have no reason whatever to complain.

The drive up to Leuven was totally uneventful except that it took ages to find a boulangerie, but it was well worth the wait as the bread was beautiful. And I almost lost my way in Maubeuge, so much has it changed since I was last here years and years ago. But one thing that I discovered was that just half-an-hour from where I spent the night, on the outskirts of Laon, is an “Ibis Budget” hotel. More expensive than where I spent last night, to be sure, but the heating will probably work and they do have private facilities. As well as that, Laon has a very interesting history and is one of the places on the list of “towns to see before I die”. Consequently, I have made a note of the hotel.

But I’ve forgotten what a dirty, depressing place Belgium is. You can see it as soon as you cross the border. And the roads can match the worst that Labrador and Northern Quebec can offer. They are a disgrace to the western world. I can see now why I left the place as soon as I could.

So while I’m stopped at Heverlee Services eating my butty, let me tell you about last night’s travels.

We started off with something to do with a sandbank in the English Channel. It was only visible at low tides and then only on occasion, and there was one permanent settlement on there, with ust one permanent inhabitant. Although it was a British possession, it was accessible by some kind of causeway from the French mainland. You could see by some kind of heat-map or similar that the English Channel was very low in places and that there were these semi-submerged sandbanks all over the place.
But from there I was on my holidays, in a chalet on a sand dune somewhere. There was some bad feeling here at this place and I was the centre of it for some reason. I’d heard that some people were planning to attack me when I returned home, but I was out for a walk and going to buy some milk (I’m not sure why) and some bread from the shop. I scrambled up over a dune and came past the chalet of the owners who pointed out a sandbank to me (could this have been the earlier one that I was talking about?) but anyway I scrambled on to the camp shop. Here, I was chatting with the proprietor and he told me about one or two incidents on the camp so I told him that I’d already been attacked but I had fought off my attackers with a milk bottle and described in gory detail just how I had done it.

Alison rang me up while I was eating my butties. She was finishing work early and so she would be home by 15:00. so at 15:05 I was outside her house, with her waiting for me at the gate. She introduced me to Brian and we all had a cup of coffee.

Alison and I worked together at that weird American company – The Conference Board. That was a strange place to be – a ruthless American company operating a ruthless American employment regime and being upset by the constraints imposed upon it by European employment law. Not only that, it was living about 30 years behind the times in its commercial approach and was resisting all efforts to drag it kicking and screaming into the 21st Century. There were only 4 of us who were anything like normal, and we had all gone within 12 months. And if I’m classing myself as “normal”, you must really all be wondering about the others.

We had such a chat and so much to talk about that I didn’t realise that it was well after 23:00 when I staggered up into the attic. She has a lovely house – an old 2 bedroom end-of-terrace house with about 5 different extensions so it’s like a labyrinth inside and it’s wonderful.

So now I’m tryng to get myself ready for my hospital appointment tomorrow. This is the crucial moment in my life so I need to be on my best form.

0

Saturday 19th March 2016 – JUST FOR A CHANGE …

… I didn’t have to go anywhere today. And do you know what? Well, so I didn’t! The only time that I set foot out of the house was to fetch the bread from the boulangère.

Mind you, I’d been far enough on my travels during the night and so I reckoned that I owed myself day of peace and rest. The first part of last night’s adventure was quite gruesome. It concerns a man, a big businessman who was very rich whose sexual orientation was not restricted to members of the human race. Our attention had been drawn to him by looking through some old declarations that he had made of the income of a cinema that he ran, which had made a profit of just £205 but in actual fact the turnover ran into millions but was paid all out in expenses and there were various anonymous letters sent in alleging that this person was up to no good. As a result, we had this person under surveillance. We’d followed him to a party where he had met a girl who possessed the ability to transform herself into a dog and he found this to be quite interesting, so he went off with her at the end of the night. We talked to another girl at this party – she was a friend of the first girl – she wasn’t quite sure of what was happening. She was waiting for her boyfriend but it seemed as if he had deserted her for someone else. We were sympathising with her. We then picked up some news and so this girl, a small boy of about 6 or 7 and this girl piled into my car which was an E-type Jaguar hard-top with wire wheels to set off and see what was happening. One of the rear tyres on my car was damaged – there was some of the side wall which was breaking away due to the tyre having hit the kerb really hard and I hadn’t had time to change it. We shot off to the other side of this town nevertheless and found it to be under attack by aliens. This man had been parked up with this girl in his car in a quiet corner of this part of town and found himself right in the firing line. She had escaped, disguised as a dog, but he was trapped there. This girl and I had to brave the heavy fire of these aliens and run through the barrage to his car to extricate him and stick him in the back of my car. The girl who had come with me told me that she would stay behind to hold off the aliens to give me an opportunity to take this man away in my car and take him to a clinic. This was urgent because something had happened to him – whether it was to do with this girl or to do with an interaction with these aliens, but he was transforming himself into some kind of ugly monster and I had to throw a blanket over him to hide him from passers-by and from this boy. The girl gave me definite instructions where to take him – I must go to his clinic and only to his clinic because they had his records and probably knew something about his condition. So we shot off, braving the barrage of fire and with this bad tyre that was now becoming urgent and drove through the streets of this place, which bore more than a passing resemblance to Chester. On a corner of a street was another girl whom we knew and who had some connection with this man, and she was talking to the matron of the clinic where this guy usually went for treatment. We took the car round to the clinic, as the matron told us where it was, and we tried to persuade the people at the clinic to send out a stretcher and some men to take our passenger inside discreetly. However they insisted on doing things formally and we ended up being submerged in administration and paperwork while this man’ condition was deteriorating rapidly and the other girl was out on the edge of town under attack from aliens and I needed to get back there to rescue her. But this bureaucracy was stopping me from doing anything.
Later on, I was living in a house with a lot of kids and adolescents.We’d all been to church very early on one Sunday morning (which of course is highly unusual) and then we came back to start to think about breakfast. In the meantime, I’d been playing with one of the small girls, sitting her on my shoulders and giving her a run around. We had a lot of fun doing that and then came back to see the little puppy that these people had, playing around with some huge husky-type dogs and they were all having a really good time. I went of to make some toast for my breakfast but someone had already filled the grill pan with bacon. I simply put my bread on a higher level of the insert in the grill pan (we come across some astonishing items during our nocturnal rambles, don’t we?) and put that underneath the grill (why I didn’t use a toaster is something totally beyond me). I was halfway through writing an essay of some kind but I had to get up and do something, and in the meantime the girls who were involved with this bacon came downstairs and saw their bacon almost cooked so they sat down to eat it, right where I had been sitting writing my essay. I heard the two girls discussing my essay and saying that they had finished it off for me, writing that wherever I had reached in my essay was all down to feminist antagonism. I had to quickly grab hold of my essay and sit down to rewrite it and edit out their ending.

