Tag Archives: kidney

Friday 24th January 2020 – THAT ISN’T …

… the news that I was hoping to hear. Not at all.

My blood count is down to 8.8 – something that will not surprise any regular readers of this rubbish because they will recall that I’ve been mentioning over the last couple of weeks the fact that I’ve not been feeling myself … “just as well” – ed.

Worse though is the fact that my kidneys are now playing up again. They want me to see a kidney specialist the next time that I come.

It looks as if I’m starting to break up. But that was something that was always on the cards. People start to die of this illness after 5 years, and although I was diagnosed with it only 4.25 years ago, there’s no telling how long I had been suffering before I was taken to hospital.

Last night, despite the comfortable bed, I had a very mixed sleep. Tossing and turning around, waking up, all of that. There had been time to go on a voyage or two though.

We started off on The Good Ship Ve … errr … Ocean Endeavour again and we were all having to get off to go for a coach drive. There were crowds of people in this square waiting for the buses and there was a lot going on. Some people who we were with decided that they weren’t going to do as they had other things that they really wanted to do. Anyway it was to see the statue of Sir John Slessor . They asked me if I knew anything about Sir John Slessor. I said “yes, he was an Anglo-Irish guy who was associated with Polar Exploration at one time”. I told a bit about a story but I can’t remember the bit now. There were crowds of people milling around and someone came up to me and asked me if we were going on a train. I said “no, we’re going on a bus”. Someone else asked the same question. There were loads and loads of Arab kids around and every time that I got up to go somewhere they would sit at my seat and I would have to go and grab my seat back again from him. We were sitting there waiting for these buses to come. I had some rare church relics with me – a box of something and a china – porcelain cross, white with blue edgings and I was afraid that one of these days I was going to break these, the way that I’m picking them up and putting them down. I can’t remember who I was with now but I was with some woman or other on this trip.
Later on, I was at the radio and I’d interviewed a rock band. It was an interview that I had done by chance with no plan in mind and I’d had a call or something for one of these programmes so I sent them that.

The alarm went off as usual and I was out of bed before the third alarm which is good news. And after the medication and breakfast, seeing as my appointment isn’t until 13:30, I attacked some radio stuff.

Not one project, but in fact two. The music for the first one is chosen (except the last track of course) and I’ve chosen half for the second one. I may as well use my free time here profitably.

new fence condo gardens windmolenveldstraat leuven belgium eric hallThere was a break while I went to the Spar shop for some bread.

At the back of the Condo Gardens here in the Windmolenveldstraat it doesn’t look good at all – or at least, it didn’t. But it seems that they are making a concerted effort to tidy it up so that it looks pretty.

The new fence looks really nice – and what a pity some low-life character has decided to leave his mark on it. That’s the kind of thing that makes me quite fed up.

laying tactile paving tiensestraat leuven belgium eric hallA little further on down the Tiensestraat there are some exciting signs of activity.

They are using a stone-cutter to slice huge chunks out of the pavement and they are installing tactile pavement right by where the kerb drops are for the pedestrian crossings.

As an aside, I once had a female friend who worked for the Royal National Institute for the Blind and she reckoned that she had some of the responsibility for introducing tactile pavement into the UK.

Back here, I made myself a butty or two and round about 12:00 I headed off up town.

old cars lotus 7 tiensestraat leuven belgium eric hallStraight away, back in the Tiensestraat, I was interrupted by an old car.

We haven’t seen an old car in a while so I reckoned that I had better photograph it. According to the badge, it’s a Lotus 7, and according to its front number plate, it was registered in 1965.

But these are things that you can’t take for granted. Many Lotus 7s were sold in home-assembly kits and there were several other clones doing the rounds too. So you accept with care the “evidence” of the badge.

open air market friday herbert hooverplein leuven belgium eric hallThere’s the little open-air fruit and veg market today in the Herbert Hooverplein.

That was my immediate destination as I wanted an apple and a pear to take to the hospital with me. But having waited for about a week while the assistants served a couple of the slowest customers that I’ve ever seen, I rather lost patience.

Yes, I gave it up as a bad job and abandoned my prospective purchases and carried on the the hospital.

sint pieter hospital brusselsestraat leuven belgium eric hallRegular readers of the rubbish will recall what I’m going to be discussing next because we’ve been keeping an eye on these.

