… really bad day at dialysis, like all of them see to be becoming these days. More than enough things went wrong today to convince me that maybe I just ought to be doing something different. We even had a world record low blood pressure, if you think that the 68 a few months ago wasn’t low enough.
And last night, it didn’t help much either. After the football had finished, I wasn’t in the least bit tired, so despite what I had said on the previous day, I stayed up and wrote my notes, and then I put them online before finally going to bed a good few minutes after midnight.
Once in bed, I can’t remember going to sleep, and I can’t remember waking up either. It was simply a case of “why is it suddenly 03:30?”.
It wasn’t 03:30 for long because I must have gone back to sleep once more without realising it. And there I was at 06:29 when the alarm went off.
Once more, it was the usual struggle to force myself to my feet and head into the bathroom to sort myself out, but I had a good scrub-up and even a shave in case I meet Emilie the Cute Consultant at dialysis this afternoon.
Back in here afterwards, I had a listen to the dictaphone to try to find out where I’d been during the night.
This is something of which I have no recollection at all. I know that I was awake at 03:30, but I suppose that I’d gone back to sleep when this dream happened
This is something that is presumably related to the latest news coming out of the Football Association of Wales this week, something to do with the fact that in the Women’s Welsh Cup draw, no fewer than 4 clubs have been included that don’t even have a ladies’ section, never mind a ladies’ team, entered presumably by speculating fans.
Isabelle the Nurse turned up as usual, her usual chatty, cheerful self. We talked about her garden, and that too has been devastated by the drought, including some plants that her father planted in his garden to celebrate her birth.
She did, however, say that some of her herbs were still going strong, and she’s promised me a few offcuts of rosemary and thyme for my little aquaculture project.
After she left, I made my breakfast and read some more of A HISTORY OF ARCHITECTURE by Charles Freeman.
Today, he has Augustus Pugin, the celebrated architect who led the “Gothic Revival” in the UK in the 1840s and 50s, firmly in his sights. "Surely then the segmental arch, which springs from the jamb at a sharp angle, is both more horizontal and less elegant than the four-centred, in which the angle is rounded off”, and the arch in the best specimens rises as gracefully and gradually as the simple pointed. Above all things it cannot be consistent in Mr. Pugin, who in his own buildings employs the segmental arch usque ad nauseam, to speak of the four-centred as a sign’of debasement. At the same time it is undeniable that the four-centred arch was in the last days of Perpendicular applied where it should not have been, just as the segmental was sometimes, though less frequently, at an earlier time."
Back in here, I had a few things to organise, but somehow, I managed to run out of time before I’d even started work. My midday reminder rang so I had to go into the other room and sort myself out with the laptop and other things that I need for dialysis, put on my shoes and sort out a disgusting drink with the midday medication.
My cleaner put in an appearance too. She applied the anaesthetic to my arm, and we had a little chat about this and that before she went back to her own apartment. I curled up in a kitchen chair, slumped over the table, and went immediately to sleep.
When the taxi arrived, ten minutes early, I was in such a deep sleep that I didn’t know where I was when I awoke … "nothing new there" – ed … and I was quite unsteady on my feet for a few minutes. My driver was a Ukrainian refugee and came to pick me up in a B-class Mercedes. The taxi company that I use has recently taken over another company in a nearby town, and this is one of their vehicles. It makes a change to travel in luxury rather than a base-model Skoda Octavia.
We had to go to pick up Mrs Dinosaur from her exhibition (even some of the taxi drivers are now referring to her as Madame Dinosaur) but even so, we were still a few minutes early. I had to wait a little while to be connected, but by 14:15 I was up and running, with the machine once more nearly on “flat-out”.
There were doctors on duty today, but while they went to talk to some of the patients, they seemed to be deliberately steering well clear of me. I wonder what it is that they don’t want to tell me. I could crack on and watch a football match that I hadn’t quite finished the other day, and then I began to watch Rhydaman v Colwyn Bay.
That was a match that I was hoping to finish today, but I crashed out long before half-time, and so that was that. But my sleep didn’t last for long. Firstly, the “low blood pressure” alarm was going off constantly and at one stage it had dropped to a new world record low of 67. And that’s with a pressure booster too. God knows what it would be like without one.
And then, we had the needle failure. It didn’t actually fail completely, but the alarm was saying that the pressure was not reaching what it was supposed to be. The nurses suspected that there was a blood clot forming in the needle and they tried everything that they could to free it, but it was back again by the time the next check was performed – and so on after that.
In the end, there was no choice but to abandon the session, and so, ten minutes before the appropriate time, with a couple of hundred millilitres of excess fluid still on board, that was that. I was hoping that at least I’d be down to my relevant dry weight, but no such luck.
My nurse unplugged me quickly, which was good, but I had to wait ten minutes for my taxi to arrive. And once it arrived, we had to go to the taxi depot to change car and driver, and so all the time that I had gained over the course of the afternoon disappeared by the time that I returned home.
My cleaner helped me into the apartment, for which I was very pleased because I wouldn’t have done it on my own. She gave me a disgusting drink and then left me to it.
Once I’d managed to find the energy, I came back in here to write my notes and maybe watch some more of the football, but it didn’t work out like that. I could feel myself becoming more and more tired and more and more ill, and soon afterwards, I gave up the struggle and posted online what I had managed to write so far.
After that, I’m not quite sure what happened. However, at something like 23:00, I awoke, curled up comfortably in my chair, and how surprised was I? I didn’t even remember falling asleep. At that point I just slid over onto the bed and fell in. I hadn’t even switched off the computer, as I discovered later.
Silly me was thinking that I was so tired that I’d fall straight asleep, but unfortunately it took me a while, and that’s something I can’t understand at all, seeing how tired I was. But in the end, I managed to go to sleep, wishing that I’d gone to bed a darn sight earlier than this.
But before I go, seeing as we have been talking about Mercedes taxis … "well, one of us has" – ed … an old woman hopped into a Mercedes taxi. She looks at the Mercedes emblem on the bonnet and asks the driver "what’s that for"
"Well," said the driver, thinking that he can have some fun with this old lady. "that’s my sighting device. If I want to move a few pedestrians or cyclists out of my way, that’s what I use for sighting them. Watch!"
The driver swerves towards a pedestrian walking along the side of the road but at the last minute swerves away. However, he hears a loud “bang” from the back of his car.
"That sighting device of yours is rubbish" says the old lady. "We’d have missed him completely just then if I hadn’t got him with my door."