What with all of that, no-one was more surprised than me to be up and about yet again, a long time before the alarm going off. I had a nice leisurely breakfast and after the nurse had been I sat down to catch up on a pile of paperwork, an activity only briefly interrupted by my decision to go for a shower, which I can do now that my trials and tribulations at the allergy clinic are over.

This afternoon, I sat down to do my medical expenses. I need them to be up-to-date before I go off to Leuven tomorrow afternoon. Just a mere 50% of my pension this month, and that’s still with a few outstanding. It goes without saying of course that I haven’t yet had the reimbursement of the last lot that I sent in. After all, it’s only been three weeks!

We had leftovers for tea tonight, and by that I mean the leftover vegan meatballs from the other week that were put in the freezer. and like most spicy food, the longer it’s kept, the better it tastes. With spaghetti and tomato sauce they were delicious, especially washed down with home-made vegan ice cream.

So tomorrow, I’m off. But before I go I have to pack and to check Caliburn’s oil and water, and to wash and clean the camping stove. I have remembered the kettle and water but I’ve just realised that I’ve forgotten the coffee!

There’s always something, isn’t there?

0

Wednesday 16th March 2016 – HOW WE LAUGHED …

… when the nurse said something last night about it going to snow today. And so would you have done, given the glorious day we had yesterday.

But coming back from Montlucon, and passing through Villebret where you start to climb up into the Combrailles, I saw a few suspicious-looking white flakes being blown about in the sky. By the time I climbed up over the Font Nanaud and down the other side towards St Gervais, the sky was clear again but about half an hour after arriving back here, we got the lot. There’s now about 10mm of snow outside and it’s still falling.

Yes, and I have to go back (GRRRRR!) to Montlucon and the hospital tomorrow too. I arrived there nice and early but had to wait for almost three quarters of an hour before I was seen properly by the nurse. She examined where I’d been injected and where I’d been patched, and told me that there is some reaction so I need to return for further tests.

You don’t need me to tell you what I think of that.

But anyway, off up to the day hospital and the blood transfusion. My favourite nurse and my second-favourite student were there and once more there was a decent and convivial crowd in the room. We all had quite a laugh and a good time, which made us all feel better and helped the time pass by.

Lunch was the usual disgusting muck but at least it was something, I suppose. And although I was finished by 14:30 I told them that I wasn’t leaving until I had had my mid-afternoon coffee.

On the way back from Montlucon I got myself lost in the back streets trying to find the short cut to LIDL. I needed some of my vitamin B12 juice and some sparkling water, and I also bought a couple of big packets of crisps and some packets of sweets to nibble on while I’m driving to Leuven. And they sell 1-litre bottles of orange juice in there and they are just the thing to drink in the van while I’m driving but as usual, Bane of Britain forgot to buy any.

I was going to go back home for a couple of hours afterwards too but it was rather cold and that made me think for a moment, and then with the white stuff, I decided that being back in the warmth and off the road was a much better plan.

And here I am and there I’ll be in a moment – in bed. I’m not going for a walk tonight as I’ve walked far enough today (as well as going all around the hospital I had to go off to find the Records Department to pick up a copy of my file to take to Leuven).

And while I’m on the subject of files and records, I did ask the doctor there to prepare his file and records ready for me to pick up. And so I went to see his secretary and it will come as no surprise to you all to learn that he hasn’t done so. I told her “Friday at the latest” (well, actually vendredi au plus tard, but you get the idea).

So I hope that I have a more interesting and exciting sleep than I did last night. I was out like a light in a very deep sleep and the only recollection of what happened was what was on the dictaphone. And we were dealing with football issues yet again.

We were talking about the Controle Technique in football (well, exactly!) and one of the issues in this is that the player concerned has to take a penalty kick. Now it doesn’t matter whether the player scores or misses, or whether it’s saved by the keeper – it’s all down to whether the player is capable of kicking the ball in that situation. One player having his Controle Technique came out onto the field. He was wearing a red football shirt with his name on the back – a really long name that ended with Platini. He was preparing to take the kick but we noticed that underneath his shirt he was wearing a Father Christmas outfit complete with hood trimmed in white and with a white bobble – and his hood is up on his head. He runs in to take the penalty as soon as the whistle is blown, but almost immediately the whistle is blown again to stop the kick being taken, in order to order him to put his hood down so that the controller could see his head and face. And so he does, and then he runs in and takes the kick again. However the keeper is really quick off his line and manages to block the ball with his knees. The ball thus ricochets off his knees up into the air. Now the goal that they are using for this is actually an over-bridge, so it’s clearly the correct dimensions for a goal underneath it. The ball balloons up and over the bridge past the people who are crossing the bridge and then back down the other side and goes quite a way away. The man who has taken the penalty now needs another ball to do something different and so he climbs up the side of the cutting which this bridge crosses, and plucks another ball that was in a bush that was growing on the top of the cutting, so they can continue this Controle Technique.

