… showers might be back on the agenda at some point in the not-too-distant future.

The ergotherapist came around with a selection of useful gadgets and appliances for helping me and we managed to figure out something that I could adapt to help me into the bath and to stand up for a shower.

It’ll be a while until it arrives of course, because there are all kinds of hoops to jump through, and it’s a question first of awaiting her report and recommendations. That won’t be any time soon, I bet.

And then there’s also the question of whether I’ll be still here when it arrives. The way I felt today, that isn’t necessarily going to be the case.

It doesn’t seem to make any difference whether or not I go to bed early. Or whether I’m still fast asleep when the alarm goes off. Both of those situations took place through the night but the end result was still the same as usual – me flat out on my chair later on in the afternoon.

At least there was sparking water for my medication, flavoured with a dash of grape juice. And then back in here I had a listen to the dictaphone to find out where I’d been during the night. I was at home last night. I can’t remember what I was doing but all my brothers and sisters were slowly coming home from school. We were having the usual kinds of arguments. There was a dog there too, an old dog, probably one of the collies that we used to have as kids. She was there being quite quiet. When people came to the door they’d knock and wait until someone opened it which was very difficult for me being on crutches. Every time it happened I’d go and open the door and let in another sibling until one occasion when there was a knock on the door, I went to open it and it was my mother. She was there with 2 great big dogs. They came into the kitchen and began to jump up and down at me. I don’t like dogs at the best of times but when I’m on crutches and not very steady I don’t like them jumping up at me at all. This was something that I just couldn’t accept. I became rather angry. There was some mention at some point of one of the daughters of my niece who was there. She turned up in a Volkswagen saloon. Another one of my cousins on my father’s side asked “do you have one of these now?” in some kind of derogatory tone. She replied “yes. It’s a lovely car, especially when it has some power in it”. Apparently it also doubled as an autonomous standard lamp of table lamp that could be used to throw some light on whatever it was that you were working.

And then we were in the middle of Covid, the height of it and we were going to school in California somewhere. There were no school buses running so we had to walk. It was a long walk away. We set out to walk on this long grass verge, a couple of us, and slowly began to climb this embankment which led to a road that passed over the motorway When we reached the top and looked down, it was one of these 16-lane motorways. Of all the traffic going in one direction there wasn’t a single vehicle at all. Going in the other direction were all the cars in the world, all parked nose to tail and looked as if they hadn’t moved for weeks. We couldn’t understand the folly of these people who even in the middle of a pandemic had felt it necessary to go out in their car and just sit in a traffic queue as if things were back to normal. We carried on walking and came to the school. There weren’t very many people around but there were plenty of police officers there interrogating everyone about why they’d come. To us it seemed quite obvious that we’d come in order to attend our lessons

Later on I’d gone to night school. My partner, whoever she might have been, had gone too for her lesson. In our Welsh class there were only 3 of us there and no tutor so we just chatted amongst ourselves quite vaguely for a while, talking about the history of the group, how we were learning and how I was miles off the pace. I did my best to recount a long rambling conversation about how I once went from Brussels to Austria for a pizza and came back again the same night in the Opel. Afterwards when we came out I met my partner again. I asked her if she’d done anything exciting. She replied that she’d found a body. I asked her to repeat it. It turned out that they’d had to go into a dark recess of one of the storerooms in the school to look for some ink for something. While they were rummaging around in the back corner they came across the mummified remains of a new-born baby. It was probably there 40 years. You could see from the deformed skeleton that it had had a fall. There was very little hair on it which implied that it was new-born. She was wondering about it. To me it seemed quite obvious that some girl at the school had had a child without telling anyone and concealed the birth. It wouldn’t be the first time that that had happened. Later on, for some reason when the police came round to our house to take a statement they took me with them to go back to a clothes shop near the school which they said had something to do with the crime. I went with the policeman. He had a Volvo 740 estate, one of the flat square ones. He lifted up the bonnet to look for something . I had a look underneath it and saw how simple the layout was and how much room there was. I began to regret that I hadn’t had a couple of those on the taxis.

Finally I was with a boy from my class at school last night. He wasn’t anyone special and so i’ve no idea whey he would suddenly put in an appearance. Several weeks earlier I’d been to church with Marianne, a new modern church in the south part of the city centre of Brussels. It was a place that she’s wanted to visit before she died so I’d taken her there. Later, I decided for some reason to go again. That was when I met him. We walked down a road past a big brick-built church dating from probably the late Victorian period. There were a lot of roadworks outside. I explained to him that there was a statue of Jesus inside who was preaching to the congregation over a lake. The lake was actually a river of which the exit had been blocked. It looked to me as if they were freeing the exits so that the water could flow through the church and out the other side because of so many stories of Jesus preaching by running water. he wondered if that was the church to which we should be going but I explained that it wasn’t. We carried on walking. By now I had a young girl with me instead. She was asking questions about the church so I explained things to her. We eventually arrived just as the service was about to begin. I had STRAWBERRY MOOSE with me whom I was holding. The girl as soon as she saw from the top of the bank of seats the service starting she dashed to grab a seat with a spare one next to it so that I could sit down. There were some people whom we knew who were there who had 2 small girls. Of course the 2 girls were chatting to Strawberry Moose. Most of the women and girls were in bathing costumes It was something to do with blessing the swimming or something like that. I didn’t quite understand it at the time so many of the girls and women were in swimming costumes.

When Marianne was dying I did my best to take her to places that she wanted to visit but it wasn’t easy because her illness advanced so quickly. I sat by her side for 5 months and watched her die, and it was the most horrible thing that I could ever imagine. She was quite religious and her response to anything was “my Saviour will call me when he’s ready”. I’m not going to put anyone at all through that kind of torture, and the medical staff where I’m being treated know what to and when to do it.

It reminds me of a story about Sidney Smith, a Home Office pathologist who was giving a talk on this subject.
"If ever I begin to lose my faculties, my coherence and my dignity" he said "I’ve told my wife that she must “have an accident” while cleaning the shotgun"
"Blimey!" shouted a voice from the back of the hall. "She’s leaving it rather late, isn’t she?"

After my morning coffee and fruit bun I began the process of tidying up. There’s not much that I can do and it takes me forever to do it but I have to show willing.

It’s not as if I mind people seeing for themselves that I’m struggling to manage, especially someone whose job it it, but even I have my pride and my limits. However, as was said in Proverbs Chapter 16 Verse 18, "Pride goeth before destruction and a haughty spirit before a fall"

When the ergotherapist came round we ran through my routine about cooking, eating, working and all of that kind of thing and she didn’t have too many suggestions in that respect. It was the bathroom that drew most of her attention and we spent a lot of time in there working out a few things.

She did ask me if I wanted a raised seat in the WC and that is probably the most humiliating incident yet with this illness.

One thing that she wanted to do was to watch me make a pot of coffee, but I suspect that that didn’t have very much to do ergotherapy. She declined my biscuits though.

After she left I came in here I had a phone all to make to one of my neighbours, and then I crashed out definitively for quite some time. So much so that when I finally did awaken I felt absolutely dreadful. But once I’d finally come back round into the Land of the Living, I paired off the music for the next radio programme.

Tea tonight was a stuffed pepper with pasta and veg, just as nice as usual, and there’s plenty of stuffing left over for the next couple of days

Tomorrow I have the doctor coming around, the Welsh lesson (the last of the year) and then the Centre de Re-education in the afternoon. And right now, I have never ever felt less like it. I hope that I have a good sleep tonight.

It’s one of those things for which I have sore misgivings, and even worse, I have no ointment to rub on them.