… idea of just how difficult I’m finding things right now?
Today at the hospital they had no fewer than 5 goes at putting a catheter into my arms. My left arm is hurting like hell as a consequence and my right arm isn’t much better. They finally managed to fit one into the back of my right hand and they’ve left it in there for tomorrow.
Consequently even the most simple of tasks like going for a ride on the porcelain horse is … errr … somewhat complicated, and I’m going to be in a right mess by the time that they remove it, if they ever do.
So that’s the bad news. How about the worse news?
According to the neurologist I’m in quite a mess (no surprise there, but she’s actually referring to this infection in my nervous system) and I mustn’t count on this week being the only week during which treatment will be given. They will take a blood test before I leave here tomorrow, let the nerve specialist here in Granville know the results and see whether (as is quite likely) further treatment will be necessary.
Apparently this stuff that they are giving me is quite vicious so they can only give it to me in dribs and drabs. As a result it seems that some kind of plan about coming back here for a week every month or two will be on the cards for the foreseeable future.
In other words, one week in every 4 I might be in Leuven and a second week in every 4 I might be in Avranches. So I don’t know why I’m bothering to buy an apartment. I may as well rent a hospital bed.
Some people might be wondering why I don’t simply have my treatment in one place. Well, believe me, that was the initial plan but regular readers of this rubbish will recall the events of early December last year and how that ended up. At least, here in Avranches they are taking it seriously.
But anyway, I digress.
Last night wasn’t as good as the previous night’s sleep. Once more it took me an age to go off to sleep. However I was awake at 06:20 this morning long before the alarm went off and by 06:45 I was up and about.
After the medication and a good wash Caliburn and I hit the road and headed off for Avranches. I’ve found a new way to the hospital which while being slightly longer, is rather quicker as there’s a section of dual carriageway where I can open Caliburn up to 110kph. He needs a good run like that to blow the soot out of his fuel injectors.
There was something of a wait while they sorted themselves out and fitted my pipes and tubes, and then they pumped me full of the stuff. The neurologist came for a chat while it was all going on, and then when it finished she gave me a few tests – tests that confirmed what we all know, and that is that there is no power at all in my right leg.
As a result of all of this I was later than usual coming home and after having my toasted fruit bread and coffee I … errr … crashed out for an hour. This stuff takes it out of me right enough
Once I’d recovered my composure I had a listen to the dictaphone to find out where I’d been during the night. I was in Shavington at one point, living in our house and I had to go to pick up the post. For some unknown reason the post was delivered in the back garden of the next-door neighbour. We had to cross through the gap in the fence and walk down their path to the end of the garden. When I did that there were 2 kids playing in the back garden. One of them wanted me to tell his friend about the 2 dogs we used to have. I said “if you want to see them you have to have very good eyesight. They aren’t here any more”. There was some music playing. I asked about it. There was a record player there that had an amplifier with a speaker attached and then there was a separate speaker. The lad said that the amplifier and connected speaker and the other free speaker with it were on sale for £80. I thought that that was a good deal and I gave some serious consideration to buying it.
Later on we were living on a farm somewhere. Our next-door neighbours were Percy Penguin’s family. We were working in collaboration with them. I had to go to pick up something from there but I didn’t really fancy meeting their dog. I went anyway. WHile I was there I picked up the bicycle that her father had had. I noticed that the wheel was buckled but I had a ride all the same. Then he said that he’d been out on it a few days ago but had had a puncture. This was obviously what he meant and I wondered if I should mend the puncture for him. But that’s not going to solve the problem of the wheel. There was another neighbour round at her house too so I went back with this bike and propped it up in our yard but it fell over with a couple of other bikes too. We had a chat but I suddenly looked at my watch. It was 09:54. I thought “God! I start work at 10:00. I’m going to have to go”. I had to hurriedly make my excuses, at the same time talk about this bike and get ready to clear off for work.
But it was strange being round at Percy Penguin’s house talking to her father and she wasn’t there. She must have heard me coming.
The rest of the day has been spent in an unsccessful attempt trying to track down a copy of a single entitled “Lucy Brown” by a musician called Trevor Williams. At another time he was bassist with a group called Audience whose album HOUSE ON THE HILL has been on my playlist since the day it came out.
Apart from that, I’ve been writing a few more notes here and there but it’s not at all easy given the state in which I currently find myself.
Tea tonight was one of those curried burgers of which I seem to have a shed-load, together with some spicy fried rice with onion and garlic, and some spinach for good measure. And that was really delicious.
But right now I’m off to bed. I doubt if I’ll sleep tonight because I’m in agony and in any case it’s not easy to make myself comfortable with this needle in the back of my right hand. But I have to go through the motions.
Tomorrow I hope that I’ll be free to go on my way but if these treatments have to continue I’m going to see whether I can persuade someone to fit a catheter port in my chest like I used to have.
That was painful but they only had to do it once in 5 years. 5 times in one day is going completely overboard.