After all of that, I was down here early yet again, breakfasted and off on the road at 07:30 with the coffee in my Tim Hortons thermal mug. The drive was pretty uneventful with no-one in my way and even though I stopped at the bank to add to the fighting fund, I was at the hospital for 08:20.

I spent most of the day dealing with my Canada 2014 voyage for the month of September. I’ve now arrived back on Nova Scotia (travelling backwards of course) but then I had to start from the other end at Montreal and reach as far as the Sorel – St Ignace ferry across the St Lawrence because there’s a gap in my notes. I know that they are there because I remember transcribing them and I’m sure that I’ve seen them, but they are probably out of order so I’ll need to find them – and the easiest way to find them is to start at the other and and file the stuff from there, and eventually I’ll come across them.

That’s a nice job for me tomorrow then, seeing as how I have to spend all blasted day in that perishing mausoleum.

0

Monday 14th March 2016 – WELL THAT’S ME TOTALLY P155ED OFF!

I had my blood test at the hospital this morning, and the blood count has gone down yet again to 8.1. And that’s despite having a blood transfusion the other day. The operation that I had to go through 6 or 7 weeks ago has clearly done no good whatever and I might just as well have saved myself the agony.

The thing that gets me though is that no-one in the hospital seems to care. Here they are, messing about with allergy tests for a different medication to deal with the immunity issues following the removal of the spleen, and on Friday I’m in hospital for a scan on my lung to see where this blood clot (the one in my lung that I picked up in hospital) has got to.

But as to my underlying illness and the causes of it, and any potential solution – not a word!

What made me even more depressed about all of this is that while I was sitting in the allergy clinic with all of these patches and injections and so on, I was editing all of the photos that I took in Montreal and sorting out all of the notes that relate thereto. And then I got to thinking about just how much I enjoyed the city and how much I felt at home there. And then I reached a conclusion.

And that is that seeing as how no-one cares, then I don’t either. if nothing definite comes out of my visit to Leuven next week and they can’t sort something out, then I’m on the next plane to Montreal. I’ll find a quiet room in a house somewhere around the Cote des Neiges, which really is my favourite part of Montreal, and let nature take its course.

I can’t go on like this. it’s nothing short of purgatory for me to have to go through all of what I’m going through and for no good purpose either. I may as well not be here and be somewhere else instead, whether in this world, the New World or even the next world.

What didn’t help matters very much was that I had another one of those comfortable, reassuring dreams where everything went according to plan, our hero got the girl and we both walked off together into the sunset and all of that – something that never ever happened to me in real life and how I wished that it had.

I was back playing in my rock group from the 1970s again and we were totally unrehearsed – we hadn’t played together for years and we were featuring in a venue somewhere. This was downstairs in a basement somewhere, rather like Enoch’s in Crewe used to be, and we weren’t even sure what numbers we were going to play, never mind how we were going to play them. This went on and we didn’t have all that much idea about what we were going to do. We spent so much time discussing and debating it that we weren’t actually getting anything done. There were quite a few of our friends there, including one particular girl whom I fancied and who I was trying to impress, who were coming to see us and so we HAD to be organised. Came the afternoon of the gig and we decided that we would have a rehearsal. I headed off towards the rehearsal room, carrying my bass guitar and there was some girl, whom I had seen vaguely back in the past but I hadn’t particularly noticed very much, came over to me and asked me if my guitar was a Gibson SG. I told her to count the strings, which she did, and agreed that there were just four of them. And so I told her that it was in fact a Gibson EB3. We started to talk about bass guitars and musical instruments, and she said that she had a mandolin with four strings on it. Of course – a mandolin – that brings back Lindisfarne and “Road to Kingdom Come” and “No Time to Lose”, all of that kind of thing. We ended up having quite a chat about this kind of thing, and she said that she could actually play some Lindisfarne music on the mandolin. It’s always been my ambition to play in a folk-rock group like Lindisfarne so I egged her on to go and fetch her mandolin,which she did and we had a brief jam session. After that, we wandered off together hand in hand. As I said earlier, this was another one of these comfortable situations and I wish that I could remember who she was, or even what she looked like – rather different from the Girl from Worleston the other night whose face is still vividly fixed in my mind. Anyway, off we went, hand in hand and there were a few people loitering in the vicinity who noticed the pair of us together like that and gave a little smile to each other. We walked to a rocky wall where there were a few seating areas set into it at various levels – just flat, grassy areas. I invited her to sit down with me but she said that she had other things to do and didn’t have the time. I continued to encourage her to sit down, she continued to be doubtful and it was at this moment that I woke up rather dramatically and shattered the illusion, much to my dismay.
After the usual crawl down the corridor I ended up at the football – Nantwich Town in fact. And while Nantwich Town might have a new ground, down on Kingsley Fields, this match wasn’t being played there. And neither was it being played on their old ground at Jackson Avenue either, but in the street in London Road right more-or-less outside Churche’s Mansions. I was watching the game, with about 4 or 5 others (huge crowds they have in Nantwich), a couple of girls and a couple of kids, having a kick-around with the balls.There was a really strong, swirling wind blowing that was creating havoc and on one occasion, much to my surprise, I actually caught the match ball one-handed, swerving around in the wind as it went out of play and that was really impressive. For the rest of it, the conditions were really difficult and catching the ball, even a simple catch, was really difficult if not impossible. We were actually watching this at the back of a river and the house rear yards backed right onto it. One small boy was climbing over the back wall and the wooden fence on top and lost his footing, sliding straight down into the river and emerging all covered in green slime. That certainly looked unhealthy! All of these houses had basements that were well below the level of the water but were somehow really dry. I wouldn’t have liked to have lived down in there, although there were people quite happily doing so. There were two teenage girls watching this football match and they lived in one of the houses. At half-time they went back to their house where the mother was cleaning the room of one of these girls, and one of the girsl asked the other what she would like for breakfast. The other replied that she would like one round of cheese on toast with half a packet of crisps and a coffee. I said “breakfast? It’s getting on for 10:30 and most of us had eaten breakfast long before this match kicked off”. But anyway, the first girl dragged a big metal wood-stove out from a corner into the middle of her little basement room ready to fill it and light it to make the toast and put the kettle on. They asked me what I would like to which I replied that I’d had my breakfast a long time ago, but I’ll have a cup of coffee with them. They next asked me what coffee I wanted and what mug I wanted and I thought that they weren’t half making life complicated when all that I wanted was a simple cup of coffee.