We’ve looked at the Hospital Sint Pieter here in the Brusselsestraat. It was built for the French community here in Leuven apparently but they left to go to Louvain-le-Neuve.

This became a huge white elephant and was never ever used to its potential. The respite care was here and so were the guest rooms, where I stayed for a while when I first came to Leuven.

Now it’s empty and they have made a start in demolishing it.

rebuilding car park sint jacobsplein leuven belgium eric hallWe’ve also seen the big hole in the car park in the Sint Jacobsplein.

As to what they were doing with this hole, I really have no idea. And I don’t suppose that I shall ever find out either because by the looks of things they are now filling it back in again.

Had I come by here two weeks ago when I should have been at the hospital, I might have noticed. Anyway, it will probably be fully restored the next time that I come.

building new sewers Monseigneur van Waeyenberghlaan leuven belgium eric hallThis is something that we haven’t seen before.

The road by the traffic lights in the Monseigneur van Waeyenberghlaan is closed off and they have been digging up the road right here. It looks as if they are doing something to the drains and sewers but I’ve no idea what.

It does make me wonder if it is connected in some way to the hole that they dug in the St Jacobsplein car park. That would make a lot of sense I suppose.

rebuilding apartments Monseigneur van Waeyenberghlaan leuven belgium eric hallThe final thing of note is also in the Monseigneur van Waeyenberghlaan.

Regular readers of this rubbish will recall that sometime last year they completely gutted this block of flats – stripped it right back to the bare concrete. They now seem to be well-advanced with the renovation, and there was a lorry delivering a load of insulation.

The ground floor has been done out into shops so I’ll be interested to see who moves into them when they are ready.

At the hospital they are giving me yet another new treatment. Something called IQYMUNE which, according to Helena, is the bee’s knees. So we shall see.

And it had better be too if it’s to arrest this sudden decline.

Most of the time that I spent here, I was asleep. And it took the doctor an age to awaken me when he needed to talk to me about my kidneys.

My butties had unfortunately disintegrated inside my bag so I ate what I reasonably could, and then spent 15 minutes in the toilet on the way out cleaning bits of tomato, lettuce and hummus from the inside of my rucksack. What a mess!

On the way home I didn’t loiter. Just picked up my fruit and a tin of lentils from the Delhaize and came straight back. One of the side effects of this new medical stuff is “fatigue” and if I don’t have enough problems with that already!

Tea was the second burger with pasta, tomato sauce and vegetables. Followed by peach halves and mango sorbet. Totally delicious, it was too.

And then the football. Rhydaman v Caernarfon Town.

Rhydaman had comfortably disposed of Carmarthen away in the previous round and while Caernarfon are a different proposition to Carmarthen, the home advantage should normally count for something. Especially when I saw just how packed the ground was.

But Carmarthen were undone by four magic moments of Trundlemania and when we saw that Lee Trundle wasn’t playing tonight, then any advantage evaporated.

The game was littered with errors from start to finish and Caernarfon will have to improve dramatically and work on these silly mistakes if they want to push on into Europe. But even so, they had more in the tank than Rhydaman did.

They were 2-0 up by half-time and later in the game when Rhydaman tired, Caernarforn went on the rampage and scored 2 more, exactly as I had predicted to Johan Gallon in my interview with him a few days ago. Not even the introduction of the veteran Andy Robinson by Rhydaman could turn the game around.

Anyway, as this medication is responsible for fatigue and tiredness, I’d better hurry up and finish this before I …

ZZZZZZZ.

Monday 27th February 2017 – NOW THAT’S WHAT I CALL …

… the Sleep of the Dead!

By about 21:30 I was totally out of it, what with all of my exertions over the weekend and my late night on Saturday. And with a hectic 10 days to come, there’s no point in pushing out the boundaries so I hit the sack. I vaguely remember at about 23:30 waking up to switch off the laptop, and that was absolutely that until the alarm went off at 07:00.

Totally painless, and I felt so much better for it.

I had company a breakfast – one of these Obsessive Compulsive Disorder people who spent 10 minutes washing a mug, and then 10 minutes washing a glass – that type of person. And then, inexplicably, he left his dirty knife in the sink – and told me not to wash it as he would do it later. Not that I was intending to of course – each to his own around here – but it was such a strange thing to do given how much time he had spent washing the rest of his stuff.

