Tag Archives: aggressive protein

Wednesday 27th July 2016 – WELL, I HAD …

… a pretty miserable night last night. Not as bad as some, I must admit, but I was still awake at 02:00, again at 04:00 and yet again at 06:00. And from there I dozed off into a beautiful, deep and comfortable sleep only to be awoken by the nursing staff at about 07:30. That was just so depressing

After breakfast, Doctor Hermione came to see me. The blood test that I had this morning shows that my blood count has gone down again. Not by a great deal apparently, but I really did think that I was starting to leave all of these problems behind me.

On top of that, the proteins are off again and my urine is jam-packed with them. No wonder my legs have started swelling again. It seems that they are starting to become concerned about this and they will in early course be involving the kidney department.

The infection that I have seems to be going down slowly although you wouldn’t think so given how I’m coughing and how my head is streaming.

All in all, the news is not so good and I’m becoming rather depressed by all of this. It’s not working out at all how I was hoping that it might.

To cheer myself up, I had a shower this morning. That made me feel a little (but not much) better. And then I went for my hour out of my room to the CAT scan, having been pumped up with about a litre of some kind of disgusting drink that is a “contrast” fluid to highlight what’s going on inside me for the benefit of the people interpreting the photos. They had a “Toshiba” scanner and I asked the man in charge. He told me that it was rubbish and they had only bought it on the insistence of a doctor there. If he had anything to do with anything, he would dump it and buy a Siemens – the hospital is big on Siemens stuff. We talked about the equipment of General Electric, one of my former employers, and he agreed that they were pretty good too.

One thing of note is that I explained that I didn’t speak Flemish too well. He replied “no problem” and pressed a switch on the dashboard that changed the automatic instructions to English. Could you imagine that in an British hospital – changing the default language to a foreign language to suit the patient. Britain First and the rest of its racist mates would have apoplexy, but it just goes to show how insular and narrow-minded most British people are.

So having had a nice little hour or so out, and a good chat, I came back here for lunch. And to my surprise, I managed to eat a good lunch too. Rice with string beans, spinach and leeks. First time that I’ve had a decent hot meal for well over a week.

This afternoon, I crashed out good and proper which is no surprise. What was a surprise is how hard the girl from Social Services found it to awaken me. It seems that Hermione the Doctor has been asking her about my living arrangements and so she came to interrogate me. I know that they are far from ideal but I really don’t have too many other options. I’m as dissatisfied as anyone else about them.

It’s still quite early at the moment but I don’t care. The bad night last night hasn’t done me much good at all and so I’m going to try to have an early night. I bet that I’ll drop off into a beautiful, deep sleep only to be awoken by some nurse wanting to take my temperature or something.

That’s not as bad as what happened to me when I was in hospital in 2003, where a nurse awoke me to make me take my sleeping pill.

I’m still trying to work that one out.

Wednesday 9th December 2015 – I’VE BEEN OUT …

… on my travels today – the first time since I came back from hospital last Friday.

In fact, I was out on my travels during the night too. I was working in an aeroplane hangar and one of the jobs that I had to do was to fit a new wheel and tyre on the undercarriage of ar aeroplane. In fact, the wheel bore a very great resemblance to the wheel and tyre that I fitted the other week on my wheelbarrow. And each time I fitted it, the air pressure went down and the tyre went flat. Eventually I had a good listen and I could hear the air escaping from a puncture in the inner tube. But like a good Civil Servant that I was, I’d been told to put this particular wheel and tyre on the aeroplane, and so I did. Fixing the puncture was obviously too much like hard work.
But from there we moved on a little and I was part of an undercover police force that was investigating the theft of a very dangerous chemical from this hangar. It was one that dissolved almost everything with which it came in contact (so how did they find a container in which to keep it?) and was on the Top Secret list. And as we were searching this hangar for clues, there was a man, badly eaten away by the acid and with bits of his body like his left thigh missing and with yellow skin, trying desperately to hide from our view underneath a 50-gallon oil drum that was lying on its side. But having failed in our search, we did however know that something had been posted to someone, put in a letter box somewhere. We were all crushed inside an old Ford Y van, a red Post Office van, and we were looking at all of the letters that had been collected from various letter boxes. All of a sudden, one particular letter caught my eye so I opened it. It was addressed to a cycle maker, and seemed to be some kind of coding in a five-letter group on an old blue order form. We sent a woman with the order form to give to the cycle maker to see what happened, which she did. And a couple of days later, she was called back and gived a brand new specially-made kids’ cycle painted green and white and she looked totally ridiculous on itn being a rather large woman. But we were no further forward and so we retired to plot our next move.

And this is when the alarm went off and I had to struggle to find the phone which, in the meantime, was waking everyone in the house. And I was thinking what another good sleep I’d just had.

After breakfast and the visit of the nurse to give me my injection, I had a shower and packed my bag and then Terry and I set off for Montlucon, stopping on the way at Pionsat for fuel and my order from the pharmacy.

At Montlucon we went to the hospital for my 11:00 appointment, which turned out to be about midday before I was seen.

The good news is that I don’t have leukaemia. The bad news is that I have a form of lymphoma. There are several types of this illness, some of which are quite aggressive and others not so. It seems that I have one of the lesser kinds. There is a whole range of reasons why this might have occurred, and one of these reasons is due to something to do with an aggressive protein, and my blood count shows that there is a protein that has gone off the scale in the blood count. It’s not the “usual suspect” in this respect, but nevertheless it merits further enquiries and so I’m due for further tests.

But as an aside, two points raise their ugly head. If it is a protein issue, there are not the facilities to treat it at Montlucon and so I will have to go elsewhere. It looks as if I’ll be on my travels again in the New Year. And in the second case, I seem to be full of ganglions. Not that they are dangerous apparently, but their presence has certainly been noted and in all kinds of places too.

On the way back we stopped for a late lunch and then went to Neris-les-Bains in search of chocolates for Liz because it’s her birthday today. After that, I went back home, for the first time for almost three weeks.

We’ve had plenty of sun, plenty of wind and plenty of excess solar energy, 694 amp-hours in just 19 days and that’s impressive for a period approaching the winter solstice. I also had a good rummage around and found a spare door lock, and I fitted that onto the front door so that it can be opened from the outside. This might come in handy if people other than me need access to the house.

I hung around here for a while too because, although it was cold, it was nice to be on my own for a while and relax in the relative comfort and security of my own surroundings. As Barry Hay once famously said on the beach at Scheveningen about 25 years ago “I tell you what man, it’s good to be back home”.

I started up Caliburn, threw some spare clothes, soya milk and vitamin B12 drink into the back and set off for Liz and Terry’s. First time Caliburn has had a run out for a while of course. And I mustn’t forget Strawberry Moose who has been invited to spend Christmas away from home.

As I drove back here, I remembered thinking “wouldn’t it be nice if the next round of tests were to reveal that I don’t need these twice-daily injections and the district nurse didn’t have to come round so often” and then I thought “blimmin’ ‘eck – it’s 19:00 and if I don’t put my foot down I’ll miss the nurse!” I had completely forgotten.

But I was back first and here I am at Liz and Terry’s. All ready for Round 2, and trying to work out a cunning plan about going home. I managed to take a huge load of wood upstairs to my attic without stopping, and that was certainly better than before I went to hospital, so things are looking up. I’ll see what my next couple of blood tests tell me and then I’ll make a decision.