But anyway, enough of this. I was up early enough, breakfasted and on the road by 07:40. And what a beautiful morning it was too. I was in Montlucon at the hospital by 08:30 and in the comfy chair by the power point at 08:40 too.

I had the blood test, as I mentioned, and then had the drain fitted, and then injected and patched with all kinds of things. My companion from the other day was there too and we had quite a chat. And while I might have won the “mine’s bigger than yours” competition by having the largest lump on my arm, I felt really sorry for her with all of the tests that she was going through and the mess that they had made of her arm. In consolation, I let her have my mid-morning cake to cheer her up.

We had quite a few moments of humour too, including when one of the others asked if she could leave the room to use the bathroom.
“You’re supposed to raise your hand” I retorted.
“Just like school” said someone else.
At least, despite everything else, there’s a good feeling of cameraderie there in that clinic and the nurse is a really good sport too, which is good.

But the bad side of this is that I’ve had a few adverse reactions so I need to come in again. I explained my situation, all of my hospital appointments and my visit to Belgium and as a result, exceptionally, they can fit me in provisionally at 09:00 on Thursday.

I mentioned that at this rate I ought to be looking for an apartment here in the vicinity of the hospital and asked the young girl here with me whether she had a spare bed in her room. She said she did, but her mother wouldn’t like it. I asked “who cares about your mother?” which made everyone smile, but didn’t have the desired effect.

Not that I expected it to either, but there you go.

As for the blood test though, it’s on the limit of the blood transfusion level, but that’s not good enough for me. I’m off to Leuven next week – 800-odd kilometres by road – and I need to be on my best form for the journey. So what I’ve done is to change my little one-hour appointment back at the allergy clinic from tomorrow to Wednesday at 09:00 seeing as how there was a space, and then went up to the day-hospital and persuaded them to take me in straight afterwards for a blood transfusion. That way, then at least I’ll be in something-like reasonable health to undertake the journey. Coming back won’t be too much of a problem as I don’t have a time-limit for that so if I’m tiring out, I can take a good rest and carry on later.

But as I also said earlier, I’m thoroughly depressed by the way that all of this is panning out. I’m thoroughly hating the past, hating the present and hating the future too.

To cheer myself up, I went to Carrefour and the Flunch to have a plate of chips and vegetables but that was a waste of time as they were stone-cold. Liz had given me a little shopping list that involved going to Grande Frais and the Carrefour so I bought the necessary and looked for something else to cheer me up but there wan’t anything there that took my fancy. That’s always the case when you’re in the middle of a black depression – nothing will pull you out of the pit.

Back home – for only an hour as Liz wanted the shopping by 16:00 – I still couldn’t find my copy of Paint Shop Pro or anything else that I needed. But there was a little issue that the water in the home-made 12-volt immersion heater was off the temperature scale. I had to drain off 5 litres of the water and put 5 litres of cold water into it. I’ve also plugged the fridge into the main circuit so that it’ll now be working 24 hours per day. I’ll have to do something because with no-one there drawing any current, there’s tons of surplus electricity and it’s all dumped into the hot water.

Yes, 41 amps of surplus energy was being generated when I arrived and the cables to the immersion heater element were stone-cold – a far cry from 6 months ago when they overheated at half of that and I had to rewire everything. All of this, the temperature in the water and the amps that the cables are currently … "ohh! Very good!" – ed … handling just goes to show how much current was being lost by the rubbishy cables that I had been using. Decent cables, even half the diameter, properly crimped and soldered, is definitely the way to go and I wish that my soldering techniques would improve.

However, if things continue like this, my soldering techniques won’t be an issue.

I stopped for diesel on the way back and also to the pharmacie at Pionsat for the next lot of anti-biotic prescriptions (which wouldn’t have been necessary except for this spenectomie, and what a waste … "you’ve done that already" – ed … and then back to Liz and Terry’s.

After tea, which was a stir-fry with the stuff that I had bought earlier, I said “sod it!” and went to bed. I’ve had enough disappointments for one day. I’d already crashed out for half an hour on the sofa and it was beyond me to keep on going – not when I wasn’t in the mood to go on fighting.

Tomorrow is another day. Let’s see how we get on with that. Not any better, I bet.

I’ll leave you all to sit and read this rubbish – all 2322 words of it.

And serve you all right too!

0

Monday 7th March 2016 – I WENT TO RESCUE …

… Caliburn today. And it’s a good job that I did too.

