… when I said that I was feeling that my injections weren’t doing what they used to do?
You probably won’t believe this, but I promise you that it happened. But this afternoon I had a phone call from the hospital in Leuven.
“Over the last two weeks we’ve been examining your medical results from your last visit to the hospital. We’ve noticed several anomalies in the tests and so we want you to have your Aranesp injections every week instead of every fortnight starting from next Monday, and for your doctor at home to have blood tests taken every four weeks to control the results”
Things are obviously heating up around here now. So whatever will happen next?
Actually, I know what didn’t happen. And that was that it was today, not Thursday, that I should have had my appointment with the nerve specialist but I mixed up the dates. So I’ll have to contact him tomorrow too and rearrange the appointment.
It’s been one of those days where not all that much has gone right. For a start, I didn’t beat the alarm this morning. I’d had a late night but even so, it’s not very often that I sleep right through until the alarm. But at least, I awoke in bed rather than on top of it.
And then I couldn’t get going. It took an age to finally come round into the Land of the Living and start to prepare for my Welsh lesson.
And then we had a tragedy. The college at Mold doesn’t have much money so we’ve been making do with whatever on-line video conferencing has been available. And the one that we used until recently revoked all of the free licences so we had to go elsewhere.
The only free video-conferencing that they could find is one that’s very resource-hungry and it won’t run on any of the portable computers around here (there are, for various reasons, five of those that work at the moment, including the one that I bought in desperation in North Dakota in 2019).
However, luckily, ages ago I’d bought a cheap webcam so I had to configure all of that and run it off the big desktop machine, something that I didn’t want to do.
And then to configure a microphone to run directly off the computer because everything here usually runs through various mixer desks
In the end I missed half of the lesson with all of this messing around but at least it worked. And once the lesson was up and running it passed off quite well too.
This afternoon, sorting out a few things that I needed to do, I came across a football match that I’d missed from 2 years ago, Caernarfon Town v Barry Town in a Europa Cup playoff match. So despite everything else going on, I took a couple of hours off to watch it.
And in news that will surprise almost everyone (because it certainly surprised me) I carried on with what I started last week and did some more rearranging of the bedroom. It’s starting to look a bit more like home now, which is always nice.
After a good session on the guitars, I had a listen to the dictaphone. Despite being stark out during the night there was some stuff on there from a little voyage. There was some kind of case going on about a large company where there was some manipulation about to take place with the shareholding in respect of a battle over who had control. Whilst I didn’t fully understand the implications of what was happening, it all sounded extremely suspicious to me. When I was looking through some paperwork I found that the company had been brought to the attention of the authorities on another occasion in respect of something or other underhand and was undergoing investigation. I thought that I should make a report of this conversation and pass it through to whoever it was who was investigating it but as I couldn’t grasp the implications of it and couldn’t really understand much of what was taking place, it was very difficult to write a note. I thought that the more I keep it waiting while I make up my mind what to write, the more distant this is going to be and the more I’m going to forget. It’s not going to help anyone by me waiting for too long. I need to pull myself together and write something down immediately
After the ‘phone call from the hospital and missing my nerve specialist, the physiotherapist came round. He gave me a really good workout – the longest session that we have had so far and I was exhausted at the end of it.
Tea was a taco roll with rice and veg, but the cooking session isn’t over by any means. There’s not very much in the way of leftovers for a curry tomorrow night so as I have plenty of tofu and some lentils, I’ve set the slow cooker on the go.
The lentils are being cleaned right now and as soon as I’ve finished this, I’ll take them out of the slow cooker and rinse them, and then put them back in with the spinach-flavoured tofu that I have and a load of spices, and leave it all to marinade in the slow cooker until tomorrow evening
That should make a really good curry, and I do have to admit that I’m in the right kind of mood for one of those.
In fact, anything to distract me because I’m not very happy about the idea of doubling the dose of Aranesp. It’s the medicine of last resort and there’s a warning that it is “recommended for patients with chronic kidney failure or cancer to use the lowest possible dose”.
Over the last year or so I’ve gone from 20mg a week to 60mg a week to keep me going and I’m not sure where you can go after all of this.