Hospital came next – and I had to get a move on because Bane of Britain had taken his hospital folder down to Caliburn last night and he needed it up there. It’s all keeping me fit anyway. And up there, the nurse who fitted my catheter into my catheter port did so with such skill and dexterity that I didn’t even realise that she had done it and taken the blood sample.

This led to the following fantastic exchange –
Our Hero – “you know, I’m so impressed. You did that so gently that I didn’t even realise it”
Nurse – “I was Belgian Ladies’ national darts champion in 1984 and 1986”

I had to wait ages to see the doctor, but in the meantime I saw Kaatje, my Social Welfare worker and Ingrid, the trick cyclist. Ingrid managed to wangle me a visit to see the Professor who is handling my case, and Kaatje conformed that absolutely everything is up-to-date as far as payments go, and she’ll find all of the required information that I need for my insurance by next week (I shall be passing by).

As far as my health goes, the news isn’t quite so good. Blood count is down, to 10.3 and I’m not very happy about that. The protein loss is stable, but it’s still way too high as we all know.

But the professor didn’t give me much encouragement. I have renal failure – well, we’ve all guessed that with the protein loss didn’t we, so no surprise there. But I have a rare disease as you all know and according to the Professor, “it’s not responding like it should”.

She thinks that moving house is a good idea, because hauling wood and water is not such a good idea, but as to whether I need to go into a care home, rent a property or buy something else, she recommends renting. Apparently I’m
well enough right now that I don’t need a care home, but if I rent somewhere rather than buying it, I can escape from that commitment much easier than a purchased accommodation. She can’t say whether I’m good for &5 years, or good for 10 years, and when you add up all of that, it doesn’t sound too healthy, does it?

On the way back, I went to buy some bread for lunch, and had a goodbye kiss from the girl in the supermarket on the corner. That cheered me up no end, I’ll say!

After lunch, I carried on packing and moving stuff down to Caliburn. But I had a brief moment of distraction ringing up my bank. There’s an “issue” with a payment on my account, for no reason whatsoever, and it’s the monthly payment that i need to make to my Storage company in Montreal – the ones with whom I’ve had all of these issues just now.

“Unusual spending patterns” is the issue so I phoned them up – with a French mobile from Belgium to the UK, explained this to the girl on the phone, who promptly put me on hold for 8 minutes. By the time that I was reconnected I was steaming. The discussion that we had was … errr … rather heated, and in the end they put the phone down on me before I had quite finished telling them exactly what I thought of them and their bank.

But at least the payment has been made and I hope that this will be the last of it. But I’ml getting rather sick of it all.

For tea I had sausage, mash and frozen veg for tea, followed by vegan ice-cream and peach halves. That’s most of my food from here finished, and whatever is left is left.

Another four loads of stuff down to Caliburn, and I even found time to go for a coffee with Sean, the guy who used to live here. I quite enjoy his company, until he starts on about the EU. He really has a bee in his bonnet about it and he isn’t ever going to change my opinion, so I don’t know why he wants to start a discussion about it – unless it’s something to do with the two or three beers I suppose.

And I had a weird experience on the way back. Some French van with three men in it, were stopping at each girl that they saw in the Kapucijnenvoer and asking them a question. It didn’t seem quite right to me, especially when they almost stopped at the same girl twice, realised that it was she and drove off rapidly. I’ve taken the vehicle the registration number of the van just in case, because I can smell a rat from here, never mind from there.

Ad so now I’m totally exhausted, so I’m just about to go off to bed. My last ever night here in this hostel (I hope) and I’m exhausted. I’ve had a really busy day and I need to relax.

Let’s hope that the weather improves.

Thursday 27th October 2016 – THIS WAS NOT WHAT I WANTED

I went to hospital this afternoon for my tests. I had the usual catheter fitted and blood sample taken. And then I had to wait.

My blood pressure is up again and my legs are starting to swell up. That’s a couple of things to worry about, but the lymph nodes that have bedevilled me – the doctor can’t find them. If they really have gone, that will be the best news that I’ve had for ages.

I had an echograph this afternoon and my kidneys appear to be quite normal as far as their make-up goes, but there is still a problem in that according to the urine sample that I gave, the protein loss from my body is accelerating.