When I arrived around back at my place during mid-afternoon, it was just another grey, cold day with nothing particular to say about it. And I went inside to look for some stuff that I needed – some clothes, a small rolling suitcase, my missing Paint Shop Pro CD, my passport, the post, all kinds of stuff. And while I was up in the attic I remember thinking “blimmin’ ‘eck – it’s going dark early!”

caliburn ford transit snow les guis virlet puy de dome franceBut looking up, I could see that the skylights were completely snowed over and flakes the size of dinner plates were falling down. No wonder it was dark up there.

This wasn’t the time to be hanging about in my opinion. I grabbed what I could and headed for Caliburn and then headed for the hills before I could be snowed in.Luckily, after about 6 weeks of standing around, Caliburn started up easily so that was no problem.

And I’m glad in some respects that I didn’t have to hang around too much. It was taters in my attic – all of 5.9°C although it did warm up to 6.4°C after I had been there for an hour or so. Such are the advantages of having the place bung-full of insulation. I keep telling people – money spent on good insulation is never wasted.

But never mind that for a moment – let’s go back to this morning and the blasted nurse because he flaming well forgot me YET AGAIN! And it’s blood test day too so that has put the tin hat on it, hasn’t it?

I had made a special effort to get up early too, even though I was well away with the fairies.

It was an evening at weekend and, as was my custom, I’d gone out to a nearby town (and I can’t remember now which one it was) for a good prowl around. It was something that I did every weekend, and it was always to the same town, and I knew by heart everywhere to go here. It suddenly occurred to me that I was bored with it? Why didn’t I go to somewhere different? After all, the Potteries weren’t too far away. There, I had six towns to choose from and there was plenty to do, much of which would be totally new to me. But the downside of that was that where I was visiting, there was a kind of hotel where you could go for just a couple of hours and crash out. That was something that I did every time that I was there and I reckoned that it was quite important to me. There wasn’t anywhere to do that in Stoke on Trent, as far as I was aware. But on one of my walks around the town I was looking in the window of a motorcycle shop. There was a Honda 350cc in there – something totally modern that I had never seen before. It had no seat on it and the engine was missing, and the frame was really low-slung like a racing bike. My brother (him again???) came to stand next to me and we were looking at the bike. I told him that I couldn’t make out whether it was beautiful or totally hideous. There was also an old British 2-stroke twin in the window and that was much more like my kind of motorbike. He asked me about Hondas, and especially the Honda 250. Which was the best – the CB or the CD? I told him that the CB was more highly-tuned so it would respond better when being used under normal circumstances around town and on the road (ironically, whenever I had been asked this question in the 1970s, I had always recommended the CD).
From here, via a long convoluted trail I ended up back at my house with a crowd of people there, including my brother (yet again!) and the debut appearance on these pages of his wife. While we were talking, she suddenly produced a modern single-bore shotgun. This enraged me completely and right on the spur of the moment I started to sing a song that I made up on the spot as I was going along. Sung to the tune of “I don’t want to join the army” from “Oh! What A Lovely War!”, it started off –
“Don’t bring guns into my kitchen”
“Don’t bring guns into my hall”
And it concluded
“I may not want to kill”
“but I’m not so very ill”
“to let myself be shot inside my home”
and the astonishing thing about this is not only do I remember myself singing it, but the fact that I could come up with the lyrics, all of which scanned perfectly, as I was going along – and in a dream as well.
My technique must be improving!

Being fed up of waiting once 09:15 had arrived, I had my breakfast and then carried on with a few little things that I had to do, and seeing as how I was going to see my surgeon, I thought that I would make myself pretty.
“You’d better get a move on” said Terry. “We have to be off in four hours!”

So having done that and come back downstairs to another barrage of abuse – “well?” asked Terry. “When are you starting?” – we eventually had lunch and then off on the road to Montlucon.

Now I don’t know what they are spending the money on at the hospital but it’s not on the archives department, I’ll tell you that. It was like something out of Charles Dickens. Anyway, they can give me a complete copy of my file but not straight away as they need to photocopy it – at … gulp … €0:18 per page. This is going to run out to be very expensive. I can pick it up on Friday.

Back in the hospital, I’ve changed the appointment for the scanner. As you know, it should have been the day after my appointment in Leuven but that’s clearly not going to happen. But down at the secretariat of the X-ray department, they managed to find a little gap for me – they had a cancellation for 10:30 on Friday 18th of March and so I’m fitted in there.

I finally got round to seeing the surgeon, having bumped into my little student nurse on the way up and we had quite a chat. My surgeon didn’t say anything but the look on her face was enough when I told her that my blood count was going down quicker than the lifts in the hospital. Her response was “well, we’ll see what the scanner has to say and then we’ll see what else we can do for you”.

It was those last few words that filled me with foreboding.

But everything that I asked, and all of the problems that I discussed, everything was “we’ll see what the scanner has to say”. I really do believe that they have run out of ideas and are groping a little in the dark. But my stitches have indeed disappeared – they were indeed soluble – and now I can at last have a shower, which I shall be taking tomorrow.

I only had to wait two minutes for Terry, who had been to Brico Depot for an earthing rod – and then we were off back to my place.

And after everything back there, it was nice to be back behind the wheel of Caliburn even if there was a load of snow on the road as far as the Font Nanaud. I’ve missed driving, and I’m now toying with the idea of maybe going by road to Leuven.

That’s not as silly as it sounds, actually. I was in no difficulty at all with the driving, and I have four trips to make to Montlucon before I need to leave for Leuven so that will ease me back into it. And not only that, it will save on having to walk and drag a suitcase around with me while I change from train to train.

But even that might not be an issue because with all of the walking that I needed to do today, as well as all of the stair-climbing, I was moving quite a good deal easier than I was even yesterday, never mind last week when I first started on my exercise.

