… another day during which nothing seems to have gone right at all.
And we started as we meant to go on because When I eventually went to bed last night I couldn’t go to sleep and spent a very uncomfortable night watching the clock go round.
When I finally did go off to sleep, for some unaccountable reason that only my phone will know, it began to sound the alarm at every time that I have ever set an alarm call since I bought this phone in 2017.
So at 05:23, off it went ad infinitum until I realised what was going on, and switched everything off.
And then I must have gone to bed and left the fridge door open because there was ice everywhere all over the fridge and a large pool of water on the floor. So the morning’s task was to defrost the fridge and give it a good clean.
There was some medication in there that had to be kept cold but luckily I have an emergency system for that – a couple of thermal pouches and some small ice packs that live in the freezer.
The nurse came by this morning to give me my injection and to have a moan about having to take a blood sample. It’s true that it isn’t at all easy because I have small veins that move about, but I don’t like the idea any more than he does.
It’s actually rare that someone can take a blood sample from me first go. There was that famous time at Castle Anthrax several years ago when a more senior nurse managed it quickly and painlessly.
"What’s your secret?" I asked her out of curiosity
"In 1982 and 1984 I was Belgian ladies’ darts champion" she replied.
But the results are back already. The shots of last resort stuff seem to have done the trick and my blood count has risen to 9.4. Still a long way short of where it ought to be of course, a healthy person having between 13.5 and 15.0, but a lot higher than 7.3 which is below the critical limit.
But it’s done it at a hell of a price. Your blood viscosity should be between 40 and 50 units. Mine is 29.5
That means that my blood is as thin as water. If I cut myself, it comes streaming out and won’t clot.
And that’s embarrassing because the side effect of one of these medicines that I take is that it “irritates”. So if I remember, I have to smear it with cold cream. If I forget, I scratch it and it bleeds. And if it’s on my right leg where I have no feeling, it bleeds like a tap because I don’t notice and keep on scratching.
If things go on like this I’m going to start to have to wear clothes in bed because my sheets in the morning will look like a charnel house.
But as for the medication, I’m now up to 15 tablets per day and that’s a record. And some of them are monsters. Judging by the size and shape of a couple of them, I’m not even sure that I’m supposed to be taking them by the mouth.
By the looks of things, there are about three or four that I’m supposed to be taking for the illness that I have and the rest are to counter the side-effects of that three or four.
There was some stuff on the dictaphone from the night. Not much because it was a short night. I was driving something like an old 1924 Syracuse heading through the wilds of rural France when I came across something strange happening with a big Daimler driven by someone so I followed it for a while, keeping my distance. When it began to loiter around a set of crossroads I crossed over and went into a bar there, which was completely and utterly deserted, pretending to go to the bathroom. I had a quick look out of the window. Just then another car pulled up, a bottle-green Rolls Royce. I knew someone who owned a car like that and he wasn’t a very pleasant person so I flushed the bathroom and came out. I was sure that the Daimler had parked where I’d parked mine and I almost got into it. He had a couple of young girls and he was putting their coats on them etc. I apologised for getting into his car and got into mine. I thought to myself “maybe I ought to be thinking about an evening meal but in actual fact I’m not hungry. I’ll just drive until I find a suitable place where I can stop and lay my head down for the night.
When the alarm went off at 05:23 by mistake I was busy trying to add someone’s name to a database on the computer. I’d received some forms from someone and filled them in on-line and sent off but for some reason the image of the form had burnt onto the screen. Even with the computer switched off you could still see the burnt-on image. I was in a really bad mood about this. There were several blacklists around the internet so I tried to add this guy onto one but no matter how I tried, it kept on throwing me out. I was becoming really frustrated at this.
The taxi came in plenty of time and I headed off to the Centre de Re-education. Ophelie the ergotherapist and I had a good chat about things. She thinks that I ought to have more help at the apartment and while I’m not disagreeing with her, I can’t see how.
She thinks that I ought to be delegating more tasks but I told her that I didn’t know how I could, on any kind of regular basis.
"You need to make a list" she said. "For example, how often do you wash your clothes?"
"Whenever the basket is full"
"And when do you take down your clothes from the clothes airer?"
"When they are dry"
"Yes, I see the issue"
On many occasions I’ve been told that I “ought to be saving your strength for the battle that lies ahead” but as I said yesterday, I’m not the type of person who could sit back and wait for the inevitable to catch up with him. I’d much rather go out and meet it head-on.
Back here I had a few more spoonsful of Christmas cake and a mug of hot chocolate, and then took it easy until tea time – a stir- fry of rice, veg and some of those Chinese things, all sautéed in vegan butter and soy sauce. I’ll have to work out how to make these Chinese things when my supply runs out
Now that the meds are sorted, I’m off to bed. Tomorrow the new medication will begin and I’m not looking forward to it. A sudden jump from 10 tablets to 15 is nothing but bad news and tells me everything that I didn’t want to know about this illness.
Where will I be tomorrow after all of that?