But the worst news is about my blood count. That’s now down to 10.0, a loss of 9% over the last two weeks. Considering that while I was away in Canada for – weeks, then over that period of time I lost 10% of my count – that’s about a third of the current rate of loss.

That is causing them a considerable amount of concern and so the upshot is that I have to come back … next Thursday!

Yes, just one week, and that’s not even enough time for me to go home and come back again. How I hate all of this. But at least my little room in the hostel hasn’t been taken so I’ve moved back in and I’ll stay here. But what I’m going to do next if i’m on weekly visits I have no idea.

I had a difficult night last night – it took me hours to drop off. And then I had a very disturbed sleep. I was off on my travels too but as usual I forgot absolutely everything as soon as I awoke.

After breakfast I tidied up my room and then had a good shower and a change of clothes. And once I’d organised myself I went off to fetch Caliburn to load him up with the stuff from here. And I nearly squidged a cyclist who rode straight out of a side street without even a pretence at a glance at oncoming traffic.

I sat in the lounge here until it was appointment time and then walked up to the hospital for my appointment with destiny. 14:15 was the time of my appointment, and I was seen at … errr … 14:10. A far cry from the situation in the UK
“I needed an urgent appointment, and the hospital has made a special effort to fit me in. They are going to see me at 20:20”
“You mean at twenty past eight in the evening?”
“No – I mean in four years time”
Such is life with the British Health Service.

And I made all of 20 yards down the corridor on the way home with my catheter today. I’m improving.

And now I’m having an early night. I’m exhausted.

And fed up too.

Monday 13th June 2016 – IT’S NOT VERY GOOD NEWS!

No, I had the results of the two samples that were taken from me the other week.

The first bit concerns the bone marrow. Whilst it’s true to say that the lymphona hasn’t spread into my bone marrow, the fact is that the bone marrow itself is quite fragile and as a result they won’t be giving me any more chemotherapy. This is because the marrow is quite fragile and they fear that the chemotherapy may damage it.

The second thing is, if anything, even worse. And that is that my illness has spread to my kidneys and that is what is the matter with them.

I don’t know if the situation is dangerous or not – I didn’t ask. What I do know is that they are going to have a meeting on Wednesday to discuss a course of treatment and I have been summoned for next Monday to a meeting to find out what will be the plan. All that I can say is that I don’t like the sound of this at all.

I had a difficult night’s sleep again, awake quite early and having a trip or two down the corridor. When the alarm went off at 07:15 I was awake but it still took me a good few minutes to leave the comfort and safety of my nice warm bed. After breakfast I packed everything away and even found time for a shower, then paid up for my stay and hit the road.

It was pelting down with rain this morning and traffic queues everywhere. However I made an executive decision (an executive decision being, for the benefit of new readers of this rubbish, a decision that if it happens to go wrong, the person making the decision is executed) to follow the signs for the motorway once I reached Korbeek-Lo and that was a much better idea. There was heavy traffic on that road but it was all turning off to the various business parks down there and it didn’t take long to hit the motorway. And once on the motorway it took me a mere 10 minutes to reach the hospital by going right round the city and onto the campus from the rear. I was there half an hour early.

A couple of doctors, one of whom was the girl whom I normally see and the second one was the urologist – she who gave me the bad news – came to see me. That wasn’t all that she gave me either because she ordered an injection for me – one that would help purge me of excess water. And I’ll tell you what – that worked in spades and made me feel so much better.

The Social Welfare girl came to see me too. We discussed my accommodation situation and she’s going to make further enquiries for me. Mind you, although she’s given me a great deal of moral support she hasn’t really gome up with too much in the way of practical help. But then again, I don’t suppose she encounters too many people who have my kind of problems.

They gave me a blood test too, and my blood has dropped down to 7.6. That of course meant a blood transfusion and I had two pochettes of blood. What with all of that, it was nearly 19:00 when I left the hospital. I had a walk down into town and stopped off at a fritkot for a falafel butty and chips for tea – all for €5:50.

And then it was back here to my new home for my first night.

There’s no internet (there’s a student.net site but of course I don’t have a password for it) and there’s a leak around rthe edge of the roof light.

As I said yesterday, I’m glad that I’m only spending a couple of weeks here.