If only I could do something about this continual loss of blood – but if the nurse doesn’t come to give me the tests, what can I do about controlling it?

0

Friday 4th March 2016 – HAVING MADE THE EFFORT …

… to dash downstairs ready for the nurse as soon as the alarm went off this morning, it goes without saying that he didn’t arrive until about 08:30. But then, that’s typical, isn’t it?

Mind you, I was lucky to be here at all because I had travelled quite a long way during the night. And that’s despite it taking me ages to drop off to sleep last night too. Despite my little walk, an early night and an exciting hour or so watching “The Raiders Of Tombstone Canyon” or some such, I was still tossing and turning around at 23:30. Clearly the effects of my nightmare last night were having something to do with all of that.

But eventually, off I went. And “off” is the right word to use too. Belgium was the first destination last night and there was quite a large mob of us in the Belgian public transport system, which included my brother (him again?) and my niece in Canada and a couple of her girls. It was almost as if we had been to a family gathering and I do remember Shavington featuring in here somewhere – Hunter’s Avenue being where we got onto this bus. Once aboard, the conductress came round to check our tickets and she overheard me talking to someone, telling them a most improbable story about 2 different lines on the Montreal Metro. “Oohhh” she said. “Do you know the Montreal Metro then?” and so we had a lengthy chat about Montreal (very reminiscent of something that really did happen to me on a bus in Montreal a few years ago where it turned out that the driver was not only from Brussels in Belgium – he recognised my accent – but actually drove on the route that I used to take to see my friend Marianne, so we spent the journey chatting about that route). So after all of that, she checked my ticket, which was one of these Belgian 10-pass tickets but I had forgotten to stamp it when I got on the bus so as a favour to me she took it off with her to stamp. But it kept on showing up an error, so I thought that it had probably run out and so I needed a new one, but for some reason I didn’t have any money on me. After yet another lengthy discussion, she agreed that she would let me off for this trip but I’d have to buy another ticket immediately as soon as I alighted – after all, we were planning to make quite a lengthy voyage involving a few changes of vehicle. And so we alighted at our first destination and so one of our party was asking where we could go to buy a ticket for the transport. There didn’t seem to be a ticket office anywhere. I seemed to remember that there was a place downstairs in the station where we could buy some of these ten-trip tickets and so that was where we headed. But here, at the entrance to the restaurant, was an automatic ticket machine (but it was blue like in Montreal, not yellow as in Brussels). I pointed it out and said that I may as well pick up my ticket here, so everyone else said that they would go downstairs to the railway station and buy my train ticket for me while they were waiting for me to join them. So I went off to the machine but the first side of it was actually a telephone, not a ticket machine. The second side of it had a huge queue hanging around by it, and the third side was out of order. I went to the fourth side of the machine and I was just on the point of trying to buy a ticket from here when I suddenly and inexplicably woke up.
After the usual trip down the corridor we were off again and this second part concerns a boy who was being kept as a slave somehow in a weird first-floor apartment and was being made to perform all kinds of household tasks and general slavery duties. He was determined that at the first available opportunity he would to make his escape, and he had some kind of confidant who would help him. His master, who resembled a kind of cross between Ebenezer Scrooge and Alastair Sim was equally determined that he wouldn’t, and so his life became even more grim. One day one of the windows breaks in this apartment – the day that the master is having to leave the same evening and be away all night until the following evening. It was the next day, the day that the master would be away until the evening, that this escape had been planned. Now with this broken window the master decides that he isn’t just going to have the pane of glass replaced but four complete new windows with frames at the back of the apartment overlooking the rear entrance to the courtyard. Some workmen arrive and they start to take out the old window frames and to fit new ones. As the work is progressing well, the master leaves on his journey and the young boy is delighted by being invited by the workmen to kick over all of the windows that have been stacked up against the wall and watching them break. But by the time the workmen come to finish for the day, there’s still one window not installed so they need to come back the next day. But with the window missing it’s easy for the boy to escape from the house and climb down a stack of old furniture that had been piled up against the rear wall of the house. And so he makes good his getaway. He ends up down West Street in Crewe, out by Merrill’s Bridge heading into town past the pubs and chip shops, being followed by this big ginger cat that allows him to stroke it but not pick it up. He passes by a pillar box that is crammed full of mail and a couple of postmen are busy trying to wrestle a couple of sacks of letters from it. And a little farther down the street there’s a railway level crossing with a branch junction that swings round immediately to the right to opposite where this pillar box was. Eventually, he ends up with friends and tells them some (but not all) of this story and how he is leaving the next day. In the meantime these people whom he’s visiting are loading all kinds of scrap paper into a shipping container and compacting it in with a hydraulic ram. It ends up with this boy having to go back to the apartment for some reason but he’s really worried in case the master has unexpectedly returned (why he couldn’t make his getaway that night I really do not know) but that’s a risk that he has to take. And the rest of this story becomes something of an anti-climax because he goes back, re-enters the apartment, the master hasn’t returned unexpectedly, and next morning with the aid of his friend he makes good his getaway and disappears into the sunrise to presumably live happily ever after.
After all of that it was my turn to look at a couple of short videos offering ideas for holiday venues. One that particularly caught my eye was a snow-swept Central European town and so off I went. I was walking up the street here in rather inclement weather, somewhere near a road junction, and some woman was driving down the hill slowly on the wrong side of the road, totally oblivious to me. She approached closer and closer and rolled forward to come to rest against my shin. Her car was one of these little Autobianchis, a red one, and I was musing to myself that I could flip it over with my foot, it was so small and lightweight.

At that moment, the alarm went off so I never knew how it all finished. I shot off downstairs, as I said.

This morning, I had plenty of things to do but I didn’t manage anything much because Liz and Terry left me here on my Tod while they went off to do some shopping. I had a good play around with my 3D program and tried out a couple of new techniques that I had been thinking about.

Lunch was left-over pizza (which, like anything else spicy, always tastes better the following day) and bread with vegan cheese spread. and then this afternoon, I made a start on one of my courses – this one being a basic Dutch course. I’m off to Leuven in a couple of weeks and I’ve forgotten most of my Flemish. Dutch and Flemish are very similar languages so if you can understand one you can understand the other, but I’m not sure how that’s going to work as most people can’t even understand me when I speak English.

But we did have some excitement today. Being fed up of waiting for my Insurance Company to phone me back, I sent another one of my incendiary e-mails. And having blistered the paint off the walls of the receiving office, I received a reply. Basically “please find attached our acceptance of your claim to be suffering from a serious illness”. It’s only taken them 7 weeks to agree this.

What it means in practical terms is that instead of being reimbursed the ceiling limit of claims, I can receive an ex-gratia payment to cover the costs of my actual expenditure, together with certain other benefits that would not ordinarily be covered. And that is certainly a great help as far as my finance go. I may even be able to afford to eat as well, if I am careful. It’s quite reassuring for my voyage to Leuven, which I was half-expecting to have to pay out of my own pocket.

But talking of eating, I’ve had home-made vegan lentil-burgers for tea tonight, with chips and peas followed by vegan ice cream. Liz made the burgers and I was lucky enough to be in the kitchen just as she was starting. Consequently, I had a grandstand view of the whole procedure and have made copious notes.

Now, I’m off for my little walk up the hill again, even if it is pouring down with rain and has been all day, and then I’m off for another early night.

0

Wednesday 2nd March 2016 – I’M BACK …

… from the hospital, thanks to Liz who brought me home after she knocked off work. And thanks again to Liz who also took me there too.

That meant a crawl out of bed at some ridiculous time like 07:30 and a rushed breakfast, and then off on the road.

And I was pretty exhausted too, for last night I was on my travels again. And things about my house are clearly preying on my mind because I was somewhere out there. I’m not quite sure where all of this started but I remember it from walking down a footpath (which isn’t there) at the back of my house (which wasn’t my house) through the woods (which aren’t there) and out into a field around the back where this path took a sharp right-hand turn due to a very high bank being in the way. I’d lived here for years but this was the first time that I’d really paid much interest in this bank and I was astonished when a passenger train rattled its way along it. Five minutes later, a swarm of people came along the path and caught me in the middle of a reverie. It turned out that there was a railway station here in Virlet – the train had stopped there and discharged these people. I’d had no idea whatever that there was a railway station here, especially one so convenient for my house. All of the time I’d been getting the train to the nearest rail junction and then catching the bus, and this was all quite inconvenient.This railway station in Virlet opened up all kinds of new opportunities.
From here I ended up in a pub somewhere in Nantwich – I had an idea that it was something like the Millfields (which has featured before on my travels). Someone was having problems with the indicators on his car – a late-model Nissan 180B I think – and so I had volunteered to fix them. I wasn’t making much progress and so I was tempted just to stick them back any old how but twisting the front flasher around, it started to work correctly and so I was quite happy. All of these manoeuvres had led me to get into a position where my head was stuck though the serving hatch and so the barman asked me what I wanted. I replied that I wanted nothing at the moment, so I could see the landlord making a face and a gesture or two to the barman to hurry up and get rid of me. I ended up though having to bend down to screw this front indicator light into the leg of this person (yes, it’s all logical, this, isn’t it?) but he told me that where I was screwing it, it wasn’t there before. I could see that – in fact I could see on his leg exactly where it used to be because there were little scabs there over the wounds that the screws had made – and I told him that it was going to be very painful if I were to screw it back exactly where it was. But he insisted and told me to go ahead – and so I did.

We arrived in Montlucon about 10 minutes late but seeing as they weren’t ready for me (the blood didn’t arrive until 10:40) it made no difference whatever.

The nurse putting my drain in was astonished. “Mr Hall” she said. “You really do have some thick skin”
“Well, what do you expect?” I asked. “I used to be married”.

And then I sat around and waited, read a book, did some work on the computer, downloaded a pile more films, all of that kind of thing, and chatted to a couple of friends on the internet. And I had lunch too – a plate of lentils and diced carrots, a vegetable pâté, a fruit purée and an orange. Much to my surprise, they even remembered to bring me a coffee.

It was all done by 14:30 and I was ready to be discharged. That meant sitting in a draughty hospital foyer but much to my surprise they allowed me to stay up there in the warmth. That was a good move because I button-holed my doctor up there and told him that I wasn’t satisfied with my progress and the follow-up that I was (or wasn’t) having. He was quite insistent that everything was normal – the fact that I was having blood tests and the transfusion showed that there was a follow-up.

But I asked him about the loss of blood – whether it was normal for me to lose so much blood so rapidly. He told me that things wouldn’t settle down for a couple of months, but he was lost for words when I replied that at the rate that I’m losing blood, I would be lucky to still be here in a couple of weeks, never mind months.

And he was also lost for words when I told him that I still had my stitches in – some 5 weeks or so after the operation. But he told me that that’s not his department – I need to see the surgeon (and so I tried to, and she was out of course).

However, I told him that I had been summoned to attend a meeting with the Conseil Général of my insurance company and made up a good story of why that should be so, and so he’s arranged for me to have a copy of my file the next time that I’m there. What I really want it for is of course to take to Leuven with me when I go.

Liz came for me after she finished work and now I’m back here, having had more pie, green beans and new potatoes for tea.

And it was just as gorgeous as yesterday. I really am so lucky staying here with Liz and Terry who are doing such an excellent job of looking after me. As I have said before, I shall be really sorry to leave.

0

Monday 29th February 2016 – LOCK UP YOUR DAUGHTERS AND HIDE THE SILVER!

Especially if you live in Leuven, in Belgium. Because I’ll be off on my travels in early course and Leuven is the destination.

I was on the phone for quite some time this morning, firstly to the hospital at Montlucon clarifying all of the appointments that are organised for the next couple of weeks. And once we had done that, I spent the rest of the morning on the phone to the UZ Leuven in Belgium. I told them a brief story of my medical history, how I was satisfied with neither my treatment nor my progress and, quite surprisingly, the doctor with whom I spoke totally agreed with me. I ought to be doing better than this.

The upshot of this is that he’s agreed to see me in Leuven on 22 March at 14:00. And so I’m going.

What’s even nicer is that my friend Alison who lives a short drive away from Leuven has very kindly offered to put me up for a couple of days while I’m there and let me borrow one of her three cats. I think that that’s a really nice and generous gesture on her part and makes me feel so much better. Terry however clearly reckons that she doesn’t know me all that well.

And not before time too because I had the blood test this morning and the results were ready by teatime.

And it’s grim reading. What started out at 10.4 when I was in hospital and went down to 9.8 and then to 9.0 has now dropped dramatically through the floor to a dismal figure of just 8.0 – that’s a loss of over 12% in a week. And that’s after everything that I’ve been through and all that I’ve suffered over these last couple of months. Nothing has improved, I’ve picked up a pulmonary embolism and I’ve suffered pain like I never knew existed.

And all, apparently, for nothing.

And the thing that galls me the most is that my loss of blood is dramatic to say the least, and there’s not been a peep out of the hospital. I would have thought that this is all becoming urgent, not to mention crucial, and the people at the hospital haven’t shown even the slightest hint of interest at all.

In other news, I’ve had a reply back to my e-mail the other day. They’ve asked for my phone number so they can call me for a chat. Right after I made “other arrangements” for a second opinion. But of course this phone call is probably to tell me that I’ve been sacked or some such. I wouldn’t be surprised.

So having got all of that off my chest, what else has been happening?

We had another night of being careful how we left the bed due to bits of me being all over the floor. Twice in two nights, this.
But back in the arms of Morpheus and I was back off to a lock-up garage somewhere that I didn’t know and in there was some kind of small two-door estate car, dark blue, resembling a late 1960s Toyota or a FIAT 128. I was looking at this along with another person who had some kind of mechanical aspirations. The vehicle had been bought by my brother at an auction for £400, which was a lot of money to pay for such a vehicle, never mind its poor condition, and the person I was with expressed his surprise that my brother hadn’t tried to beat down the vendor to a more realistic price. Anyway, I couldn’t hang about. I was off up to Stoke on Trent, somewhere round about the Waterloo Road (which it wasn’t, but never mind) in a big van that I had at the time. I ended up down a side street in a maze of terraced houses being shown a room that was to let in a terraced house that was being used as a lodging-house. A girl that I knew – someone from my old days in Stoke on Trent – was running the place and so I asked her about it. She said that it was formerly a vet’s office but when it came onto the market it was too good to miss and so she converted it into rooms, with she and her family living in a tiny room right at the top. We went outside, there was a lovely (if that’s the word) view of the street lights and the urban area in the dark of the North-Western Potteries, all of the lights twinkling in what was a very late and clear evening. They say that the best time to see the Potteries is during the hours of darkness during a power cut and the local newspaper once famously described the old railway line that passed through here as “10 miles of the world’s worst scenery”.
But scenery notwithstanding, I’ve now moved on to Brussels (so there really isn’t all that much difference) living in an apartment that was part of a house conversion – what they call a trois pièces en enfilade. It’s not a very pretty apartment but anyway we start off with me not being there. I’m with Nerina up on the huge concrete windswept plateau on the high-rise council estate not too far from the Heysel Stadium and we’re looking over the parapet to some mid-rise (about 10-storey, I dunno) concrete-and-glass tower blocks. There are about dour of them, with a square footprint and they have some kind of reputation of being quite comfortable and pleasant places to live. Nerina was saying that we should have gone to live in a place like that and while I didn’t disagree for a minute, I did say (and quite rightly so) that a place such as that is way outside our budget. But we ended up back at our apartment (or maybe it was mine and she was only visiting) and we started to tidy up the place. There had been a new television delivered and I was idly flicking through the channels when I suddenly found a Morecambe and Wise film – and one which wasn’t part of the Morecambe and Wise trilogy either. And so I sat down to watch it while Nerina sat down at the other end of the apartment to do some painting. At a certain moment she asked me to pass her a bottle of paint of a red colour and so I walked over there to hand it to her, but it was the wrong bottle that I gave her.
Before she had time to say anything about this, the alarm went off and that was that. And despite a reasonable night’s sleep I was thoroughly exhausted. It was all that I could do to stagger downstairs.

At least I didn’t have to wait too long for the nurse to come to take my blood test.

Once everything had been sorted out and we’d had lunch (I had the very last of the curry with some bread) I cracked on with the dictaphone notes and now, there remain just 26 soundfiles to transcribe and we’ll be done. And I can’t wait to finish them off because there’s a lot of other work that has now built up and I need to deal with that too.

For tea we had pasta and sauce and garlic bread, and I’m really going to miss all of this when I go to Leuven – if I ever get there because I went out for a walk just now with Liz and I couldn’t even make 50 metres up the hill outside.

I have therefore cancelled my little trip out on Wednesday to collect Caliburn as I’ll be in no state at all to drive him.

All of this is starting to look very ominous indeed and I am dismayed.

0